Spine injection day💀, waiting..wait, is that the anesthesiologist coming??!! WTH HE PUT THE IV IN MY WRIST😱!! Ok, was just being Drama Queen LOL 🤣 Waking up from procedure drinking the nasty UNSWEETENED Ice tea. Going over my pain log, then looking like a doofus waiting for discharge🏃‍♀️#painmanagement #spinalosteoarthritis #arthritis #invisiblepain #invisiblepainwarrior #invisibleillness #fibromyalgia #ptsd #chronicfatiguesyndrome #sjogrenssyndrome #thalassemia
28 8
Sorry I haven't been around for a while but I saw this article this morning and just had to share it with you. The first new drug made especially for migraines in 20yrs. It's already been submitted for medical licence in Europe and the U.S. fingers crossed we can all benefit from this. Article is in the daily mail if you want to pop over and have a read 💖 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #brainfog #brainpain #chr#chronicre #chronic #chronicmigraine #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological
98 11
#inst10 #ReGram @migraine_together: Was stupid enough to think I might make it out for a meal with the girls tonight, migraine flared as per usual when I've made any plans. Left eye has dropped dramatically and my head feels like it's been split in 2. I get so frustrated for letting people down all the time I hate myself some days ☹ #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere #lettingeveryonedown
15 1
Was stupid enough to think I might make it out for a meal with the girls tonight, migraine flared as per usual when I've made any plans. Left eye has dropped dramatically and my head feels like it's been split in 2. I get so frustrated for letting people down all the time I hate myself some days ☹ #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere #lettingeveryonedown
127 9
I will never get used to having these debilitating migraines. The days out I've missed with my children, nights out with friends, the travelling I always thought I'd do. At times I feel like a complete prisoner to migraine, I feel as though it's stolen so many years of my life, i could literally scream at times. But we keep plodding on, as that is the only option we have. A big shout out to all of you who are fighting this same battle, you are doing amazing 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere #youvegotthis #youmatter
139 10
We all know chronic illness can leave you completely drained, but we push through the best we can as we want to feel like we are a part of life. It's really important to recharge your batteries or our bodies will complain, the migraine attacks will start and we will again be stuck back in the cycle we fight so hard to get out of. Sometimes you need to stop and be still, take a breath and reground ourselves. Selfcare is the most important thing you can do 💗💗💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere #selfcare
70 4
Self care is hugely important when you suffer from a chronic illness, yet it seems to be the one thing we feel most guilty about. I have been trying to practice this myself over the last few weeks. It really does help, you are as equally important as the next person. Try caring for yourself as much as you do for others 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere #selfcare
117 6
Sorry I haven't been around for a while, I've been having some serious battles of the brain, I think my second round of botox may be starting to take effect now so hoping life will be a bit brighter. I've been trying to rid myself of all medications and trying to rely on my triptan and naproxen. I felt completely struck in the loop and wasn't sure if all the medication was making me feel worse. I've also started reading this book, still at the early stages so couldn't tell you how good it is yet but shall definitely keep you posted. I hope you've all been managing ok 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere #healing #healingyourself
69 5
Don’t be ashamed of your story, it will inspire others! This is so true! For me, I am ashamed of my store, of my life. Once I got sick I perceived that my young life was over. And it’s still very hard to think otherwise but im trying. What I don’t see is how I was strong to push through...im still here! Yes I may be broken but it’s just a crack that can be patched up but it’s gonna take all my might and strength to overcome this broken person I was but it’s doable. I think I can. My story is inspiring. I am not #ashamed #inspireothers #bel#believeinyouf #believeinyou #youmadeitthisfar #chronicpain #chronicillness #invisibleillness #invisiblepain #invisiblepainwarrior #fibromyalgia #fibrosucks #rheumatoidarthritis #arthritis #crohnsdisease #pots #crps #sjogrenssyndrome #whatelsedidimiss
77 9
It's not always easy to stay positive when you're in chronic pain, some days you have to look a little harder than other days. Mum has made me gingerbread today, can't remember the last time I ate something sweet, I am positive I am going to have a big slice of that bad boy 😊💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere #positivethinking #treatyourself
83 0
Botox doesn't seem to be working very well for me these days so my migraine nurse suggested occipital nerve blocks could be the next route to take. I don't really know much about these as I've never had any experience with them. I'd love to hear your experiences, was it successful, how long do they work for? Do they take an immediate effect? I hope you're all as well as can be today 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere
67 39
Almost had a migraine free day, then boom, could feel the neck pain starting, along with the throbbing temples the nausea and the aching shoulders. Looks like it's an early night for me.i hope you're all managing to push through today whatever it is you're doing 💗💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere
100 3
This picture was taken last summer on one of my rare better days, it must have been a good day as I'm not wearing sunglasses, I don't seem to go anywhere without those now. I don't often have my picture taken but ones like this reminds me that there are good days, even if they are far and few between 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere #betterdays
80 7
I definitely had my first migraine attack before the age of 12. The earliest I can remember was 5yrs old, I couldn't tell you if I'd had any before then. Can you still remember your first migraine? 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere
94 6
The next time someone tells you it's just a migraine and to think more positively, show them this. It doesn't even cover half the symptoms in my opinion. I hope you're all managing to push through today 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere
145 9
Question from a member of the community. As I migraine all of the time this is a really difficult question for me to answer. If any of you have any tips or advice I would be most grateful 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere
79 18
116 5
For those of you finding it hard to cope with your pain today, know that these feelings are normal, it doesn't make you weak for struggling, it makes you strong for pushing through another day. You're entitled to break down every now and then, everyone needs a release at some point. Be proud of far you've come and know you have the strength to keep going no matter how bleak it feels. Each and every one of you amaze me each day with the courage you have. Thank you for being here to help others 💗💗💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere #beproud
106 4
I think this is something all chronic illness warriors learn pretty fast, going for a walk, seeing friends, even making it to the shops and back can be a massive task. We definitely learn to savour each and every moment 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere
103 3
So I didn't take my muscle relaxer/sleeping tablet last night because of the amount of side effects I've been getting from them, woke up this morning with a cracking migraine = Damned if you do, Damned if you don't 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainesupport #migrainecommunity #migrainepain #brainfog #brainpain #chr#chronicre #chronic #chronicmigraine #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological
174 7
I've been trying to eat much healthier these days, it's not always easy to do when you're unwell and just want something you can grab quickly with no fuss, I've been using my slow cooker a lot more too, it helps to be able to throw everything together and it looks after itself. Do you have any healthy eating tips you'd like to share? #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #brainfog #brainpain #chr#chronicre #chronic #chronicmigraine #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #healthyfood #healthyeating
85 18
Sorry I haven't been around for the last few days, this is exactly how I've been feeling, I've had horrendous migraines topped off with digestive problems caused by new medication, every muscle in my body hurt, I was at the emergency doctors at 2am Tuesday morning as the pain became too much to handle. I'm feeling slightly more human today which I am so grateful for. I hope you have all been well and as pain free as possible 💗💗💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #pain #paingry #paingryisreal #chronic #chronicmigraine #chronicpain #chronicsevere
166 18
#Repost @migraine_together (@get_repost) ・・・ I'm sorry the picture is a bit blurred, doesn't help when you have a migraine I know, but I thought it summed up chronic pain sufferers brilliantly. You will always have a voice in this community, and you most definitely will not be ridiculed for how you feel or your coping methods. I appreciate each and every one of you, thank you for being here 💗💗💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #brainfog #brainpain #chr#chronicsevere #chronic #chronicmigraine #fight #fightingpain #headpain #headache #headaches #tal#talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #talk #haveavoice #chronicpain
7 1
I'm sorry the picture is a bit blurred, doesn't help when you have a migraine I know, but I thought it summed up chronic pain sufferers brilliantly. You will always have a voice in this community, and you most definitely will not be ridiculed for how you feel or your coping methods. I appreciate each and every one of you, thank you for being here 💗💗💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #brainfog #brainpain #chr#chronicre #chronic #chronicmigraine #fight #fightingpain #headpain #headache #headaches #tal#talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #talk #haveavoice #chronicpain
99 10