Day 11 - Countdown to Christmas. DRESS TO IMPRESS. Forget that!! Dress for comfort is order of the day here. We all love the opportunity to dress to the nines and Christmas is a wonderful opportunity to select a fantastic festive outfit for that party or lunch on the big day. However, don’t feel pressured to wear 6 inch heels if they are not your thing, you will be definitely asking for trouble. Use fabrics which are not going to irritate an already achy body. If you are heading for some outdoor fun, make sure you are warm and dry. You can still be the belle of the ball but just make sure you are dressing for you. Click the link in my bio for more festive coping tips. . #day11 #11thdecember #advent #dresstoimpress #becomfortable #countdowntochristmas #selfcare #fib#fib#fibrogiaawareness #invisibleillness #chr#chronicpain #fibromyalgia #fibro #invisibleillnessawareness #chronicillness #chronicpain #fibrowarriors #fibrofighters #instahealth #spoonies #spooniestrong #tothrivenotjustsurvive #thrive #survive
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I am not completely healed. But I am happy and thank God I no longer have to rely on any of these "medicines". Not because I'm better, but because I've found a better way 🙏 They've had me on hormone replacements, heavy nausea medicine, blood pressure meds, blood thinners, antacids, antispasmatics, antihistamines, pain killers, anxiety meds, muscle relaxers, antibiotics, antidepressants, sleeping meds 😱 although I admit they helped me at times, most of them ended up being unnecessary and made many of my symptoms even worse, some because of misdiagnoses. The ingredients and side effects of these are just not worth the little relief if any they brought me and none of them healed me. Most of them the doctors who prescribed them could not even tell me what's in them and what they were made out of. I had to research myself. I think in the very least if a doctor prescribes something they should at least be able to tell you exactly what it is you are putting in your body. 💯 There's much better and healthier natural alternatives out there ❣ You can ask me what I've replaced these with and what I use alternatively in the comments below 😘 #lymesdisease #ehlersdanlossyndrome #endometriosis #lupus #cancer #leukemia #naturalhealth #naturalhealing #seizures #chronicfatigue #chronicpain #gastroparesis #ptsd #invisibleillness #invisibleillnessawareness #chronicillness #infertility #celiac #pots #dysautonomia #crohnsdisease #righttoknow #womenshealth
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In all honesty, I've been pretty angry over the past few days. My body is really struggling, I'm having a hard time, and I'm sick and tired of it all. I don't get angry very often, but that's definitely been the dominant emotion lately. Angry at my situation, angry at God, angry because I can't do the things that I love and want to do, angry that there isn't a solution, and the list just goes on and on and on. You know what though? It's ok. Too often we beat ourselves up because we don't have "perfect" emotions all the time. We have this unrealistic expectation that we can just smile our way through our trials and everything will be ok. In reality though, that's not how it works. Life is messy, trials are heartbreaking, and bumps in the road can literally break us. Maybe the beauty is not so much in forcing ourselves to smile and look perfect every minute of every day. Maybe it comes in the moments when we are broken and beaten, the moments when we want to give up more than anything in the world. Those moments when our souls are raw, our tears are fresh, our wounds are bleeding, and we are too weak to stand or move. The moment when you make the difficult decision that somehow, some way, even if it's the hardest thing you've ever done, you won't let this keep you down forever. So here's to days that are a broken kind of beautiful. I'm not super grateful for them by any means, but I'm proud to have survived this one. And that's enough for me 💪 . . . . #chr#chronicess #chronic #invisibleillness #invisibleillnessawareness #faith #sharegoodness #light #lighttheworld #christmas #overcomer #warrior #sunday #inspiration #sundaythoughts #disability #wheelchair #hope #love #ican #icandothis #har#hard #trials #strong #strongwomen #strength #hard #badday #broken #beautiful
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made a quick coconut milk matcha latte during a much needed study break tonight! here we go: 4 oz hot water with 1/2 matcha tea bags (or 2 tsp matcha powder), steeped for 3 minutes. heat coco milk until hot but not boiling, then combine the matcha tea, hot coco milk, a scoop of @vitalproteins gelatin to froth it upppp, a little bit of organic maple syrup, and blend for a minute. viola! this one isn’t as vibrant green as I like, but tastes so dang good. #lymedisease #autoimmuneprotocol #chronicillness #invisibleillnessawareness #realfood #foodthatheals #matcha #allthegoods
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So many people say this to me “but you’re used to it” thing is, you can’t “get used to” chronic pain. It just doesn’t work like that, every day I wake up sore, every day I wake up fighting tears, more tired than the day before, more sick, more broken and ever day. Every day, I am brave. That is the thing! “I’m not used to it” it doesn’t get easier, it gets harder. But every day I wake up and I remember that I survived yesterday, I wake up and tell myself to be brave and every day I am surprised, surprised that the pain can get worse and surprised that I can continue to live through it. We are not “used to it” We are brave. There’s a difference. 🤷🏼‍♀️🎗🖖🏻 #CBD #cbdoil #nevergiveup #fightingformyhealth #doctors #cardiologist #end#endometriosis #chr#chronicgue #spo#spoonie #loopmonitor #hope #healthy #blog #clean #hospital #surgery #endo #sick #fit #pcos #ministroke #spoonieproblems #TIA #fibromyalgia #Fibro #spoonie #pain #chronic #chronicpain #invisibleillnessawareness #mediband
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Another picture of my adorable tired puppy. My days have been so busy that I haven't had much time to take photos during the day. I will work harder to get more "action" shots. 🐾................................................................. Check my pawtners out! @casperthefriendlyhound @perseus_son_of_poseidon @nessa.miraclegolden.sdit @the.huskie.life @jeep.service.dog @mari_thegsd_sdit @service_dog_mila 🐾................................................................. #futureservicedog #servicedog #sdit #psdit #ger#germanshepherdpuppy #germanshepherd #psychiatricservicedog #pup#puppylove #puppy #dogsofinstagram #puppiesofinstagram #gsd #puppytraining #sdintraining #training #publicaccess #respectthevest #onduty #workingdog #invisibleillness #invisibleillnessawareness #depression #anxiety #supportsystem
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Tomorrow I was supposed to be leaving for Hendersonville and then having my brain decompression surgery on Wednesday. Unfortunately, plans have changed and my surgery has been pushed back😞 At this point insurance has denied my surgery and we are in the appeals process. They first said that the surgery was medically necessary, but wanted the surgery to be outpatient. My doctor basically just laughed replied that I was having brain surgery and would be in the ICU. 🤯 Insurance then asked for updated scans by my doctor, so I made an “emergency” trip and had scans done. They now have said they did not receive the radiology report from my latest scans, even though that was the only thing that was sent to them and won’t let us just resend!!🤬 My doctor’s office is working hard to get it approved and still believes they will approve it. I am thankful that another patient has switched surgery dates with me and I am still on the calendar for surgery later this month. Preparing my brain for brain surgery was hard and now I am trying to do this while worrying about insurance. It is so devastating to say that insurance has the power of my health. 😩This past year I have had SO many tests/scans done to try to figure out what was wrong with me. Insurance never once questioned anything. Now that I have found a way to hopefully help me they do not want to pay. And this decision was made by someone who probably has never even heard of Chiari and does not know me and how badly I want/need this surgery so that I can gain my health back! If you pray, cross fingers or send good vibes, I would greatly appreciate if you please do all the above so that insurance will come through🙏🏼❣️🤞🏼
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Those chai’s paid off. My website is live and with it comes my first blog post (link in bio). It’s about the moment I realized I would have to love myself in order to heal. It’s about the moment I realized someone else wasn’t going to fix me. . I am overflowing with emotions right now. Writing that post reminded me how badly I want to save other people from going through the pain I went through. And I want people who are going through that pain to know it’s going to be okay. That it’s already okay. That I would hug them if I could. I am there when it feels like no one else understands. That the pain is their body trying to heal. Please know I will never stop being here for you.
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My love, my rock, my life, my sane side. This man has been by my side through so much, I don't even deserve how amazing he is to me. 💕💕 I definitely haven't been the best wife but I'm working hard on bettering myself and changing that fact. This man means everything to me and I don't know what I would do without him. 💚💛💝 #myhusband #myman #hessexy #amazing #besthusbandever #invisiblewarrior #chronicwarrior #painwarrior #endometriosisawareness #endosister #invisiblewarriordiary #invisibleillnessawareness #keeppushing #painmakesyoudocrazythings #followmeformore
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I love the dramatic landscape here. The fog over the mountains, the vulcano, the vast ocean, black beaches and the greenery in contrast to the dry climate. 🙌
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This year has been an incredible journey for me, I have learnt so much about myself. Going to Stanmore hospital for physical rehab on my shoulder was life changing in every way, made me stronger both physically and mentally. (Check out the before and after pics of my shoulder) Working on @sickexhibition with the people I love most has been the best experience of my life and has shown me what I can do if I believe in myself, I have always had no doubts in others only myself. The amazing @mountmort and I recorded an EP together, I really do love to sing. I get to spend precious amazing moments with my goddaughter Eva and her mum and dad and Rikard, I really cherish those moments and her icecream covered smile. This year has been without a doubt the most incredible and challenging of my life, I am blessed ❤️ Oh and 3 YEARS OFF PAINKILLERS!! #mybestof2017 #bestof2027 #friends #music #invisibleillnessawareness #mentalhealthawareness #exhibition #invisibleink #physicaltherapy #hypermobility #fibromyalgia #painwarrior #shouldertattoo #empowerment #strongwoman #beforeandafter #bestnine
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Proudly contributing (and nosing through) the amazing #spo#spoonie2017 🎄I just love seeing what everyone is doing Whatever you get up to, be it outdoors adventures or cosy indoors activities, hashtag it so we can all see👀 . . . . . . . . . . . . . . #crohns #crohnie #crohnsdisease #crohnsfighter #crohnswarrior #crohnsawareness #colitis #crohnsandcolitis #ibd #ibdawareness #inflammatoryboweldisease #invisibleillness #invisibleillnessawareness #chronicpain #chronicillness #chronicallyill #chronicallyfabulous #spoonie #autoimmune #autoimmunedisease #butyoudontlooksick #fightlikeagirl
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it’s my favorite time of year, yet my most painful. to all my friends who battle. this one is for us. you’re not alone. 💛🦓 #thanksgod #dayinthelifeofnina #invisibleillnessawareness #elhersdanlossyndrome #potssyndrome #chronicillness
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Last night for the jingle bell ball⭐️🎄
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How do you guys cope/manage your mental health when Chronic Pain is part of the cause? Medications do not help me, they only cause worse side effects on top of it. I’ve reached out to a few counselors in the past couple of years. I was accused of “my pain not being that bad” by one. I was told by another that i could “cure my chronic conditions by looking up youtube videos” (IM NOT KIDDING). The list of bad encounters with medical professionals is unfortunate. I was told once by a doctor that he’s surprised I haven’t killed myself yet and then he even mentioned once how I should “take a rope”. Sooo, how do you guys cope? #endometriosis #endostrong #end#endosister> #endosister #endoawareness #endometriosisawareness #endowarrior #endobelly #endopain #endometriosispain #infertility #chronicillness #chronicpain #chronicallyill #spoonie #spooniestrong #spooniewarrior #inv#invisibleillnesseness #invisibleillness #invisibleillnesswarrior #fibromyalgia #fibrowarrior #ibs #interstitalcystitis #mentalhealth #depression #anxiety #ptsd #panicattack #butyoudontlooksick
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I AM SO HAPPY😭 this might not mean much to a lot of people, but for me this is the best news I have gotten in years. All of my blood work came back perfect but the bottom numbers to me are the most important. This means that my liver is functioning normal again. YOU GUYS MY LIVER GOT BETTER 🙌🏼 if you compared to these results to 6 years ago, you would think it was a different person. My liver was not functioning properly, I was deficient in almost everything, I was malnourished, my blood cell counts were way off, my SED rate was crazy high. I will still always have my auto immune diseases, but this is amazing because it means my body is actually healing. In this time I have made two changes: going VEGAN and STOPPING all the medical treatments. I am living proof that sometimes the doctors have it wrong and nature is the best medicine❤️ #veganforlife #spoonielife #chronicpain #chronicillness #invisibleillnessawareness #crohnsdisease #endometriosis #adenomyosis #polycysticovariansyndrome #uterinefibroids #foodismedicine #grateful #elated
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Came home last night and snapped our own selfie 🤳 by our Christmas 🎄 We used to get dressed up and go out often, but for obvious reasons our lives have drastically changed. Now, on those rare days I am able to push myself and make it to an event, I try to snap as many pictures and make as many memories as I can because I never know what tomorrow or this body has in store for me. I do, however, know what’s to come on Tuesday and I’m a mixture of nervous excitement. Praying it leads to a little relief until we get to transplant. ♥️🙏🏼💚 #makingmemories #cherishedmoments #thengs #loveofmylife #cipo #cipoawareness #tpn #tpndependent #fecolith #colorectalsurgery #strongertogether #intestinaltransplant #invisibleillness #invisibleillnessawareness #chronicillnessfighter
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The beautiful @fitwthfibro is my new brand ambassador! Yayyyyy!!!!! If you’d like to be a brand ambassador too, let me know!
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Snow in Boston! But what does it mean for our environment that snow hit the south before the NE? And how does he winter affect people’s mental health? ❤️ . . . . #globalwarning #recycle #footprint #globalfootprint #vegetarian #vegan #meatfree #dairyfree #nature #earth #carbonmonoxide #invisibleillness #invisibleillnessawareness #mentalhealth #mentalhealthawareness #anxiety #depression #anxious #mentalillness #compost #SAD #seasonaffectivedisorder #snow #boston
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I look gross, but my tube is out of my nose and I’m finally starting to feel better! . . . #teamFLY #teambetterforit #wellness #health #fitnessjourney #ibs #invisibleillnessawareness #surgery #wexnermedicalcenter #osu #buckeyes #wellnessjourney #finallyrelief
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Got my PIP assessment tomorrow and I'm so stressed. My flat is a tip, I haven't got dressed all weekend or showered or brushed my hair. Although I'm feeling positive about my recent decisions regarding new relationships I am obviously still sad that these relationships have had to end, and it is bringing me down. The thought of having to go and talk through all the things that are wrong with me/in my life, to prove I am sick to someone is not something I feel I'm going to cope well with. Do they really think anyone would choose to live like this? All I want is to be able to live a normal life with normal relationships and I just can't do it. Talking about it over and over again to people who aren't therapists or trained to help me is not going to make me feel better!! It just makes me feel judged and worthless. Ugh I'm not even sure what my point is, I'm just rambling. #spo#spoonie #spoonie #ramblings #mentalhealth #mentalhealthawareness #relationships #itsokaynottobeokay #invisibleillness #invisibleillnessawareness #butyoudontlooksick #sickgirl #sickgirlproblems #selfcare #putyourselffirst #selfcareisntselfish #depression #girlinterrupted #pip #fibrofighter #fibromyalgia #endowarrior #endometriosis #undiagnosed
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It’s sweater weather! Here’s just a few of my designs available on @redbubble. They have a sale on lightweight sweaters lightweight hoodies today 25% Off with discount code DAYELEVEN. Grab an Everyone Shits or maybe Iris Apfel. #sweaters #unisex #fashion #sweaterweather #winterfashion #irisapfel #everyoneshits #strongerthanyouthink #sacredheart #sadbutrad #mydesign #mydrawing #invisibleillnesses #invisibleillnessawareness #men#mentalhealtheness #mentalhealth #depression Link in my bio
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Feeling super pleased to have got my hands on one of the Mental Health Muscle crew Tees! They’re a group that recognise and help to support those suffering with Mental health. This is something that is close to my heart and I’m over the moon to have found this group and to have the opportunity to spread awareness! All proceeds from the purchasing of their merchandise goes to helping those that are suffering! Go and check out their page @mentalhealthmuscle #mentalhealth #mentalhealthawareness #itsokaynottobeokay #invisibleillnessawareness #mhmc
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Ladies, do you want FREE jewelry? I’m looking for 1-3 ladies with plenty of Facebook friends and twitter/pinterest/instagram followers to receive FREE jewelry, to promote Chronic Hope Jewelry all over social media. Monetary compensation can also be discussed! Comment or message me if you’re interested! Thank you!
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This says it all perfectly 👌👌👌 Lately I've had people messaging and commenting stuff, which quite frankly is just annoying bs!! Fibromyalgia... right OK so it's not all that well understood yet (apart from by the many people living with it and their families), and as of yet there isn't any cure or any one treatment that works for all to aleviate our symptoms but that does not take away it's legitimacy!! It's a very real condition that causes extreme chronic pain and fatigue amongst a list of other symptoms and it's a massive pain in the ass! What all us that are battling through each day with this condition don't need is the skeptical, 2 pence, uninformed, bullshit opinion of others suggesting that what we simply need is a magic pill, drink, potion/lotion, dietary change or lifestyle change and that's it our fibromyalgia symptoms go *poof* like ffs... really?!? It really annoys me when people suggest that this is somehow a choice we've made, we are somehow neglecting our own needs and a simple lifestyle choice/change will make us better. No thanks, f**k off, bye felicia! Anyone messaging me or commenting as such will simply be ignored because I don't have enough spoons for that kind of bs!! Just saying, rant over! #justsaying #fuckoff #dontneedyourbullshit #annoying #nothanks #byefelicia #fib#fibromyalgiaal #fibromyalgiawarrior #fibromyalgia #fibromyalgiaawareness #fibrosucks #fibrofighter #chr#chronicillnessawareness #chronicillness #invisibleillness #invisibleillnessawareness #chronicpain #chronicfatigue #spoonie #spoonielife #notenoughspoons
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Day 10 - Christmas Countdown. BOXING DAY. Wrapping presents with paper and sticky tape can be time consuming and uncomfortable to say the least. You can never quite find the most comfortable position for packing up that awkward shaped present and reaching over to wrap large packages is no fun for your neck, back and shoulders. How about investing in some festive boxes and tissue paper? Gifts will look fab and it will all be relatively painless – plus the boxes can be reused next year. Bonus! Click the link in my bio for more festive coping tips. . . . #day10 #10thdecember #christmas #advent #tipstosurvivetheholidays #coping #christmastips #christmasgifts #giftboxes #christmascountdown #selfcare #fib#fib#fib#fibrogiaeness #invisibleillness #chronicpain #fibromyalgia #spoonie #spoonies #fibrofighter #tothrivenotjustsurvive #invisibleillnessawareness #fibromyalgia #fibro #chronicillness #fibrowarriors #instahealth
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#spoonieconfessions Sometimes no matter how many spots are open, or how much I’m struggling, I don’t use one of the disabled spots even though I have a placard because my illness is often invisible and I want to avoid rude judgements from strangers, anyone else? 😔Jill
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I had the busiest week. Busier in one week than I have been in 6 months altogether! So I had one good day where I actually put some make up on and did my nails. So today I spent all day in bed. Ouch. #nyx #nyxcosmetics #volatileversatile #violet #fuschia #purplemascara #ps19 #covergirl #outlast #outlaststaybrilliant #saphirreflare #pureice #iwantyoutohauntme #blue #bluemoonglass #zebra #eds #spoonie #invisibleillnessawareness #chronicpain #bebrave
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battling fatigue is NO joke. It brings exhaustion to a whole new level that we didn’t even realize existed before our illnesses hit. A product that we have both found extremely helpful is Doctor’s Best Fully Active B complex. We were both deficient in Bs which made a bad situation even worse. The fact that these Bs are in their active form helps assimilate the vitamins into your body fully & properly. BIG help for those like me who didn’t absorb nonactivated Bs correctly! Click the link in our bio to find out more about this awesome product & the awesome benefits of B vitamins! -kate . . . . . #doctorsbest #bvitamins #pots #potssyndrome #posturalorthostatictachycardiasyndrome #lupus #lupuswarrior #ehlersdanlossyndrome #eds #tips #marble #spoonie #spoonielife #potsie #potsiestrong #mastcell #lowhistamine #chronicillness #chronicpain #chronicfatigue #exhausted #medicalzebra #worrior #fighter #healthyliving #mcad #succulents #invisibleillness #invisibleillnessawareness #healthblogger
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