Question from a member of the community. As I migraine all of the time this is a really difficult question for me to answer. If any of you have any tips or advice I would be most grateful 💗 #migraine #migraineur #migraineurs #migrainetogether #migrainecommunity #migrainepain #migrainesupport #migrainewarrior #brainpain #brokenbrain #brainfog #fight #fightingpain #headpain #headache #headaches #talk #invisiblepain #spoonie #spoonielife #invisiblepainwarrior #neurology #neurological #chronic #chronicmigraine #chronicpain #chronicsevere
8 1
Van buiten vergelijken we onze "Shape" wie is het grootste, wie is het droogst, wie heeft de meeste strepen... maar op welk vet% ik ook zit, ik ben mega trots op mezelf, iedere dag vecht ik me weer door de pijn en ongemakken.. hoor ik anderen zeuren over honger, moe en pijn en denk ik bij mezelf, kon ik maar 1 dagje jullie zijn.. het zou voelen als vakantie... als ik weer bloedend boven de wc hang droom ik van de lichamelijke ongemakken die de meeste ervaren.. ik ben misschien niet de grootste, sterkste, snelste, droogste en/of hardste... maar ik strijd iedere dag tegen mijn chronische ziekte en maak het beste van mijn leven en het leven van mijn meisjes!! Hoe erg vind ik het, als een persoon helemaal de grond wordt ingetrapt vanwege zijn uiterlijk voorkomen, je weet niet wat iemand heeft meegemaakt, je weet niet vanwaar iemand helemaal moest strijden.. we hebben niet allemaal het "perfecte" genen pakketje.. Don't judge a book by Its cover!!! #fuckcrohns #fuckchronicpain #survivor #invisiblepain #invisiblebattle
63 7
A couple things I don't normally talk about... because they are quite personal... I decided to share with you all tonight. 1) I love playing the piano. LOVE PLAYING. The only issue is, with #fib#fibromyalgia , my joints and tissues in my hands and arms begin to swell and my nerves turn into sharp knives. This is a pic of me icing my hand after playing the piano for 20 minutes. Did I love it? Enjoy it? YES!!! Will the pain keep me up at night and give me problems for the next 3-4 days....? Ya. Will I play again? Yep! 2) I keep losing a ton of hair. No matter how many vitamins I take- it keeps falling out but the handfuls. I now have several bald spots in my scalp... and also several bald patches in my eyebrows. I cover them up well so the bald spots/patches are not easily seen... but they're still there. I just want all my fellow sufferers to know that you are not alone. This journey is a long one. There's always going to be things that will bring you down and make you feel discouraged or beaten. But just know you're not the only one feeling this way!!! There's hundreds if not THOUSANDS of us!!!!! We can make it one more day. We can smile one more time. We got this. Kinda. Just don't ever give up. #spoonie #spooniefamily #spoonielife #spooniemom #sodsucks #sphincterofoddidysfunction #chronicillness #pancreatitis #liverissues #chronicpancreatitis #fibromyalgia #invisiblepain #warrior #survivor #chronicpain #chronicpainwarrior #invisibleillness #painsomnia
13 1
My little coo-coo bird had to #FaceTime me before her bath time & during her breathing treatment. mind you, i can’t understand a darn thing that girl is saying when she’s all muffled during her treatment. && i got a tiny present from my FAMILY, which helped my spirits a lot!! it’s always best when you have a good #SupportTeam. if not, i know i would NOT have made it thru this journey. none of it. #RS #kidsofinstagram #Lup#Lupuss #Chronicpain #CRPS #LupusSux #prayers #LupusLife #getmeoutofhere #LupusWarrior #chronicillness #Lupus #FuckLupus 🙊 #LupusAwareness #YouDontLookSick #Aut#AutoImmunease #ChronicRegionalPainSyndrome #AutoImmune #invisibleillnessawareness #InvisiblePain #GetThatSupport #DelawareHospitals #ChristianaHospital #ToddlerLife #ToddlerMom #chronicpainsucks
51 1
#truestory 😴😴😴 - In the space of 3days I think I have had approx 6hours sleep altogether 🙈 I am so beyond tired its unreal 😪😪 - Hope your Monday is better my friends - sending you all love + hugs 💜
23 1
It's so hard to have a disease that are invisible! I suffer from cronic neurologically pain from my ankles and knee. A lot of people don't understand why I'm sick when I doesn't look sick! You really know who are your true friends - a lot of them are gone because they can't cope that you cancel all the time! Remember you are not alone! ❤ #pain #pains #cronic #cronicpain #invisible #invisiblepain #sick #sickandtiredofbeingsickandtired #sickday #kronisksyg #syg #sygdom #youareloved #youarenotalone #lgbt #lgbtq #gay#gayguy #gay #fri#friends #friend #friendship #friendly #losefriends #talk
12 1
So much to do...my house looks like CRAP...but I FEEL like crap...and I need today to REST. Chronic illness SUCKS!!! :( #chronicfatigue #chronicillness #chronicpain #inpain #invisiblepain #invisibleillness #invisiblefriend #butyoudontlooksick #spoonie #spooniedown
38 1
It was amazing to see all the faces of lupus at the #NCLupusSummit in #Charlotte today. I was inspired by so many of the other lupies and really just happy to connect with these people who already feel like family! Of course, I'm in total recovery mode now. 😪 . . . #lupus #sle #lupuswarrior #lupuswarrior💜 #lupusfighter #lupuslife #lupustruth #lupusproblems #lupusstrong #autoimmunedisease #invisibleillness #invisiblepain #chronicillness #chroniclife #chronicallyill #chronicillnesswarrior #lupussummit #lupusfoundation #lupusfoundationofamerica
36 3
Happy Saturday, ☀️🌤⠀ ⠀ We know it can be hard to focus. There's legit countless distractions, how do we focus on just one? The thing is, you get to choose who & what you focus on.⠀ ⠀ 💭💭💭⠀ ⠀ Pick something you love & do that— a lot. Focus only on the positives. Channel your energy on the things that bring you happiness & shut the door on anything that doesn't. Negativity breeds more negativity. It's okay to say no. ⠀ ⠀ You go through enough with your back pain & pain management schedules alone —you deserve to soak up as much joy as possible. And you can. ⠀ ⠀ 👊👊👊⠀ ⠀ Here's to finding our focus. ⠀ ⠀ #bac#backernation #back #pai#pain #backpain #backpainsucks #chronicpain #spoonie #chronicillness #Fibromyalgia #pain #CRPS #fibro #RSD #invisibleillness #chroniclife #spoonies #invisiblepain #SpoonieSpeak #fibrofighter #spoonieproblems #silentpain #neuropathicpain #spoonielife
37 2
Don't let this be you. Follow your dreams, your hopes, your heart and don't ever let fear stand in your way. What's the worst that could happen when this is the alternative, being a prisoner of your own mind & body?! Free yourself & choose life! #sadness #exi#existingiving #life #invisiblepain #coward #notliving #existing #liveyourlife #followyourdreams #findcourage #bebold #bebrave #beyou #gak #ew #eclecticwords
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