things have been super crazy in the household lately 😣 my girl’s grandmother is quite sick and it is causing a lot of stress for the whole family 😞 thankfully, my girl has an appointment with a special neurologist 👩🏼‍⚕️ (FINALLY) 🎉 hopefully they can give us answers to all of her fainting episodes 📝 #ser#servicedogaining #servicedog #sdit #psdit #psychiatricservicedog #servicedogteam #sdteam #medicalalertdog #chronicfatiguesyndrome #cfsme #myalgicencephalomyelitis #panicdisorder #anxietyalertdog
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Shot from this autumn in Ohio🌳🍂☁ #nof#nof#nofiltered . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . #pho#photohy #Raindoodliephotography #cloud #sun #bea#beautiful #sky #clouds #nature #naturephotography #Godscreation #beautiful #photo #ohio #nofilter #eve#evening/a> #evening #amazing #stunning #ME #MEawareness #Myalgicencephalomyelitis #Fibro #fibromyalgia #spoonie #spooniecommunity #alwayskeepfighting #nofilter
25 1
‪TIRED just doesn't cut it. . . 👆🏼👆🏼👆🏼👆🏼👆🏼👆🏼👆🏼👆🏼👆🏼👆🏼👆🏼👆🏼. ‪The girl in this picture is dizzy, weak, a bit shaky, confused, sore throat, eyes burn, noise hurts, had to eat food lying down & bathroom trips are a marathon. . 🖕🏼 who say #mecfs isn't real. ‬ ‪🖕🏼 who trivialise it. ‬ ‪🖕🏼 Dr's that don't help. . . . #tagsforlikes #awareness #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #Cfsme #mecfsfighter #mecfswarrior #chronicpain #chronicillness #health #spoonie #spoonieproblems #spooniesunite #spoonielife #selflove #youareabadass #staystrong #itwillbeok #blogger #chronicillnesses #chronicillnesslife
22 1
I love the dramatic landscape here. The fog over the mountains, the vulcano, the vast ocean, black beaches and the greenery in contrast to the dry climate. 🙌
45 2
Life with chronic illness ME / CFS. Raising awareness and being honest with all of you on how I'm doing tonight. Struggling to say the least with my health. It's so hard and I'm getting off my phone now to avoid crashing further. This disease is wicked. Love and hugs ❤️🙏🏼. . . #today #myalgicencephalomyelitis #cfs #mecfs #chronicillness #chronicpain #chronicillnesses #spoonie #spoonielife #spooniefamily #mecfsawareness #health #fedup #cfsme #awareness #butyoudontlooksick #strength #selflove #sel#selfcaresunday #selfcare
17 3
photo shoot 💅🏻😂 just look how handsome ma baba is 😍 my little spud 😩🐾 (proud Mami 😭😂💛)
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Apologies again for yet another quiet period. It has been a busy few weeks and I have found myself asleep by 8pm most nights. This weekend started with a fun filled Christmas Party and ended with a day in the snow. With the weather getting increasingly cold, I have struggled with the numbness in my feet, which has begun to return. Walking can be incredibly painful and very little can warm them. As the Christmas period looms, the chance for a rest lessens drastically. For someone with a Myalgic Encephalomyelitis, busy periods can be daunting. As your energy levels decrease, your anxiety levels increase. The need to make lists, plan days, organise events and prepare for Christmas takes over. My mood has begun to improve, although I find it can drop dramatically at any moment. The past few weeks have been incredibly up and down and have taken their toll. I hope as 2018 draws closer, I can begin to feel an improvement or atleast gain clarification on the deterioration of the condition. #invisibleillnesses #myalgicencephalomyelitis
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Adulting with my best friend. 💗💗💗 Doing grown up things like supporting each other, compromising, and budgeting. I haven't a clue where 2018 will take me as my illness is disabling, but I plan to at least focus on modeling and art once more. If you want to support my journey as an artist, then feel free to: follow, comment, like, share and/or pledge to Patreon! #life #seattlewa #newapartment #moving #model #cfs#cfsa> #cfs #myalgicencephalomyelitis #spoons #spoonie #disabled
20 0
Rant ahead! A scientist specialized in #myalgicencephalomyelitis once said that we with a #chronicillness should remember how it was when we are healthy, as in how did we look at illnesses and did we understand what it was really like to live that life. So I try even though I never been really healthy. I have been healthier and more ableist back then. But there is this part of me that doesnt stop being hurt when people understand so little that it baffles me. We wanted to celebrate christmas at our home with Barend his family but it ended up being a struggle because despite my severe illness and mostly home and bed boundnes the idea that this should be celebrated at a parental home weighs more than a sense of normalcy for me for once apparently. Barends willingness to fight for me is hero material but this hurts him a lot. #chronicillnesslifebelike a bitch right now. We dont mind celebrating things together but this still sucks that this is how it goes. #spoonie sad.
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🎄Spoonie Christmas Challenge #justaspoonful 🥄🥄🥄🥄🥄 🎁 25 questions 25 days 🎁 8. What medications do you take? There are too many (I never imagined I would be on one med let alone way more than I would like to be taking). But long story short I take herbs, loads of bioavailable vitamin d & b, methylfolate, iron, cymbalta for nerve pain (barely helps), adderal, synthyroid, probiotics, muscle relaxers, medical marijuana etc. I'm sure I have forgotten some... 😒😒😒 the medical marijuana helps more than any med thus far... surprise surprise! I have tried everything I swear... I think it takes a bit of western and eastern med for me. Being really strict with my sensitivities/diet & cannabis have helped the most. . . . . . . . . #spo#spooniechristmaschallenge #fibromyalgia #mec#mecfs #endometriosis #relaxation #insomnia #mindfulness #degenerativediscdisease #pills #420 #majordepressivedisorder #anxiety #hypothyroidism #arthritis #ednos #chronicillness #iwillmarrymary #chronicfatigue #chroniclife #depression #pain #spoonie #spoonielife #sickgirlsclub #mentalhealth #mecfs #girlswhosmoke #mood #myalgicencephalomyelitis #medicalmarijuana
19 0
Utsikten fra dagens hovedkvarter 🤘 I formiddag har jeg kokt kakao, skjært frukt, pakket det ned i sekken sammen med sitteunderlag og tatt med barna til akebakken. Og det var dèt. Resten av dagen har jeg vært lenket til hjørnet i sofaen og vridd på kroppen, ventet til kvalmen, trøttheten og de verste smertene skulle gå over, og blitt ivaretatt av verdens snilleste og mest omtenksomme pårørende (ektemann). Først tok han helgevasken mens barna og jeg var ute. Og så har han laget middag, handlet på butikken, laget kveldsmat og fått barna i seng. Før han satte seg ned med en velfortjent film sørget han for å snike en god skål med favorittpotetgullet mitt inn i armkroken min. Herregud da, hva har jeg gjort for å fortjene sånn ubetinget kjærlighet? Lykke kan komme i så mange former og for meg kom det med en skål potetgull i kveld 😄 Den mannen er bare helt enestående og det lar jeg ham få vite hver eneste dag ❤ Desember har hittil krevd mye av min dustekropp så derfor ble det totalt "meltdown" i dag. Jeg satser på at all hvilen i dag skal sørge for at jeg klarer å levere barna på skolen i morgen, samt delta på førsteklassingens juleavslutning. Da skal jeg jaggu si meg fornøyd 😊 Nå skal jeg fortsette med å innhalere potetgull og lese Camilla Läckbergs Løvetemmeren mens min bedre halvdel ser Hunger Games. God søndagskveld til alle sammen, og ønsker dere alle en fin ny uke i morgen 🌞 . . . #maarud #potetgull #lykke #desmåting #kjærlighet #ityktogtynt #ekteskap #familieliv #foreldreogbarn #hverdagsliv #endagomgangen #pårørende #mef#meningen #cfsme #myalgicencephalomyelitis #levemedme #livetmedme #me #mil#millionsmissingnorway #millionsmissing #camillaläckberg #thegoodlife #sortof #chronicwarrior #onedayatatime
24 5
Ending on 5.5 syns today! Been 100% on plan everyday since last weigh in so feeling pretty good however I also feel like I've been eating loads more compared to last week! Just hoping this doesn't make a difference to the scales on Tuesday🤞🏻😖 • • • #Sli#SlimmingWorlda> #SlimmingWorld #SlimmingBlog #WomanOfTheYear2017 #Wei#WeightLossress #Journey #SW<#SWBlog #FoodOptimising #FoodDiary #Fitness #SW #SWIdeas #SWFriends #WeightLoss #WeightLossJourney #SWRecipe #SWVegetarian #Club10 #3AndAHalfStoneDown #Support #Motivation #WeightLossMotivation #Strava #MyFitnessPal #SWMafiaUK #ChronicFatigueSyndrome #CFS #MyalgicEncephalomyelitis #ME
56 1
🎵😹🎶Do you wanna build a snowcat!? 🎶😹🎵 (yes I'm aware it's really shit 😹) . Probably not the most sensible idea health wise but I just had to get out and play in the snow today 😸❄️☃️ Anyone else braved it!?
121 8
7 0
I'm not sure how I'm doing or what I'm feeling today. One of those days where the brain fog has kicked in and by brain isn't quite sure what's happening. I know I have achieved things today so I'm trying to prioritise self care tonight and work on a good night's sleep. I think the 4hrs restful sleep I got last night may be the reason I'm so unsure today. I've got myself in a bubble bath, playing pinks new album beautiful trauma (side note I've seen her 3 times live and she is amazing) Nice lie in before work tomorrow. Come at me Monday 👊 #myalgicencephalomyelitis #me #chr#chronicfatiguerome #cfs #mecfs #cfsme #invisibleillness #chronicfatigue #chronicillness #butyoudontlooksick #spoonie #millionsmissing #unsure #kind #feelings #brainfog #sleep #mentalhealth #bath #pink #beautifultrauma #selfcare #selfcaresunday #sundaychill #bubbles #newweek #newwork
33 0
When you are winging it with stuff you happen to have in the house and end up with the most amazing curry ever. #veganaf
31 3
What does happiness mean to you? For me, happiness means finding joy and happiness in the present moment amongst the small things; a gorgeous sunset, snow, laughter, a good book, the sun shining, a cuddle with a loved one, or dancing to a great song. It's about having those "life's pretty great" moments and that feeling of overwhelming gratitude for everything and everyone ♥️♥️
103 14
I’m missing this guy a lot today... #alfie #alfons #catsofinstagram #gonetoosoon #cancercat #cancersucks
50 3
A lovely evening at the Pier with the Sacred Willows Beauty Team - A evening out means a day chilling in bed! 🎄❄️💅🏻 #beauty #christmas #cfsme #myalgicencephalomyelitis #nowinpainandtired #norest #naughtygirl #boyfriendbroughtmeanewdress #feltlikeaprincess👑 #inlove #happy
7 1
I'm really interested to know what you think caused or causes chronic conditions. Do you agree stress is a big factor? Most people I work with were pretty stressed before getting sick. Generally they fall into personality types of perfectionists, over-achievers or very caring people. Often big worriers too. Sometimes all! Would love to hear your thoughts. Many thanks, Keira 💗💗💗 #howtohealmecfs #me<#meawareness #MyalgicEncephalomyelitis #fibro #fibromyalgia #chr#chr#chronicguerome #chronicillness #cfs #cfsme #mecfs #me #meassocation #invisibleillness #chronic #chronicfatigue #adrenalfatigue #chronicillnesswarrior #fatigue #burnout #wellnesswarrior #healing #healingtips
94 28
Sausage casserole for dinner tonight☺️👌🏻🥘🥕🥔🍴 • • • 2 syns for my serving of the casserole mix, 2.5 syns for the Yorkshire pudding, 2 syn free Linda McCartney red onion & rosemary vegetarian sausages, onions, mushrooms, carrots, brussels sprouts and mashed potato. = 4.5 syns in total✔️👌🏻 = 5.5 syns for the day so far😁 • • • #Sli#SlimmingWorlda> #SlimmingWorld #SlimmingBlog #WomanOfTheYear2017 #Wei#WeightLossress #Journey #SW<#SWBlog #FoodOptimising #FoodDiary #Fitness #SW #SWIdeas #SWFriends #WeightLoss #WeightLossJourney #SWRecipe #SWVegetarian #Club10 #3AndAHaltStoneDown #Support #Motivation #WeightLossMotivation #StrengthTraining #Strava #MyFitnessPal #SWMafiaUK #ChronicFatigueSyndrome #CFS #MyalgicEncephalomyelitis #ME
63 1
More news and views from my pillow today 😉#furryfamily
21 2
Sun, 10/12/2017 ¦ ° Its been snowing all day, first snow we got. We went out today which was nice 😊 paying for it right now tho. ° Haven't been feeling the greatest, hopefully that'll change soon. Have a lovely night 🌃 ° ° #cfs #chronicovercomer #chronicfatiguesyndrome #chronicpain #cfsme #mec#me/a> #me #myalgicencephalomyelitis #spo#spoonie> #spoonie #recovery #tiredgirl #invisibleillness #sick
24 0
Someone has lost his bright orange tennis ball in the #snow, hopefully he can find my feet too. So glad I'm not going to work tomorrow, but will be going out for a #run
20 2
I just uploaded a new video... ✨Finally Some Good Days✨ I finally had a better week! My pain was less, I slept a bit better, had a tiny bit more energy and it was fabulous! 😁 (link in bio)
29 1
The small things in life! It's been snowing where I live and I had a little snow fight with my dogs. Happy Sunday! 💙😀🙏🏼. . . . #dog#dog> #dog #dog#dogsofinsta #doglife #dogsofinsta #dogwalker #doglovers #labradoodle #labradoodlelovers #snow #nature #labradoodlelife #fun #cute #animals #myalgicencephalomyelitis #spoonie
21 0
Spoonie Christmas Challenge Day 10 - If you could get rid of one symptom, what would it be? My answer would definitely be fatigue. Although, brain fog is a close second. I know with how many times I faint a day, you would think I’d chose to get rid of the syncope. But it’s the fatigue and brain fog that limit me the most. #spo#spooniestmaschallenge #spoonie #chronicillness #chronicallyill #posturalorthostatictachycardiasyndrome #pots #potsie #cfs #cfsme #myalgicencephalomyelitis #chronicfatiguesyndrome #fatique #brainfog #mydogs #daschund #doxin #weeniedog #pitbull #tired #sleeping
20 2
My distraction projects are getting festive 🎄
36 4
Having a very festive couple of days 🎄 yesterday we put up the tree and wrapped most of the presents 🎄🎁 and today was my churches @freedomcentreuk carol service which was amazingly beautiful 🌌 the picture above is what the floor looked like at the end of the service as they got people to let off confetti poppers while we sang the last carol 🌌💒❤ and it has been snowing all afternoon 🌨❄ so i am feeling very christmasy and a bit knackered lol 😂. So i am snuggled on the sofa watching Arthur Christmas 😁😊 #itsbeginningtolookalotlikechristmas #itsthemostwonderfultimeoftheyear #feelingfestive #xmas #christmas #carolservice #confetti #sparkle #puttingthechristinchristmas #festive #treeisup #spo#spoonie2017 #spoonie #mecfs #myalgicencephalomyelitis #fibro #fibromyalgia #invisibleillness #chronicillness #butyoudontlooksick
45 4
10/12/2017 Making my bed scenery more adventurous.. Was getting bit bored and lonely just lying around.. Now so much exciting things going on.. #bedlife #bedscenery #🏔#playingwithphoneapps #myalgicencephalomyelitis #🛌 #mecfs #cfsme #endmecfs #invisibleillness #lostinbed #justlyingaround #homebound #bedridden #spoonieart #landscapeart
10 0
There’s nothing more nurturing for the soul than spending time with family on days like this..With 8 inches of snow outside and clothed like a pair of (fashionable 😜) eskimos it reminds me that there’s life beyond illness, and it’s special moments like this that take you away from any thought of it. Hope you’re all having a beautiful Sunday my Insta Elite family 🙏🏽😊. #chronicfatigue #myalgicencephalomyelitis #adrenalfatigue #fibromyalgia #recovery #recoveryispossible #elitehealthandwellness #health #warriors #survivor
21 2
Lunch is 1/2 a packet of Batchelors Pasta 'n' Sauce in Cheese & Broccoli flavour made with water and no soya with half a jacket potato and a black coffee. Not sure on the syns for the pasta but I'll count it as 1 to be on the safe side! • • • #Sli#SlimmingWorlda> #SlimmingWorld #SlimmingBlog #WomanOfTheYear2017 #Wei#WeightLossress #Journey #SW<#SWBlog #FoodOptimising #FoodDiary #Fitness #SW #SWIdeas #SWFriends #WeightLoss #WeightLossJourney #SWRecipe #SWVegetarian #Club10 #3AndAHalfStoneDown #Support #Motivation #WeightLossMotivation #Strava #MyFitnessPal #SWMafiaUK #ChronicFatigueSyndrome #CFS #MyalgicEncephalomyelitis #ME
90 2