When RSD is flaring stopping you from being great...for now. Meds, heater and pillows ready 😫#RSD #crps #RSDUNITED #spoonie
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#100#100InvisibleDays #Day7 was rainy! And because I just can't catch a break, Nicole's window started leaking this morning. Nothing awful but a steady leak none the less. The rain stopped eventually and we'll patch the leak tomorrow when it's dry but the pressure that comes with storms really hit me hard. I've had a headache all day and just felt so heavy. A lot happened and emotions were kind of everywhere. I did however, design this gorgeous tattoo for Nicole! I drew the wreath and added the words though those were written by @freyliving still super proud of how it turned out on her! My arm on my sister- crazy! Anyway, we didn't do much today but still thankful for beautiful stormy skies . . . . Image description: image one: a field and a dark cloud sky Image two: the back of Nicole's calves. Her right calf has a black laurel wreath on it with the words "be still" written inside. . . . #eds #ehlersdanlos #ehlersdanlossyndrome #chronicillness #chronicallyill #spoonie #rsd #crps #complexregionalpainsyndrome #reflexsympatheticdystrophy #POTS #POTsie #posturalorthostatictachycardia #tachycardia #pain #disabled #disability #edstype3 #dysautonomia #dysautonomiaawareness #edsawareness #EDSZebra #migraines #chronicfatigue #chronicmigraines #chronicpain #100InvisibleDays #wheelchair #wheelchairuser
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I survived Monday 💋 LLAP🖖🏻 feeling rough - head cold, sore throat, temperature 🤧🤒 my niece was lovely enough to share her cold 🙃😷 #thelittlethings #mondaymotivation #chronicillness #spoonie #spoonielife #strokesurvivor #strokerecovery #strokerehab #braininjury #heartattacksurvivor #cardioishardio #diabetic #b12 #gastritis #raynauds #crps #smallsteps #mindfulness #meditate #selfie #iphone #iphone7plus #instalove #instadaily ❤️
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"You're still alive, your heart is still beating, your eyes are still blinking, your brain is still thinking. You thought you couldn't survive yesterday, but you made it to today, so keep going." - s.b. ••••••••••••••••••••••••••••••••••••••••••••••••• As warriors our lives are often unpredictable. For many of us, we are unsure of what tomorrow will bring or even where we will be in a year! With a long term or chronic illness there is no defined "ending". For many of us, there is no ending at all. And while this may seem like something that will hold you back, I want to argue it is the opposite. Because when the good days are numbered, your perspective changes. The sun seems to shine a bit brighter, jokes seem to be a bit funnier, & no moment symptom free goes unnoticed. You are not simply waiting around for "better days", instead you are pushed to create these days for yourself right now. Remind yourself of the gift of life you have & make the most of every second!! You are alive & tomorrow is a brand new day, you just have to keep fighting!❤ #fightlikeawarrior #spreadhope ••••••••••••••••••••••••••••••••••••••••••••••••• 📷: @maggieclaydon
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Mirror, mirror on the wall, I'll always get up after I fall. And whether I walk or have to crawl, I'll set my goals and achieve them all 💋 took this yesterday whilst visiting my dad and sister ❤️#mirrorselfie #chronicillness #spoonie #strokesurvivor #strokerecovery #strokerehab #braininjury #heartattacksurvivor #cardioishardio #diabetic #b12 #gastritis #raynauds #crps #smallsteps #weekendvibes #mindfulness #meditate #feelinggood #ifeelpretty #stripes #sweaterweather #boots #thelittlethings #selfie #iphone #iphone7plus #instalove #instadaily ❤️
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Totally me!!! Family members too!!! 😘😘😘 #eds #ehlersdanlossyndrome #osteoarthritis #pots and the newly acquired #crps !!! 🤣🤣 if I don't laugh ill cry 😪😪😫😫
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My little coo-coo bird had to #FaceTime me before her bath time & during her breathing treatment. mind you, i can’t understand a darn thing that girl is saying when she’s all muffled during her treatment. && i got a tiny present from my FAMILY, which helped my spirits a lot!! it’s always best when you have a good #SupportTeam. if not, i know i would NOT have made it thru this journey. none of it. #RS #kidsofinstagram #Lup#Lupuss #Chronicpain #CRPS #LupusSux #prayers #LupusLife #getmeoutofhere #LupusWarrior #chronicillness #Lupus #FuckLupus 🙊 #LupusAwareness #YouDontLookSick #Aut#AutoImmuneDisease #ChronicRegionalPainSyndrome #AutoImmune #invisibleillnessawareness #InvisiblePain #GetThatSupport #DelawareHospitals #ChristianaHospital #ToddlerLife #ToddlerMom #chronicpainsucks
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"That’s when he said the words that haunted me for years, “You will never be lovable with a disease like this.” I felt like I couldn’t breathe and the wind had be knocked out of me." Today I wrote about how having a chronic illness can make you fee unlovable. And before anyone goes attacking @jcnolin11 he did not say that to me! Also enjoy this cute flashback photo of us at the beach from high school- look at how long my hair was!! Jared, his dad, and my family all went to the beach- I was on crutches at the time- and he carried me into the water and did some water desensitization with me. This was the first time I had been in the ocean since being diagnosed. You can check out the blog post by clicking the link in my bio if you are on Instagram or by clicking this link here: https://livingthechronicillnesslife.com/2017/10/23/am-i-unlovable/ #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #futuremrs #livingtheceolife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #lifestyle #lifestyleblog #blo#blog/a> #blog #happiness
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We're starting the second chapter of our life in a new city, in a new home and it honestly feels like we've gone back to our 20's, lol well my 20's his 30's, but ya. Fresh new lives and love. Exploring the city together, unpacking together, decorating together, things we've done before but this time without little kids running underfoot it seems different, exciting, fresh and new. Here's to second chapters 😘 ☀️ 🌵 #photo #wisdom #yoga #love #travel #igdaily #buddhist ❤️ #quotes #vegan 💜 #innerpeace 🙏 #instagood #kombucha #journey #juicing #vegetarian #meditate #inspiration #lifelessons #nature #peace #crps #flowers #chronicpain #spoonies #sacredwomen #secondlife #scottsdale #marriage
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We made it to Minnesota! The flights were rough and even with supplemental oxygen I still managed to pass out, but once we got to the hotel I took a nap and I’m feeling a bit better. Tomorrow morning is my first appointment at the Mayo Clinic and I’m so excited yet nervous at the same time, I’ve been waiting for this day for months. I already miss my dogs, but I mean who wouldn’t miss those cute little faces 😍 I’m super exhausted so I’ll probably go to bed quite early. I hope you’re all doing well💕 • • • • #spoonie #chronicillness #chronicpain #chronicfatigue #ehlersdanlossyndrome #eds #pots #dysautonomia #tubie #njtube #crps #fibromyalgia #mayoclinic
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They've decided to discharge me today!! Follow/Add me on Snap, Twitter, and Tumblr @kryoatics . . . . #selfie #sna#snap #snap #addme #followme #addmeonsnapchat #followmeontumblr #followmeontwitter #hospital #hospitalized #crps #rsd #spoonie #chronicpain #chronicpainwarrior #spoonies
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Ooh a tad excited.... we now have magnets for Color the World Orange Day on Nov 6th. Still waiting for our pens and temp tatts to arrive as well as the next shipment of badges .... so am crossing everything that that are here asap so I can get them out and around town. Thanks to the beautiful @rubybluess for the design which is on some of these products. Only 13 more sleeps till the big day!! Lets rock that orange and spread awareness for this crappy condition with no cure... Complex Regional Pain Syndrome or CRPS for short. Who's with me?!? #CRPS #crpswarrior #gimp #spo#spoonie #pai#pain #chr#chronicpain #complexregionalpainsyndrome #crip #rsd#rsd #bedbound #burning #nervepain #spoonie #pain #chronicpain #disabled #causalgia #wearingorangeforkel #orangeribbon #crpsorange #rsd #colortheworldorange #celeb #famous #singer #actor #actress
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Mein Ärzte Marathon für heute erledigt. Ich fühle mich letzter Zeit leider gar nicht gut. Ich fühle mich in Moment körperlich sehr alt, wie verrostet- ja wir werden nicht jünger! Meine Lieben bleibt mir ja alle gesund! 😳 Anyway ... Chilli Milli mit meinem Sammy @its_sammysam und was guck ich heute auf Netflix 🤗 Habt ihr euer Montag überstanden ?! Euch allen schonmal eine Gute Nacht ✨ #fickundfertig #monday #mood #chilling #cuddle #meandmydog #champion #hoodie #hiding #cute #cateyes #eurasian #germany #wiesbaden #frankfurt #mainz #ffm #goodnight #pain #crps #hemophilia #arthritis #stayhealthy #wishingyouallthebest #iwillfindmyway #thinkpositive #goodvibes
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