Then and now 3months apart Hair like a chia pet #chemocurls #thisispediatriccancer #ewingssarcomasurvivor #kcancer #strikeoutsarcoma
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World Cancer Day. It’s a day that hits so close to home because of my daughter’s fight with Ewing’s Sarcoma Cancer. They say Childhood Cancer is rare but honestly, it’s not. There are so many children diagnosed every day and at least 7 die from cancer every day....but yet it’s “rare”?! My daughter was only 12 years old when we were told she had cancer. The treatments used has caused her to have pain throughout her entire body, her hip replaced and for her to never to be able to have her own children. Our children deserve better treatments and our children deserve to live longer. I’m aware ...how about you? #WorldCancerDay #childhoodcancersucks #EwingsSarcoma #EwingsSarcomaSurvivor #morethan4
29 1
He made it. He will play travel ball this summer. #dfense #strikeoutsarcoma #kcancer #ewingssarcomasurvivor #brave #inhissafeplace
65 3
Wishing a HUGE happy 8th birthday to Claire! Claire has conquered Ewing’s Sarcoma and continues to show the world how powerful she is. She loves music, dancing and her family. Claire, we are blessed to see you turn 8 years old today and watch you chase your dreams!💛 #musiclover #bestdancer #ewingssarcomasurvivor #childhoodcancerawareness #kickingcancersbutt #happybirthday #8yearsold
120 4
Apparently this Olaf plaster will make my poorly leg get better faster!! 💙 #myboy #healing #lifeaftercancer #savemyleg #ewingssarcoma #3yearsold #lovemyboy #ewingssarcomasurvivor #cancersurvivor #bonecancer #olaf
31 4
I escaped! Feel absolutely awful, still in lots of pain, dizzy, headache, liver function still abnormal and of course lots of pain in my leg. The journey was me sweating feeling like I’d either pass out or be sick but we made it and I’m HOME 🏡😀🎉💃🤩🦄💕🌈 Jessie has changed so much in such a short time. She’s literally 100% toddler, she literally ran to the front door to greet me with the biggest smile I’ve ever seen closely followed by Seb doing the same almost flooring me with a huge cuddle and “MUMMY!!!!” immediately followed by lets play this game! 🤦🏼‍♀️😩🤣 So many struggles, frustrations, worries & pains to come for many months still before I’ll be walking /driving & independent but at least I’m back where I belong with this crazy lot! 🤩👨‍👩‍👧‍👦🦁💙💗💙💗🐾##home #homesweethome🏡 #homefromhospital #noresthere #cantwaitformyownbed #lifeaftercancer #savemyleg #ewingssarcomasurvivor #recovery #exhausted #surgeryrecovery
45 3
6yrs ago today we were celebrating your 7th birthday in the hospital. Because of that life saving surgery (1/6/12) and the following chemo treatments, today you turn 13 (I have a teenager now 😱) and I'm so very grateful! Even though you spent your bday in the hospital recovering, you had the biggest smile that day. You were so happy in spite of the pain and fever you were dealing with. You are such a sweet, caring, smart, talented loving little girl. You learned to play violin and guitar. You even took it upon yourself to learn more Spanish and ASL (American Sign Language), and even started to learn Korean and French, WOW! And your getting so good at it too.🤗My God has blessed you with another year of life by my side. You're the best thing that has happened to me Aneesa! I'm looking forward to seeing the kind of young lady you will turn out to be. "You are the reason I live, you are the reason I am!" I love you mi 💜❤💛💖!! 😍😙😘😚 *screaming* HAPPY🗣🗣 13TH BIRTHDAY ANEESA!!! #myheartandsoul #shelovesbts #btsarmy #kpop #ihaveateenager #happybirthday #myoneandonly #girlmom #timetostartplanningaquince #timeflies #bestillmyheart #loml #cancersurvivor #ewingssarcomasurvivor #mywarrior #hashtagsfordays
55 20
Saying goodnight to these 2 & having to say “see you soon” instead of “see you in the morning” & not knowing when I’ll see them next or when I’ll be home is hard enough, let alone with them both being poorly with a sickness bug 🤢😥 Every time I go into hospital they’re poorly & it’s just so hard 😥 Not sure if I feel more sick with nerves for tomorrow or for the fact we’ve been up all night the last few days dealing with sick!! Praying we don’t get it too & that we can get through tomorrow and the coming days/weeks/months! Seb is my voice of reason telling me when I say I don’t want to go “You need to go mummy because your poorly leg is still not comfy!” Cutest understatement of the century! #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #missmybabiesalready #surgery #terrified
20 9
Here we go again... post surgery prep, hibiscrub shower now and another at 5am then on the road to Oxford for surgery 😤 Get ready for hair like straw, closest thing I got to a spa treatment last year and not a promising start this year! #imstillstanding #bonecancer #bonecancersurvivor #ewi#ewingssarcomaivor #ewingssarcoma #avoidamputation #sameshitdifferentyear #surgery #terrified
12 12
This morning Andie I were making small talk while waiting on the others to wake up. We got on the subject of scars, how many she has and where. She quickly asked me if I have any from when I was a child. I showed her several that I could remember and told her he story that went along with each scar. She said, “Momma I think you might have been a crazy kid.” I had a lot to prove being the only girl among so many boys and I wasn’t going to let being a girl slow me down. We then started counting my scars from just my cancer journey. Andie quickly decided I am CRAZY AND BRAVE. She then told me how I am her hero. Hero? Those are huge shoes to fill, but I’m honored. I think coming from my 7 year old that is the best compliment I could EVER get. I pray everyday that I will be able to continue to share many more little moments like this with the girls. #mybabies #mygirls #love #hero #cancersucks #scars #scarsarecool #mommasgirl #scarsaretattooswithbetterstories #ewings #ewingssarcoma #ewingssarcomasurvivor
35 3
Two years ago yesterday December 1st 2015 Miranda was diagnosed with Ewing’s Sarcoma, a stage four bone cancer. Miranda was given a 30% of survival. Look at her now! She has inspired me so much! Cancer messed with the wrong girl💪🏻🎗@miranda.mead #childhoodcancerawareness #kidsgetcancertoo #ourkidsmatter #ourkidsneedacure #morethan4 #ewingssarcomasurvivor #cancersurvivor #fuxkcancer
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Tracking healing progress & my struggles 6 weeks post surgery and the limbo until the next surgery. New blog post at https://imstillstandingafterallthistime.wordpress.com/2017/11/30/where-there-is-no-struggle-there-is-no-strength/ #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #healing #postop #postsurgery #ouch #livingwithpain #disability
36 2
BLOG post link below... Today I left the house. I had a shower, got dressed (major achievements on their own at the moment, trust me) & left the house! & not to go to the hospital! This marks major progress. Been on a real low recently, struggling with it all & feeling like I’ll never get anywhere near back to normal. I’ve been as normal and happy as I can be during the day with the kids, and that’s not fake, it’s real pure, unconditional love and happiness for being with them, but also intertwined with so much pain, exhaustion, frustration, sadness & a whole lot of feeling fed up with the situation... https://imstillstandingafterallthistime.wordpress.com/2017/11/22/today-i-left-the-house/ #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkn #learntowalk #ileftthehouse #publunch #ladieswhatlunch #preschoolpickup #swollen #onelegjeans #onelegged #crutches #facedmyfear
45 3
Day #17 of thankful November is a bit broad for me but it’s the most wonderful time of the year, Christmas. I can’t pretend that I like winter - because i don’t at all BUT - I keep my house somewhat decorated year round and it’s that huge to me that i keep a “magic in the merry” sigh in my kitchen right now and any other day you come visit whether it’s in July or December 27th. My grandpa Boyle LOVED Christmas and always made it a huge, grand affair for his family and my dad has followed that path and I take it just as seriously as they do. I’m so lucky to have a job that allows me to get presents for my nearest & dearest, allows me time off around the holidays and people there that love me enough to take my Christmas singing year round. I love the warmth & the glow of the fireplace with a soft throw blanket instead of the best, watching Hallmark movies with my favorite people, the excitement I get when I give someone a gift I know they wanted, the cookie / dessert tins I get to send to loved people who I miss, the photo cards that I take what long making as they get thrown outside lastly, the incredible memories I have of the last 32 Christmases and the fact I get to have this 32nd with my new husband and my family is one of the best feelings in entire world. Message me if you’d like to hear more reasons I love it - LOL, jk! Sorry for the novel.). #thankfulnovember #cancersurvivor #ewingssarcomasurvivor
14 1
Day #16. MRI from Monday results. Had to have 7 IV attempts, 6 blown veins - lots of bruises but it could always be worse and in fact it’s been worse, one time I had 8 veins blown, 9 attempts and was sent home. Whatever though, I am thankful for this report, so incredibly thankful that God has allowed me to stay healthy (ish) and start this life journey with Eric and meet my niece and have so many amazing memories with my family & friends I couldn’t event begin to list them. Just very fortunate that my body reacted just how they wanted to the chemo treatments and radiation following. I am one very blessed girl. 2 broken ribs on Monday but still aware that I’m blessed. 💙🎗💙. #ewi#ewingssarcomasurvivor #ewingssarcoma #cancer #cancersurvivor #thankfulnovember #pediatriccancer #bronsonmethodisthospital
30 1
*NOT ME* But today on day #14 I am thankful for my hair. I am getting a hair cut tomorrow. I decided very last minute to do something big - the “wife chop” because my ends are just very, very fried and ruining the strands of my fine hair I have left. Thinking of cutting makes my stomach hurt and it takes me back to the last time I got a real cut, the week after my first round of chemotherapy and as my hair was just starting to fall out we decided to cut it and donate it. I was bald within a week and I remember how attached I was to my hair and I still am so it’s a huge thing for me to cut my hair even just an inch so tomorrow will be a big deal for me. Thankful that I have hair, I’m alive to get a hair cut I keep reminding myself and thankful to my friends & family who are praying for my anxiety and even if they think I’m nuts - love me still. Thankful for @lindseyraeduchon for encouragement and @cheekystrut for getting me in with such short notice . #ewi#ewingssarcomaivor #ewingssarcoma #cancer #cancersurvivor #thankfulnovember
27 2
Christmas in a cup @costacoffee drive through and my hideous leg. An outing to hospital and an update on the plan for next surgery. New blog post https://imstillstandingafterallthistime.wordpress.com/2017/11/13/the-plan/ #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physioapy #physio #knee #kneepain #kneeproblems #surgery #costa #christmasinacup #scars #skingraft #prosthesis #endoprosthesis #metalreaction #metalallergy
23 1
Day #10 thankful is a shoutout to pain meds. On days like today when I was throwing up in the morning and dying in pain from that at the office, pain meds and medicine in general were my best friend. So thankful for modern medicine and the pain meds that allow me to function like I’m not a 31 year old with multiple ribs fractured at all times since January 2013. #reallife #thankfulnovember #can#cancerivor #cancer #ewingssarcoma #ewingssarcomasurvivor
7 1
First time looking in full length mirror and seeing myself vertically thinking Woah that knee is big! 😳 & the mystery pjs package sender is revealed - thank you Liz - so so kind of you and so useful 😘 #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #pjs #pyjamas #handm #standingup #fulllengthmirror #knee #kneeproblems #kneepain
38 1
Day #6 of being thankful for November and today is not just a one thing but a place and that’s @wal@waltdisneyworld (@waltparks)for being a place for me to go to whether that’s in person or in my head to bring a bit of joy, no matter that trials I’ve faced or am facing. The nurses used to tell me to go to my happy place when before they’d put me under during an allergic reaction to someone else’s blood during a transfusion or when I’d be on IV insert attempt #9 or before counting down on the surgery table with the sweet nurse wiping my silent because there were words, tears. Disney is much more than “princesses” and “fun” to me and I will treasure it, when I’m talking about it, thinking about it, going over memories or even when I’m there, forever, because it’s been a true gift to myself and my family for some of our happiest moments during some amazing times. I will never be embarrassed to be a Disney fan or someone who loves Walt Disney World so much because it means much more to me than people could even imagine. Thank you @waltdisneyworld for being the sparkle in my life so many times. #thankfulnovember #can#cancerivor #cancer #ewingssarcoma #ewingssarcomasurvivor #favoriteplace
21 0
This is a day late...yesterday = home! Escaped! Lots of smiles & made it up the mountain of stairs to my bed! Duvet = bliss!! Exhausted but very pleased 😀 #hom#homethome🏡 #home #homefromhospital #homeiswheretheheartis #backwithmybaby #backwithmyboy #backwhereibelong #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio
46 3
Isn’t it funny how perspective changes. We were due to go on holiday in September & there was NO WAY I’d have worn shorts or had my legs on show. Too pale, too fat, too many scars & lumps from the growths on my left leg. Obviously we didn’t get to go anyway so that’s irrelevant but now look! I’m basically living in shorts, haven’t given a second thought to how my right leg looks or how I’d never normally wear shorts and now I’m looking at it thinking actually it’s pretty bloody amazing, it does what I want when I want it to without question, pain or limitation and not a single blemish on it. So pale yes, flabby yes & a dodgy patchy shave in hospital bed so rather hairy in places but wow how amazing. Love your body, when it’s working it’s a bloody amazing thing even if it’s lacking a suntan and more than a bit wobbly! #loveyourbody #loveyourlegs #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio
36 1
The only fireworks I’ll see this year but I’m in the right room with the best view of them from my hospital bed! Updated blog earlier with an update on me https://imstillstandingafterallthistime.wordpress.com/2017/11/04/we-know-its-never-simple-never-easy/ #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #fireworks #hos#hospitalbed #hospital
27 0
#nofilter It really is that red! The donor site for the skin graft trying to reveal itself. Read more in new blog post on imstillstandingafterallthistime.wordpress.com https://imstillstandingafterallthistime.wordpress.com/2017/11/03/wounds-sweat-and-smiles/ #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #skingraft #donorsite #healing
11 0
💙 Afternoon & evening with my boys 💙 New toy, CBeebies, PJ masks, Dominos pizza @dominos & daddy that’s MY chair!! Not so up for the selfies or photos as the girls 🤣 So precious to cuddle up with Seb on my bed & to see him play & show off his 6 pack & muscles 🤣💪🏻 #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkn #learntowalk #phy#physioapy #physio #myboy #lovemyboys #lovemyson #blondehairblueeyes #3yearsold #dom#dominospizza #dominos
32 1
💗Morning with my girls 💗 Jessie loved being on my (good) knee in the wheelchair & I adored feeding her lunch for the first time in over 2 weeks. Such a “normal” regular thing feeding your baby but was so precious and special to do it today. Some more fresh air in wheelchair in the car park & we just about managed to resist making a bid for freedom! My mum couldn’t believe how many people we bumped into who I knew -amazing how many people you meet when you’re stuck in one room in your bed -doctors, nurses, healthcare assistants, phlebotomists, physios & all with one thing in common - wanting to chat & a love for Jessie who’s now famous round the hospital! If we had a pound for every time someone said “wow look at her eyelashes” we’d be very rich!#nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #mybabygirl #blueeyes #thoseeyes #thoseeyelashes #9mo#9monthsold #9months #mymum #solucky
36 1
Time to own up...who’s the gorgeous person who’s sent me this awesome unicorn tin packed full of sweeties? I can’t see any card or note with a name on? 🙏🏻💗🦄 I need to know who it’s from so I can thank you so hands up if it was you?! 🙌🏻 @thegreatgiftco @cadburyuk @kinder__chocolate #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkn #learntowalk #phy#physioapy #physio #unicorns #thebrightside #jazzies #cadbury #chomp #freddo #kinder #fizzers #fruitsalad
9 0
More gorgeous & thoughtful gifts, this time from a couple of the nicest, kindest mums of the loveliest children I have ever taught who were simply a pleasure to teach (7 years ago!) Again, I am beyond touched that they’ve thought of me enough & put such kind, thoughtful effort into sending me these lovely things. Little Bag if Happiness from Macmillan Cancer Support, what amazing ##staystrong chocolates from #morsetoad inspiring words from #eastofindia & puzzles will keep me busy while I’m bed bound! A million thank yous @mcdonald6560 & Lisa (sorry if you’re on instagram, I can’t find you!) @notanotherbunchofflowers @macmillancancer @eastofindiauk @morse_toad @morse_toad_inspire @andrewsmcmeel #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkn #learntowalk #phy#physioapy #physio #
23 1
The prize for the biggest parcel goes to @loulousteapot @netty1363 📦💗🦄 I am beyond touched and overwhelmed by people’s generosity. So many parcels arriving the staff on the ward are questioning if it’s my birthday or if I’m famous today -my answer is no, neither, just incredibly lucky! The delivery of this one was particularly hilarious -middle aged, over excited Parcelforce delivery guy bursts into my room with a huge smile on his face & this huge parcel “I have never ever delivered something to an actual ward before! I’ve never ever BEEN in an actual ward before!” (Oblivious to me half naked trying to half my wash on the bed!) “Shall I put it over here love?” (Gesturing to the other side of the room!) My response “You can if you like but that’d be a bit harsh seeing as I can’t walk I won’t be able to get it!” “Oh yeah sorry of course!” PLONK! So there I was stranded on the island that’s my bed underneath the box! Sod the bed bath, I got stuck into opening in! So many kind & thoughtful gifts from 2 lovely ladies I have lots of funny & fond memories of but haven’t seen since Uni 13 years ago (I might be wrong?!) I am beyond touched at their thoughtfulness and the effort they’ve gone to. There are so many kind, amazing people in the world & you are 2 of the best 😘💗 @champneysspas @rowntreesuk @rowntrees.randoms_ #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physioapy #physio #randomactsofkindness #actsofkindness #par#parcelforce #parcel #champneys #champneysspa #randoms #rowntreesrandoms #unicorn #spoilt #lucky #luckygirl #unigirls #unifriends #blastfromthepast
20 1
From @imstillstandingmummyof2 - I would say the race is on to walk but there’s clearly no contest! If all is successful in my next surgery 🙏🏻 with the best case scenario I won’t walk unaided for probably another 5/6 months from now. I just hope Jessie waits until I’m home from this one to see her first unaided steps 🙏🏻💗🏃🏼‍♀️ Such a strong, determined little lady at just 9 months, so proud of her but miss her so much it hurts 😔 #mysurvivalstory #ewingssarcoma #bonecancer #lifeaftercancer #can#cancerivor #cancersurvivors #cancersurvivorship #cancer #cancerfighter #imstillstanding #icancervive #cancermum #cancercommuty #CancerAwareness #cancersucks #strongerthancancer #fuckcancer #nevergiveup #ewingssarcomasurvivor #bonecancersurvivor #surgerysucks #learntowalk #physio #missmybaby #walking #myworld #firststeps
231 1
A blog post is in progress but it’s hard work with just a phone, no keyboard and no battery 🤦🏼‍♀️ Obviously you’ll have seen today’s physical developments which have left me totally exhausted! I’ve also had full dressing & bandage changes today 🤕, a much need hair wash 💆🏼😀 & lots of updates from all my different teams of doctors 👨🏼‍⚕️ 👩🏻‍⚕️ -the next surgery should be 1st/2nd week of January but I hope this won’t have to change - the most relevant of the updates at the moment, before I can finish my full blog post, is to share that my liver function has worsened and is BAD. The levels that were already abnormal have more than doubled 😤 They believe it’s all drug induced & have been removing various pain killers (ouch 😳) but now it’s got so bad they’ve had to stop all the IV antibiotics (that I really need to zap the infection 🔬) They hope to see an improvement in my bloods tomorrow 🙏🏻💉 and if they do they will then add them back in gradually to try to see what’s causing the liver function impairment. They suspect that it is the one I really need (of course, sod’s law is in force as it’s best in here!) So a balancing act now between drugs needed & not causing liver damage 😩 Never simple & noone’s fault so for now I keep having to show patience as a patient and try not to let it get me down or slow down my physio...no doubt it’ll slow down my escape to home though... Thank you again to everyone who’s showing support, it’s all very much appreciated 😘 🎃 Happy Halloween! No gory make up or costume needed here, I have the war wounds & the mummy bandages! ... & a hair wash! 👻 #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #nohalloweencostumeneeded #wound #woundedknee #woundcare #neversimple #hairwash #hos#hospitalhair #hospital
22 6
Lunch today was courtesy of the lovely Abi @therealoutnumbered who I met in here on a ward we were roomies 5 years ago (I think?! I’ve had too many stays here to remember which was which!) We’ve kept in touch and today she visited me with her gorgeous baby girl and brought yummy lunch @marksandspencer @marksandspencerfoodpr @cocacola @dietcokegb @cokezero & some much needed PJ shorts from @hm I’m kind of restricted to shorts because of my leg & t shirts with my picc line! Wrong time of year but if anyone spots any good ones in the shops let me know! #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkn #learntowalk #phy#physiotherapy #physio #marksandspencer #simplyfood #cocacola #cok#cokezero #dietcoke #coke #h&m #pjshorts #shorts #keepingmesane #betterthanhospitalfood
14 3
I would say the race is on to walk but there’s clearly no contest! If all is successful in my next surgery 🙏🏻 with the best case scenario I won’t walk unaided for probably another 5/6 months from now. I just hope Jessie waits until I’m home from this one to see her first unaided steps 🙏🏻💗🏃🏼‍♀️ Such a strong, determined little lady at just 9 months, so proud of her but miss her so much it hurts 😔 #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#lea#learntowalkn #learntowalk #phy#physioapy #physio #missmybaby #walking #learntowalk #learningtowalk #9mo#9monthsold #9months #babygirl #blueeyes #lashes #missmybabies #myworld #firststeps
43 4
I’ve just received this video from my mum. Our baby girl is trying to outshine me, and so she should, what an absolute super star! Just turned 9 months and well on her way to walking, little show off is determined to beat me to it! 🤣 💗 This video makes me beam with pride but at the same time as melting my heart, it all breaks it that I’m not there seeing her make this progress 😢 Wait for me Jessie, I can’t keep up! 💗 #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #babygirl #blueeyes #lashes #learningtowalk #wehaveawalker #walking #9monthsold #proud
14 0
Amazing how has a self propelled wheelchair is to propel and to steer! I needed massive red L plates! Escaped with the physios downstairs for real coffee & some fresh air. Also astounding how people quite literally look down on you. I’d like to say “would you like to take a photo!” or maybe hand ou cards with https://imstillstandingafterallthistime.wordpress.com on to avoid the “What have you done?” questions or the stares! Please engage your brain people! 🤣#nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #wheelchair #selfpropelled #whathaveyoudone #coffee #latte #realcoffee #freshair
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This morning’s big achievement -I escaped my room in a wheelchair, went to the hospital gym, walked (ouch 😳) along the bars, wheeled for proper coffee and some fresh air out the front of the hospital for a few minutes before back to my room. They say a change is as good as a rest! Certainly no rest but was a great change of scenery and oh the fresh air was heaven. Today enjoy getting outside, don’t take it for granted! #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #wheelchair #freshair #coffee #realcoffee #ineedcoffee #ouch #agony #gym #workout #exhausted
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I left my room! Usually I swear, I wince and I don’t get further than 2 steps from my bed! I appreciate in real world terms this is pathetic but this is progress! Hooked my ‘Mulberry’ on my zimmer! Don’t be tooo envious, we can’t all be this cool 🤣 @mulberryengland #mulberrybag #catheter #dontgiveup #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #learntowalk #physio #zimmer #walkingframe #rehab #rehabilitation #recovery #ileftmyroom #iescaped #progress #onestepatatime #pain #nopainnogain #laughteristhebestmedicine
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Pre Physio oramorph, supposedly takes the edge of! Closest thing I’ll get to a shot in here! Not quite a jaagerbomb or a gin & tonic or a baileys on ice! Maybe once I’m home & off the IV antibiotics, hopefully in 2018! 🙏🏻🥂🍹🍸 Dreaming of when we #celebraterecovery in 2018 🙏🏻 https://imstillstandingafterallthistime.wordpress.com @jagermeister jagermeister @hendricksgin @fevertree_uk @baileysofficial #jagermeister #hendricksgin #fevertreetonic #baileys #morphine #oramorphismyfriend #oramporh #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio
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Getting dressed is a game of hook a duck (foot!) when you can move or bend your leg! Determined that I do it without help though. I can only wear shorts with my post op leg & t shirts with my picc line and being hooked up to so many IV antibiotics. https://imstillstandingafterallthistime.wordpress.com Love when a friend goes shopping for you & love my new star shorts from @nextofficial #stars #starshorts #icanonlywearshorts #needmoreshorts #next #nextofficial #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #outofmyhospitalgown #nomorehospitalgowns #stillsmiling #ewingssarcomasurvivor #bonecancerresearchtrust #bonecancersurvivor #savemyleg #avoidamputation
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Sorry no blog posts. I’m now on instagram! Finding it all so tough, very slow progress with Physio, day 12 in bed 😩😢😤 Missing my babies 💙💗like mad, all I want is to be with them. Thankful for lovely friends visiting @mrs_coghlan11 (& 2 more not on here) this weekend keeping me going. More IV antibiotics keeping me up tonight, so glad I’ve got the picc line, no more cannulas but oh so much pain in my leg, low blood pressure and dizziness making physio such slow progress. Sleep is impossible, look at those dark circles 😳 Never go to hospital for a rest! #nevergotohospitalforarest #nevergiveup #ewingssarcoma #ewingssarcomaawareness #ewingssarcomasurvivor #cancersurvivor #savemyleg #thankgoodnessforcoffee in the morning! #grapes #getmeoutofhere #wishicouldgohomerightnow #missmybabies #sopainful #mustkeepgoing #cantgiveup #amputationprevention #leghurts #phy#physioterapy #physio
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We are still in the hospital ... day 5 & I haven't cheated on myself one time despite donuts & a fruit basket being delivered to us 🙌🏼🎉🙌🏼 Here's #whatiatetoday #chickenbrocollichowder #gyrosalad & Tanner & I are going to try Krogers version of birthday cake halo top! It has the same macros so hopefully it has the same good taste! This is definitely been a week that calls for some ice cream! BTW The ice cream is buy one get one free at Kroger!! #mysonisawarrior #ewingssarcomasurvivor #keto #ketosis #ketogenicliving #fatisfuel #ketolife #ketohappy #fitover40 #fatadapted #sugarfreeliving
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My handsome honey bunny & I on our wedding day! I never imagined that this would be me, that I’d be alive for that moment. To live has been a miracle in itself but to be given a fairytale in the middle of my already lucky life, well that is more than I could have ever hoped for during my cancer “trials”. And what a magical fairytale moment & entire day it was! There is nothing better than a love filled day with our favorite people in the world surrounding us (and while wearing an incredible, sparkly dress!) #ewingssarcoma #ewingssarcomasurvivor #twotimecancersurvivor #cancer #boyledroskiwedding #biankabride #hayleypaige #hayleypaigebride #weddingcake #poshpetalsgr #thankful #cancersurvivor
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1 week ago, getting ready to marry my honey bunny! I was so excited and ready - no nerves for this bride. #boyledroskiwedding #mabemd #biankabride #hayleypaige #hayleypaigebride #cancersurvivor #ewingssarcoma #ewingssarcomasurvivor
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Will be some weeks before professional photos get to us but - here’s a snap from one of the best bridesmaids ever, @carly.j.andersen - such an angel. #boyledroskiwedding #biankabride #hayleypaige #hayleypaigebride #cancer #cancersurvivor #twotimecancersurvivor #ewingssarcoma #ewingssarcomasurvivor #grandrapids #cheekystrut #blessed #cheekystrutweddings
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Well, here we are on the couch watching Netflix eating the dinner he made as I’m sick as HUSBAND & WIFE. We made it! 10.07.2017 is always going to be a special day for us. We are so thankful that our day was so magical but even more thankful that we are now officially a family and husband and wife. #boyledroskiwedding #mabemd #biankabride #hayleypaige #hayleypaigebride #cancersurvivor #ewingssarcoma #ewingssarcomasurvivor
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October 3rd - 1 year ago today I received my last dose of chemo and beat some cancer booty for the second time. In the past year I moved into a new home and went back to work. I got 4 haircuts and a became a puppy mom. I’ve continued to tell my story and met many more amazing individuals along the way. I’m not 100% where I want to be just yet, and that’s okay. I’m learning to be patient with my recovery. I’m still coping with the things I lost, I’m not my fittest, and I have my bad/sad days. But I wake up every day very blessed and grateful to be here. And I thank ALL OF YOU for your endless love, kindness, and support. It’s been a wild ride, and I look forward to more adventures ahead of me! 💛
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