I waited until Thursday night to sign up for the Crossfit Open. I had decided early on that I WOULD NOT participate in the open this year. However, I caved to peer pressure from a few highly inspiring ladies. As I sat in front of my computer filling out registration info I was very vocal about my feelings and could be heard saying things like "why am I doing this?", "This is so dumb! I'm in worse shape than last year!", " I wish I didn't agree to this!" That is when my 16 yr old daughter came around the corner and firmly said "Just do it Mom ... because you can!" Her words SILENCED me!! 3 yrs ago this month she suffered an injury participating competitively in a sport she loved. Since that day, her activity , on a good week, has built up to 15-30 min of walking or swimming or stationary bike. And on a daily basis deals with pain. Because of her intense competitive spirit and incredibly strong body she would LOVE to crush the Open but she can't. So today I completed 18.1 just #bec#becauseican Don't make excuses! Get moving whatever that looks like for you just because you can! #getsomemovement #oshw #chronicpain #complexpainsyndrome #pacing #crossfitopen2018 #crossfitvernon #becauseican #keepmoving #loveyourbody❤️ #fromthemouthofbabes #chiropracticlifestyle #trytoshowupagainnextweek
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“A dog can snap you out of any kind of mood that you’re in, faster than faster than you can think of.” - Jill Abramson #labracollie #labrador #bordercollie #labradorsofinstagram #bordercolliesofinstagram #dog#dognstagram #dog #quotes #truth #dogsoffduty #runrunrun #running #funtimes #hyperactive #somuchenergy #mood #choosehappiness #chooselife #assistancedog #servicedog #intraining #mentalhealth #chronicpain ▪️▫️▪️▫️▪️▫️▪️▫️▪️ Follow our incredible pawtners: @remy.the.curly @life.of.pumpkin @muddymarlo @ca13ss ▪️▫️▪️▫️▪️▫️▪️▫️▪️
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What you see isn't all you get. What is it to be masculine? Macho? Is it never giving in or admitting to pain? Or is it just the opposite? Often we assume stereotypes of gender without even realising, I'm using photography to illustrate the hidden. Male or female, if you would like to be part of this project, please leave me a message. #love #mas#masculinityisfragile #mentalgrowth #understanding #pai#pai#painrelief #pain #warrior #truth #invisibleillnessawareness #hiddenillness #photooftheday #model #hiddenillnesses #art #masculinity #chronicpain #malemodel #chronicillness #inspire #hiddenillnessawareness #men#mentalhealthrecovery #exercise #painrelief #tattoo #mentalhealth #health #tattooart #mentalhealthawareness #tattooed #backpain
10 1
🖤 My Naughty 🖤 finding balance in a body of uncertainty + unpredictability can be really damn hard. If I’ve learnt anything over the past 4 years it’s that eating + having dietary requirements doesn’t have to be boring. This delicious [vegan] dream is a Pulled Jackfruit burger 🍔 from @dogmacronulla a local eatery in my area and safe to say they NAILED IT! ✘ ♥ ✘ #mynaughtynourishing #invisibleillness #autoimmunedisease #chronicpain #fatiguefighter
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Sens émotions inversés, le clair-obscure n est qu'une infime partie de qui tu es. Tu n'obtiendrz jamais de toi-même ce que tu veux être car la répondre est juste de laisser aller et d'ouvrir les portes de ton toi réel. Pas de faux semblants, pas d imitation. #luna #luz #oscura #espiritual #spiritual #réflexion #fitfam #fitness #yog#yoga #con#concentration #nature #lovemom #hea#healthy #sport #concentration #flexibility #stretching #workout #motivation #fibromyalgie #chronicpain #strongheart #nevercry #gaia #frenchgirl #japanese #latinagirl #inkgirl #mymind ##muscu #healthy #yoga #yogapose
11 1
The celebration of 100 posts. I drew this last night when I couldn't sleep because of my chronic pain. #100 #pain #digitalart #drawing #2018 #chronicillness #chronicpain #invisibledisability
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This says "extraordinary" but I think it's actually ordinary if you get to know the person with the chronic pain or chronic illness. You just learn and know this about them. . . #chronicillness #chronicpain #chronicwarrior #autoimmunedisease #badasspainwarriors #migraines #fibromyalgia #inflamatorydisease #lupus #themighty
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#chronicpain adjustable bracelet with stainless steel hardware and #love #faith #hope Charm. This #bracelet offers a holistic approach to #painrelief . Genuine gemstones including #kyanite #malachite #blacktourmaline and #hematite . #metaphysical #reiki #crystalhealing #spiritualdiva SpiritualDivaJewelry.com
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Those feels 😴 2 hour car trip took it out of me today. After half an hour appointment and 2 hours home. I'm dead. #psoriasis #psoriaticarthritis #psoriasiswarrior #tired #cartrip #roadtrip #lupus #lupusawareness #autoimmune #autoimmunedisease #chronicillness #chronicpain #dead
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We bumped into Joshua in Adelaide where we've arrived for meetings tomorrow at Salt Church. Joshua & his brother, Daniel, were healed last year at our meetings in Minlaton. Joshua suffered nerve pain & tightness down his arms & wrists for 2 years but was set free by Jesus as he sat in his seat and John prayed over the congregation. Daniel was set free from years of bladder pain, inflammation and a constant need to go to the toilet. Excitingly, Joshua shared that since receiving their miracles he and Daniel have been praying for the sick and are regularly seeing others healed. We are often asked if we train and disciple people, and we do at our teaching seminars and as we are prompted by the Holy Spirit and we constantly encourage believers in our healing meetings that God can use them to pray for the sick. However, we've found that the most effective disciples are people like Joshua whose faith is sparked in the meetings by witnessing or experiencing their own miracle and then they simply have a passion & boldness to want to pray for others as they go. The Holy Spirit and experience in praying for people then develop & strengthen the gift. The clips of Joshua's testimony plus his and Daniel's healings from last year are on our YouTube channel. #nervepain #bladderpain #pressureonbladder #chronicpain #chronicillness #healing #miracles #prayer #jesus #whatsonadelaide #johnmellor #johnmellorministries #saltchurchgawler
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Whatever it is you're facing right now. Please hang in there! I'm here cheering for you! You are not alone! 🌞💛😊🌻#endometriosis #endometriosisawerness #endowarriors #endosisters #endosucks #endostrong #fightendo #fightlikeagirl #chronicpain #invisibleillness #endomomma
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And there was glorious, magical (that's questionable) birthday cake! . . . Can we all please take a moment to appreciate how hilariously crap the frosting turned out for my three layer cake? Go on, have a laugh. I am! 😂 . . . So it wasn't the oven I needed to worry about, it was the damn frosting! Dammit. I don't understand what went wrong; I followed the recipe instructions to a tee. . . . I really tried to rectify my frosting issue- I tried cooling the cake and frosting in the fridge. I used a wet spatula to apply the frosting. I tried cursing. I tried begging. But it just wouldn't stick properly, so I couldn't apply it seamlessly, as you can see. . . . WHAT KIND OF A STUPID ARSE FROSTING RECIPE IS THIS? I thought. Yes, I'm blaming the recipe because it's not at all due to the possibility that I'm a novice who has never made a three layer cake before. Because I am perfect. I nail everything the first time. I am the victim here. . . . Exhausted and fed up, I ended up throwing sprinkles on it (when in doubt add sprinkles) and called it a day. Look, you can even see my frustration! . . . While I'm a little disappointed that this cake didn't look as amazing as I hoped it would, I'm also freaking proud of it. To bake and assemble a challenging cake like this while contending with brain fog, fatigue and pain is a MASSIVE achievement. 🙌 Yes it's not perfect, but it's still a cake, and a damn scrumptious one at that, apparently. . . . My sister shared and enjoyed it with her co-workers on her birthday. I didn't even get to have a piece; all I got back was a plate scattered with remnants of my frustrated sprinkle throwing. . . . I'm so happy it turned out okay in the end. I guess I will always prefer to produce a delicious cake that isn't perfectly decorated over one that looks stunning but tastes subpar. #canbakecantfrost . . . And now I will sleep for 3 years. See ya. . . . #cake #birthdaycake #novice #layercake #vanillacake #buttercream #frostingfail #sprinkles #baked #baking #homemade #ibaked #cakestagram #cakeaddict #chronicpain #chronicillness #fibromyalgia #chronicfatiguesyndrome #endometriosis #achievement #chroniclife #chronicallycreative
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#OnTheBlog: Reflections on faith through chronic illness. How do I reconcile a loving God with having chronic illness? What have I learned after being housebound for 18 months? --------------------------------------------------- 💜 Char | http://chronicallyhopeful.com/reflections-faith-chronic-fatigue-syndrome/ #ChronicallyHopeful #Christian #Faith #Scripture #Encouragement #PraiseGod #SheReadsTruth #ChronicIllness #MEcfs #Spoonie #ChronicPain #ChronicFatigue #FaithBlogger #UKblogger #ChronicIllnessBlogger
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⚠️ warning I am having a little pity party tonight⚠️Got all ready felt pretty good (only had to take Tylenol so far today) went to a concert with a friend! By the second song my flareup was so bad I spent the entire show getting sick and crying in a bathroom in pain. I am soooo over missing out on life and pray my surgery helps me be “normal” for a bit of time #endopain #endometriosis #pai#pains #pain #chronicpain #chronicillness #grumpy #overthis #endosisters #end#endoflarecare #fuckendo #endostrong #obgyn #endometriosisawareness #ttc #ttcrainbow #itfuckinghurts #flareup #endoflare #frustrated #missingoutonlife
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2.24.18 Meant to post this yesterday (Friday) Got a call finally from my Rheumatologist. Apparently my inflammation markers are still elevated, but not enough to lead them in any sort of direction as to a specific disease or condition. Everything else was A-OK! So the possible Lupus titer scare? Apparently non-existent!! For now, thank goodness. Thank you guys for any prayers, reaching out, and love. I still of course must continue battling Fibro, but I can handle that for now. I’m very grateful for the results-just hope they are accurate. #fibro#fibrowarrior#fibromyalgia#newlydiagnosed#nolupus#imflammation#nothingelsegoingon#thatweknowof#thanksforthelove#chronicpain#lumbarpain#severepain#consumedbypain
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Lupus means sometimes having to wear old lady gloves. Yes, I’m 23, but my arthritis limits my typing. As I apply to jobs I deeply rely on these gloves. If you have arthritic hand pain, I highly Recommend these gloves! #lupus #lupie #chronicpain #arthritis #survivor
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Some days being a mom is all that matters. I realize that all the tantrums, teenaged arguments, battles of will are all worth it because no one will ever fight as hard for these people than I will. I’ve been gifted with being a nanny, a coach, an aunt, a sister, a wife, a mother and step-mother and what I’ve learned is to love harder because the more I give the more I get back in these moments. It is often a struggle with two teenaged boys in the house. These boys resist mothering because they must distance themselves from me to grow but I will always be there. ✨💫✨My little miracle is still a joy who adores me like the sun rises and sets with me. I hold onto her glow on the dark days. ✨ ✨ #motherhood #mommoments #mykids #lawofattraction #imblessed #positivity #miracles #powerofnow #nofilter #realwomen ✨ ✨ ✨ ✨ #selflove #naturalbeauty #makeadifference #california #californialiving #californiagirl #disabledandproud #disabledandcute #zebrawarrior #edswarrior #ehlersdanlossyndrome #pots #gastroparesis #chronicillness #chronicpain #chroniclyawesome #elastigirl #bendygirl #bendysarah #BendySarahMarie
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2.24.18 My asthma is killing me! I was sick back in January with a Viral Upper Respiratory Infection and the cough lingered for the next 4 weeks. I’m finally pretty much back to my “normal”, but ever since, my asthma has been kicked into high gear. I get out of breath walking from my chair to the bathroom, standing for a min to get a drink, anything at all. And it feels like I HAVE to sit down. Normally my asthma won’t flare at all and I just keep a rescue inhaler on hand with a chamber (bc I am shitty at inhaling at the right moment and I’m sure some of you are laughing at me right now lol) I am so grateful that I don’t know what it’s like anymore to be on a maintenance inhaler, but I think my time has come yet again. It’s been years. I think the only one I’ve been on is Advair. I hate taking anything bc it makes my already tachycardia ridden heart go even faster, but I also like to breathe! My dr isn’t one to call in something unless I’ve been on it under his care before. I can’t afford the $40 to go see him and then go buy it. I hate being broke. #asthmaflareup#asthma#asthmasucks#viralupperrespiratoryinfection#sick#beingsicksucks#needtobreathe#feellikeimclimbingamountain#photofy#fibro#fibrowarrior#todaysbeenabadday#fibromyalgia#newlydiagnosed#chronicpain#lumbarpain#degenerativediscdisease#DDD
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Grilled chicken and rice. Made by my lovely boyfriend. Heart healthy food. Wish I could’ve finished it all #lupie #lupus #chronicpain #hearthealth #foodie
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Having pain? Try an acupressure mat. They aren’t a cure but they are a remedy. #lupie #lupus #pain #painsomnia #accupressure #chronicpain #zensufu #homeremedy
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There’s a siren in my tub🧜‍♀️ My skin has been quite literally itching to finish my sea legs 🌊 #tattoo #tattoos #imamermaid #mermaidlife #migraine #chronicpain #lushbathbomb #mermaidwater #mer#mermaidscales #mermaidtattoo #mermaids #teal #insomnia #insomniac #tattooaddict #nopainnogain #migraineproblems #relax #breathe
11 1
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I finally have a new mattress!!🖤💕🙌🏻 My old one was trying to kill me...🔪🔪🔪...if you have chronic pain, my advice to you is simple...a good mattress is literally the best investment you can make! 💰💖 Also, I can’t wait to mess with my twinkly lights💡🤓...I’m thinking clothespins and polaroid photos! 🤷🏻‍♀️😋 #chronicpain #backpain #newmattress #beautyrest #blankets #twinklylights #polaroids #candlelight #advice #spoonie #nervepain #spoonielife #chronicillness #chronicfatigue #chronicillnesswarrior #invisibleillness #interstitialcystitis #ibs #chronicsinusitis #invisibleillnessesarereal #lights #stringlights #newbed #spooniecommunity #bedlife #bedspread #candles #pillowparty #quittingtime
7 0
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15 1
This is what we like to call a celiac rash. Finally visited my doctor and sure enough that is the verdict. #spo#spoonie #spooniecommunity #spoonie #celiac #celiaclife #celiacdisease #glutenfree #selfie #glutenfreegirl #autoimmunedisease #chronicillness #chr#chronicpainreality #chronicpain #reality #reallife #nofilter #rash #thisisme #illness #celiacrash #fulllips
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It’s just easier to say I’m ok....
6 1
This darn #Diverticulitis will not let up. Met with a new gastroenterologist today who seems determined to get to the root of the problem. She switched my antibiotics, since the first round didn’t seem to be working. But I have been in terrible pain since the abdominal exam. I hope the new antibiotics aren’t making things worse. #Endometriosis #EndometriosisSister #EndometriosisWarrior #EndometriosisAwareness #EndometriosisSurvivor #EndometriosisSupport #EndoSister #EndoAwareness #EndoWarrior #Chr#ChronicPain #Lupus #LupusSupport #LupusWarrior #LupusNephritis #Arthritis #LupusPain #LupusAwareness #ArthritisSupport #ArthritisAwareness #ArthritisWarrior #DiverticulitisSucks #Chr#ChronicIllnessAwareness #ChronicPain #ChronicIllness #ChronicPainAwareness #Inv#InvisibleIllnessAwareness #ChronicFatigue #InvisibleIllness #MomInChronicPain
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Sometimes, weather is like a Bond villain. Tomorrow: kicking my ass today. #disability #chronicpain #chronicillness
1 1
I tend to overthink at night. I'm okay during the day which I was after my 2 appts I had until the evening hits, laying alone, and suddenly everything comes at me all at once. Yes I'm okay but yes I am just tired. Feeling bummed as I think about the conversation with my PCP in regards to the #ehlersdanlos & how my joints are slipping more as I get older. Causing more pain. And now talking about getting braces for the body parts that are needed to help decrease pain hopefully and reduce an injury. I'm hopeful the place she found can help with that. Then with my back as the next surgery Dr. Agrawal would do if something drastic changes and worsens would be a fusion. It's hard accepting that your body is basically fighting against you but I'm blessed and thankful my doc understands. Today she did encourage me to use my #sma#smartcrutcha> #smartcrutch more in town or even around the house on my bad days BUT I'm just stubborn. But I should be thankful I'm not at the point needing a wheelchair or anything like some end up being in. Only part that sucks is not getting to do much my age group gets to do; like joining the gym and going with someone. I'm trying to be as "normal" as someone my age can be especially now as I'm dating. He knows a little bit but of course it's a lot to take in but so far he hasn't ran off yet; thankfully as there's a lot about him I'm thankful for. After several bad relationships I now know what a good one is that's slow, kind, sweet, and such. Anyway, tonight I may be overthinking like usual but I'm thankful that tomorrow starts as a new day and I'll feel better mentally. #ehlersdanlossyndrome #chronicpain #chronicillness #chronicfatigue #hypermobility #hypermobilitysyndrome #hypermobilityspectrumdisorders #hEDS #gooddays #baddays #imokay #justtired #tomorrowisanewday #realization #reality #iwillbeokay #onedayatatime
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See what this DPT has to say about PRT. Thank you for your feedback Gemma! #aptacsm #csm
9 1
Joint mobility, flexibility supplement.
17 1
I can't be the only one that needs to hear this💜💜💜💜 ☆ I will get to my messages soon. I'm so sorry. This flare has been kicking my ass, i fixed my fence a few days ago and still havent recovered and had to take my dog to the vet today cause he got into something he shouldnt have and i've felt guilty ever since. I'm in so much pain and fatigued. I can't wait for some new cbd products to come in the mail.
9 1
In the depth of winter, I finally learned that within me there lay an invincible summer. - Albert Camus
11 1
Needed this reminder... note to self... "u actually are chronically ill. If you ever forget, the lesson learnt will be a very hard one". #fib#fibrowarrior> no one else will know your limits so be true to yourself and learn that healthy people will NEVER truly understand. So let them know when you can't and don't apologize for it. It's not your fault that you can't, but it will be if you push too far and end up in a severe flare that NO ONE can pull you out of. Lot's said... but I had to. ...... #repost @fibro_warriors .... #fibromyalgia #fibrowarrior #chronicpain #chronicfatigue #chronicillness #invisibleillness #selfawareness #selfcare #loveyourself #takecareofyourself #patience #understanding #superwoman #notsuperwoman
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Fresh lure in my arm waiting for my lumbar puncture. I’ve had s terrible experience with one before so the whole needs in the spine isn’t something I’m feeling good about. A feeling that was only reinforced by the fact it took 5 attempts and 3 nurses to get the line in in the first place 🤣🤢🤕💉 I’ve been stuck in this hospital bed for a week now, sometimes doing okay, sometimes just hanging in there with the severe pain and fear of what’s going on. Yesterday I had a flareup so bad I screamed at the sight of the unexpected blood, and gave new meaning to the term “writhing and sobbing in pain.” This morning I was laughing with my aunts over Snapchat filters. This evening I’m so sore again I can feel it radiating from my cervix down into my right leg and foot - which is interesting because they’ve been completely numb for 3 days now. Not sure if we can call that progress. I’d rather refer to be able to walk, rather than just feel transferred pain 🤦🏼‍♀️ I am so fucking over this and don’t have an immediate end in sight. But if there’s ever a time to face up to your shit and try and work through it, a week or two trapped in a bed with basically just your own mind and a load of physical pain for companionship is the time to do it. @babaramdass : I would like my life to be a statement of love and compassion--and where it isn't, that's where my work lies. *that includes towards myself too. But doesn’t include allowing myself to be mistreated. Balance and unlimited love is always a work in progress.
7 2
After four years of pain and leg numbness unable to walk run and have a normal life I have been given the opportunity to live happily again . Tarlov disease is one of the rarest diseases in the world and only 1% of people have them. I am part of that 1% and even thought it’s been a journey of pain and suffering I’m finally happy that my pain will go away Tarlov cysts (hereafter referred to as TCs) are also known as perineural/perineurial, or sacral nerve root cysts. They are dilations of the nerve root sheaths and are abnormal sacs filled with cerebrospinal fluid (hereafter referred to as CSF) that can cause a progressively painful radiculopathy (nerve pain). I’m not sharing this for attention or any other reason but to raise awareness that these cyst DO EXIST DO CAUSE PAIN! For those people that doubted my pain and made me feel as if my condition was nothing I want to prove to them that thanks to that i grew as a person and was determined to not give up. After three neurosurgeons and many test it was determined that a 2 inch cyst was the cause of my suffering. Due to the fact that this is such a rare disease many doctors don’t know what it is and patients are left untreated. With my experience I would like to raise awareness that there is always a possibility and that you should NEVER let anyone not even a doctor make you feel as if you were lying about pain special thanks to my Neurosurgeon Dr. Delacey for this great experience and for being the one person that believed me and found a solution for this devastating disease. #tar#tarlovcystase #neu#neuronce #neurosurgery #tarlovcyst #radiology #medicine #neuro #chronicillness #chronicpain
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