This seems very appropriate as it’s 5:30am and I’ve still not been to sleep yet. Oramorph isn’t touching the pain today it seems 🙄😒💜 #fibromyalgia #chronicfatiguesyndrome #chronicillness #chronicpain #raynaudsdisease #depression #anxiety #illness #spo#spoonielife #invisibleillness #fibrowarrior #spoonie #chronicallyill #keepfighting #insomnia #needmorespoons
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❤️❤️❤️
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I don’t think I can count the number of times I have been told these. From doctors, nurses, co workers, friends, those who were once closests to me, etc. Anyone else? There is such a loss of knowledge and awareness of invisible illnesses! Yes, they can even be debilitating at a very young age! I know many times it comes from a kind heart but it still hurts mine a bit, and sometimes even more than a bit. Have you ever heard these? How did you respond? #postorthostatictachycardiasyndrome #lowbloodpressure #pot#potsrome #pots #fib#fibromyalgia #fibro #paindayallday #dysautonomia #chronicpain #chronicillness #invisibleillness #searchingfordiagnosis #chronicfatiguesyndrome #cfs #digestivenonsense #allergiestoall #idiopathicanaphylaxis #seizures #hypermobilejoints #hypoglycemic #GodisStillGood #choosingjoy #chronicallyfightingforjoy #spo#spoonielife #spoonie #zebra
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{ID: A text post that reads "asking for straight pride is like asking for abled bodied parking spaces." Someone replies and says "that's a really good comparison because there are about seventy abled bodied parking spaces to one disabled and abled bodied people still insist on using ones that aren't theirs." The last reply says "This is seriously a great post."} ☄Seven . #activism #feminism #adhd #disability #ableism #mentalhealth #downwithableism #deafness #humanrights #hearingloss #deafawareness #safeplace #blindisbeautiful #everyoneisbeautiful #support #dwarfism #positivity #autism #chronic #spoonie #disabledandproud #hardofhearing #disabledandcute
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Lately when people have asked how I’m doing, I’ve been answering with, “lots of things.” At times it feels ambiguous or evasive, but “pretty good” just wasn’t accurate. And well.. I’m feeling lots of things. I’ve been feeling the joy of belonging of new vanlife friends, I’m enjoying the beauty of nature in its grandeur. I’m feeling an unexpected pain in my left shoulder and a fatigue of unknown origin. I’m feeling the deep longing for partnership, and a desire for sexual connection. And overwhelmed designing my solar system, which then means designing a custom roof rack and anticipating future needs and flexibility. — Lots of things. . It’s always been hard for me to summarize my experience into a socially acceptable sound bite. Generally I’m kind of over it. Life is rain on one side and beauty on another. All of it, together in its calamitous variety is the wonder of nature and the human experience. So.. Don’t forget to look both ways. ☔️🚐⛰🌅 . . . . #spoonie #road2healing #mecfs #chronicillness #invisibleillness #disability #chr#chronicfatiguerome #chronicfatigue #POTS #dysautonomia #millionsmissing . #vanlife #vanlifediaries #campervans #vanlifer #vagabond #dirtbagdiaries #homeiswhereyouparkit #optoutside #getoutside #adventure
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Back to keto day 1, meal 2! We had family dinner/BBQ at my in laws today, thankfully I took my broccoli chicken salad with me. I attempted to have a hot dog with some queso, but honestly, it wasn't very good lol. I ate about half of one hot dog. . . #broccoli #broccolisalad #chickensalad #hotdog #queso #keto #glutenfree #lowcarb #losingweight #foodie #aut#autoimmunediseasesucks #mombod #ra #autoimmunedisease #homeschool #momoffour #celiacdisease #rheumatoidarthritis #IBS #spoonie #pco#pcosweightloss #pcos #fibromyalgia #chronicpain #art#arthritissucks #arthritis #transformation #ketowithme #ginnisgettingskinny
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okay guys. I’m sure you’re sick of hearing about this by now because everyone keeps posting about it, but there are many diabetics out there that don’t know what glucagon is, how to use it, or how important it is to carry on you. glucagon is a hormone that signals to the liver to release glucose if you’re experiencing a life-threatening low. it really should only be used by someone else and only if you’re unable to ingest glucose orally. for me, knowing that i have glucagon on me and making sure that someone around me knows how to use it gives me that little bit of peace of mind that can really reduce stress in my life—particularly for special events such as concerts, shows, etc. to use: remove the caps from the needle and the vial, inject the fluid from the syringe into the vial, roll the vial between your hands (don’t shake) to mix the solution together. draw the fluid back into the syringe and inject into a muscle (like the quad). i definitely recommend teaching a couple of people you regularly spend time with on how to use this life saving fluid. side note: currently livid because mcdonalds randomly closed because of a system update after I’d already prebolused. Drove off to sonic and it was closed and we had no way of knowing until we’d waited for a while for an employee to come out and tell us. Finally ordered at whataburger but still waiting on the food and stressing about a potential low... 😅
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What a Sunday..... After coming home last night from the float trip yesterday, I knew I was going to have a rough night.... I ended up have a Mast Cell reaction when I came home. I took my medications and it helped stop the full reaction. But after laying in bed for a few hours I started throwing up (tmi I know), but I tried to talk it up to sun poisioning. I took all my nausea medications, it helped me fall asleep. I laid around all day and rested after yesterday, I needed it. But around 6, I started to have a reaction, so I dosed with premeds and hoped for the best. I wasn't getting better, so I went to the er. After handing them my Mast Cell protocol, they took one look at it and said they were not going to do all of that. Mind you, I have a document signed by my Mast Cell specialist, on what they are suppose to do, the NP took one look and said with her best medical judgement, she was just gonna do the steriod shot. I was so mad. But they gave me my shot and sent me out of the door. Hopefully it helps even though, I know it won't. I should have advocated for myself, but I didn't. I'm disappointed with that hospital and with myself. #advocate #advocateforyourself #standupforyourself #butdontpassout #butyoudontlooksick #annoyed #carelessdoctors #somad #disappointedinmyself #chronicillness #chronicillnessawareness #chronicillnesswarrior #spoonie #mastcellprotocol #mastcellactivationdisorder #posturalorthostatictachycardiasyndrome #elhersdanlossyndrome #eds #potssyndrome #mcas #mcad
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