Почему дети так ненавидят одеваться? Вот реально, стоит нам начать собираться гулять - начинаются истерики, слезы, сопли, крики. Причём на улице все замечательно, птички поют, мир, добро, жвачка. Одевание мелкого превращается в какой-то квест: успей надеть ботинки, пока не началась истерика🤦🏻‍♀️ Мне кажется, что мои соседи думают, что я мучаю ребёнка (крик стоит на всю лестничную площадку). Первое время, чтобы выйти на улицу, мне приходилось затрачивать огромное количество нервных клеток и эмоциональных сил, он плакал, я плакала вместе с ним. Сейчас же - соску в ещё беззубый рот и одевание на скорость, аки Флэш. #даня_и_даня #ребенок #какодетьребенка #зима #eds #ehlersdanlossyndrome #инстаребенок #инстамама
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Food preparation 🏋️‍♀️🏋️‍♀️🏋️‍♀️ #fightingspirit #fitness #eds #forlife #zebrawarrior #zebrapower #food #warrioratheart
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💁🏼‍♀️ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #ehlersdanlossyndrome #hypermobile #eds #health #fitness #bodybuilding #vegan #training
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Heating pad theif! Lol. Don't be fooled. This service pup is so spoiled in all his down time he may work for me but he also gets to be a legit dog who is very loved in our free time. #servicedog #servicedogs #servicedogsofig #shepardmix #adoptdontshop #dogsofinstagram #sdit #disability #multiplesclerosis #ehlersdanlossyndrome #eds #hypermobile #pots #migranes #fatigue #musclespasms #Dysesthesia #dysautonomia #insomnia #ibs #chronicpain #spoonie #chronicillness #msawareness #mswarrior #mssucks #advocate #invisibleillness
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#EDS#EDSWU is now over and it’s time to head back to Finland. Today we had some free time, so we headed to see the #WawelCastle, which was rather impressive, if I may say so. #EDS
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#LadyDiZebra Staying alive with cannabis concentrates #ommp #MedicalMarijuanaPatient #EDS #MS #HipDysplasia #Dysautonomia #DDD #Repost @ladydizebra ・・・ #cannadifyi💯💚 #HappySundayFunDay #WakeMakeAndMedicate #WakeAndBake #mrbonejangles #fujeff .... I dedicate this to the other killer queens and I pass the #laserdab relay onto @striatedprism @dutches_of_dabs @snikel_fritz @enjoythe_greenery @coxistheshiz @dabbingdonna @kobaltigress @jsta420mama ... My friends from back home think I should pursue modeling NOW lol. The reason why I’m considering it is because although I’m grateful for my disability I cannot live on it. I cannot rely on the estranged for anything and I can’t I go back to my previous careers. ... Trying to start my own mini business but until I get it going @rolling_stoned_mag Please follow me there too y’all eh 🙏🏽🙏🏽🙏🏽 ... I was approached when I was in my teens but I was horribly shy, dysmorphic and not supported by my mother (Family). Plus modeling wasn’t my career choice. I would’ve rather been astronaut but my mother said I had to be cooking and cleaning and taking care of a man. PULEEEASE!!! ... A fragment of what I heard over and over again out of my mother’s mouth ... ... Don’t wear makeup you look like a whore. Don’t wear your skirt too short you look like a whore.. Don’t wear a top it’s too tight you will be asking for it. Cursing sounds worse coming from a woman’s mouth. Don’t sit in a car with a boy people will think you’re doing something. Go to church every Sunday, don’t ask questions and don’t question authority. If you want to have children you’ll find the money to take care of them. Find the money mom… Where would I find the money I asked her on a money tree? #MomWasWrong
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Saktësi e frikshme 😨 #eds #eduasportin #accuracy #golf
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Today is the last day for this tube to take up space in my nose and throat! So glad! It has been a difficult experience. I am thankful to be getting nutrition though. And equally thankful to be getting new abdominal tube tomorrow morning. Prayers appreciated for a smooth transition and procedure. Keep fighting. Keep moving forward. #bebrave #bestrong #chronicovercomer #livelifetothefullest #hopebeyondhealing #keepmovingforward #chronicillness #invisibleillness #eds #ehlersdanlos #ehlersdanlossyndrome #dysautonomia #pots #myastheniagravis #mg #chronicwarrior #spoonie #spoonielife #zebrastrong #snowflakedisease #psoriaticarthritis #youdontlooksick #gastroparesis #mastcellactivationsyndrome #mcad #mastcelldisorder #notgoingdownwithoutafight #tubie #njtube #feedingtube
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Yesterday was the little’s dad’s birthday. So they got to take him his presents and open them for him (talk about impatience!!! Lol!! They picked out the gifts, so they knew what was in there!!). Then I took him to a fancy dinner to celebrate (after all, it is his 45th!) at the Briarhurst....when dinner was over and went home, it was 9p. Because I’m a lame person, I immediately stripped off my gown and pried off my corset...and fell asleep. 😂😂 Today’s task...figuring out how to ramp my wheelchair in and out of the house. 😊 . . . . . . . #happybirthday #birthday #45thbirthday #childrensdad #stillagoodfriend #fancy #fancydress #briarhurstmanor #lgbt #lgbtq #lesbian #singlemom #girlswhokissgirls #girlswholikegirls #girlswithtattoos #tattoedmom #singlelesbian #mmj #mmjmoms #invisibleillness #eds #ehlersdanlossyndrome #pain
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The next 5 people who plan an online or in person party and invite at least 100 people will get a free bottle of Thieves!! #malcolm #momofboys #boymom #eds#edster #eds #oilsforeverything #momonabudget #momonthego
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Fighting my deamonds to walk over roads. I'm amazing ✌️😎 Without get tens, cramp or become paralyserad by fear when I walk over roads. "Det här var fan det bästa jag gjort på. ... vääääldigt länge" På så många sätt! En kvällspromenad i en okänd stad. Ångestdämpare för att kunna lära hjärnan att kroppen klarar! Ensam #resa för att må bra #egoresa #reh#rehabittsätt #miljöombyte #test #rehab #walkagain #nowheelchair #smärta #utmaning #lymfödem #lipödem #lipolymfödem #lymfflödet #eds ? #underutredning #fotledsskada #neuromuskulär #utmattningssyndrom #hjärntrötthet #fatigue #tinitus #kasskropp #allalikaolika #balans #styrka #fokus #paraPB #stolt #svensksjukvård har inte lyckats med mycket för att hitta rätt insatser.
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Transforming your body starts with what you out into it. I’m starting my day with a strawberry banana Shako with some Kashi cereal thrown in 😋#Shakeology #beachbody #beachbodycoach #ladyboss #bodyfuel #startthedayright #tightbutt #feelinggood #nutrientrich #superfood #easymeal #eds #ehlersdanlos #ehlersdanlossyndrome #hypermobiluty #painmanagement #beatinganxiety #beatingdepression #zebra #zebralife #zebraforlife #zebramovement
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🏋️‍♀️🏋️‍♀️🏋️‍♀️#fightingspirit #fitness #eds #forlife #zebrawarrior #zebrapower #warrioratheart
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Sunday reminder. 🤙🏽
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My typical day - currently getting used to Gastrocrom. I’m a bit of an early bird (with lots of naps). How about you? #chronicillness #chronicblogs #mastcelldisease #MCAS #PMDD #EDS #POTS
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Can you tell I love dogs? So far I’ve shared with you video games and reading as coping mechanisms for both mental and physical illness. Now this is my number one coping mechanism for all my conditions along with stress, anxiety, self-worth issues, and agitation. I’ve always been the person to be there for everyone expecting nothing in return. It’s just the way I’m programmed. Sometimes that can get intense with people and it ends up hurting me. This is why I have to keep dogs in my life. I’ll give them endless love and they’ll never hurt me back. They’ll accept me for who I am and they can feel what I’m feeling. There’s things I feel that I can’t put into words, but dogs can feel it. Dogs are magical. The little Maltipoo (Winnie) is my puppy and the Mini Schnauzer is my 13 year old dog, Misty. Both bring so much to my life and I don’t know where I’d be without them. (Other dogs are a family friend’s dogs including Winnie’s mum (black poodle)) #dog #dogs #dogsofinstagram #puppy #puppylove #chronicillness #minischnauzer #maltipoo #maltipoosofinstagram #dogsarelife #dogstgram #dogsofig #bipolar #bipolar1 #mentalillness #eds #ceds #heds #zebrastrong #potssyndrome #mcas #rareillness #cci #maltese #poodle
20 1
🌟Back to Paris on Thursday! ❤️This time we hope to do Notre Dame and The Louvre if I’m up to it. 🤞I’m a bit worried after my London trip this week as I didn’t cope too well. But hopefully the French wine and adrenaline will get me through it ❤️🥐☕️🤞#adventuresofadisabledgirl #paris #trip #minibreak #excited #selfie #sel#selflovecamp #selfloveisthebestlove #selfcare #selflove #behappy #bekind #bopo #bodypositive #bodypositivity #effyourbeautystandards #bodyacceptance #bodyconfidence #dis#disabledandcute #disabled #disability #invisibleillnessawareness #eds #hms #awareness #chronicillness #chronicpain #bendy
30 3
Derbi i Stambollit mes Beşiktaş-it dhe Fenerbahçe-s nis në orën 17:00 🔥 Cila skuadër do të arrijë të fitojë sonte? #eds #eduasportin #superlig #beşiktaş #fenerbahçe #instanbul
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@art.golec dzięki za wczorajsze tańce🔥💪!!! #wiewior #dance#artgolec #eds #training
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Sunday assignment 🏋️‍♀️🏋️‍♀️🏋️‍♀️#fightingspirit #fitness #eds #forlife #zebrawarrior #zebrapower #food #warrioratheart
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One step towards radiant skin is by stimulating collagen production - EDS is our winning treatment for this and is only £169 until Friday. Click the link in our bio to find out more about skin needling 🤷 . #offeroftheweek #skinrejuvenation #skincare #eds #microneedling #peels #botox #radiantskinisalwaysin #radiance #hydration #col#collagenstimulating #skintreatments #skinneedling #collagen #parkstreetclinic #youonagoodday #westmidlands #birmingham #shifnal #shropshire #wolverhampton #telford #skingoals #finelines #antiageing #freeconsultation
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Kjo është skedina e ditës në EDS, me 4 ndeshje të përzgjedhura me shumë kujdes nga ekipi ynë i Tipsterave. Për analiza dhe parashikime të tjera klikoni në kategorinë Parashikime në eduasportin.com 👈 #eds #eduasportin #parashikime #tipster #skedinaeditës
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#МДБГ #eds #wu18 #epp EDS Winter University 2018 (#EDSWU) in Krakow, Poland. “Europe and Young leaders of local communities” Младежко ДБГ е представено с делегация от 3 представителя.
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Rare disease day is quickly approaching! 📢
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#Eds open house# Bahagia itu kumpul2
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My EDS causes my knee caps to wanna slide around way more than they need to so in preparation for the day I use @rocktape to help get through! When you have EDS life is a sport in itself so this tape helps me make little life wins every day 🏆#EDS #ehlersdanlossyndrome #arizona #rocktape #winner
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💜💜 Mr. The Mister sent me a wonderful article about my particular suite of quirky brain squirrels that come along with Ehlers Danlos Syndrome (there's collagen in your brain, too! 😉). Yesterday I was so flummoxed about the flooding, and worried for the animals that have no place to go. It's just how highly sensitive people roll, I've learned, and it's nice to have a partner that understands. 💜💜 So...it was super cool to have this pop up in my Facebook memories. Sometimes it's nice to know that other people deal with the same things as you do. 🌼🐞🌼 #ehlersdanlossyndrome #highlysensitive #eds #hsp #heartonsleeve #fiberkeepsmegrounded #mybrainisawesome #groknation
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Weekly meditative medication prep. Mix the old with the new, the spiritual and the science are not so far apart. . . #medication #medprep #chronicpain #chronicfemme #chronicillness #pagan #paganism #meditation #spiritual #fibro #fibromyalgia #eds #ehlersdanlos #ehlersdanlossyndrome #edszebra #zebra #disability #healing #pain
43 1
#LittleAnger and I ready to attend the #EDS #FatherDaughterBall
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We’re off to a squeaky clean morning! ❤️💦🛁 I’m not a big fan of the bath, so momma gives me treats while I dry!😍 #EDS #EhlersDanlosSyndrome #CatsWithEDS
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Anthony Davis e bën kontrollin e topit të duket si diçka kaq e thjeshtë 😍🏀 #eds #eduasportin #anthonydavis #neworleanspelicans #nba
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Today we skipped the group walk and went to the woods with mum. It was well needed! For all of us! 💗 Nea terrorised my mother a bit when she tried to enjoy herself it was so fun to catch it 😂 #theraphy
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My shopping as a dentist 😒♥️💛. #EDS 💪✌️
64 1
Tęsknie juz dziewczyny !!!❤❤❤ Tak bawiłyśmy sie na Egurrola Dance Winter !!! Już niedługo będziemy sie bawić jeszcze lepiej na Egurrola Dance Summer !!!❤❤❤ Tym razem z @przeminela 💋💓 Mam nadzieję że siła będzie SZTOOOS !!!❤😂 #love #dancer #eds #crazy #mypeople #mypassion #egurrola
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This.... People don’t get or understand what I am going through or what others like me are. #pots #ehlersdanlos #ehlersdanlossyndrome #eds #gastroparesis #chronicillness #spoonie #spoonies #migraine #vasculareds #vascularehlersdanlos #greysanatomy
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Everybody is a genius. But, if you judge a fish by its ability to climb a tree, it'll spend its whole life believing that it is stupid. - Albert Einstein • • • #namaste #eds #handsonback #hypermobility #hypermobilityspectrumdisorders #ehlersdanlossyndrome #kroniker #mybodyismytemple #mylifeismyadventure #heds #mothernature
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Début d’amusement #barrefixe #echap #EdS
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Në më pak se një orë nis superndeshja 🔴 Manchester United - Chelsea 🔵 Sipas jush, cili do të jetë rezultati përfundimtar? #eds #eduasportin #premierleague #manutd #manchesterunited #chelsea
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Just yesterday, I found a box filled with all my design stuff which I hadn’t seen in many years. It seems I had forgotten about it and left it with my dad because I wasn’t ready to accept my new reality (and discard anything) and nor was I able resist it. I was experiencing the most horrible internal conflict of all time To hold on or to let go. My heart knew well that I needed to let go because I had fought enough and my body was changing. But my mind wouldn’t let me. Holding on would mean disrespecting and dishonouring the one and only vessel I had for the rest of my life. I had to learn to accept it for what it is but how could I let go of all the things I loved, planned and wanted so much? I was suffering in every way possible. I knew I had to pause but it was hard to put away my dreams and aspirations for a long period of uncertainty, of not knowing and having answers. And that was scary. But I did it any way because I could no longer neglect the messages from my body.
So when I decided I was ready to jump off the cliff, leave my full-time job, learn to live on my own and put my body first, I told myself I’d deal with this box when I am able to see my past as just one part of my life and not a reflection of my worth. Leaving the box behind, I remember feeling as if a burden of expectation to be the “perfect one” was lifted off my shoulder and at the same time, a heavy sense of grief towards my old self engulfed me. Who am I without my dreams, I thought. I know nothing off this path I have carved and imagined. I will be lost. I am lost. And what if I am never found again? What if, despite all my effort and desire to leave my old self behind, I can’t do it? How will I live from here, with the burden of having and wanting to be perfect and knowing that I was born in an imperfect body? Does honouring my body, which feels like the right thing to do, equate to failure? Will I be a failure in everyone’s eyes? Am I a failure in my own eyes?
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