A bit late getting on the insta game. I mean it's been here for years but im fb loyal, I hated transitioning from bebo too 😭. But times are changing and I've taken more of an interest in other peoples insta lives so here I am. Starting a little activity 😁
Never a dull moment with these 2 rascals of mine!!and thats not always a good thing 🙈
Milo has a whole bunch of appointments I've had to postpone (asd related) because miss Elsas' much more important (cancer related) appointments already fill up the diary. His people have been very understanding but it makes me feel so bad. He is happy and healthy though so he's ok to wait👌
Elsa on the otherhand has a wound after having her spinal surgery (17.08.17) that just will not Heal😔 She is having surgery early next week (skin graft) then its chemo number 9. Then in a few weeks she and I are off to Florida for proton Beam Therapy treatment and leaving all our friends and family behind. Im a bit anxious, not going to lie! but its all one massive adventure for a 7 year old 🤗
So last week I received news that the spots they removed from my diaphragm during surgery came back as cancer. Due to this information and treatment taking longer then expected I have decided to defer uni for another year and travel instead. This will allow for me to recover a bit more before heading back to studying what I love ❤#ewingssarcoma #fuckyoucancer
One of Liberty's greatest wishes was for us to continue fundraising in her name after she was gone, with all money to be donated to research into Ewing's Sarcoma. She did not want any other child to suffer as she did, or any other family to be devastatingly ripped apart in the same way.
Libs was such a special, inspirational young lady who has touched so many hearts and impacted so many, more than she will ever know. She had so much to give, she deserved so much more, but always thought about others before herself.
In due course we will be setting up an official Legacy fund in her name. We discussed this with Libs before she passed and it was something she very much wanted us to do and is a promise we will honour. However as this takes time due to the legalities, we have set up a Remembrance Page in her honour in the interim.
We would therefore respectfully ask that rather than flowers at her Service, donations are made to the Liberty Grace Schurer Remembrance page, with all donations going to the Ewing's Sarcoma Research Trust, the link for which can be found here. 💫http://uk.virginmoneygiving.com/SomeoneSpecial/liberty 💫
We have also received many enquiries from those who have already started raising money, and are pleased to confirm any fundraising activities in Liberty's name can also be linked to this page. We can also accept offline donations.
Please feel free to share.
Lastly, we have been incredibly touched by everyone's generous support, it really means so much. A heartfelt thank you from us all.