"What also gives me hope is the resilience of patients. Online we came together, and we shared our stories. We devoured what research there was. We experimented on ourselves. We became our own scientists and our own doctors because we had to be. And slowly I added five percent here, five percent there, until eventually, on a good day, I was able to leave my home. I still had to make ridiculous choices: Will I sit in the garden for 15 minutes, or will I wash my hair today? But it gave me hope that I could be treated. I had a sick body; that was all. And with the right kind of help, maybe one day I could get better." -Jennifer Brea (w/Chronic Fatigue Syndrome) ♡ Reading her TED talk last year was amazing. Her words were explosive for me. I'm not alone. You're not alone. A lot of us must make these ridiculous, and very real, choices every single day. At one point, I wondered if someone was poisoning me, because I felt like I was dying, but I knew that was too small a possibility to truly consider. Not having answers can be so frustrating. That's why it's up to us to treat and care for ourselves, and to learn how to make life manageable, one way or another. It gets better. The worst of it does NOT last forever, no matter how bad it is. I will survive. You will survive. We will inspire hope in each other. Every damn day. ♡ . . . #painwarrior #ill#illnessior #chronicpain #chronicillness #cfswarrior #hope #fibromyalgia #fibrofog #hea#health #strength #positivity #health #survival #perseverence #determination #sensoryprocessingdisorder #sensitivity #hsp #mentalillness #chronicfatiguesyndrome #sick #bulgingdiscs #illness #chronicheadache #bipolar #depression #colitis #disease #diverticulitis #bpd #resilience
9 0
Brain Fog I call this brain fog, a symptom often talked about by people with fibromyalgia and other chronic pain conditions. People talk about having difficulty concentrating and with memory. #bra#brainfog #scienceart #biologyart #medicineart #medart #sciart #sciartist #sluka #slukaart #kathleensluka #brainfog #fibromyalgia #fibrofog #fibromyalgiawarrior #fibromyalgiaawareness #acrylicpainting #painting #artofneuroscience #neuron #neuroart #neuroscience
21 2
Last night, I asked @kha@khahalien to help me get some things from my storage space. We grabbed all of my soap supplies, and a lil greenhouse shelf (which I might use to hold my soap curing trays). That plastic is the cover for the greenhouse shelf. But I forgot the connector pieces lol. #fibrofog 😂 soon will be making lots of soap for my @dreamspheresoaperie biz 💕 still need to go back for a few things but I feel happy about what I was able to get done last night. I was organizing until MIDNIGHT... my feet and back were hurting so bad but I am satisfied. Related: I am also thankful @khahalien has a working car again & was willing to help me move so many boxes. We literally filled the car up. He is amazing for helping me. Even if he makes these amusing grumpy faces in response to my demands lol. 🖤swipe left to see my organized work space! #soa#soapmaker #fibromyalgia #storagespace #retrieval #kevinbabez #soapstudio #artist #artdesk #oilsandadditives #bathbomb #soap #handcraftedsoap #beyourownboss #womanentrepreneur #ceowoman #handcrafter #skincarespecialist #holisticskincare #allnatural #helpinghands #lovethisguy #kǎiwénhungliang
9 2
@cod@codigosaude - Fibromialgia é o tema desta semana do canal @codigosaude. A doença não tem cura, mas pode ser controlada para se evitar crises. O reumatologista Luiz Severiano Ribeiro explica tudo sobre essa síndrome não-inflamatória. Confira a entrevista às 20h no YouTube. Compartilhe o vídeo e se inscreva no canal! #CódigoSaúde #fibromialgia #fibrofog #reumatologia - #regrann
1 0
Fibromialgia é o tema desta semana do canal @codigosaude. A doença não tem cura, mas pode ser controlada para se evitar crises. O reumatologista Luiz Severiano Ribeiro explica tudo sobre essa síndrome não-inflamatória. Confira a entrevista às 20h no YouTube. Compartilhe o vídeo e se inscreva no canal! #CódigoSaúde #fibromialgia #fibrofog #reumatologia
25 0
Heyyo guess who just spent their 21st birthday in extreme pain! I'm blaming tomorrow's screwy weather, but hey, its winter and this is Canada so you can't really expect anything but screwy weather. Body hurts, pain is causing extreme fatigue and nausea, and the fibro fog is strong(no seriously, I went to shower earlier in the day, went into the bathroom, took my clothes off and proceeded to get confused as to why I was in the bathroom naked, put my clothes back on and walked out.) Appointment tomorrow and post birthday Banana Splits so that's a plus #spoonie #fibrowarrior #rawarrior #rheumatoidarthritis #fibromyalgia #cfs #fibrofog #spooniestrong #happybirthdaytometho
17 1
I’m having an increasingly tough time remembering when or if I’ve taken my meds. I’m pretty sure I’ve missed one of my morning doses in the past week and I’m also worried that I’ve double dosed just now. This whole fibro-fog thing is getting out of hand and I feel like I’m legit losing my mind 😫 #sickgal #fibrofog #fibroproblems #pillspillspills
54 13
When this first started happening to me I thought I was being irrational and it was down to me till it happened a few times and I started to piece together that I had no control over my emotions when the pain really takes hold💥 We can be really excited to be somewhere enjoying ourselves then it hits us and the next minute we are avoiding eye contact, being short just desperate to get home to our bubble and management techniques. Upon reflection we feel bad, this isn't your fault but also it isn't ours we are as hurt as you because THIS ISN'T US 🗯️🖤 #chronicpain #chronicillness #cfs#ms #connectivetissuedisease#undifferentiatedconnectivetissuedisease #cysticfibrosis #but#butyoudontlooksick #spo#spoonies #spoonielife#invisibleillness#fibromyalgia #epilepsy #chronicfatiguesyndrome #fibrofog #crohnsdisease #ibs#lymedisease #ray#raynaudsumatoidarthritis #autoimmunedisease #lupus #butyoudontlooksick #spoonies #endometriosis #anxiety #depression #pots #raynauds
40 0
Moody Monday I can't seem to get anything done today. What method do you use, so you don't accidently repost photos? I just saw that the recent Thai courtyard one I posted, I did already :( . . #noenergy #fibrofog #accidentprone #naptime #flo#flowerinstagram #flower #heavenly #needamaid
46 4
Brain Fog...NY fog...Migrane...had a nourishing lunch @queeniemc and me 🤗@bistro_milano delicious! Just what I needed😋 Butternut Squash soup and Grilled chicken with sautéed spinach, like homemade. Felt really good! #goingtoseetuts #operatonight #iltrovatore #lastnightinnyc #pushingthruthepain #backpain #fibrofog #fuckitol #havingagintonic #fibropain #fibrofighter #migranefighter #wontstopme #fibromialgia #fibromyalgia #migranestillwithme #blessed #grateful #cookingforhealing
47 0
#Repost @mylastalbumwasthechronic with @repostapp ・・・ If you are ever accused of letting someone down or not being as fun as you used to be, ask people to look at the broader picture of your life and they can see for themselves. I'm sure we would all much rather cut the mundane stuff but our luxuries are easier to sacrifice. #chronicillness #chronicpain #fib#fibromyalgia #connectivetissuedisease#lupus #cysticfibrosis #migraines #cfs#anxiety #pots #raynauds #rheumatoidarthritis#autoimmunedisease #invisibleillness #spoonielife #ehlersdanlossyndrome #lupus#anxiety #depression #endometriosis #epilepsy #chronicfatiguesyndrome#fibrofog #lymedisease #fibromyalgia #crohnsdisease #ibs#lymedisease
10 0
If you are ever accused of letting someone down or not being as fun as you used to be, ask people to look at the broader picture of your life and they can see for themselves. I'm sure we would all much rather cut the mundane stuff but our luxuries are easier to sacrifice. #chronicillness #chronicpain #fib#fibromyalgia #connectivetissuedisease#lupus #cysticfibrosis #migraines #cfs#anxiety #pots #raynauds #rheumatoidarthritis#autoimmunedisease #invisibleillness #spoonielife #ehlersdanlossyndrome #lupus#anxiety #depression #endometriosis #epilepsy #chronicfatiguesyndrome#fibrofog #lymedisease #fibromyalgia #crohnsdisease #ibs#lymedisease
37 2
Oh you know, just another day in the #fib#fibro/a> nbd. New post on the blog, "Who Needs Sleep" link in bio ;) #fibromyalgia #fibroflare #chronicillness #flareday #butyoudontlooksick #invisibleillness #insomnia #chronicpain #fibro #brainfog
34 5
I made this today 😊 hope it makes some of you smile 😊 . Asthma is being a pain this evening 😔 having to keep taking my inhaler 🤦🏽‍♀️ . Love and spoons . . . . . #chronicpain #chronicasthma #chronicwarrior #chronicillness #spoonie #spoonielife #spooniewarrior #asthma #sciatica #ibs #fastheartbeat #pots #nausea #depression #anxiety #anxietyquotes #ptsd #autism #asd #quotes #nurishnotpunish #fightlikeawarrior #fibromyalgia #fibromyalgiawarrior #fibromyalgiaawareness #fibrowarriors #fibrofog
153 4
You may know I am a #fibrowarrior but you may not know that the last quarter of 2017 was one of the hardest seasons I’ve had in years. I barely worked out, canceled clients left and right, and spent most of my free time on the couch or in the bed. I struggled to do anything mentally or physically. I’m so grateful to say that I was able to start working out again at the beginning of January (thank you CBD!) and today had an absolutely awesome workout!! So please, if you’re in a season of struggle, hold on to hope, change may be just around the bend!!! #fibromyalgia #fibroflare #fibrofog #fibrofit #fitmom #warrior #hope #myhelpcomesfromthelord #myhopeisinhim #jesussaves #blessed #nevergiveup #keepmoving #yoga #strength #fitness #cbd #cbdoil #zilis
31 7
Fibromyalgia. Muscle pain and stiffness, fatigue, brain fog, memory issues, sleep and mood issues, headaches, IBS are Fibro symptoms as well as Lyme symptoms. If you have a Fibromyalgia diagnosis you may have Lyme Disease too! #lyme #lymeawareness #lymedisease #definitelylyme #definitelyme #fibro #fibromyalgia #fibromyalgiaawareness #fibroproblems #fibrowarriors #musclepain #musclestiffness #fibrofog #sleepproblems #fatigue #headache #ibs #misdiagnosis #wrongdiagnosis #differentialdiagnosis #undiagnosed #findadiagnosis
40 2
No kidding! I was asleep for a little while. Now I'm wondering if I can fall back asleep and still get up with my alarm in a few hours :/ #insomnia #fibromyalgia #chronicillness #cantsleep #fightingfibro #TexasFibroWarrior #fibroflare #chronicpain #invisibleillness #fibrofog
53 4
New Supplement for Energy, Longevity, Cognition & Immune: Ginseng▪Cordyceps▪Lion's Mane▪Maitake▪Shiitake These capsules contain potent ginseng and medicinal mushroom extracts powders. This adaptogenic supplement greatly enhances mental and physical energy, which can help with depression, fatigue, lack of motivation, and feeling old and worn out. It protects and regenerates nerve and brain function, and helps reverse cognitive conditions like dementia and Alzheimer's. This stress-busting supplement boosts your oxygen levels and your immune system. Now that is a beautiful thing. ♡ . . . . . #adaptogens #health #wellness #energy #congition #dementia #fibrofog #alzheimers #ginseng #lionsmane #shiitake #maitake #lungtonic #brainhealth #cfswarrior #fatigue #mentalhealth #depression #moodboost #stressrelief #immunesystem #mushrooms #stimulant #cordyceps #longevity #libido #nervehealth #oxygenboost #medicinalmushrooms
28 0
Pain face... . I hate having fibromyalgia, especially the sudden onset on debilitating pain. Woke up this morning feeling kinda sore, and that quickly turned into extreme soreness/pain/uncomfortableness on my entire right side of my body. Literally pain on the right side of my face and all of the way down to my toes. I feel feeble. I hate this... . #fwords #fib#fibrogia #fibro #fla#flareup #fibroflare #flare #fog #fibrofog #feeble #frustrated #fuck #fuckthis #fuckit #face . #pain #sore #soreness #uncomfortable #rightsideofmybody #headtotoe #bodypain #suddenonset #wokeuplikethis #ihatethis #feelhelpless #frustrating #depressed #faceoffibromyalgia
33 0
....And the fire inspector already knows what to expect when you walk up to the counter by the look of your sweaty anxiety ridden, puppy eyed face. #arealestateagentswalkofshame#thepainintheassrealestateagent#realestate#realtor#realtorlife#adayinthelifeofarealtor#fibrofog#fibromyalgia#brainfog#business#realestatehumor
17 1
Lately quite a few people have been asking me how I began my health journey, how I stay motivated and/or how I’ve overcome all Fibromyalgia symptoms I used to suffer from. Well the Grace of God of coarse, thankfully His grace includes His wisdom. I’ll be sharing some of the things I’ve learned and incorporate into my new healthier lifestyle on Instagram tonight at 9. Will you join me?
41 3
I heard these words a lot over the last two months. Thanks everyone for the messages, texts and kind words asking about me. I’m ok. Fibro flares, unexpected crazy events, topped off with a broken foot kept my spirits low. My husband thankfully whisked me off to Hawaii for some sunshine and much-needed relaxation. (i’ll post some pictures later) My moms message reminds me that things won’t always be the way they are. One day at a time.🌹🌹. #imok #getbackup #chronicpain #fibromyalgia #wannagetaway? #anxiety #flare #givethanks #chronicillness #hospital #chronicfatigue #fibrofog #insomnia #lowspirits #osteoarthritis #lupus #arthritis #rest #encouragement #support #spoonie #faith #hope #love
62 5
Officially diagnosed with #fibromyalgia Time to roll out the mat and do everything I can to prevent those awful, deep painful full body burning symptoms that go along with it. Being told there is nothing that can be done about it, is not going to work for me. Thank you @hayleysunshine for the nice pedicure and polish! I absolutely adore my class mates. One thing I have to be extremely grateful for!! Here is to all those #fibromyalgiawarrior ‘s out there battling that #fibropain #fibrofog on the daily. #fibromyalgiaawareness #yoga #yogaeverydamnday #yogaposes #stretch #strength
53 6
Perfect Blue 😺Had a lovely, long bath to try and recalibrate after a loooong day spent on the verge of a migraine. Didn't get full blown though, which I'm very grateful for. Still have a horrid headache, hot and heavy eyes and knotted legs (had cramp in them badly in the bath, which isn't unusual). So time for some anime before bed ❤#wifey #haggard #chronicallyliving #spoonie #fibrofog #fibrowarrior #bathtime #bedtime #perfectblue #anime
8 0
¡Feliz domingo para todos! Hoy merece nuestro cuerpo descansar y ser escuchado con amor. #PersonasResilientes #PersonasEmpoderadas #CaminoAlBienEstar #sanación #conciencia #PorUnaVidaSinFibromialgia #Venezuela #mundo #fibromialgia #fibromyalgia #fibrofog 💙💚💜
25 0
Went back to bed after sorting The Furries out this morning as I could feel a headache coming on. I'm up and about again, but now I've got some aura kicking into my peripheries, and a sticky feeling in my tummy. These usually come before a migraine, so I've got my fingers crossed that ain't going to happen. It's been a while since my last one. #wifey #haggard #chronicallyliving #spoonie #spoonielife #fibrofog #fibrowarrior #migrainessuck
11 0