#epi#epilepsyawareness brought to you by #teammadison just to update new followers this is my daughter Madison she has had infantile spasms or they also call it West syndrome since she was 8 to 9 months Old she is now 11 years old some of the babies do not make it 😥 this is a rare form of epilepsy it affects fewer than six babies out of 10,000 most babies get it before they are a year old these seizures come in clusters they only last a few seconds but they can have as many as 150 seizures in A cluster and some babies can have up to 60 clusters a day. They also come with major side effects like developmental delays Madison does not walk or talk she has been improving over the years she couldn’t even sit up by herself in the beginning we also had to put thicket in her drinks or she would choke we couldn’t make her laugh or she would have a seizure 😢 this went on for a year 😪 now she can eat finger foods and say some words this is one of the main reasons I support and love #jinxproofgenetics besides the fact that all their genetics are 🔥🔥🔥 The iPads and program that Northwestern families for autism Funds helps children like Madison talk @_ji@_jinxproof and @mis@mis@missroseiam are to me the coolest people in the industry if you would like to donate definitely link in through @missroseiam bio and donate through PayPal it is a life-changing thing for the children and the parents we hope you all have a awesome night much love and respect from my family to yours @_jinxproof @jinxproofgenetics @missroseiam @keylowclub @adhesivefarms #siriushappinesss #family #thankful #people #friends #sister #brother #hippie #stoner #epic #weed #hemp #cbd #dank #frost #fiyah #chronic #bombbay #notill #livingsoil #organic #ffj #fpj #hightimes #epilepsyawareness 💦☔️🙌
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Today in the world of Isaac... We started the day pretty well. We managed to get through our morning routine and a school tour before our first seizure of the day. By 11am Isaac required rescue medication. I pulled over in the superstore parking lot and got Isaac out of his car seat, administering his medication on the ground. By 1230pm we were in emerg as we had seen another two serious seizures and Isaac just wasn’t recovering. Another seizure in emerg and we ended up with a fospheny load. As the team was attempting to start Isaac’s IV he had another seizure. Finally we got the meds in and we got Isaac home. He has had one seizure since the fosphenytoin and is currently resting. Tomorrow is SLP and Wednesday we have an ultrasound and blood work. Fingers crossed we have some recovery time coming our way. #ach#ach #ach #albertachildrenshospital #poach #poachlife #specialneedsmom #epilepsy #epilepsymom #epilepsyawareness #epilepsylife #epilepsysucks #epilepsyfighter #epilepsywarrior #epilepsystrong #epilepsysurvivor #epilepsylivesmatter #fuckepilepsy #seizure #seizuressuck #neurokids #neurology #neuroscience #mysweetestboy #justkeepswimming
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Today I was bummed out sitting in my neurologist office after a hectic day at work. When I opened my Instagram account I saw that @syadventurers had published my story. http://seizeyouradventure.com/2018/06/17/marathon-for-mom/ - When I saw my story I teared up. It was only 76 days ago that I weighed 90 pounds, my seizures were crazy, I was looking for a job, and I didn’t know how things would turn out. Today, I can say I am on a healing journey, I am going to get better and better everyday. The best part is I love myself the way I am today, not the person I am working toward. - #loveyourself #epilepsy #warrior #healingjourney #biohacking #ketogenic #epilepsyawareness #triumphant #victory #blessed #freedom #extrashotofadventure
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👕 Order Now ➤ Click Link in Bio ➤ @epilepsy_awareness_clothing _➦ Other Colors and Styles available! _➦ TAG someone who'll love this! ❤ ❤ ❤ ______________________________________________ #epilepsy #epilepsyawareness #epilepsywarrior #epilepsysucks #epilepsyawarenessmonth
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Last year, this guy spent time ver a week here in Winnipeg so I wouldn’t be alone during my stay in the hospital for my video monitoring unit. This is the only person who has ever managed to catch me during a seizure. Happy Father’s Day, Dad! #epilepsyawareness
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As much as I want to say..."I'm fine!" Just you watch me GO! Truth is some days are more difficult, but it only makes me more determined. There are some things, that some of us will battle, forever. Do not take your brain for granted Instagram. #epilepsyawareness #tbi #survivor
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