Two years ago yesterday December 1st 2015 Miranda was diagnosed with Ewing’s Sarcoma, a stage four bone cancer. Miranda was given a 30% of survival. Look at her now! She has inspired me so much! Cancer messed with the wrong girl💪🏻🎗@miranda.mead #childhoodcancerawareness #kidsgetcancertoo #ourkidsmatter #ourkidsneedacure #morethan4 #ewingssarcomasurvivor #cancersurvivor #fuxkcancer
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Tracking healing progress & my struggles 6 weeks post surgery and the limbo until the next surgery. New blog post at https://imstillstandingafterallthistime.wordpress.com/2017/11/30/where-there-is-no-struggle-there-is-no-strength/ #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #healing #postop #postsurgery #ouch #livingwithpain #disability
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BLOG post link below... Today I left the house. I had a shower, got dressed (major achievements on their own at the moment, trust me) & left the house! & not to go to the hospital! This marks major progress. Been on a real low recently, struggling with it all & feeling like I’ll never get anywhere near back to normal. I’ve been as normal and happy as I can be during the day with the kids, and that’s not fake, it’s real pure, unconditional love and happiness for being with them, but also intertwined with so much pain, exhaustion, frustration, sadness & a whole lot of feeling fed up with the situation... https://imstillstandingafterallthistime.wordpress.com/2017/11/22/today-i-left-the-house/ #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #ileftthehouse #publunch #ladieswhatlunch #preschoolpickup #swollen #onelegjeans #onelegged #crutches #facedmyfear
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Day #17 of thankful November is a bit broad for me but it’s the most wonderful time of the year, Christmas. I can’t pretend that I like winter - because i don’t at all BUT - I keep my house somewhat decorated year round and it’s that huge to me that i keep a “magic in the merry” sigh in my kitchen right now and any other day you come visit whether it’s in July or December 27th. My grandpa Boyle LOVED Christmas and always made it a huge, grand affair for his family and my dad has followed that path and I take it just as seriously as they do. I’m so lucky to have a job that allows me to get presents for my nearest & dearest, allows me time off around the holidays and people there that love me enough to take my Christmas singing year round. I love the warmth & the glow of the fireplace with a soft throw blanket instead of the best, watching Hallmark movies with my favorite people, the excitement I get when I give someone a gift I know they wanted, the cookie / dessert tins I get to send to loved people who I miss, the photo cards that I take what long making as they get thrown outside lastly, the incredible memories I have of the last 32 Christmases and the fact I get to have this 32nd with my new husband and my family is one of the best feelings in entire world. Message me if you’d like to hear more reasons I love it - LOL, jk! Sorry for the novel.). #thankfulnovember #cancersurvivor #ewingssarcomasurvivor
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Day #16. MRI from Monday results. Had to have 7 IV attempts, 6 blown veins - lots of bruises but it could always be worse and in fact it’s been worse, one time I had 8 veins blown, 9 attempts and was sent home. Whatever though, I am thankful for this report, so incredibly thankful that God has allowed me to stay healthy (ish) and start this life journey with Eric and meet my niece and have so many amazing memories with my family & friends I couldn’t event begin to list them. Just very fortunate that my body reacted just how they wanted to the chemo treatments and radiation following. I am one very blessed girl. 2 broken ribs on Monday but still aware that I’m blessed. 💙🎗💙. #ewi#ewingssarcomasurvivor #ewingssarcoma #cancer #cancersurvivor #thankfulnovember #pediatriccancer #bronsonmethodisthospital
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*NOT ME* But today on day #14 I am thankful for my hair. I am getting a hair cut tomorrow. I decided very last minute to do something big - the “wife chop” because my ends are just very, very fried and ruining the strands of my fine hair I have left. Thinking of cutting makes my stomach hurt and it takes me back to the last time I got a real cut, the week after my first round of chemotherapy and as my hair was just starting to fall out we decided to cut it and donate it. I was bald within a week and I remember how attached I was to my hair and I still am so it’s a huge thing for me to cut my hair even just an inch so tomorrow will be a big deal for me. Thankful that I have hair, I’m alive to get a hair cut I keep reminding myself and thankful to my friends & family who are praying for my anxiety and even if they think I’m nuts - love me still. Thankful for @lindseyraeduchon for encouragement and @cheekystrut for getting me in with such short notice . #ewi#ewingssarcomaivor #ewingssarcoma #cancer #cancersurvivor #thankfulnovember
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Day #10 thankful is a shoutout to pain meds. On days like today when I was throwing up in the morning and dying in pain from that at the office, pain meds and medicine in general were my best friend. So thankful for modern medicine and the pain meds that allow me to function like I’m not a 31 year old with multiple ribs fractured at all times since January 2013. #reallife #thankfulnovember #can#cancerivor #cancer #ewingssarcoma #ewingssarcomasurvivor
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So, maybe I’m a little weird, but I know I am a limited edition. In fact, I am the only me there has ever been or ever will be, and if you’re reading this, the same is true of you. #childofgod #childhoodcancersurvivor #childhoodcancerawareness #cancer #sarcoma #osteosarcoma #ewingssarcomasurvivor #heart #heartfailure #hearttransplant #donatelife #live #love #laugh #faith #faithoverfear 💥
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Day #6 of being thankful for November and today is not just a one thing but a place and that’s @wal@waltdisneyworld (@waltparks)for being a place for me to go to whether that’s in person or in my head to bring a bit of joy, no matter that trials I’ve faced or am facing. The nurses used to tell me to go to my happy place when before they’d put me under during an allergic reaction to someone else’s blood during a transfusion or when I’d be on IV insert attempt #9 or before counting down on the surgery table with the sweet nurse wiping my silent because there were words, tears. Disney is much more than “princesses” and “fun” to me and I will treasure it, when I’m talking about it, thinking about it, going over memories or even when I’m there, forever, because it’s been a true gift to myself and my family for some of our happiest moments during some amazing times. I will never be embarrassed to be a Disney fan or someone who loves Walt Disney World so much because it means much more to me than people could even imagine. Thank you @waltdisneyworld for being the sparkle in my life so many times. #thankfulnovember #can#cancerivor #cancer #ewingssarcoma #ewingssarcomasurvivor #favoriteplace
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This is a day late...yesterday = home! Escaped! Lots of smiles & made it up the mountain of stairs to my bed! Duvet = bliss!! Exhausted but very pleased 😀 #hom#homethome🏡 #home #homefromhospital #homeiswheretheheartis #backwithmybaby #backwithmyboy #backwhereibelong #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio
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The only fireworks I’ll see this year but I’m in the right room with the best view of them from my hospital bed! Updated blog earlier with an update on me https://imstillstandingafterallthistime.wordpress.com/2017/11/04/we-know-its-never-simple-never-easy/ #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #fireworks #hos#hospital/a> #hospital
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#nofilter It really is that red! The donor site for the skin graft trying to reveal itself. Read more in new blog post on imstillstandingafterallthistime.wordpress.com https://imstillstandingafterallthistime.wordpress.com/2017/11/03/wounds-sweat-and-smiles/ #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio #skingraft #donorsite #healing
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More gorgeous & thoughtful gifts, this time from a couple of the nicest, kindest mums of the loveliest children I have ever taught who were simply a pleasure to teach (7 years ago!) Again, I am beyond touched that they’ve thought of me enough & put such kind, thoughtful effort into sending me these lovely things. Little Bag if Happiness from Macmillan Cancer Support, what amazing ##staystrong chocolates from #morsetoad inspiring words from #eastofindia & puzzles will keep me busy while I’m bed bound! A million thank yous @mcdonald6560 & Lisa (sorry if you’re on instagram, I can’t find you!) @notanotherbunchofflowers @macmillancancer @eastofindiauk @morse_toad @morse_toad_inspire @andrewsmcmeel #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkn #learntowalk #phy#physioapy #physio #
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I would say the race is on to walk but there’s clearly no contest! If all is successful in my next surgery 🙏🏻 with the best case scenario I won’t walk unaided for probably another 5/6 months from now. I just hope Jessie waits until I’m home from this one to see her first unaided steps 🙏🏻💗🏃🏼‍♀️ Such a strong, determined little lady at just 9 months, so proud of her but miss her so much it hurts 😔 #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#lea#learntowalkn #learntowalk #phy#physioapy #physio #missmybaby #walking #learntowalk #learningtowalk #9mo#9monthsold #9months #babygirl #blueeyes #lashes #missmybabies #myworld #firststeps
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I left my room! Usually I swear, I wince and I don’t get further than 2 steps from my bed! I appreciate in real world terms this is pathetic but this is progress! Hooked my ‘Mulberry’ on my zimmer! Don’t be tooo envious, we can’t all be this cool 🤣 @mulberryengland #mulberrybag #catheter #dontgiveup #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #learntowalk #physio #zimmer #walkingframe #rehab #rehabilitation #recovery #ileftmyroom #iescaped #progress #onestepatatime #pain #nopainnogain #laughteristhebestmedicine
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Pre Physio oramorph, supposedly takes the edge of! Closest thing I’ll get to a shot in here! Not quite a jaagerbomb or a gin & tonic or a baileys on ice! Maybe once I’m home & off the IV antibiotics, hopefully in 2018! 🙏🏻🥂🍹🍸 Dreaming of when we #celebraterecovery in 2018 🙏🏻 https://imstillstandingafterallthistime.wordpress.com @jagermeister jagermeister @hendricksgin @fevertree_uk @baileysofficial #jagermeister #hendricksgin #fevertreetonic #baileys #morphine #oramorphismyfriend #oramporh #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #stillsmiling #ewingssarcomasurvivor #bonecancersurvivor #savemyleg #avoidamputation #getwalking #lea#learntowalkagain #learntowalk #phy#physiotherapy #physio
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Getting dressed is a game of hook a duck (foot!) when you can move or bend your leg! Determined that I do it without help though. I can only wear shorts with my post op leg & t shirts with my picc line and being hooked up to so many IV antibiotics. https://imstillstandingafterallthistime.wordpress.com Love when a friend goes shopping for you & love my new star shorts from @nextofficial #stars #starshorts #icanonlywearshorts #needmoreshorts #next #nextofficial #nuffieldorthopaediccentre #ewingssarcoma #bonecancer #lifeaftercancer #cancersurvivor #imstillstanding #outofmyhospitalgown #nomorehospitalgowns #stillsmiling #ewingssarcomasurvivor #bonecancerresearchtrust #bonecancersurvivor #savemyleg #avoidamputation
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Sorry no blog posts. I’m now on instagram! Finding it all so tough, very slow progress with Physio, day 12 in bed 😩😢😤 Missing my babies 💙💗like mad, all I want is to be with them. Thankful for lovely friends visiting @mrs_coghlan11 (& 2 more not on here) this weekend keeping me going. More IV antibiotics keeping me up tonight, so glad I’ve got the picc line, no more cannulas but oh so much pain in my leg, low blood pressure and dizziness making physio such slow progress. Sleep is impossible, look at those dark circles 😳 Never go to hospital for a rest! #nevergotohospitalforarest #nevergiveup #ewingssarcoma #ewingssarcomaawareness #ewingssarcomasurvivor #cancersurvivor #savemyleg #thankgoodnessforcoffee in the morning! #grapes #getmeoutofhere #wishicouldgohomerightnow #missmybabies #sopainful #mustkeepgoing #cantgiveup #amputationprevention #leghurts #phy#physioterapy #physio
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We are still in the hospital ... day 5 & I haven't cheated on myself one time despite donuts & a fruit basket being delivered to us 🙌🏼🎉🙌🏼 Here's #whatiatetoday #chickenbrocollichowder #gyrosalad & Tanner & I are going to try Krogers version of birthday cake halo top! It has the same macros so hopefully it has the same good taste! This is definitely been a week that calls for some ice cream! BTW The ice cream is buy one get one free at Kroger!! #mysonisawarrior #ewingssarcomasurvivor #keto #ketosis #ketogenicliving #fatisfuel #ketolife #ketohappy #fitover40 #fatadapted #sugarfreeliving
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It's weird how life works. This time last year, I was given the worst news of my life. I was diagnosed with Stage 1 Ewing's Sarcoma. I was able to put the fight of my life against my cancer thanks to my faith, family, and friends. After a year of intense chemotherapy, anxiety, depression, unspeakable amount of physical/mental pain, and a surgery that changed my life, I received BEST news of my life yesterday. I'm officially in REMISSION & CANCER FREE! 😊 I'm so grateful to be able to see another year, especially after staring death in the face this past year. I've become a completely different person because of this experience. Allah (SWT) gave me the strength to persevere for a reason. I promised myself that I will dedicate my time to truly making a positive and beautiful difference in this world, no matter what it takes. I'm kicking off my 23rd birthday with some amazing and genuine friends. This weekend will be one to remember! I'm crying as I'm typing this because I really can't believe my eyes right now. I'm just so happy to be alive and blessed with such an amazing life. From the bottom of my heart, thank you to everyone who has helped me and made a diffence in my life this past year. Thank you to my family! Thank you to my friends! Also, thank you and a major shout out to my amazing and extraordinary nurses and doctors! I love all of you❤️#HAPPYBIRTHDAYTOME LOVEUFAM&FRIENDS #OFFICIALLYINREMISSION #CANCERFREE #EWINGSSARCOMASURVIVOR #CANCERSURVIVOR #KICKEDCANCERINTHEASS #FUCANCER #23YEARS #BLESSEDTOSEEANOTHERYEAR #ALHAMDULILAH #GODISGREAT
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My handsome honey bunny & I on our wedding day! I never imagined that this would be me, that I’d be alive for that moment. To live has been a miracle in itself but to be given a fairytale in the middle of my already lucky life, well that is more than I could have ever hoped for during my cancer “trials”. And what a magical fairytale moment & entire day it was! There is nothing better than a love filled day with our favorite people in the world surrounding us (and while wearing an incredible, sparkly dress!) #ewingssarcoma #ewingssarcomasurvivor #twotimecancersurvivor #cancer #boyledroskiwedding #biankabride #hayleypaige #hayleypaigebride #weddingcake #poshpetalsgr #thankful #cancersurvivor
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1 week ago, getting ready to marry my honey bunny! I was so excited and ready - no nerves for this bride. #boyledroskiwedding #mabemd #biankabride #hayleypaige #hayleypaigebride #cancersurvivor #ewingssarcoma #ewingssarcomasurvivor
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Will be some weeks before professional photos get to us but - here’s a snap from one of the best bridesmaids ever, @carly.j.andersen - such an angel. #boyledroskiwedding #biankabride #hayleypaige #hayleypaigebride #cancer #cancersurvivor #twotimecancersurvivor #ewingssarcoma #ewingssarcomasurvivor #grandrapids #cheekystrut #blessed #cheekystrutweddings
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Well, here we are on the couch watching Netflix eating the dinner he made as I’m sick as HUSBAND & WIFE. We made it! 10.07.2017 is always going to be a special day for us. We are so thankful that our day was so magical but even more thankful that we are now officially a family and husband and wife. #boyledroskiwedding #mabemd #biankabride #hayleypaige #hayleypaigebride #cancersurvivor #ewingssarcoma #ewingssarcomasurvivor
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LOL - the scapula, it's still broken & fun fact, both of my clavicles are too! Ms. Chalk Bones 💙 #cancer #cancersurvivor #ewings #ewingssarcoma #ewingssarcomasurvivor
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In case you missed it.... I'm donating 25% of all LipSense sales this month to @alexslemonade in honor of Childhood Cancer Awareness month. So get yourself a little something, and know that you're doing good. PLUS- I'll get all my donations matched by Apple so it will be doubly good! #donate #childhoodcancerawareness #ewingssarcoma #ewingssarcomasurvivor #pediatriccancer #pediatriconcology
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What a difference 1 year makes! First picture of Bri is when she was still on chemo treatment but made sure she started Freshman year ... the second picture ... what can I say ... she looks healthy, feels good and is a little over 6 months CANCER-FREE 💛🎗I am so very blessed! #ewi#ewingssarcomaivor #ewingssarcoma #ned #negu #teamgervais
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It's pictures like these that make us want to fight even harder. Give every child a future, knock out childhood cancer👊🏽 we love you Lilly!! You've grown so much and it's incredible watching your journey outside the glass. #teamlillybumpus #ibelieveinlillysmagic #lillybumpus #ewingssarcoma #ewingssarcomasurvivor #childhoodcancer #childhoodcancersucks #childhoodcancerawareness #morethan4 #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #KidsAreGold #kidscancer #conquerkidscancer #childhoodcancerresearch #cancersucks #fuckcancer #hope365 #thisischildhoodcancer #pediatriccancer 🎗🎗- christina
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Celebrating my 33rd birthday today and also being cancer free! 😊 latest PET scan got the all clear last week and I'm so thankful for all the wonderful work that peter mac does! Very grateful to be celebrating today with my family who have supported me tremendously over the last 18 months! Bring on the next year of health and wellness 👌🏻☺️ #cancersurvivor #happydays #postchemo #ewingssarcoma #ewingssarcomasurvivor #oldman #birthday #cancerfree #inspiration #petermac #thankful
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Scan time! My home away from home... #ctca #ctcachicago #cancersucks #ewi#ewi#ewingssarcomaivor #ewingssarcoma #ewings #memories #girlmom #girlsonly
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Although you were at camp yesterday I didn't forget, how could I.🤗Yesterday my baby had a special milestone, HAPPY 5th CANCER FREE ANNIVERSARY baby girl!!!! 7/27/2012. Through all the pokes💉,chemo 😷, blood transfusions, tube down her nose/throat, restrictions (which she still has), when she felt tired, when I was uncertain a couple of sleepless nights if I would have her by my side the next day, etc she always managed a smile. I'm so proud of my munchkin for staying positive and never giving up🙌💪. You mean the 🌎 to me! I Love you mi corazon!! 💋😚😍👸 🎗💜💛💝💞 "If I could give my daughter 3 things,It would be the confidence to always know her self worth, the strength to chase her dreams, and the ability to know how truly,deeply loved she is!" #happyanniversary #mylove #myheart #cancerfree #survivor #sarcoma #ewingssarcomasurvivor #childhoodcancer #fighter #cancersucks #strong
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