These 2 photo's are so different, but they are both the face of ME/CFS and Fibromyalgia. They show how quickly things can change for us and we can go from seemingly ok to being in a world of pain and fatigue. The second pic >>>>> is what I looked like all weekend. I missed meeting my friends for coffee who I havent seen for a while as I wasnt well enough to go and was in bed all day Saturday, and Sunday, I watched England in the World Cup from my bed between naps whilst my family enjoyed it in the sun having a drink. The first pic was today. Waking up feeling fresh and pain free on a Monday morning is such a rarity these days but it happened today! We went to our local park for a stroll with lots of bench breaks. I look normal and healthy. But fast forward an hour when we were picking up some shopping and my back was spasming causing my left leg to shake uncontrollably, I was exhausted and brain fog was kicking in :/ I hate how my illnesses are so up and down. Its one of the things I struggle most with, never knowing how I will feel day to day, or even hour to hour. But, I'm smiling through it and feeling happy as I got to see baby ducks! 😂
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Strawberries fresh from my garden. I've not been able to manage to grow loads this year even though all the space we have now makes me want to grow everything but I don't have the energy to keep up! I've got strawberries and herbs on the patio with various plants we fetched with us when we moved, peas at the bottom of the garden with makeshift frames I made. Then down my drive I've got more herbs, a celery I'm growing from the bottom of an old one (just wanted to see if it worked), loads of potatoes that are just recovering from having their leaves all burnt off in a storm last week. Then there's kale, courgettes, carrots, beetroot, spring onions and tomatoes (that also fell down in the wind and needing caning!) I'm hoping to have a better plan next year and make some use of our garden space. It's mostly lawn but we want to dig borders and we've left one part to grow as a meadow/wildflower patch, so I want to put some seeds in there ready for next summer before the grass takes over.
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Thank you @myillnessmythoughts ! It’s very tempting to blame yourself for what happened to you. I’ve been beating myself up for not being able to get better or do what I want to do for years. I’m learning that continually criticising yourself is NOT how you get better. It is NOT your fault. It is NOT my fault. It is something that happens to us. We can’t move on unless we accept it first. So please, accept that it is not your fault 🤗 Accept that we need to help ourselves. I wouldn’t blame you, so why should you? #chronicillness #chronicillnesswarrior #mecfs #cfs #chronicfatigue #chronicfatiguesyndrome #myalgicencephalomyelitis #pot#potsrome #pots #potsie #recovery #anorexiarecovery #bulimiarecovery #edrecovery #ednosrecovery #fibromyalgia #fibromyalgiaawareness #fibromyalgiawarrior #depression #anxiety #illness #sick #nourishing #nourishtoflourish #nourishnotpunish #mindfulness #spoonie #spoonielife #spoonieproblems
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I love these pictures I got of my parents in our garden with the boys yesterday. First of all it's rare they're off their Play Stations and secondly I was actually able to take pictures of them (obviously talking about the boys, not my parents lol 😂) #family #myboys #grandparents #grandsons #teenagers #Summer #sunnydays #fun #Fibromyalgia #fibrolife #fibrowarrior #myalgicencephalomyelitis #mecfs #millionsmissing #spoonie #spoonielife #spooniesupport #anxiety #depression #positivity #spreadingawareness
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Absolutely gutted I had to miss @teddysphotos last month due to my worst #ME<#ME flare up to date but at least I was able to see @katyperry last week even though I’m paying for it now #KatyPerry #witnesstour #echoarena #iphone #iphone6s #pho#photography #fineart #fineartstudent #univeristy #artist #artoftheday #photograph #concert #ME #myalgicencephalomyelitis #badflareup #edsheeran #guttedtomissedconcert
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🙏🏼🙏🏼🙏🏼 Weekly weigh in. -2lbs!! 💙 Not as much as I wanted but that’s ok. I can’t exercise or do weights or anything so all things considered, I’m doing well. Let’s see what next Monday says, too! Stay strong. Nourish your body, don’t punish it. - #positivevibes #bingeeatingdisorderrecovery #healthyeating #bingeeatingrecovery #chronicpain #chronicillness #myalgicencephalomyelitis #mecfs #weightloss #vlcd #weightlossjourney #selfcare #selflove #selfrespect #idothisforme #loveyourself #bedrecovery #spoonie #chronicillnesswarrior
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