Hey hey hey 😊
I've been inactive on Insta for the longest time, purely because I was very frustrated and needed some time out. I needed some time to push my drs for help, to sort out appointments and to get a job to fund these prescriptions!!! Good news is things are looking up, hospital appointments have been confirmed and also managed to get a new job that isn't retail so hopefully less exhausting.
Hope you guys are all well. Sending love and spoons as always. Sometimes you just need some time for yourself 💓
I realized today I’ve been updating on my journey, but haven’t been educating! So... how did I end up with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)? The Lyme bacteria loves to feed on myelin and cartilage. Myelin is the sheath that surrounds most of your nerves, protecting them and allowing them to send messages faster. When Lyme has been in your body unchecked for a long time, it can start to destroy your nerves and degrade your cartilage. For those new to my account, Lyme has been in my system since I was 4 years old, that’s a long time! This is also why I tore a cartilaginous structure and tendon in my wrist from opening a sticky mason jar (yes seriously) and other random injuries from doing things that shouldn’t have caused any damage! Thanks to this book ⬆️ for the reminder! 💚
Made up some Lavender Mint Bath salts. Oh, it smells so good in here. I could share and send some happy mail.😁
Comment below if you want to more about my love for oils👇 I will choose someone from the list. #pickawinner
Okay... so STANDING with #crps is torture!! Anyone agree?? Im much better walking than standing. After 4 hours in IKEA (including lunch) I’m spent. Done. Exhausted. My #crpsfeet are on Fire. It’s hard ignoring the #pain. I’m trying to enjoy my afternoon picking out furniture with my beau fo our new house but I wanted to crawl onto the pile of area rugs and lay down. Luckily after getting in the car and sitting, my pain dropped significantly 🤞🏼Shopping with CRPS is hard. I get around it whenever I can by using amazon, grocery pick up etc... how do you manage your shopping? #ikea#chronicpain#crpswarrior#fibro#comfyboots#theinvisiblewarrior#nottodaycrpsnottoday
Low White Blood Cells ⚪️|| Transplant medications💊 can affect your CBC (Complete Blood Count). On Monday, my WBC were low and with colds🤧 and flu🤒 going around, we needed to increase them. WBC help you fight infections, which is critical. I was prescribed Neupogen injection💉. This is a one time shot that increases the white blood cells called neutrophils.
This injection 💉 has history of giving people a flu-like 🤒 feeling. Thankfully, I did not have these other than my back muscles ached a little bit. If you need to take this injection ask your doctor if it’s okay for you to take Tylenol and benedryl before, this may help offset the side effects. I took a few days to just relax and stay away from the public until my WBC were at a safe level. I got my labs back yesterday and this injection worked 🤗🤗 So now to go have fun and still be weary of people coughing 🙅🏼♀️
I hope you all are having an amazing Saturday! Do you have any fun plans this weekend?? Let us know below! I’m going to celebrate my boyfriends sister’s birthday today💜🦋
#saltycysters#cyster#fibro#cysticfibrosis#cur#curecf#cfa#cfeness #cf #organdonation#organdonationawareness#recycleyourself#donatelife#taylorswift#lungs4tiff#health#love#hope#TiffGotLungs#community#laugh#dream #cure #doublelungtransplant#labs#whitebloodcells#neupogen
Anthony William shares the root-cause behind hundreds of chronic illnesses like: lyme disease, autoimmune disease, chronic fatigue & fibromyalgia... as well as what to do to finally heal. Swing by to meet this compassionate soul for an IG Live at 6:00 pm EST TODAY! ♡☆ Regrann from @medicalmedium - Going LIVE on insta tonight!!!😃Will be sometime around 6pm ET🙌🏻see you there💗
They say to reset every 28 days, does a body good they say. Well they convinced me a while ago and I did not have the information, support or product then. Now it's a virtual cake walk and when you say 60 hours and say No Way! I'm here to tell you, WAY! This is one of the best things I've done for me. Scary when I first did it? Hell yeah. Everything I thought it would be? Hell no! It was that and so much more. Until you experience the Reboot you can't really explain the feeling of goodness and well being. Your body says thank you in more ways than you knew it could. Thinking about it? Stop thinking and welcome aboard. Do a Reboot for yourself, your worth it. You'll thank yourself and your body will too. God only gave us one body, I plan on taking care of mine the best I can.
Help! I’ve recently been having allodynia and it doesn’t help that I have an oddly shaped rib cage as well lol I’m desperate. I’m on a budget, less than $50 preferred. I’ve tried bralettes. Sports bras are too constricting. I don’t care what it looks like either as far as style goes, just needs to be nude. And I mean I’m all for the free the nipple movement but I just can’t 😂 #fib#fibrogia #fibro #chronicpain#chronicfatigue#chronicfatiguesyndrome#invisibleillness#help#fortheladies
Do you or anyone you know have Chronic Fatigue? Do you live in the Hawkes Bay? Then you need to come along to our #CFS workshop this Tuesday. Hosted at OMGoodnessBread in Hastings - 106 Queen st East. Starts at 6pm. Full details on our Facebook events page. Learn about how CFS develops and how it can be treated. #Chronic fatigue #ohmygoodnessbread#hastingsnz#hawkesbayevents#selenohealth
Preparing to start my second #exclusivepumping journey for my sweet little boy! As a gal with a large milk supply, these washable breast pads from @bamboobies will seriously be my new best friend! Not only are they cute and a big money saver but they are good for the environment!