Thinking of pizza 🍕 ...and wishing I didn’t feel so crappy 💩 I’d really love just to have a few hours where I can think, function & complete what I need to do. There is so much in my head that I’m finding it difficult to think through, process & do 🤦🏼‍♀️ CHRONIC ILLNESS SUCKS! • #invisibleillness #chronicillness #chronicpain #chronicfatigue #mecfs #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlostype3 #hypermobileehlersdanlossyndrome #hyp#hypermobilitysyndrome #hypermobility #hypermobilityspectrumdisorders #posturalorthostatictachycardiasyndrome #spo#spoonielife #spoonie #whatveganseat #govegan #veg#veganfood #veganeats #vegan #vegansofinstagram #vegansofig #yummyfood #veganpizza #vegancheese #veganzizzi #glutenfree #glutenfreevegan #glutenfreeveganpizza #veganfoodshare
39 5
Pain levels are horrendous. Want to cry and run away from my own body. Life just shouldn't be this painful. So tired of being in this much pain. #pain #painsomnia #fibromyalgia #EDS #elhersdanlossyndrome #hypermobilitysyndrome #HMS #painkillers #somuchpain #comfortcat #catsofinstagram #bla#blackcatsofinstagram #blackcat
5 0
Hiking day. Just a one hour trundle. Still feeling extra spacey, disoriented, weak and heavy-limbed. Got swollen glands so maybe fighting a bug, or that could just be a symptom of a fatigue flare. Anyway, got some fresh air, gentle movement, and the dog had a run ☺️. I'm listening to a podcast today- Invisible Not Broken. The lady who does it has EDS and in this latest one she's interviewing someone with CFS. So much "these are my people, they KNOW" going on 😍. It's not cheering me up exactly, but it's helping me feel part of a community of fellow sufferers 😁. The lady with CFS writes a blog about it so will have to look that up. #hiking #walkswithmydog #schnauzer #yorkshire #moors #chronicfatigue #cfs #hypermobility #hypermobilitysyndrome #brainfog #ehlersdanlos #EDS #edswarrior #invisiblenotbroken #spoonie #spooniecommunity #spooniefriends
15 0
Im so pissed at my job and at life in general rn. So it started hella snowing here (which it rarely does, and I am not equipped or skilled enough to handle it and I normally just stay home). Before the snow got really bad, I called into work being like "yo, I cant make my night shift" and I let them know ahead of time so they'd be able to get someone to cover. Because I work in a single staffed facility, they basically told me I had to come in. My shift lead, who was on call, grudgingly said I didnt have to come in. But then the scheduler called me and said I absolutely had to come in and to take an uber if I couldnt take transit. A few hours later, there was hella snow on the ground. I slip/fall easily when theres snow/ice/sludge on the ground, which is why I fucking called into work. Its dangerous for me to have to walk to the bus stop in case I fall because I WILL injure myself because my body is even more prone to that when its freezing. So anyway, I made it to the bus stop. But the bus never came after after gods know how long. So I called for a lyft, using basically the last of the money I will have for like a month (since my next paycheck goes toward rent/utilities/other bills). Idk if they'll reimburse me. And so I got there, and it turned out they FUCKING GOT SOMEONE TO COVER MY SHIFT, DESPITE THE SCHEDULER LITERALLY TELLING ME I ABSOLUTELY HAD TO COME IN. The person was going to work a double, so I was like, "eh, I'm here, I can't afford to get home and the buses arent running anymore, so yeah I guess I'll work the shift" so anyway we ranted about spoonie stuff together for like an hour before she clocked out (because we were both pissed so why not get paid extra lmao). ~continued in comments~
20 4
I am so thankful for medical personnel who think outside the box to help their patients. When I had my cervical fusion April 2016 it really messed up my shoulder blades. I was on the phone with my shoulder surgeon while in the hospital describing what I was experiencing. We were pretty positive a muscle detached or stretched out. We were all (my doctors and I) in agreement I needed some sort of bracing to support my arms but unfortunately all bracing available wouldn't help me bc the halo was in the way. I was given a script for a custom brace. I met with a certified orthotist who had the idea to make "arm rests". He made a mold that fit to my side. 13 days post-op I went back to pick the new brace up. My orthotist has never seen, or made a brace like this but thinks he very well may use it for other patients in the futute. It is things like this that make what I go through a little bit easier...it inadvertently helps others. * * @ehlersdanlosuk @ehlers.danlos @fightlikeawarrior * * #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlostype3 #EDSawareness #hyp#hypermobilitysyndrome #hypermobility #jhs #orthotist #orthoticsandprosthetics #newbraces #shoulder #cervicalfusion #nec#neckfusion #neck #surgery #neurosurgery #spooniestrong #spoonielife #invisibleillness #thankful #medicalfield #incision #postop #recovery #hopeful #positive #inspire #motivate #thinkoutsideofthebox #positiveoutcomes
181 9
Apologies for my horrible camera skills, but someone is hyper today and I thought it was worth sharing . . . #lit#littleangelvicedog #littleangel #servicedogintraining #servicedogsofinstagram #saintbernard #greatpyranese #goodboy #medicalalert #mobilitydog #psycservicedog #dys#dysautonomiaawareness #dysautonomia #eds #hypermobilitysyndrome #soc#socialanxietydisorder #socialanxietydisorder #dailycutestpets31
14 0
Still full of cold and onto the second day of having a headache! I feel awful! I don’t normally get headaches, what do you guys do to help, other than taking painkillers, as that doesn’t seem to be helping much. Hope everyone is doing ok 🖤
81 24
Did 2 runs. First run 2 miles at 9:47min n 2nd run with hubby 😍 2 miles at 11:00min for a total of 4 miles for the week. He did even better this time 2 miles at 8:57min! Also did 3 planks at :40sec n 50 crunches. #hal#halfmarathontraining #running #fitcouple #training #halfmarathontraining #pre#pregnanter. #fitness #pregnant #preggers. #preggo. #pregnantfitness #activepregnancy #runningpregnant #pregnancy #fitmom. #fitmommy #doublejointed #hypermobility #hypermobilitysyndrome #arthriticfeet #arthritis #dontgiveup. #nostoppingme. #noexcuses #3months #secondtrimester #14weeks #14weekspregnant #pregnantnotpowerless #babycub #twinflame
35 1
SHOUT OUT CHRONIC PAIN FOLLOWERS AND FRIENDS! I'm very unwell I got some sort of cold cough virus and my fibromyalgia is going into major attack mode. My skin feels sunburnt it hurts so much, my whole body hurts to the core. I've taken usual meds naproxen, dulexotine and now codiene phosphate. What else do you do, I can't bath with salts as my skin is to painful. HELP...... #help #painadvice #fib#fibromyalgia #UK #kent #fibromyalgia #chronicpain #hypermobilitysyndrome #pots #arthritis #painsucks #medication #doctor #support #sponns #spooniesofinstagram #spooniehelp
16 1
Broke out the purple mat for a change! Pilates Fix today. Can really see an improvement since last time I did it. Great stuff! Extra hip stability, yes please 😁 Dog's doing some too 🤣. Kids came home in the middle, chucking their stuff everywhere, and the 15 yr old telling me his knees have been flaring up. Sigh. Sorry about the genes kiddos! #21dayfix #pil#pilates/a> #pilates #autumncalabrese #noexcuses #noexcusemom #HAES #fitfatty #whatsyourreason #hypermobility #hypermobilitysyndrome #chronicfatigue #spooniefitness #ehlersdanlosathletes #schnauzer
22 0
|TOP TIP TUESDAY.....IF IN DOUBT...ASK!| - - My ‘hypermobility’ post had an amazing response over the weekend. Facebook shares and personal messages from people all over the U.K. I am so grateful to people who took time out of their day to share their solutions and helpful hints about how they manage their hypermobility. However the messages were very key: - - 1. Physiotherapy including hydrotherapy 2. Massage 3. Exercise 4. Relative rest 5. Acknowledging and accepting the ‘good’ and ‘bad’ day - - Keep ‘em coming! People think social media is like another planet but for me it’s the ability to reach someone who just might need your help/time or some inspirational words to elevate their day! - - #hypermobility #hypermobilitysyndrome #connectivetissue #sleep #dypraxia #injury #nhs #physiotherapy #hydrotherapy #selflove #selfhelp #distinctphysiotherapy
22 0
So I had my appointment today and my pharmacist wasn't even there even though he organized the appointment for me, but I met my new GP for the first time and he seems super nice. He listened to what I had to say about the medications and he double checked my prescriptions and made sure I was okay with the dosages and he was so thorough I'm stopping taking my amitriptyline as I've never noticed a difference on or off it and my doctor told me pretty much that if I wanted to stop it that's fine and that I could stop it but if I change my mind halfway through and need to go back on it at all he said to just make another appointment and we would sort it out together. I feel good stopping a medication because I just feel like I'm moving in the right direction for once I'm seeing him again in exactly a month (: In other news, my shoulders and neck really hurt today, not sure if it's because of surgery or posture or just eds but ahh so frustrating Picture was walking home from my appointment #ehlersdanlos #ehlersdanlossyndrome #eds #edswarrior #edsawareness #ehlersdanlostype3 #hypermobileeds #hyp#hypermobilitysyndrome #chronicillness #chronicpain #spoonie #hms #orthostatichypotension #pots #posturalorthostatictachycardiasyndrome #connectivetissue #connectivetissuedisorder #dysautonomia #zebra #edstype3 #hypermobility #tmj#tmjd #tmj #temporomandibularjointdisorder #irritablebowelsyndrome #ibs #zebrastrong #postop #doctor #amitriptyline
32 0
Erin made these bath bombs with a kit she got for Christmas. I love gifts like this as they are educational and fun. They also smelt pretty good! . . . . #bloggingyourwaytoriches #glosbloggers #embracehappy #cheltenhambloggers #lifewithkids #parentingisfun #beingerinrose #pixel_kids #epig #learningisfun #ste#stemgirls #daughtersrock #hypermobilitysyndrome #girlsinscience #childvlogger #stem #hipdysplasiasurvivor #stemeducation
78 3
Send help fibromyalgia attack in progress! As I'm ill with some viral yuck my body has gone into meltdown tonight! I actually want to chop my arm off. Say the mantra in my head "this to shall pass" I've been rather well lately so I'm due a god old fibromyalgia attack...yay me!!! #fibromyalgia #chronicpain #pain #sick #fibrowarrior #spo#spoonieort #spoonie #spooniesofinstagram #hypermobility #hypermobilitysyndrome #hms #pots #lowbloodpressure #virus #help #support #thistooshallpass
11 1
So this is a drawing I did last year that I still love. I honestly love to draw but it’s sometimes hard because my hands hurt so quickly. But I start occupational therapy soon so that should help me find ways to draw more easily. #morethanaspoonie
34 3
An old picture, but just wanted to explain in case any of you lovely #eds#eds and #spoonie friends have been concerned, I am starting to feel a little bit better, can move a bit more and tomorrow is my past day on #naproxen and #diazepam. I've had some really kind and heart warming pm's from you guys. Thank you ever so much. You can all agree pm me any time for a chat if you are having a bad day or feel lonely. Love our #chroniccommunity support network. Best thing on social media. #ehl#ehlersdanlosrome #ehlersdanlos #eds #eds3 #hypermobilitysyndrome #kneepain #anklepain #hippain #scoliosis #neckpain #fibromyalgia #chronicillness #zebrastrong #disabledandcute #chronicpain #kneebrace #disabledandproud #gratitude #friends #thankful
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Today's been a bit of a struggle for me, I'm going through some stuff right now, but this outfit has given me some confidence. I love the colour coordination, it's comfy, and I feel chic and sophisticated. How was your Monday? [Image description in comments] #ootd #upanddressed #wheelchairfashion #dis#disabledion #disabled #disabledandcute #wheelchairuser #EDS #EDS3 #hypermobility #hypermobilitysyndrome #ehlersdanlos #wheelchairlife #fashion #unicornhair #mul#multicoloredhair #colourful #multicolored #multicoloured #multicolouredhair #dyedhairdontcare #mer#mermaidhair #mermaid #cripplepunk #cpunk #ehlersdanlossyndrome #spoonie #spoonielife #zebra #zebrawarrior
58 6
Post doctor appointment lunch. Hey it has vegetables ok. 🌱 After 8 vials of blood and 4 x-rays , @blazepizza was necessary. 🍕❤️ Had a "scoliosis scan". Somehow I made it to age 32 with nobody noticing my spine is curved. 😒 PT noticed a few weeks ago. Also got a referral to cardiology and orthopedist. Long ass day. #hyp#hypermobilityhausting #hypermobility #connectivetissuedisorder #scoliosis #hypermobilitysyndrome #glutenfree #glutenfreepizza #pizza #comfortfood #fatigue
10 2
Watching brave while tying the get over the pain in my legs, I've taken all the painkillers I can so right now I just have to rest, the good news is I've been getting to sleep at around 1am which is good for me the bad news is I'm really tired throughout the day #chronicpain #chronicillness #thatchronicillnesslife #hypermobility #hypermobilitysyndrome #hypermobilitysyndromes #spoonie #spoonielife
7 0
The only reason to look backwards is to see how far you've come. 💖 A little spring clean, so it's only right to give a nod to what I found lurking! This was my leg's best friend last year. When the bandages wouldn't stop the knee feeling like it was slipping again. When I felt like I was dragging my leg around rather than using it, and when the physiotherapist marked down difference in muscle sizes due to muscle loss. It's really easy to overlook what anyone is going through or has been through when you can't see visible clues like this big splint. It's also all too easy to be harsh to yourself on reaching goals, when we should all be looking at how far we've come. A nod to the past, and a big hello to the future. 😁 #progressnotperfection #beyourownmotivation #morethanmeetstheeye #mondaymotivation #bethebestyou #hypermobility #hypermobilitysyndrome #exercisereferral #getactive #juststrong
10 1
M E N T A L • H E A L T H • M O N D A Y I’m going through a rough time at the moment with my health and my mental health. Owner of invisible illnesses no two days are the same apart from one thing, my need to surprise intrusive thoughts about myself, not being good enough, obsessing over my weight, my nose not being skinny enough, my lazy eye, my mum pouch, the list goes on. I refuse to give in to these thoughts, I refuse to conform to beauty standards or societies need to tell me to fit in, I never will and I’m ok with that, but it doesn’t stop the thoughts. For anyone out there struggling with not meeting societies beauty standards, I’ve taken this pic, and then edited it to within an inch of its life so you can really see that what you’re trying to achieve DOESN’T EXIST! B E • Y O U! ❤️ #men#mentalhealthay #mentalhealth #mentalhealthawareness #invisibleillness #fibromyalgia #fibrowarrior #hypermobilitysyndrome #aintnobadvibeshere #goodvibesonly
32 4
Normal service has been resumed 🤣 though still feeling more off than usual. Took the dog for his hairdo, then Dirty 30 😁. Dripping now 😂. The dog gets more haircuts than I do! #dirty30 #workout #21dayfix #schnauzer #doggrooming #HAES #fitfatty #spooniefitness #hypermobility #hypermobilitysyndrome #nevergivingup #downbutnotout #chronicillness #chronicfatigue #noexcuses #noexcusemom
32 1
What should my super hero name be? #ehlersdanlossyndrome #hypermobilitysyndrome
4 0
It’s my birthday weekend!!! I can’t let my pain win. But I can enjoy all the outings and taste all the desserts and enjoy the beautiful people, AND come home to relax with some self-care. A spot on my mid-back feels like it bulging (and I’m hoping that is not true), my low back and neck has crazy pressure, too, at my discs. And my shoulder hurts. My surgery foot which hasn’t hurt like this is years is burning like a tendon is injured. I’m just going to rest because I need it and not worry. I’m going to ice rather than pushing it more. I’m going to smile and find something better to think about at the moment. Yesterday was great and most of today was too and so I’ll focus on that. Constant battle of mental strength with chronic pain. Today my body maybe have struggled but essentially it also won. My body could have knocked over my positivity like a bowling pin. And I tried real hard to stick it and I did. #win #positive #positivethinking #thankyoulord #neckissues #spine #ddd #degenerativediscdisease #osteoarthritis #arthritis #fibromyalgia #birthday #birthdayweekend #turning30 #turning100 #allthings #chronicpain #pain #pcos #pituitarytumor #hypermobility #hypermobilitysyndrome #hms #love #loveyourself #selfcare #rest
22 4
Practice makes perfect and I keep trying. With my disability it makes it a little harder, but I'm determined. I will do this. Nothing will stop me. #NEVERGIVEUP www.legginggirl.com/niqiholmes #stopbullying #kidswithbigdreams #hypermobilitysyndrome #eds #stay #benice #bekind #beyou #beunique #limemag #Texaspreteenmodel #igsflyestkids #perfectstylekiddies #minimodelfeatures #Texasteenmodelsofficial #gymnastics #legginggirl #leggings
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I’ve been having issues with blood pooling in my hands at school a lot. The hand on the top was hanging down while I wrote something down and this is after I raised it up for a few minutes. As you can see the hand on the top is more swollen and slightly purple. I had my psych teacher take a picture so I could show my mom and my doctors.
43 2
It’s been a week off school for half term but this little one is looking forward to being back in the classroom tomorrow. Keeping her busy at home means I hear ‘what are we doing today’ frequently. Erin is such a bubble of excitement and wants to be on the go. Thankfully she was able to use the Amazon Kids Tablet this week inbetween everything else. Read our post all about it on Emma and 3 . . . #glosblogger #gloucestershire #cheltenhambloggers #embracehappy #glosbloggers #bloggingyourwaytoriches #lifewithkids #parentingisfun #beingerinrose #pixel_kids #epig #makemoments #learningisfun #ste#stems #daughtersrock #hypermobilitysyndrome #childblogger #readingiscool #girlsinscience #childvlogger #mothersanddaughters #stem #hipdysplasiaawareness #amazonfireforkids
67 0
I’M MOVING!! So I know I’ve already made it know but I haven’t done an actual post yet. Since April last year we have been planning a big move. James & a friend have been working on a new business opportunity which means we will be relocating to CARDIFF!! It has been almost a year, it has been stressful, emotional rollercoaster. However, we could not be happier to be moving and to start a new adventure. We have found a lovely house 15 minutes from the city. Lovely sized rooms. A place where I can create an office for blogging. It has a lovely keep kitchen and a cosy living room. A huge garden which I cannot wait to spend time in over the summer! It’s an old coal house so it’s got loads of storage etc! Cardiff is a beautiful city and I can’t wait to live there and explore. We move next weekend however, we will be in Newbury for another week after before living there solely. We will be back for hospital appointments during March before being transferred to Cardiff. I will try to keep you all update as we go. Please excuse my excitement as well as any absence during this period. I am also excited to say that I should be getting my Power Assist for my Wheelchair in the next few weeks to start our new life in Cardiff! I cannot wait!! However, we will have £770 to raise! The link is in my bio if you are able to donate or share I would be forever grateful. Knowing I have this amazing tool to support our move and allow me to live life again and be independent would be amazing!! Thank you to everyone who has supported me so far!! #whe#wheelchairing #wheelchair #powerwheelchair #alberefix #alberefix35 #hypermobilitysyndrome #cfs #hms #scoliosis #chronicpain #oesophgealdysmotility #movinghouse #cardiff #wales #southwales #relocating #disability #disabled #disabledblogger #disabilityblogger #chr#chronicillnessblogger #chronicillness #spoonie #spoonielife
45 2
Snuggles with the pupper. I am super tired and I’ve hardly done anything! This cold has taken it out of me and I feel awful still. Hoping I’ll be better for work tomorrow!
75 2
Easy Sunday outfit. Patterned trousers, a band t-shirt, and bright coloured cardigan for a day date to a craft cafe with my beau. We spent over two hours playing with hama beads and drinking coffee, it was awesome. [Image description in comments] #ootd #upanddressed #wheelchairfashion #dis#disabledion #disabled #disabledandcute #wheelchairuser #EDS #EDS3 #hypermobility #hypermobilitysyndrome #ehlersdanlos #wheelchairlife #fashion #unicornhair #mul#multicoloredhair #colourful #multicolored #multicoloured #multicolouredhair #dyedhairdontcare #mer#mermaidhair #mermaid #cripplepunk #cpunk #ehlersdanlossyndrome #spoonie #spoonielife #zebra #zebrawarrior
50 5
Ensin romahdin, sitten vähän suutuin, sitten suuttumus muuttu motivaatioks ja hain vihdoin viime viikolla kipuun apua osteopaatilta ja sain isot tsempit fysioterapeutilta. Nukuttukin pari yötä paremmin. Heippa epätoivo! 👋🏼 Mä jaksan, mä pystyn 💪🏼 #chronicpain #ifuckingcan #mitestoikauluri🙆🏼‍♀️ #hypermobilitysyndrome #nyalkaahimoreenaus
38 3
Ok seriously, anyone else with Crohn's/gp/hsd (don't know what could be the culprit) bruise REALLY FUCKING EASILY?? seriously it's pissing me off so badly right now, and it's awkward as hell. I swear you just have to look at me hard enough and I bruise 🙄 look like I'm being beaten on a daily basis 😂🙈 and obviously, anything I can do to help prevent it? #chronicillness #chronicpain #chronicallyill #invisibleillness #cro#crohnsdisease #crohns #ibd #autoimmunedisease #gastroparesis #hypermobilitysyndrome #hypermobilityspectrumdisorder #bruises #spoonie #spoonielife #spooniestrong
46 10
Weekend-rest-mode ON. I realized lately that I’ve been pushing myself more than I should.. which is hard to accept because I feel like my regular day is maybe 50% of a “regular” person’s day. I’m pushing myself — in moderation, or so I intended — to trrryyy to close the gap by doing things that I don’t necessarily want to: exercising on days when I’m fatigued, pushing through pain to get housework done, working through brain fog, etc. . I’ve gotten so used to not listening to myself that today after several failed attempts at getting out of the house, and a whole lot of judgement at why I was feeling so pooped, I conceded that my body and mind just needed to recharge. . I’m telling myself that someone else’s 50% is still my 100% and I need to stop judging myself so harshly. I’m a slower-battery-iPhone person and I have to be okay with that because there are no battery exchanges available just yet. 😉🤷🏻‍♀️🤷🏻‍♀️ . #invisibleache
43 11
Sorry for the complete lack of updates 😂 I've been doing pretty much nothing since surgery I put on this cushioned sling that I wore last surgery which has been a good idea cause it has a strap that goes around your back and stops your arm from moving away from your body which was causing me the most pain Does anyone know anything about how often slow transit constipation occurs in EDS? I've been thinking that maybe that's my problem and I'm thinking about asking my GP about it when I see him I have physiotherapy tomorrow and I'm not sure why because my physiotherapist said she knows nothing about EDS when I was meant to be referred to a hypermobility specialist, so she's pretty much just guessing what exercises could help. I've been doing my exercises twice a day almost everyday since I last saw her, they're pretty much just walking slowly with one foot in front of the other without holding on to anything and trying to balance, which for me isn't easy at all #ehlersdanlos #ehlersdanlossyndrome #eds #edswarrior #edsawareness #ehlersdanlostype3 #hypermobileeds #hyp#hypermobilitysyndrome #chronicillness #chronicpain #spoonie #orthostatichypotension #posturalorthostatictachycardiasyndrome #connectivetissue #connectivetissuedisorder #dysautonomia #zebra #edstype3 #hypermobility #temporomandibularjointdisorder #irritablebowelsyndrome #ibs #zebrastrong #slowmotility #slowtransitconstipation #postop #shouldersurgery #sling #awarenessribbon #surgery
51 10
I know this step count is pretty rubbish in comparison to most, but I’m actually really proud of it. ↓ I’ve not been feeling too great recently, but today I pushed myself to go to an event as to not let anyone down. I taped my ankles with #kttape and although my left ankle still managed to sublux, I carried on as my limpy little self. ↓ I sat out right at the end and didn’t take part in the formal prize giving and stuff, which I really did feel guilty of, but I’m hurting like crazy and need to get back at it tomorrow. ↓ No doubt I’ll be making an appearance with my multi coloured crutches. ↓ If anyone has any tips on how to stop your crazy flexible, and hyperextending ankles to stop giving way from underneath you, hit me up with them tips! ↓ ↓ ↓ ↓ #ehlersdanlossyndrome #eds #edstype3 #spoonie #hyp#hypermobilityrome #heds #hypermobility #ankle #stepcount #busyday #proud #tips #edstips #mobility #notalldisabilitiesarevisible #spooniecommunity #spoonielife #walkingaid #physicalhealth #pain #hurt #goodday
20 0
It only took 4 months but the VA finally got my silver ring splints from @silverringsplint to me and not a moment too soon since my fingers are hurting so bad today. Now to get used to wearing them! You guys have no idea how ecstatic I am to have these! #ehl#ehlersdanlossyndrome #hyp#hypermobilitysyndrome #con#connectivetissuerder #ringsplints #veteran #thankful #weakjoints #alternativetherapy #bendypeopleproblems #edswarrior #zebralife #ehlersdanlos #connectivetissue #spoonie #hypermobility #invisibleillness #collagen
27 5
Pleased to announce my first blog post has gone live ! For my first post I have written a short and simple explanation as to what HSD ( my condition is ) so people are more aware that it doesn’t just mean we are bendy ! Sorry for the delay but my broken scaphoid took priority hope to post regularly from now on :) . #hypermobilitysyndrome #hypermobiltyspectrumdisorder #ehlersdanlossyndrome #hypermobilityawareness #bendy #givingGptoolscampaign #health #blog #wheelchair #blogpost #blogger
31 5