"Dans la vie on ne fait pas ce que l'on veut mais on est responsable de ce que l'on est." _________________________________________ Parfois j'aimerai vraiment être "normal" pouvoir faire tout ce dont j'ai envie, courir, faire du sport à outrance 😋, travailler sans difficultés, voyager... mais tout ça sera très compliqué à faire mais malgré les problèmes et ce P***** de rejet 😤 Je ferais de mon mieux pour y arriver quitte à y laisser un poumon (vu leur efficacité..😂) mais j'y parviendrai !! Et vous êtes ma force pour arriver à faire tout ça. Je sais qu'un jour j'y arriverai de nouveau et ce sera en parti grâce à vous tous, grâce à votre soutien et vos messages. Merci infiniment 💪❤️ #pic#pic#pic>eday #pic #pics #teamshape #fit #fit#fitfamily #fitfam #fitness #teamfitcat #workout #training #french #frenchie #biker #rider #hjchelmet #cysticfibrosis #cffighter #cfwarrior #mucoviscidose #frenchfit #motard #teamhalfbody #motivation #transformation #body
13 1
My lungs are feeling quite pants atm, my o2 SATs are normally 98%+ and had heavily blood stained sputum for 3 days now. Actually looking forward to going to the hospital next week. Not often I say that 😂 #cysticfibrosis #cf #chestinfection #notmyhealthiest
0 0
Met volle angst vooruit 💪🏼 #teamfien #zowaar #liefleven #cf #cysticfibrosis
3 1
Growing up, I never ever wanted anyone outside of my immediate family seeing me take my nebulisers. I would hide the big nebulisers behind the couch if people were coming over to the house. Even if it was my aunties or uncles. I can remember the first time I took my neb in front of @yasminaaniss. I was bricking it. I felt very venerable and open. The fear of being different. 5 years ago I wouldn’t have uploaded this photo. Nowadays, I couldn’t give a fiddlers who sees me. I actually want people to see it in the hope people will ask (usually people feel very uncomfortable asking questions about this). I want people to ask so they can learn about what Cystic Fibrosis is. Be happy with what you have, flaws and perfections. • • •#BeatCF #cysticfibrosis #underarmour #nebuliser #medication #selfconscious #selfconfidence
22 3
#cysticfibrosis always doing them nebs clearly didn help 😂
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Just the most wonderful footage of our SNOWBILITY student, Karla skiing in Whistler, Canada. We love your photos and videos - so always remember to tag us @snowbility #sno#snowbility #safetyfirst #itscooltobedifferent 😃❄️🎿 . . .. . . . . . #lifeskills #ski#ski #socialcareawards #ghp #asd #learningdifficulties #awardwinners #therearenolimits #snow #ski #snowboard #autism #aspergers #dyslexia #dyspraxia #cerebralpalsy #cysticfibrosis #adhd #add #mentalhealth #carers #boarding #whistler #extremesports #activekids #childhealth #specialneeds #canada
16 0
Prost Mahlzeit ich gönn mir ein Falscher 🍾 #cysticfibrosis #muko #justbreathe #diescheissmukokannmichmal 😜
5 3
I have been diffusing pure essential oils for just under 2 years now. Its on pretty much half the day! Its the only change I have made to my routine and my lung function has stabilised and on monday I blew 47% which is usually my post IVs number. Iv been around 41-43%. Not only does it make the house smell lovely , its keeping me well. No IVs for 20 months! ##naturalliving #health #cysticfibrosis #beatcf #fightcf #tryingnewthings #holisticlife #
4 2
Be an ANGEL today 😇 - Avoid Negative Garbage & Enjoy Life - Have a great day everyone 💜 #angel #enjoylife #avoidnegativegarbage #cys#cysticfibrosiscrew #cfc#cf> #cysticfibrosis #cf #organdonation #give #extraordinary #strong #hope #love #life #happiness #findacure #justbreathe #unlimited #smallfighters #newventures
14 1
Good News! FEV1 um 3% verbessert. Läuft im wahrsten Sinne des Wortes. Und es macht einen Unterschied, ob ich angespannt oder entspannt über den roten Teppich.. ähh.. Flur von Tür zu Tür spaziere 👍😊 #cysticfibrosis #cf #mukoviszidose #breathe #cfboy #cfman #lovetobreathe #cfawareness #65roses #chronicillness #beatingcf #cfwarrior #illness #lungs #justbreathe #bronchi #mukoman #mukoboy #saltysquad #cfer #cfstrong #lifeisgood #fitwithcf #blogger #munich #winter #happy #superhero #runnersofinstagram
19 2
so excited for summer and to write more travel posts. Only four weeks till I visit Croatia ☀️ • • • • • #blogger #bloggerstyle #ukb#ukger #cysticfibrosis #healthandfitness #lgbt #lif#lifestyleblogger #lifestyle #wordpress #wordpressblog #rushden #eastmidlands #uk #summer #sun #europe #croatia #blue
34 0
"COMING HOME" In the past, when coming back home after a long trip, I could not wait to "break out" again. Every time, I would immediately begin planning my next trip and dreaming of what was to come. But this time, after returning home from my trip to Colombia and even though I am still heading on my next journey soon, I have been experiencing a new phenomenon- namely, that I'm just very happy to be here in Germany. 🙏🏼 . This may have something to do with the fact that since my meditation retreat a few weeks back I am able to feel much happier in the moment and as though my happiness weren't so dependent on a place or any other external circumstances. But it certainly also has to do with the gratitude I feel for having such a wonderful network of people around me, especially in my home country in Germany. It is as if I could finally really appreciate what is happening in my life right NOW, without having to change anything on the outside or hope for any improvements in the future. ♥ ︎ . "Coming home" to yourself is a great feeling. 🙏🏼 . Thanks, @ronnybarthel I @fotograf.zur.hochzeit for the photo 😊 . . . #gratitude #happiness #germany #happinesswithin #vipassana #meditation #retreat #cominghome #silentretreat #lifehappensforyou #min#mindfulness #buddhism #mindful #mindfultravel #selfdiscovery #bemindful #colombia #travel #traveler #wanderlust #travellove #travelblog #travelblogger #travelousmind #reisen #reiseblog #mukoviszidose #reisenmitchronischererkrankung #cysticfibrosis #travelwithcf
88 10
#runtocurecf #run#runforareason #run#runandbreathe #run#runforacause #run#runforlife #jus#justrun #run#runningmum #cys#cysticfibrosis #cys#cysticfibrosisawareness #gen#geneticdisease #hea#healthcare #cle#cleanout #jus#justbreathe #sup#supportresearch #win#winthisfight #inv#invisibleillness #phy#physiotherapy #med#medication #sup#supplements #nut#nutrition #cfl#cflife #chestphysicaltherapy#runtocurecf #runforareason #runandbreathe #runforacause #runforlife #justrun #runningmum #cysticfibrosis #cysticfibrosisawareness #geneticdisease #healthcare #cleanout #justbreathe #supportresearch #winthisfight #invisibleillness #physiotherapy #medication #supplements #nutrition #cflife #hope #Livetoday #65roses #staystrong #prevention #Genesis #hometreatment
14 3
This why we do what we do!!! Worth FIGHTING for! #cfg#cfong #cure4cf #geelongcommunity #cf #cysticfibrosis
8 0
Berries in melted chocolate 😍 I LOVE berries, they are good for detoxing and cleansing the lungs. 🍓 Why exactly are berries so good for you? 🍓🍓🍓🍓 Their main power comes from antioxidants, the miracle fighters of free radicals. Antioxidants mean life, while oxidation means death. (The attacks of free radicals or unstable molecules subject our cells to continuous damage, known as oxidative stress or oxidation.) So we need these antioxidants to fight the aging (oxidation) process, and to stay alive in the face of constant threats to our health. . . . . . #berries #chocolate #snack #allaboutbalance #goodforthelungs #nutrition #cysticfibrosis #cysticfibrosisnutrition #health #wellness #wellbeing #summer #love #healthylifestyle #healthyliving
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#runtocurecf #run#runforareason #run#runandbreathe #run#runforacause #run#runforlife #jus#justrun #run#runningmum #cys#cysticfibrosis #cys#cysticfibrosisawareness #gen#geneticdisease #hea#healthcare #cle#cleanout #jus#justbreathe #sup#supportresearch #win#winthisfight #inv#invisibleillness #phy#physiotherapy #med#medication #sup#supplements #nut#nutrition #cfl#cflife #chestphysicaltherapy#runtocurecf #runforareason #runandbreathe #runforacause #runforlife #justrun #runningmum #cysticfibrosis #cysticfibrosisawareness #geneticdisease #healthcare #cleanout #justbreathe #supportresearch #winthisfight #invisibleillness #physiotherapy #medication #supplements #nutrition #cflife #hope #Livetoday #65roses #staystrong #prevention #Genesis #hometreatment
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His name is Victor, he has cystic fibrosis and he needs a double lung transplant so he can breathe again. Please share his story, please go to his gofundme page. HE'S RUNNING OUT OF TIME! Él es Víctor, tiene fibrosis quística y necesita un trasplante doble de pulmón para volver a respirar. Por favor comparte su historia, por favor dona en su página gofundme SU TIEMPO SE ESTÁ ACABANDO! #cysticfibrosis #cysticfibrosisawareness #help #doublelung #doublelungtransplant #survivor #surgery #donation #mexican #inocent #share #instagram #gofundme #life #hos#hospital #vida #ayuda #fibrosisquistica #hospital #donate
8 0
His name is Victor, he has cystic fibrosis and he needs a double lung transplant so he can breathe again. Please share his story, please go to his gofundme page. HE'S RUNNING OUT OF TIME! Él es Víctor, tiene fibrosis quística y necesita un trasplante doble de pulmón para volver a respirar. Por favor comparte su historia, por favor dona en su página gofundme SU TIEMPO SE ESTÁ ACABANDO! #cysticfibrosis #cysticfibrosisawareness #help #doublelung #doublelungtransplant #survivor #surgery #donation #mexican #inocent #share #instagram #gofundme #life #hos#hospital #vida #ayuda #fibrosisquistica #hospital #donate
8 0
I'm so glad I crossed paths with Sarah and also glad she let me photograph her and her new scars, sometimes we complain about things then you meet Sarah and well if you have your health then that's all that matters, but read her story behind this photo as she is much better than me with words. This quote suited this photograph so much #nikon #studiophotography #onelight #strongwoman #sheisthequeen Regrann from @breathingborrowedair - The battlefield I know is Cystic Fibrosis. It's my enemy. It's been trying to destroy me from day 1. 1st it took my lungs, then my kidneys, then my liver, then my ability to have children, when that failed Cancer tried to take me down. Cystic Fibrosis isn't just a lung disease, Cystic Fibrosis attacks all our organs. Slowly making us weaker. Over time I have learnt to rise above the hard times, make the scars my strength. Weakness tears a person down. Health is something we take for granted until the day it's stripped from us. As I stand here with all my scars showing, I know I have won the battle. Cystic Fibrosis will never win. My scars are proof that I faced every battle CF has given me with the courage it needed. I am here. I have won. #CysticFibrosis #LungTransplant #BowelCancer #aHUS #KidneyDisease #LiverDisease #BowelCancerAustralia #OrganDonation #DonateLife #DonateLifeAustalia #CFLife #PersonalHero Photo courtesy of @blueclickphotography - #regrann
43 6
Comment your super power below!
55 5
Looking cool kiddo 😂 #ThrowBack
63 2
My world (2/3 of it) ❤🌍 x @northclaire #haircups #cf #cysticfibrosis #cfwarrior #heartop
9 1
A day in the life of Chester and his meds.....on a good day. •2million units of Colomycin twice a day. •DNase once a day. •Minimum of 25 Creon tablets a day. •Vitamin A & D. •Vitamin E. •1 Lanzaprozol tablet. •Half a tablet of Azithromycin. •15ml of Amoxicillin twice a day. •15ml of Flucloxacillin twice a day. Get some ##tryactin like a man or #quiteactin like a bitch. #nowtellmeyoucantswallowaparacetomol #selflesscommitment #fucf #whatyouhavetodotostayalive #cysticfibrosis #dailymeds #biffchitsareforlosers #plasticbiffchit #mondaymorningmedcentreisrammers #manthefuckup @good2goapparel not scared of anything. @anacanada check out the # hahaha.
19 7
We would like to THANK Swimwear Galore (@swimweargalore) for their generous donation to the Cure Cystic Fibrosis Gala Dinner and for their ongoing support. It is so appreciated. http://www.swimweargalore.com.au/ #cur#cure4cf #cure4cf #cf #cysticfibrosis #geelong #geelongevents
5 1
Double tap ✔️comment below ✔️ . . Taking any chance you can to get the miles in! 😂👊 We all love it @carpy_matt! 🚲🚲🚲 . . ##hei#heinekenrience #loveit #heineken #cycling #cysticfibrosis #cyclinglife #cyclingphotos #selfie #weekend #Amsterdam #legend #
45 3
I never take an ice bath 2 days in a row but Gustavo wanted to try it today so here we go;) It was windy with no fire but when the clouds went away it was a nice sunny day. 100 lbs of ice each and 28 min of breathing takes you to a cool place mentally. It’s better with a fire in the dark but you get to see Goose’s frozen walk😂❄️ He is one of the craziest most talented people I’ve ever known. I’m so glad he came to Mississippi to Work/Play! @gasphoton • • #iceBath #breatheMF #cysticfibrosis #uvLight #gratitude #frozenVenezuelan #gooseMuscle #cederWrong #kindIsCool #training #coldThermogenisis #wimHoff #jackKruse #deepCT
12 5
SILVER SPONSOR We would like to say a huge THANK YOU to Serenity Accommodation Halls Gap Torquay Port Douglas (@serenityaccomm). They have very generously donated 7 nights in their luxurious holiday home in Port Douglas for up to 6 people. This will be a LIVE auction item at the Cure Cystic Fibrosis Gala Dinner 2018. We can't thank Glenn and the team enough for their support.❤️ http://www.serenityholidayaccommodation.com.au/port-douglas/ #cur#cure4cf #cure4cf #cf #cysticfibrosis #geelong #geelongevents
5 2
DONATE TODAY AND HELP US FIND A CURE!!! ❤ https://65k2018.everydayhero.com/au/team-elizabeth #TEAMELIZABETH #findacure #supporteachother #family #familyfirst #65k465roses #21kmwalkathon #chairtyevent #cys#cysticfibrosiseness #cysticfibrosis #donate #jointhecause
13 1
🌹FREE NETBALL CLINICS 🌹 As a passionate ambassador for Cystic Fibrosis @cfccvic we are offering anyone that has CF a free registration in my JC Netball Clinics that are coming up in the April School Holidays. This photo is with my niece Kari who has CF and was taken at the 2017 CF Great Strides 🏃‍♀️ You wouldn't know she has CF, she's a little warrior who has the best attitude towards life and she does not let CF define her. A credit to my brother and sister in law that devote so much to managing Kari's health. 🌹 For more information please contact 📧 clinics@netfitnetball.com.au To book into my clinics please follow the link in my bio 🙋 #cysticfibrosis #cysticfibrosisawareness #cysticfibrosisfighter #cysticfibrosiswarrior #curecf #netball #netballclinics #schoolholidays
549 1
DONATE TODAY AND HELP US FIND A CURE!!! https://65k2018.everydayhero.com/au/team-elizabeth #TEAMELIZABETH #findacure #supporteachother #family #familyfirst #65k465roses #21kmwalkathon #chairtyevent #cys#cysticfibrosiseness #cysticfibrosis #donate #jointhecause
15 0
Sarah, your strength is beyond inspiring and leaves me speechless. Cystic Fibrosis has made you a warrior, and the battles you have endured and won make you invincible. Thank you for sharing your story via @breathingborrowedair and answering my questions and reassuring me that war may rage inside a body, but determination and love is vital for victory. Photography @blueclickphotography #breathingborrowedair #cysticfibrosis #blueclickphotography #cf #cysticfibrosisaustralia #cfawareness #cancersurvivor #strength #queen #battleswon
16 4
DONATE TODAY AND HELP US FIND A CURE!!! https://65k2018.everydayhero.com/au/team-elizabeth #TEAMELIZABETH #findacure #supporteachother #family #familyfirst #65k465roses #21kmwalkathon #chairtyevent #cys#cysticfibrosiseness #cysticfibrosis #donate #jointhecause
14 0
The battlefield I know is Cystic Fibrosis. It's my enemy. It's been trying to destroy me from day 1. 1st it took my lungs, then my kidneys, then my liver, then my ability to have children, when that failed Cancer tried to take me down. Cystic Fibrosis isn't just a lung disease, Cystic Fibrosis attacks all our organs. Slowly making us weaker. Over time I have learnt to rise above the hard times, make the scars my strength. Weakness tears a person down. Health is something we take for granted until the day it's stripped from us. As I stand here with all my scars showing, I know I have won the battle. Cystic Fibrosis will never win. My scars are proof that I faced every battle CF has given me with the courage it needed. I am here. I have won. #CysticFibrosis #LungTransplant #BowelCancer #aHUS #KidneyDisease #LiverDisease #BowelCancerAustralia #OrganDonation #DonateLife #DonateLifeAustalia #CFLife #PersonalHero Photo courtesy of @blueclickphotography
78 6
This little girl is 11 months old today! I can't believe next month she will be a year old. She's a ball of energy! Pulls up on everything, pushes her walker, crawls at lightening speed, babbles to no end, and is such a joy! My heart is so full! #cysticfibrosis #65roses #cfmom #tinybutmighty #Avilamay
22 3
🌟🌟🌟🙌🏽
51 1
UPDATE: We’ve been AWOL for a few months. Today I went into Boston and took some pictures for this account but decided to wait a little while longer to post them (with this one exception). We’ll hopefully be back up and running in a few months. Whitney is recovering rather quickly and was able to eat today for the first time in months. Our family really appreciates your support through this time and we hope to be back soon.
42 3
My last class with @hollywoodredd 😭 Thank you for always believing In me and cheering me on.You are one of my favorite dance teachers and will always be.”All good things must come to a end” 💙 #dan#dance #love #cf #cysticfibrosis #livinlife #my #favorite #dance #teacher #is #leaving
53 2
So many symptoms and side affects come with living with Cystic Fibrosis, and nosebleeds are one of them. Although this particular time was worse because she was mid-treatment and it shook blood EVERYWHERE! Ahh. CF life. #cflife #bloodybaby #itsabloodbathupinhere #nevergetsdull #cysticfibrosis #cysticfibrosissymptoms #shedidntevencare #onetoughcookie #butmostlybecauseshewaswatchingtrolls #distractions #timetocleanup
45 4
Congratulations to our photo contest winners Annabelle, Kamelia, and Misty!!! Check out where their prizes went. To help, get involved, volunteer, and donate click the links below. @cf_foundation @hickorylevelhoundrescue @homelesspetsfoundation . . . #nonprofit #cysticfibrosis #homelessanimals #cystibrosisfoundation #hom#homelesspetsfoundation #hickorylevelhoundrescue #houndrescue #homelesspets #cysticfibrosisawareness #volunteer #findacure #donate #walkforacure #cat#catsofinstagram #dog#dognstagram #rescue #ani#animalsstagram #animals #adoptdontshop #cat #dog #castingalltalentcontest
17 1
Our Tomorrow’s Leaders gathered at STACKED to hear Paul Motenko share his story! Click link in bio or email sflesser@cff.org to become a member of Tomorrow’s Leaders! #youngprofessional #networking #cysticfibrosis #cffoc #findacure #makingadifference
45 3
Another article GC Bullietin.. 📆📰 Too many untold chapters for people who have walked my shoes..think I’m going to write a book 📝🤓 #media #cysticfibrosis #doublelungtransplant #donatelife #publichealth
135 7
A piece of my peace ✌🏻 🌎 #BrixtenJane #cysticfibrosis #cftwins #cfmom
29 0
Thank you everyone for all of your prayers recently. This guy got himself some shiny new lungs this weekend and is recovering well. Your continued prayers are appreciated as he begins his recovery. My uncle is one of the strongest guys I know 💜 #cf #cysticfibrosis #doublelungtransplant #family #colorado #sixtyfiveroses
45 1
Lol I promise all my pics won't be me doing my nebulizer, but anyways hypertonic saline is my best friend ever and always make me cough so much up. I'm finally starting to feel better :) Here's a random CF fact for ya: Only 29% of people with CF ever get their college degree. Go ahead and count me in that 29 percent ;) #cf #cysticfibrosis #cysticfibrosisawareness
59 6
I don’t speak of Cystic Fibrosis that often. Although it’s a topic I’m very familiar with. I used to be a fierce advocate. I spoke at conferences, wrote articles and raised money all for the cause. Then my daughter died from it. And I clammed up. But CF has continued in my family’s daily life. Our day starts and ends with breathing treatments, chest physical therapy and handfuls of medications. And sometimes hospitalizations. Bridger was admitted to Children’s Hospital tonight. He’ll be ok . . . usually medication does the trick. Bridger deals with pain every day. The crazy thing is most people don’t even realize he’s hurting . . . he rarely complains. He’s finds a way to be happy. He works really hard at normalcy. Bridger has a heart of courage. 💕 Sitting here in Bridger’s room reminds me that CF awareness is important. And supporting those who deal with health challenges is also important. #cysticfibrosis
65 8
🌟🚨#GIVEAWAY ALERT🚨🌟 I’ve decided to do my first ever giveaway! 🤗 Up for grabs is a #Vogmask of your choosing from their website. RULES: •LIKE this post , TAG 2 friends in the comments below & FOLLOW my Instagram page **(Shipping only available to the US) •Tag an additional 2 friends for an extra entry per two friends tagged 👯‍♀️👯‍♂️ •Winner will be announced and messaged March 1st! . . . (This giveaway is not sponsored or affiliated in any way with Vogmask) . . . #giveaways #vogmaskusa #vogmask_usa #giveawayusa #giveawaysusa #mask #facemask #cysticfibrosis #cfirl #free #giveawaycontest #tagafriend #giveawaytime #giveaway2018 #chronicillness #chronicillnesslife
31 8
Help! I have made a goal of $200 and I need to meet it! I would love to have to change it! I walk to support my brother Aaron Joseph and the 30,000 Americans living with Cystic Fibrosis. My link is in my bio #CF #cysticfibrosis #cysticfibrosisneedsacure #greatstrides2018 #greatstrideswalk #cysticfibrosisawareness #cysticfibrosissucks
4 0
#kidchef Ellie making a beautiful salad that Bob’s grilled steak will go on for our dinner. Maggie-Faye is filming here for YouTube. Ellie said, “We would have bell peppers, but we went to a store that was expensive, and we have a lot of things we need our money for.” 😂 #outofthemouthsofbabes #eatarainbow #cftravels #cftravelers #cysticfibrosis #faithoverfear #fulltimetravel #fulltimervfamily #fulltimefamilytravel #rvlife
12 0
35 2
Come join my team for the CFF tower climb in February! Visit fightcf.cff.org/towerclimb Team #CFsucks #waitingforacure #cff #cfirl #cfrunner #cfwarrior #cysticfibrosis #cysticfibrosisawareness
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