Whats your tea game like? Lol My go to tea mix. 😁💓🍃🔱 lavendar&camomile, Ginger, echinacea, and a berry detox. This helps with my inflammation, pcos, cysts and fluid through out my body, immune system, digestion, and anxiety. See I use herbs other than cannabis. Lol 🙂 I love my tea box. #organic #spoonie #spoonielife #spooniecommunity #tea #yogitea #traditionalmadicinals #holisticliving #raynauds #Erythromelalgia #pco#pcos #echinacea #ginger #lavendar #chamomile #holistichealth #painrelief #anxietyrelief #inspire #motivate #pcos #cysts #chronicallyill #fighter (I don't care what you think of my hash tags 🙂)
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New Video! 💚💚💚LINK IN MY BIO💚💚💚 In today’s video I talk about why you need to watch Unrest- the film my Jennifer Brea about Chronic Fatigue Syndrome. This is one of the most impactful films I have ever watched. Hopefully this film will change the way people view chronic illness, invisible illnesses and disability. Please be sure to give it a thumbs up and subscribe if you’re new! 💖✌🏻 #ChronicLyme #LymeDisease #ChronicPain #ChronicFatigueSyndrome #CFSME #Fib#Fibrogia #Fibro #ChronicIllness #ChronicallyIll #InvisibleIllness #invisibleillnessawareness #Disabled #Disability #Spoonie #Lymie #ChronicLife #LymeWarrior #LymeDontKillMyVibe #ChronicPainWarrior #SpoonieCommunity #myphotos
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I slept for twelve hours last night... and it wasn’t good sleep. I started packing for my trip to Pennsylvania; I leave Tuesday, but jeez... I really want to start feeling at least a little better before I get on a germ infested plane. 😅 • • • • • #stayweird #autoimmunedisease #doilooksickyet #eosinophilicesophagitis #eoe #GERD #foodallergies #fibromyalgia #migraines #spoonie #spooniecommunity #chronicloveclub #staypositive #itired #yourenotalone #ijustwanttosleep #twelvehoursofsleep #sleeptillyourebetter #germinfested
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Leggings are life.
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This little cutie screamed his adorable little face off while waiting for me to feed him his tuna 🐟🐾 •• I was exhausted and felt awful all day. Hopefully I’ll feel better tomorrow 💚✌🏻 #ChronicLyme #LymeDisease #ChronicPain #ChronicFatigueSyndrome #CFSME #Fib#Fibrogia #Fibro #ChronicIllness #ChronicallyIll #InvisibleIllness #invisibleillnessawareness #Disabled #Disability #Spoonie #Lymie #ChronicLife #LymeWarrior #LymeDontKillMyVibe #ChronicPainWarrior #SpoonieCommunity #myphotos
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Love this Nicholas Sparks quote ✨💙 We’re all hoping for better days ahead!
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**This is sort of a part 2 to my previous post**. Certain factors in the chronic illness/spoonie community make it a frequently stressful and toxic environment - competition, one-upmanship, defensiveness - factors that are exacerbated by high profile "professional patients" who set the bar for what defines "really sick". I'm fed up with it, fed up with young people worrying they're not valid in the community because they don't have a certain tool or an extra diagnosis. Fed up with accounts made just for illness and health obsessing posts to try and prove validity. I am chronically ill, but I am not just my illnesses, and neither are you. Post your life, your loves, interests, hobbies. Show your illness as a part of your life but show that it doesn't dominate your life. No one will judge you for that 💜💙 #spoonie #spooniecommunity #peoplehoptribe #chronicillness #chronicallyill #toxic #disability #sick #ehl#ehlersdanlosrome #ehlersdanlos #pots #keeponkeepingon #chronicpain #chronicfatigue
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Thank heavens for pill boxes/cases!
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What do you prefer with your tortilla chips? Here’s a #funfact on #nationaltortillachipday The state of Texas made tortilla chips and salsa the state’s official snack in 2003. The idea was proposed by a group of elementary school students who realized that Texas needed a state snack to go alongside the state pepper (jalapeño), the state dish (chili), and the state fruit (grapefruit). The children contacted their state representative with their idea, and the rest is history. (And one of my favorite indulgences) . . . #texasgirl #chipsandsalsa #chipsandqueso #thinksocial #beauthentic #youreamazing #investinyou #selfloveadvocate #wellnesslife #wellnesslifestyle #homeschoolmom #ketomom #ketocoffee #momtalk #momtomom #chronicillnesswarrior #chronicillnessawareness #mentalhealthwarrior #noanxiety #lessstress #ocdawareness #spooniecommunity #indulging #snacktime😋 #curlyhairgirl #lifeintexas #westtexas
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New post is up on the blog! Link is in my bio 💕
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#pok#pok#pokemongounityday was a success guys one full #dragonite and a couple of #shinydratini did catch over 80 in the space of 3 hours..can't wait to find out what next month's is Gunna be #pokemon #pokemongo #pokemonsquad #shinypokemon #pokemoncommunity #pokemonstreamer #chronicillness #invisableillness #ehlersdanlossyndrome #osteogenesisimperfecta #osteoporosis #chronicasthma #cysticfibrosis #spooniecommunity #zebralife
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**This post won't mean much to anyone who isn't in the spoonie or chronic illness communities** I'm just going to come out and say it - some high profile people in spoonie social media are lying their asses off, getting unnecessary medical treatments, and profiting financially from doing so. Yes, I'm talking about Jaquie, but she's not the only one. Chronic illness is not a game of who can collect the most illnesses like a messed up "to do" list; actual sick people despair at the comorbidities instead of exploiting them for tools, toys, more surgeries. I'm not making this statement based on Jaquie's presentation of illness vs my own or anyone else's, but based on her own inconsistencies- foot drop that only appears once she mentions she has it; saying she doesn't have EDS skin involvement yet in an earlier video she said her skin was fragile and stretchy; magically being able to eat orally after getting a feeding tube. These things don't add up. She is getting paid in advertising and sponsorship money - the latter of which she doesn't disclose as she should. The way she presents herself as an expert and "advocate" (she only advocates for herself) is harming others with chronic illnesses because people end up comparing themselves to her and believing they themselves can't be as ill because of all her "tools" and diagnoses. Others with chronic illnesses who haven't played pick and choose with what doctors have told them, ignored normal test results and sought out the most invasive medical treatments. She and others like her also hurt the community as their high profile means they get media attention - giving opportunity to misrepresent already misunderstood illnesses (mitochondrial disease anyone?). I don't care if this gets me hate or drops my follower count, I'd rather speak out than stay silent and watch more people get hurt. #spoonie #spooniecommunity #chronicillness #chronicillnesswarrior #chronicallyill #chronicfatigue #chronicpain #toxic #toxicpeople #itsnotacompetition #becarefulwhoyoutrust #disability #supporteachother
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