β€’πŸŽƒβ€’ _______ Itty bitty mini pumpkins😍 ____________ πŸ‘»what are your favourite Halloween movies? I'm into it allπŸ‘»πŸŽƒcomment below ⬇️ ______ I'm holed up in bed with some annoying pain, drops in barometer πŸ™„so I could use some distractions. _________ #fibromyalgia #ptsd #jointhypermobilitysyndrome #spoonie #peoplehopetribe #coldplayer #pauseandlove #lovebutton #autumn #fall #minipumpkins #chronicillness #chronicpain
73 5
So I am thinking now that I am done with Dunkins as a great stress relief I would pick crocheting back up! I am thinking of making an Etsy with my friend @tarah_dupuis and maybe go to cons and start selling crochet stuff and donating the money to the @ehlers.danlos society. For those who don’t know I have this connective tissue disease and it has been a major struggle to cope and adjust to my new life with EDS. I want to give back and help I know it’s a far fetched dream but raising awareness is why I started doing what I was doing! I will take suggestions on what I should make. I use to make hats all the time but stopped! Let me know if you are interested! #crochet #sailormoon #crafting #raisingawareness #eds #ehlersdanlossyndrome #jhs #jointhypermobilitysyndrome #itakesuggestions #anime #comics #nerd #imagrandma
12 3
β€’πŸŽπŸπŸ‚β€’ _____________ Weekend vibes πŸ‚πŸŽoh how I have major love for apples πŸ˜‹ _____________ #autumn #leaves #applepicking #apples #plaid #converse #lifeinchucks #basket #spoonie #ptsd #fibromyalgia #jointhypermobilitysyndrome #peoplehopetribe #coldplayer
105 3
Running errands while flaring is never fun. A trip to Hobby Lobby helps a little bit 😏 what are yall up to today? I'm using one of my favorite Thirty-One purses! The Cafe Crossbody 😘#thirtyonegifts#thirtyonebags #thirtyoneconsultant #ilovemyjobs #fla#flareday #hobbylobby #planneraddict #spoonie #fibromyalgia #jointhypermobilitysyndrome #butyoudontlooksick #flareday #everythinghurtsandimdying #lularoe #lularoejoy #lularoejulia #lularoelove #comfortable #purse #bag #tote
27 1
New PB on deadlift today at #onetakefitness. 90kg for 6 reps. Form much better this week. Video isn't perfect.. My stupid gloves were getting caught in the straps so there coming off next time!.. Im grunting I'm pulling angry faces and it's far from pretty on the last rep but you know what January this year I couldn't even get myself dressed or get out of bed without help so I'll take the sweat, tears and struggles that come with it! Thanks for taking the vid @justcledley Plus you get to laugh at me dying at the end lol #deadlifts #jointhypermobilitysyndrome #fuckyouchronicpain #notlettingtheillnesswin #girlarmy #altgirl #strongisbeautiful #gymgloves #sonotgraceful #warriorcry #dying #keepingitreal #ladieswholift #strongnotskinny #strongissexy #thisgirlcan #superbrat #sweatymess #absolutelyfucked #fuckingproudofmyself #geeksthatlift #quirkygymrat #martinwhittaker #onetakefamily
16 1
At work like....πŸ’Š Come on, meds! Work your magic! Pleassseeeee! Fever broke so I thought I'd be good today... yeaaahhh, I should have taken one more day. Pain level is... 😲. Rheumy called to confirm what the body already knew: WBC & Sed rate elevated. Probably a virus she said. You know, like the common cold. Except I have an uncooperative immune system. 4 more hours until I get to lay back in my bed. πŸ› I. CAN'T. WAIT. πŸ› 😍I love you, Bed.😍
22 1
Day 27 of #100happydays I've had knee problems since I was a small child. There were times the pain was so severe my mom would carry me around because I couldn't walk. Fast forward to now and my Dr decides it's time to try braces. I've never had my legs feel like this. I told the guy it felt weird but not bad and asked if this is how your legs are supposed to feel and he said yes it's preventing them from overextending. Keeping them straight and supported. It was incredible. Can't believe I'm 32 and just experiencing what people who aren't bendy feel. If that makes sense lol #jointhypermobilitysyndrome #ehlersdanlos #photooftheday #mylegsarestraight
16 5
This afternoon I managed to have my first shower since last Saturday! Winning! πŸ’ͺI forced myself to have one because we've got friends coming for the weekend and I need to look somewhat presentable πŸ™ˆhoping I feel ok enough to have some fun whilst they're here! πŸ˜ƒ ******** I have a bit of a random question for POTSy glasses wearers...do you feel safe wearing your glasses whilst being prone to fainting? The thing is my eyes have worsened and I could really do with wearing my glasses more often but I've always tended to avoid it because I feel vulnerable and scared of breaking my glasses and/or face. I do tend to faint backwards so I'm not sure if it would even be a problem but it's just something I'm a bit wary of. Ed and I are going to get our eyes tested next week so it's on my mind about getting a new prescription and glasses etc. I do get a voucher for the test and glasses so that helps me financially but I think if I were to want contact lenses I'd have to pay for them which I can't afford and am slightly weirded out by sticking my finger in my eyeballs... πŸ‘€ Sorry for the randomness, it's just something on my mind atm! ******** Currently cosied up in my new jammies and waiting on Ed coming home for a cosy Friday evening 😊Dinner is easy tonight because my momma cooked a huge batch of spag bol whilst she was here and portioned it up in dishes ready for us to zap in the microwave. Food prep makes chronically ill life so much easierπŸ‘Œ Hope you've all had a good week and are looking forward to a lovely weekend! 😘
75 7
When you’re flaring and you can’t imagine having a regular 9-5 because you would be calling off sick every other day. πŸ˜… Fo real πŸ’πŸ» Taking it slow today and working from my phone πŸ™ŒπŸΌ #thirtyonegifts #ilovemyjobs #spoonie #flareday #exhausted #chronicpain #reseller #book #bookstagram #bookworm #booklover #barefootdreams #cozy #content #thatsdarling #myunicornlife #homedecor #fibromyalgia #jointhypermobilitysyndrome #workfromhome #bossbabe #girlboss #hustle
34 0
When you've been awake since 4 am why not go grocery shopping at 6 am right? Lol work was crazy 😜😜yesterday and my plan to go shopping last night didn't work. And who wants to go after work tomorrow when all you want to do us cone home and chill? Here's to an amazing Friday!!!!!
14 2
Letting out my inner geek today!
31 3