Happy heavenly birthday Kylie!! I hope your sweet sixteen is even more magical in heaven 🐧✨I’ll bet that all the penguins must be celebrating you✨⛄️💕 #smileyforkylie #forever13 #happybirthday #birthdayinheaven #gonetoosoon #kyliemyers #ewingssarcoma #childhoodcancer #childhoodcancersucks #childhoodcancerawareness #nationalpriority #gogold #kidsgetcancertoo #fightlikeakid #notrare #learnyourfacts #fuckcancer #hope365 #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗- christina
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Surgery went really well, but my legs and feet hurt really bad 😣. Someone sent me a box of yellow things and it made me really happy! 💛 #yellow #yellowbox #yellowthings #cancer #cancerlife #cancerfighter #cancersurgery #ewingssarcoma #sarcoma #kickingcancersass
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Today's #SaturdayShoutout goes to Liberty's good school friend, Lucy Canney. Last night at Brox Lucy generously donated over 8 inches of her lovely locks to the Little Princess Trust, an amazing charity that provides wigs for children dealing with hair loss. Lucy also raised over £1300 for Ewing's Research through sponsorship, a truly incredible amount I'm sure you will agree! Lucy recalls "Liberty was always so funny, cheerful and kind. We became increasingly close when she was diagnosed with cancer because that was when I started carrying her bag, it was a small part of the day however I think we both enjoyed it very much, we would always come back to her house laughing at something funny that had happened on the walk from the bus." I would always know they were home long before the doorbell rang as you could hear their laughter and giggles as they came down the driveway. How I miss that sound at 4 o'clock each day. Lucy's small act of kindness meant so much to both Liberty and I. It allowed her to continue to be a 'normal teenager', getting on the school bus with the rest of friends, a part of her day she loved, and it gave her the normality she so craved throughout her gruelling treatment, we will be forever grateful. Well done Lucy! If this has inspired you to raise money for Liberty's Legacy, don't forget that you need to link your fundraising page to Liberty's. Full instructions can be found in the pinned post at the top of this Page, but please do message or email us if you need some help. Thank you. #LibertysLegacy #Brox #EwingsSarcoma #LittlePrincessTrust #ChildhoodCancerAwareness
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Another day another round of chemo up at the snowy hospital. Tym is amazing and kicking cancer’s butt. Not sure I’ve mentioned but his tumor was 100% dead after his first 3 rounds of chemo. 4 more post surgery to make sure the beast is all dead in his body. I can’t believe what a great attitude he’s had through this whole thing and we have some light at the end of this dark tunnel. #ewingssarcoma #ewingssarcomasucks #fuckcancer #sarcomacancerawareness #ohsu #myhusbandisawarrior
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These sweet potato fries are so yummy! You can make them as thin or as thick as you’d like, and the paprika adds a wonderful smokey flavor. However, the paprika could easily be swapped for other spices to mix up the flavor to fit your needs. . . . The full recipe is available on our Facebook page! . . . #bostrong #bostrongfoundation #yacancer #ewingssarcoma #cancer #holisticmedicine #foodiefriday #nutrition #healthyrecipes #CancerSucks #WildFit #Whole30 #Paleo #Keto #healthysnacks #nomnom #recipes #vegan
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If you haven’t purchased your Keep Going drawstring backpack yet, head over to www.joshpowellfoundation.org and get yours today! For each bag purchased, JPF will donate one back to a newly diagnosed sarcoma patient. BUY ONE, GIVE ONE! 💛💪🏼🎗
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oh #friday, let me #hug your neck: anyone else?! No matter what you have faced this week whether a setback, interruption, or several strides forward, THIS is your Friday reminder that YOU made it; now, let the weekend fun commence! #cancer #yacancer #ayacancer #teencancer #sarcoma #ewingssarcoma #cure #chemotherapy #radiation #sideeffects #lateeffects #neutropenia #endoftreatment #survivor #cancerwarrior #seizetheday
17 0
This year better fucking fly so I can be my healthy, fun and fit self again.. still baffles me to think that I actually have cancer. Not a great feeling. #cancer #cancersucks #cancerfight #memyselfandi #ewingssarcoma #ewingsarcomaawareness #mybigfight #blueeyes #contemplating #life #gay #gayboy #gayirish #gaypost #instagay
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Bionic and Proud Part of the standard protocol for the treatment of Ewing’s Sarcoma is surgery to remove the infected bone either through limb salvage or amputation. I was lucky enough that my tumor had shrunk so much that limb salvage and reconstruction was an option for me. But because I now walk with a metal hip, I have a lot of restrictions that I need to follow. I’m not supposed to bend certain ways, squat, jump, run, or basically do anything that runs an increased risk of me falling or breaking the prosthetic. I can still do mostly anything that comes on a daily basis, but it can make life as an 18 year-old college student kind of tough. It’s hard to get through those three-hour chem labs where your not supposed to sit. Going out with friends can be tough because at a certain point, I can stand anymore let alone walk around from place to place. But this isn’t the end of the world, I find ways around my weaknesses. Adjusting to life with a bionic hip was tough at first, but like anything you get used to it and work with it. At the end of the day, I’m just happy I still have my leg even if it has one less bone in it. #ewingssarcoma #can#cancerort #cancer #chemosucks #cancersucks #cancersurvivor #metalhip #bionicwoman #1in285 #kidscancer #pediacticcancer #remission #remissionrocks #remissionlife
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Huge shout out to @krispykreme for supporting C2C this year! We “donut” know what we would do without you. #krispykreme #pediatriccancer #kidshelpingkids #hepatoblastoma #ewingssarcoma
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🌟🎗2 years ago today, I remember I locked myself in my room refusing to go to my last day of chemo. i had waited over 1.5 yrs for this final day, yet i literally did not have the mental strength left in me for another day. cancer changed my life. the goal of chemotherapy is to pretty much kill everything in your body without killing you. people call it brave, but I don’t think its about bravery. we are the sum total of our experiences, but we are defined by our heart & our soul. the gift cancer gave me was perspective. try your best to take things one breathe at a time. 🌟s/o to my family, friends, chemo nurses who never made me feel like a victim. i also thank all of the people who have entered my life post treatment for being patient with me. i ♥️ you all & hope a little part of my story brings you some light. We r all resilient & we r capable of anything. #ewingssarcoma #cancerversary 🎗🌟
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Celebrate every tiny victory along the way because no victory is too small to celebrate BIG! #celebrate #celebratelife #victory #yacancer #teencancer #sarcoma #ewingssarcoma
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In our home, volunteer work & donating when we have extra is extremely important to us......these are traits that I want to pass on to my children......making the world a better place with one simple act of kindness at a time. 😍 This year, our goal is to do at least one kind project each month. 💚 Last month we went through our stock pile of blankets & picked out some soft blankets to donate to the NICU babies at the University hospital. This month, we are making some care packages to take to the oncology patients that are receiving treatment. So far, we have soft socks, chapstick, small lotions and small hand sanitizers to put in our packages. Do you have any other ideas of things that we could put in the packages to help or brighten someone's day? What would you think of an inspiring note/quote with the package? How about if the note was decorated by a child? Please share your suggestions below! Thank you! #run #6k #running #stlcuresarcoma #sar#sarcomaawareness #sarcoma #stlsarcomarun #sarcomaresearch #curesarcoma #curesarcomacancer #curesarcoma6k #curecancer #synovialsarcoma #leiomyosarcoma #rhabdomyosarcoma #liposarcoma #ewingssarcoma #osteosarcoma #mesenchymalchondrosarcoma #fcancer #effcancer #pain #cancerpain
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Did you know just one blood donation has the potential to save more then one life? Did you know that every 2 seconds someone in the US needs blood? Come out and donate blood, it can save a life.... Come out for some fun all while giving blood for an amazing cause on Friday, March 30th from 2pm to 7pm. There will be face painting for the kids by. Fun Faces By Terrie - Terrie Mergner, Yummy treats from Five Loaves Bakery & Cafe and others. There will also be baskets to raffle off. Most importantly, come and donate some blood in honor of our special fighter, Thomas DiPietro. Be apart of his fight club - Thomas Fight Club Walk-ins welcome, but appointments are STRONGLY PREFERRED!! Any questions contact myself or Jennifer Marie ... Please follow the link below to schedule your appointment!!! https://tinyurl.com/y9zts9tt Or call 1-800-RED CROSS (1-800-733-2767) Share and Spread the word. Fists up! #thomasfightclub #fistsup #blooddonativesaveslives #savealife #celebrate#redcross#ewingssarcoma#ewingsarcomaawareness#pediatriccancerawareness#pediatriccancer#blooddonation#NewJersey#OldBridge#oldbridgenj
54 0
4 years since diagnosis ,could not be any prouder of both my outstanding children Love you both to the moon & back again #myson #mygirl #mywholeword #cancersurvivor #ewingssarcoma #myhero #4yearssincediagnosis #grateful #myamazinggrace
54 0
It feels so nice to be standing up on two feet again. I stood in my kitchen this morning and felt taller than I had ever felt before. I had been using a wheelchair and leaning on crutches for so many months. Today, I am working on walking up and down the hallway of my apartment building. There is too much snow to be practicing out outside! I have a long road ahead of me to build up all the muscle that I have lost in the last year. Even though I wish I could recover in a day, I trust that I will get there in time. 💪🏼🏃🏻‍♀️ #whenlifegivesyoucancer #ewingssarcoma #amputee #amputeelife #prostheticleg @astepaheadprosthetics @weare.survivors @ihadcancer @ottobockus_ca @thedoctorstv
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Today marks ONE YEAR CANCER FREE!!! So of course I spent my snow day going to visit #ralphthechemodispenser for a port flush! #cancerfreeme #longtimecoming #ewingssarcoma #oneyeardown #manymoretocome
34 1
Surgery Day! Let’s get this show on the road! So thankful for my Dad to have made the trip with me. #ewi#ewingsoma #ewings #surgery #warrior #survivor #mydadlovesme
40 2
#Repost @prayersforclaire with @get_repost ・・・ Video Part 2 of 2 I am SO proud of this girl. Watch this video to see how much money she raised for childhood cancer research, in honor of her being 1,000 days cancer free!! #1000days #cancerfree #curechildhoodcancer #ewingssarcoma #morethan4 #shekillsme
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#Repost @prayersforclaire with @get_repost ・・・ Video Part 1 of 2 I am SO proud of this girl. Watch this video to see how much money she raised for childhood cancer research, in honor of her being 1,000 days cancer free!! #1000days #cancerfree #curechildhoodcancer #ewingssarcoma
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We can all get so bogged down with the bad things that we have to deal with each day. 😩 Comment below with something good that has happened in your life lately! 💚 We are grateful to have new committee members this year! Fresh faces, fresh ideas & more help to make our Race even better!! 🎗 #run #6k #running #stlcuresarcoma #sar#sarcomaawareness #sarcoma #stlsarcomarun #sarcomaresearch #curesarcoma #curesarcomacancer #curesarcoma6k #curecancer #synovialsarcoma #leiomyosarcoma #rhabdomyosarcoma #liposarcoma #ewingssarcoma #osteosarcoma #mesenchymalchondrosarcoma #fcancer #effcancer #pain #cancerpain
33 2
My little princess, you are nothing short of inspiring. Every day I am in awe of your strength and your beautiful smile that never seems to fade. I love you ❤️ to the moon and beyond. #ewingssarcoma #shanayathefirst #ewingssarcomayouhavemetyourmatch
20 0
If given the choice I would go through all of it again if it meant that I ended up where I am now 💞
39 2
There's still time to sign up and join Team Libs for the GX 5k Fun Run on May 20th. We would love to see as many of Libs's friends there as possible, and if you can dress as her favourite butterfly, even better! Once signed up, don't forget to message us your email address so that we can add you to our Team fundraising page.  Come on, do something good today and help us get a step closer to fulfilling our gorgeous girl's Legacy...until there is a cure.... Sign up at https://gxfunrun.org.uk/take-part #LibertysLegacy #EwingsSarcoma #ChildhoodCancerAwareness #BoneCancerResearchTrust #GXFunRun
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On nights where I’m sitting with all of my books open in front of me trying to avoid my school work (much like tonight) I started reminiscing about my days in high school. One of my favorite high-school memories was my senior prom. Likewise, one of my favorite memories from when I was sick was CHOP Prom. At the Children’s Hospital Of Philadelphia, the hospital held a “Prom” for those kids that were impatient during their real prom. I was way to young to attend a real prom at the time, but CHOP prom was open to any patient that wanted to go. Of course at any other time I would have loved to go, but the day of CHOP prom was about 5 days after my limb-salvage surgery to remove my tumor and repair my leg. To be completely blunt, I was not excited to leave my bed. But, after some edging on from my nurses, they got me out of bed, into my wheelchair, and off to Prom. Looking back on it, I’m so glad I went. I was tired and in pain, but going off to Prom lifted my spirits unlike anything else. Just that little bit of pampering and change of atmosphere had done wonders for me. I was so excited to experience the real thing and thanks to my wonderful care team I got to rock my senior prom with my best friends. #cancersupport #chemolife #cancersucks #ewingssarcoma #cancerlife #1in285 #friends #family #chopprom #remission #lifeaftercancer #kidscancer #pediactriccancerawareness #pediatricsurgery #pediatriccancer
28 4
There are few things better than hanging out with a good friend sharing your heart with them. Sadly, social isolation comes part and parcel with #yacancer and #teencancer as their lives come to a standstill while life goes on for others #cancer #sarcoma #ewings #ewingssarcoma striving to increase #survival find a #cure and ease the impact on these young lives
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#ElevatorSelfie before a special visit to an #EwingsSarcoma fighter. ❤️ . #childhoodcancer #gamerosity
42 1
#Repost @prayersforclaire Video Part 2 of 2 I am SO proud of this girl. Watch this video to see how much money she raised for childhood cancer research, in honor of her being 1,000 days cancer free!! #1000days #cancerfree #curechildhoodcancer #ewingssarcoma #morethan4 #shekillsme #cancerawareness #cancercure #TogetherStronger
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#Repost @prayersforclaire Video Part 1 of 2 I am SO proud of this girl. Watch this video to see how much money she raised for childhood cancer research, in honor of her being 1,000 days cancer free!! #1000days #cancerfree #curechildhoodcancer #ewingssarcoma #cancerawareness #festivalofhope
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