😬Super nervous about meeting the orthopedic surgeon today, Im meeting a thoracic outlet syndrome specialist, keep me in y’alls prayers and hoping for some answers Artwork by FERNANDO VICENTE @fvicente_illust
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When I first created this group 8 months ago, in March/April I didn't realise how inspiring + uplifting it would be. I had thought for a long time about creating a group for people with similar conditions to me, for friendship, support + as a way of connecting with others who "get it" but I was really nervous + was too afraid to do it. I thought "what's the point?" "What difference can I make?" "Who would want to listen to me?" Then my doctor put me on a self management course called The Expert Patient Programme (I highly recommend, ask your doctor about it) where I met some amazing women. I had also spent a couple of months selling make up for a company who's mission was to uplift + empower women. While I didn't have it in me to continue the job itself, it boosted my confidence in part + inspired in me a passion to do what really mattered to me. Reaching out to others, particularly those struggling with physical or mental health conditions. It also reminded me of the power of social media when used in a positive way. I took the plunge, created the group + invited the women I had met. Since then we have met up in St Paul's cafe Worthing, one Wednesday afternoon a month. We've met new people along the way, some just popping in. I've also made some amazing friendships on the Facebook + Instagram accounts for this group. Instagram in particular has become an amazing source of encouragement as I've made some wonderful friends within the community of chronic illness warriors. I've shared my experiences through my blog - chronicallyweakyetstrong.wordpress.com 😊 We also hosted a Crafternoon to raise money for Mind back in October. We have a private Facebook group where we share articles + funny things! We are also on Meetup.com + I was able to attend the mental health awareness week in Worthing where I was able to spread the word about the group. Aside from meeting up as a group locally, many of us also meet up 1:1. When I created this group, the heart of it was offering friendship + support, either in person, online or by text. I want to thank each + every one of you for your kindness + support this year! 💛🌻💛
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sparkles&coffee make for a good day, right??? I’m absolutely in love with this gorgeous vest I got yesterday from @the_lularoe_stache and feel super festive and Christmasy 🎄 I hope everyone has a lovely hump day!
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Did you know that endometriosis affects as many as 1 in 10 women? The symptoms of endometriosis can include painful periods, painful ovulation, pain during or after sexual intercourse, heavy bleeding, chronic pelvic pain, fatigue, and infertility, and can impact your general physical, mental, and social wellbeing. Our high-quality gynecological care includes assistance with endometriosis. To schedule a consultation, please call (858) 485-0130 or visit our website!
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Check out my latest blog post at janeversuspain.com #chronicpainwarrior #chronicillness #blogger #writer #thattimeofthemonth
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WORK IT OUT, DUDE... Two steps forward, three steps back. Thus is the perpetual dance with physical rehabilitation & recovery when you have a connective tissue disease & its gang of co-morbid homies. Michelangelo & I are back at it in the gym today after a week off following my body’s fun little reaction to the blazing wildfires here in Southern California. I’ve managed to leave the house twice, for about 2hrs each time, in the past week. The rest of that time I’ve been bed bound with full body allergic reactions to the smoke, severe vertigo, nausea & breathing problems (sinuses & lungs). Wow, I really should have a Band-Aid stuck to the middle of my frames, I sound like the Bubble Boy. Wish me luck! Squats are no one’s friend after a week on the bench. Cowabunga. . 💪😣😫🤘🐸⚔️🍕🍕🍕 . . . .
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#NervePain #Nerves #Neu#Neural/a> #Neural #Neuropathy #NeuropathicPain #Tri#TrigeminalNeuralgiaAwareness #TrigeminalNeuralgiaWarrior #Sciatica #SciaticNerve #SciaticNervePain #ImpingedNerve #MedicinalCannabis #MedicinalMarijuana #CannabisOil #CBD #CBDoil #Cannabidiol #Cannabinoids #Hem#Hemp/a> #Hemp #EhlersDanlosSyndrome #Chr#ChronicPainior #InvisibleIllness #EDS #Epilepsy #Epileptic #TrigeminalNeuralgia #ChronicPain #ChronicIllness
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Good morning 👋 // sweet potato - with a dallop of @enjoyyoso unsweetened cultured coconut yogurt, sprouted almond butter, a coconut fat ball, hemp hearts, ground flax and pumpkin seeds 😻 • • • #realfood #cleaneats #eattonourish #goodmoodfood #wellness #iamgoodandwell #intuativeeating #eatbetternotless #nourishyourself #edrecovery #chronicpainwarrior #ptsdrecovery #brainfood#wholefood #foodthatfuels#balance#eatrealfood#glutenfree#feedyoursoul #westcoast #blissfullynourishedliving
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Sometimes, you stumble upon a picture that gives you butterflies and makes you smile immediately. This picture does that for me. My hubby and I. Goofing around after a long day on motorcycle on Pacific Highway 1 ❤😍 We have always loved going on adventures together and in April we embark on the biggest one yet - the arrival of our babygirl and the beginning of our life as parents. She will be so embarrassed 🤣 #goofing #sillyfaces #adventure #parentstobe #dadtobe #momtobe #love #theloveofmylife #mytruenorth #mytwinsoul #myrock #husband #pregnant #preggo #preggolife #gravid #babyinside #babybumpers #chronicpain #chronicpainwarrior #spoonie #spoonielife #terminapril2018 #dueinapril2018 #aprilbumpers2018
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Turmeric is a vary strong spice from the ginger family. It has a loads of uses and benefits one if which is its antioxidant content and ability to work as an anti-inflammatory. It can be taken as a tea in your soup, rice, potatoes and a whole lot. It's ability to deal with chronic pain is remarkable. When next you see this root plant grab some and get cooking or drinking. #tumeric #tumericlatte #tumerictea #tea #health #goldenmilk #veggies #hea#healthyng #healthyfood #healthy #lovefood #instagood #homemade #ginger #healthyeating #healingstream #chronicwellness #chronichealth #chronicpainwarrior
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UK Cheese . A nice example of @bcpainsociety’s top shelf bud, this gram was nicely trimmed, properly cured, and sumptuously smokable, just like cheese should be, all for $8/🇨🇦 gm every day, and you can’t beat that! 🔥👌🏽 . . #acmpr #medicalcannabis #autoimmunediseasewarrior #can#cannabismedicine #potnotpills #mmj #weed #cannabissavedmylife #ukcheese #bcpainsociety #patientsoverprofits #bcbud #high #weedstagram #ganja #mota #cannabis #cannablissed #ganjabros #cloudsovercanada #spoonie #chronicpainwarrior #staylifted
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It is a little after 1am and I haven’t sleep for very long in last two days. I’m sitting here in a hospital bed crying because the nurse won’t give some pain meds and says it is PMR and used if I need them for pain. Some how with them fiddling with my spine Tuesday morning I have alloydina on my lower half the bed sheets on my is sore and I can’t call the nurse as she thinks I’m not in pain and only want to use it because I can. I hate this #opiateepidemic just because some people misuse doesn’t meant everyone does. Don’t I have the human right to be pain free while after having surgery. Chronic Pain is no fun #activeliving #noquitting #fitness #workout #spinalcordstimulator #determination #dailystruggle #pain #chronicpain #chronicpainwarrior #inspire #chronicpainawareness #crps #crpswarrior #painmanagement #squats #crpsawareness #stronger #strongereveryday #neverquit #understandingpain #invisableillness #warrior #warriors #paddleleads #alloydina #hospital #painfree
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💪 💚 WOMEN’S HEALTH POST 💚💪 Stepping Up for AWARENESS. In this video I show you the Mona Lisa Touch laser treatment. Research shows that about 1 in 3 women experience what’s known as a pelvic floor disorder in their lifetime — a term refers to a range of conditions. I’ve heard talk that this percentage is growing, no the fact is women are SPEAKING OPENING about it & the medical community is FINALLY getting it! My mom when spoke about pelvic pain, painful sex, & PMS to her doctors when she was in her 20s into her 30s numerous doctors told her she needed to speak to a therapist. That was until she met Dr. Noel Williams @optimalhealthassociates who acknowledge that pelvic pain was REAL & not some “hysterical woman issue”. About 20 years later I too began suffering from pelvic pain. I was told by a couple doctors that the severe pain was due to constipation, an infection, that nothing was showing up on the exams. I was very well on my way to being told to see a therapist. Thankfully Dr. Williams office got me into to see him (despite his busy schedule -there are days he sees 40+ patients). Turned out my pelvic pain was due to endometriosis, ovarian cysts, twisted ovarian tubes & later to discover I had Interstitial Cystitis, painful bladder syndrome. All this discovered by Dr. Williams. With my IC I’ve had to deal with terrible contracting pain and spasms up & down through my vagina & bladder. Yesterday I spoke about going in for my fourth Mona Lisa Touch treatment. An amazing & innovating treatment using laser technology to regenerate & rejuvenate the vaginal tissue. I knew going in for my fourth treatment that I had to document it & share it despite the fact it’s a very personal treatment. So personal lol but I couldn’t forget all the messages & emails I have received in the past from fellow IC & Pelvic Pain Warriors who wanted to know more about this specific treatment. The video shows 60 secs, the full 3 minute video can found on my blog taylormunholland.com. I once asked Dr. Williams why some doctors still don’t believe in these pelvic pain conditions, like PMS so many still don’t believe it’s real. He simply said “They’re f*%*ing idiots” ✊️#WOMENSHEALTH
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My 'I have therapy - I don't wanna go to the neurologist - It's cold as a bitch - Yay, post office during Christmas season ' face 😏 #moodymama #thisis37 #chronicpainwarrior
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I've started breaking down what I truly need to have a succeasful day, to break through the noise and hone in on my true goals. Step 1: a good cuppa and a glass of purple juice to get the blood flowing!
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A Warrior will cry in her circumstances but wipe her tears away and get back up. She is not a slave to bad news and eventually her life will fullfill✨ #dayofmylife #hospitallife #whatstheoutcome #justgowithit #feelingstrong #teammaiv #chronicpainwarrior #endometriosis
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Disc herniation flare up!! OUCH!! Sadly I've gotten used to pain. Flare ups used to scare the CRAP out of me bc I'd be out of commission for weeks sometimes months. But I've worked hard to become stronger and I will keep going. This flare can SUCK IT! Ill be back to the grind soon... #iwillgetbetter #setbackssuck #chronicpainwarrior #gettingstrongereveryday💪
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Not managed half of this today. #thepainisreal #eds #zebra #chronicpainwarrior #spoonie #onthemedtrainagain 😳❤🖤✌
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Good morning. It's cold and brutal this morning. My boy has to go to a doctors appointment so I have to be alone for some of the day but I got my toy friends to keep me happy. #hardnotlife #gre#greatdaney #greatdane #servicedog #pup#puppyning #eds #chronicpain #chronicpainwarrior #puppy #servicedogintraining #sdit #chronicpainlife #greatdaneofinstagram #gentlegiantsofinstagram #greatdanelove #sponsor
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Had the best time playing with stickers, talking and eating party pies with this girl the other day. She's the best medicine, and it's scary how in sink we are. • • • • #spooniexmas2017 #spoonielife #spoonies #spooniestrong #spooniesisters #chr#chronicillnessa> #chronicillness #chronicillnesswarrior #chronicillnesslife #chronicillnessfighter #chr#chronicpainsucks #chronicpain #chronicpainwarrior #chronicpainsyndrome #chr#chronicfatiguesyndrome #chronicfatigue
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Mavis is dying. I didn't write those words about the main character of Otherworld lightly. They come from my own experience of chronic illness. This week's installment of Otherworld has really hit my family hard, because it's brought back so many memories of when I was just as sick as Mavis is. And the fact that I'm having an emergency procedure on my back today...doesn't help. But all in all, I think the timing couldn't have been better. Mavis' journey in Otherworld is about finding the sweet in the bitter, the joy in the pain. The deep, abiding truths that exist in a child's summer adventure. I certainly needed that reminder today. I'd love for you to read this week's installment (and Otherworld in general) for yourself...there's a link in the bio. 😊
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Struggle is realll! Braving it the last couple of days and doing what my body needs, pain is bad, my head is horrible and lying with a hot waterbottle on my head and my cosy pillow is making it a little bit better! But all the time I'm not doing what I should be- work, showering, housework, Xmas... blah blah blah I feel guilty, always feel like I've failed 😔 #ehl#ehlersdanlosrome #eds #ehlersdanlos #edsawareness #pots #potssyndrome #migraine #migraines #nervepain #painrelief #painkiller #chronicillness #chronicpain #chronicpainwarrior #chronicfatigue #chronicallyill #chronicallyfabulous #spoonie #spoonielife #spo#spoonies #spooniecommunity #spoonies #disability #invisibledisability #invisibleillness #exhausted #fatigue #nausea #helpme #struggleisreal
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Happy B day to this wonderwoman #painwarrior #chronicpainwarrior #Norrbottenslucia2017
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Do something today...that your future self will thank you for! See my story for more! ⬆️⬆️⬆️⬆️⬆️
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