We could be heroes just for one day 🌷 #spoonie #invisibleillness #disabledandcute #chronicillness
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Another day in our lovely #bubble in #woo#wooville 😊 #on1pics #havingfun #lovinglife #spoonie #spoonielife #happywoo #wooville #namaste 🙏 #shine ✨✌🏻❤️
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The weekend is a time to unwind! Listen to your body and make some time for yourself. Try to have half an hour of ‘you-time’ every day. If it’s reading a book, going dancing, watching TV, going for a walk, or whatever relaxes you, as long as it’s something that permits you to spend time doing one of your favorite things.⠀ The more love you give yourself, the easier it will be to make healthier choices. It is essential to listen to your mind and body and respond to its demands for relaxation, exercise, or adventure, accordingly!⠀ Pic via @memylifeandendo ⠀ Get Your Endo Self-Management Guide Now! theendolifestyle.com⠀ #theendolifestyle #metime
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Insomnia, you suck! 😒 Who was it that was handing out naps, tacos and $5million dollars?? We need to talk ASAP! 😴🌮💰 #insomnia #insomniaproblems #sleeplessnights #sleepwhereareyou #BrainWorksNightshift #sleepyAF #eds #spoonie #spoonielife #zebrawarrior
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📣 🔔🛎 🍀 this March we will remember say Patrick 🍀 and raise our glasses in his honor. If u know someone who faces the daily, challenges of MS put on a tad of the orange for us one day, and maybe a bit of the Luck of the Irish will help us. #multiplesclerosis #mscommunity #tbi #tmjawareness #trigeminalawareness #traumaticbraininjury #invisibleillness #lymefighter #spoonie
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Guilty as charged....I'm vain, love playing with make up and take more selfies than I should ever admit to. This is what I came up with for Valentine's Day knowing full well I was staying home. I don't expect anyone else to understand. The trolls who dm me certainly don't. Its cute how they think I care. Seriously who messages a complete stranger with the sole intention of delivering insults? Sorry peeps, I'm a far harsher critic of myself than you could ever be. Have fun being miserable. 💋 #wakeupandmakeup #vanity #myfaceismycanvas #trollelsewhere #makeup #thathighlighttho #slideoutofmydms #funwithmakeup #trollmagnet #dontlikeitdontlook #tootiredtogoout #lipstick #stillhavetheenergytoselfie #trollbegone #contour #selfexpression #makeupismyart #spo#spooniehobbies #painwontstopme #chronicpain #fibromyalgia #spoonie #spoonielife #ididnotwakeuplikethis #fibrowarrior #toomanyhashtags
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Feeling a bit better today. Yaaaay!!!! #spoonie #chronicillness #chronicpain
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Anyone else have peanut butter in their porridge? Sooooo tasty! @wholeearthfoods #yummy #porridge #breakfast #healthy #spoonie #foodie #project2018
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Saw the new #stufioghibli #maryandthewitchsflower. Adorably cute as they always are. She is so brave and strong. It's a good reminder we can do anything we set our minds to. Also got a pension card in the mail this week. 1 week before my 30th birthday. Feels pretty weird but it will be nice to get the discounts since I have a limited capacity to work. #strong #brave #cfstecovery #mecfs #chronicillnesswarriorwarrior #spoonie #pots
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#OnTheBlog: Getting to know who I am without the illlness. A great way to remember that we are so much more than our diagnosis. I hope you will enjoy reading my answers to these great questions - I had so much fun compiling this post and finding all the photos to share with you. A lovely walk down memory lane. --------------------------------------------------- 💜 Char | http://Chronicallyhopeful.com #ChronicallyHopeful #mecfs #pwme #RoadToRecovery #Spoonie #sofalife #sickgirl #chargie #chronicillness #SpoonieLife #disability #ChronicPain #ChronicFatigue #chronicpainwarrior #InvisibleIllness #ButYouDontLookSick #housebound #SpoonieBlogger #ChronicIllnessBlogger
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My Sunday night plans: yoga and an epsom salt bath 🙏🏼🛁 what is everyelse upto? #yoga #detox #epsomsalts #magnesium
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2/17/18 One of the hardest things I have ever had to do was take a pill. Probably the strongest thing I have ever done. Not the surgeries, not shaving my head, not spending nights in the ICU, not even living life pretending I wasn’t in pain. Often, I will wake up in the middle of the night with pain. When I was young, I would have these reoccurring hallucinations/dreams when it happened. More and more, it may seem silly, but when I can’t even blink because the pain is so terrible, the hardest thing is to roll over, turn on a light and find a pill. I had nights where I would convince myself that I had to move, that if I just laid there, it would only get worse. In the middle of the dark, in pain, the only person I could count on helping me was myself. I had to will myself up and count to sixty twenty times before I would be okay. Before I could breathe again. Only 650 more seconds, only 300 more seconds. Waiting while being in pain is probably the second hardest. But I don’t have to do anything while waiting at least. It calms me down to know that relief is coming. But in those moments, when I can only count on myself, (and a small pill which so many politicians are making it harder and harder to get) that is when I am the strongest. . . . . Makeup Details Eyes #lauralee #catspajamas #lauraleelosangeles @lauraleelosangeles Lashes #ardelllashes Brows #abh #anastasiabeverlyhills Bronzer #milani Blush #bareminerals Highlight #elf #elfcosmetics Lips #stila . . . . #chronicpain #chronicillness #spoonie #spoonielife #spooniecommunity #chiari #chiarimalformation #hydrocephalus #hydrocephalussucks
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It's all about the "Good Vibes" and not just in the morning.. I try to remain positive all day (yes there are times where that is impossible lol.. but 99% of the time I am) • • I hope you guys are all having a wonderful weekend! I got my amazing mug from @sainsburys and I just LOVE it!! • • Today my sister, mummy, Aunt and I are popping to a shop called Downtown near Grantham because they have ALL their @monsoon wedding dresses on sale for £50!!!!!!!! Let's see if we see anything... I am being sensible and have other options where to look for dresses too lol. #sunday #weddingplanning #weddingonabudget #weddingdress #pos#positiveset #positive #positivity #positivevibes #goodvibes #happiness #multiplesclerosis #mswarrior #mslife #spo#spoonielife #spoonie
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I have a headache. An #iih headache. Hormones change up your internal pressures. For me since my csf pressure is high already... this spike means a few days of iih symptoms. Me head consistently aches. Across the back of my head I feel like my skull is tight/being squeezed. My neck is stiff and sore. My back is achy. With an area that feels full. My eye balls are tired, so sore.. I feel like they could pop out of my head. It hurts to move. It hurts when I don't move. I have vertigo. I get unsteady at times. I'm nauseous. I'm emotional. #idiopathicintracranialhypertension OR #psuedotumorcerebri Fucks me up. Often. It sucks enough getting periods. My uterus feels like it's trying to exit my body. And... it's ok. I've been doing this for almost 7 years. I'm a pro. It just sucks is all. #chronicillness #intracranialhypertension #spoonie
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Yesterday was the first day I felt normal in the last week. I actually smiled properly and felt like it was a good day. It feels great saying that. Currently still in hospital, it’s been a week now. Got out for the first time yesterday and went back after a few hours. Only two more days till the next surgery, until then I am grateful for finding the light in a dark time for now ✨ . . . . . . . . . . . #gastroparesis #chr#chronicess #chronicpain #chronic #gord #warrior #sic#sicklife #sicklifestyle #spoonie #spoonielife #sick #gjtube #ngtube #pegtube #tubie
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👞👠 18 02 2018 ©方oan Drew this in the car today, on the way to my great-grandparents' graves. It's a simple drawing of us three sisters. This was our first visit as a whole family. Apparently, I had been there once before with my parents and younger sister - the youngest had not yet entered our world - but I was little then, too young to understand or to remember. My uncles and aunties, and some of my cousins met us there. Together, we were a group that might seem big for visitors at a graveyard, but it was actually quite small, when you think of how large our whole extended family is. It was a bit of a task, looking among the rows of black and grey marble gravestones, but we eventually found them, side by side, Chinese characters indicating their names and epitaphs, carved and painted in gold, although now slightly faded. We all saw the resemblance of our grandma, our granduncles and grandaunts in both their faces. It struck a strange chord in me, looking at the faces of people I had never known, but who had made such an impact in the lives of my mother, my aunts and uncles and of course, my grandmother and her siblings, and thus, by extension, in my own as well. In that small moment, I thought of many things, some of which stay with me still. We lit the candles we brought, and cleaned up the remnants of candles and flowers left by past visitors. Then, we prayed together. It was a hot and bright morning. I know their names now. This time, I will remember. . . . #Sisters #Us #LittleJournal #February #Mine #Spoonie #Hypermobility #BuildALadder #ThreeSquareSuns
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Step 2. I ignore all pacing once I get going. Not good, but I can't help myself! I haven't made art in weeks...then it hits me. Keep pushing fully knowing the consequences upcoming. I'll survive! . . . . . . . #eds #ehlersdanlos #ehlersdanlossyndrome #edslife #hypermobileeds #edsawareness #steampunk #heart #zebrastrong #motivation #drawing #disability #disabled #illustration #chronicallyill #chronicillness #invisibleillness #dysautonomia #bones #chronicpain #chronicallyfabulous #skeleton #skull #anatomy #zebrawarrior #spo#spoonielife #spoonie #art#artist #art #arttherapy
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Lovely picking homegrown tomatoes. Watching the whole lifecycle is enjoyable as the plants grow, flower, fruit, and eventually ripen. Smells like summer 😄. Having just a few plants can be a #chronicillness friendly past time especially if you can share the responsibility with someone. If you know someone who would enjoy my account I would love if you share it with them. Come visit me at www.chroniclifehacks.com for ideas to make your days with chronic illness more enjoyable. Link in bio :-).
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Be kind to yourself 💜💤 • Had to take 5 this afternoon and listen to my body. Had a killer headache and felt very low energy, despite not doing a lot today (Bondi for coffee, shopping, cleaning, tarot, painting). I increased my water & hydralyte, chilled out with this guy and did some meditation. • Feeling brighter now, and grateful I had the time to rest this afternoon. Listening to my body is an awareness I’ve fine-tuned over the years, thanks to IBD. • Taking time to stop, rest and be kind to yourself so important. It helps you recharge, reinvigorate your soul and rebuild that spoonie energy again. • What’s your favourite way to re-charge or chill out? ••• #ostomy #ileostomy #ost#ostomyawareness #ostomate #ibd #ibs #uc #ibd#ibdlife #ulcerativecolitis #crohnsandcolitis #nocolonstillrollin #ibdwarrior #staystrong #staypositive #ibdlife #spoonie #spooniefam #ostomyawareness #invisibleillness #ibdawareness #autoimmune #gratitude #meditation #meditatedonthesitate #rechargeyoursoul #energy #awareness #girlswithink #birdtattoo #tattooedgirls #sundays #lazysunday
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Sleepy sundayzzzz💤💭💭🥄🥄 #spoonie
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Did someone say #PIE ??? . So what's a #birthdaygirl to do when it's almost #3am and #cantsleep ? . You say #yolo and eat your left over delicious pie from #villageinn . . #dontjudgeme #itsmybirthday #sweettooth #ins#insomniasucks #insomnia #nee#needsleep #sleepisfortheweak #illsleepwhenimdead #needsleep #wantsleep #sendmoresheep . 🥄💪💜 #spo#spoonie 💜💪🥄#lupus  #theuglysideoflupus #lupie #spoonie  #itsoktonotbeok #lupielife #lupussucks #lupussle #autoimmunehepatitis #pulmonaryarterialhypertension
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I had two cups of black coffee after 8 pm 😜 #spoonie
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Good morning warriors! Here’s a poem for all the psychosommatic beautiful women in this world by the amazing Amanda Lovelace. Send it to my bff on valentine’s but I think it will inspire and apply to many more.... no one should ever been told (or made believe) they love too much or shouldn’t strive for too much beauty in this world. Cause I totally agree with miss Lovelace, it’s not a weakness.... it’s a super power. Sadly there are emotional vampires out there graving for your powers and to suck you empty. It’s more for filling to use them for those who suffer the same powers so you can empower each other and recharge your super power batteries. use your powers well this beautiful sunday and own your story, even it’s a medical drama story, make it a good one 💜 #Sunday #inspiration #heartfull #poem #poetry #warrior #girlpower #fightlikeagirl #feminism #amandalovelace #spoonie
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I have had so much #hairloss between my #lupusflare and #sideeffects from my #meds. It has started growing back ... which is why I now have #bangs due to trying to blend my #hairregrowth . So i have started to #wrap my hair at night to try to #prevent further #damage or #breakage . . Do any fellow #lup#lupie> have any tried and true #tips of dealing with hair loss and regrowth? This is my 3rd time dealing wth this. Last time it took 2 years for my hair to feel and look healthy and full again. . #timeisshort so I rather not wait that long this time ... 😉 . 🥄💪💜 #spo#spoonie 💜💪🥄#lupus  #theuglysideoflupus #lupie #spoonie  #itsoktonotbeok #lupielife #raynauds #sjogrens #sjogrenssyndrome #raynaudssyndrome #purpleforlupus #purplehairdontcare #lupussucks #lupussle #autoimmunehepatitis #pulmonaryarterialhypertension
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For real though. (I got this from one of the AS groups I’m on on Facebook) #spoonie #AS #aswarrior #chronicillness #chronicpain
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It has all caught up with me today. I am absolutely exhausted. There was so much I wanted to do and I had so much planned but I have learned that I must let my body rest and rejuvenate. It’s just so hard because my mind is not tired... Things will get done when they get done 😴 * #fibromyalgia #fibromyalgiasucks #fibromyalgiaawareness #fibromyalgiasupport #fibrofog #fibrofighter #pain #chronicpain #chronicillness #spoonie #spoonielife #chronicmigraine #migraine #atypicalmigraine #migrainewithaura #ibs #chronicfatigue #cfs #exhausted #fatigue #sleepysunday
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My room got a total makeover the past week. The bee finessed Ikea for furniture, and Mom picked out new carpet. I ripped out the old carpet and assembled ALL the furniture. (Mom came through with final touches and dinner) The bed took me all day but I did it. 💪🏼 I feel like I can do anything but also can’t feel my legs now. #keeppushing fam and conquer! #spo#spoonies #spoonie #fibrowarrior #fibromyalgia #invisibleillness #chronicpain #chronicillness #weightloss #weightlossjourney #weightlossmotivation #ikea #ikeabed #room #homerenovation #roomdecor #newfurniture #glowup #diy #newcarpet #newbed #allday #teamwork #diyonpoint #imadethis #pride
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For my new followers: hello, I’m Cass, I’m 25 and I created the “Be Kind To One Another Boxes” in August 2016 where I send present-filled-boxes to sufferers of Chronic Illness all over the world. . . The aim of this project is to send love to sufferers of Chronic Illness and remind them that they are important, valuable and still have the ability to achieve goals despite being sick. . . I started in 2016 and am on my way to mailing my 150th box worldwide. The BKTOA Boxes differ from other box companies as I encourage you to nominate someone else in the community who is not letting their illness define them; people who are performing selfless acts of kindness despite their illness. . . This project has brought me into the lives of thousands of warriors - each trying to leave their mark on the world and fight every day. I have made lifelong friendships and am so blessed to have had the support of worldwide companies and donators. . . This is my empire and I am so incredibly blessed to be able to spread awareness and do what I do every day. Thank you for following me in my own healthy journey, and my yellow brick road to worldwide kindness... . . #chronicillness #gastroparesis #spoonie #bek#bekindtooneanotherboxes #bekindtooneanother
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Let’s talk about dizziness, vertigo and feeling faint! For me, a beautiful POTS patient, this has become a huge part of my everyday life. It’s often very annoying, and even more so debilitating. I get the whole I’m walking on a boat, the rooms spinning and holy shit I’m about to pass out. I do also have vestibular issues (Menieres suspected). I’ve tried meds and head movements all that good stuff but honestly find very little relief besides sleeping. 🤷‍♀️ how about y’all?! #dysautonomia #pots #potssyndrome #vertigo #ehlersdanlossyndrome #invisibleillness #spoonie #chronicillness #dizzy #vestibular #menieresdisease #head #cancer #fibromyalgia #anemia #diabetes #multiplesclerosis #cysticfibrosis #momlife #sick #chronicallyfabulous
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Marriage/true love is ....... Getting woke up by your wife around midnite because she's in pain and wants comfort food so you run to Dodge's & get her a banana moon pie. Thank you darlin. * I can't put my capsaicin cream on my back at the moment because of my belly binder. My pain pills just ain't cutting it today due to all my owies piling up and the capsaicin cream would most likely get way to hot and burn me like a massive sunburn. I've had this type reaction before and it was not nice * #moonpie #marriage #truelove #hystersister #hysterectomy #goodbyeuterus #Scoliosis #DegenerativeDiscDisease #NoCartilage #SpinalStenosis #SpinalFusionFuture #TitaniumSpine #Fibromyalgia #FibroMyOuchies #Panausea #ChronicPainMommy #ChronicPainWarriorPrincess #TooYoungToFeelThisOld #Spoonie #SpoonieWarrior #SpoonieMom
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Since I’ve been back to work, the cafeteria has been beggin me to eat some of my old favorite meals before I was vegan. 😬🤦🏽‍♀️ so- I tried a bite of potato salad and a spoonful of posole- and low and behold — EW 🤭 my palette has completely changed. And I’m finding I crave veggies more and more. And this dish- is exactly what my body has been craving 😍 featured 🌿 brown rice and quinoa salad with tequila Pepitas, black beans, avocado, and mango salsa. 🥄 #spo#spoonies I added my favorite hot sauce that’s high in sodium and the brown rice and quinoa are steeped with a high sodium vegetable paste. #vegan #vegans #veganaf #veganfood #veganrecipes #veganlife #veganfitness #vegansofig #vegansofinstagram #veganism #plantbased #plantbaseddiet #chronicillness #pot#potsie #spoonie #dysautonomia #dysautonomiaawareness #posturalorthostatictachycardiasyndrome #pots #potssyndrome
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Having a high pain day, with a lot of nausea but at least I have my little Eloise and heating pack and ginger tea to cheer me up 😽🔥🍵 . . . #spoonie #spoonieproblems #spoonielife #lyme #lymedisease #lymedontkillmyvibe #lymewarrior #pots #potsie #potssyndrome #chronicillness #chronicpain #pain #nausea #cat#catsofinstagram #cats
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Celebrating my Veganniversary with the ones I love 😘❤️ #lesbian #me #myself #i #friends #hangingout #spoonie #hydrocephalus #friendship #gay #lgbt #vegan #veganism
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I. Love. This. Idk who made it but i love it
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How many dropper fulls do we think it’s safe to take at once of this emotional support supplement? 😂😂🤬🤷‍♀️#pba #homeopathy #naturopathicdoctor #supplements #byebyebugs #moldtoxicity #lymedontkillmyvibe #lymedisease #ticksaredicks #bartonella #lymerage #babesia #spoonie #spoonielife #chronicillness #chronicpain #ugh #picoftheday #lgbtq
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. 🔥🔥🔥🔥🔥 #Humira day was a couple of days ago, hardly feels worth it when you #Flare hard for several other reasons. With them obviously in ‘joint conversation’ right now 🤣cringe-pun central🤦🏽‍♀️ Wobbling about all over the shop/falling into door frames/tachycardia/dizzy/sickness/sweating till swimming in it at night etc. Just yayyyyy😒🤦🏽‍♀️! So yeah..... 💥💥CRASH💥💥 . ##crash #herewego #underattack #tea #selfie #curlyhair #iwokeuplikethisagain #spoonie #chronicillness #chronicpain #invisibleillness #spoonielife #rheumatoidarthritis #ankylosingspondylitis #fibromyalgia #chronicfatigue #endometriosis #anxiety #autoimmuneneutropenia #hemiplegicmigraines
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I bought this rose early in 2015. I remember my dad telling me how he thought it was very ugly. But to me that was the point, something we normally deemed beautiful could still be ugly. This simple object helped me grieve someone who was still alive but no longer a part of my life. To this day it has always been a silent part in my room. Tonight it's taken that same role again that it had a few years ago. I read once that mourning the loss of someone still alive, might be one of the hardest things we have to do. But this just makes it a little easier that even things that are supposed to be beautiful can be flawed. So here is the goodbye that should've happened long ago. A Jazz making her peace, is a content sane girl. #fibromyalgia #spoonie #bipolar #borderlinepersonalitydisorder #recovery #inspiration #life #spirituality #mindfulness #anxiety #quotes #itgetsbetter #mentalillness #mentalwellness #rose #fakeflowers #gonnabeok
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Three day #jui#juice almost complete! and it's been very interesting 😮 lots of new flavors and combinations of #veggies and lots of #juicing 😄 #juicecleanse #juice #juicingdetox #fun #newexperiences #healthyfood #healthylifestyle #philipsjuicer #willdoagain #toxinsbegone inspired by #rebootwithjoe ! #fibro #fibrochick #fibromyalgia #spoonie
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Everything working against my #thesis writing 😮😕 three and a lil' bit of the fourth finger burnt last night 😓👎🏻#accidentprone #outch #morepain added to #fib#fibro #fibro #fibromyalgia #fibrochick #spoonie #fibrowarrior 😵 #thesiswriting #thesiswritingproblems #finnishamerican #nomakeup
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