For Day 5️⃣ of #SpoonieYogaTribe we have Viparita Karani, Legs Up the Wall Pose! 💖🥄 I am using my handy yoga strap from @bae@baekiiara to bind the legs together. This takes some stress off of the hips in this pose so it’s even more restorative and effortless. Be sure to check in with my cohosts for their variations! . 🔸 QOTD: WHAT ADVICE WOULD YOU GIVE TO SOMEONE WHO JUST FOUND OUT THEY’RE A SPOONIE? 🔸 Gosh, there’s so much I would want to say! 1️⃣ Never let anyone convince you that this is your fault. There may be people who don’t believe you (including doctors) but you must always believe in yourself. Be your own advocate. 2️⃣ Learn to say no and set healthy boundaries. Don’t be afraid to cut toxic and abusive people out of your life, even if they are your relatives. Stress from this kind of toxicity will only exacerbate your chronic illness symptoms. It’s not worth it. There are people out there who will love you and care for you the way you deserve. 3️⃣ Never forget that you are a divine being. You are not your pain. You are not your illness. You are not your body. You are infinite. And you are worthy of an abundant life.🔸 . . Our Spoonie Hosts: 🥄 @sle@sleepysantosha 🥄 @theycallmegumby 🥄 @life.with.kimberli 🥄 @weall_floaton Our Generous Sponsors: 🎁 @matcha.now 🎁 @shideawords 🎁 @positivecreationss 🎁 @baekiiara 🎁 @sleepysantosha
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Not a cure but it helps ❤️ Jen x --------------------------------------------------- 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio. ---------------------------------------------------- #TheUnchargeables #Spoonie #unchargeables #chronicillness #Spoonies #SpoonieLife #ChronicPain #ChronicFatigue #disability #chronicpainwarrior #InvisibleIllness #autoimmune #supportgroup #lowonenergy #lowbattery #StrongerThanYouThink #chronicillnesswarrior #autoimmunedisease #fibromyalgia #raredisease #pcos #endometriosis #migraine #butyoudontlooksick
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I think this picture just about sums today up! My grumpy old man (lupus, APS, fibro, one of them) is hovering in the background being a little narky kill joy trying to get back in and spoil my fun again. And I'm throwing every bit of good nutrition, supplements, nice baths, rest, meditation, stretching, few yoga bits I can manage at it. Muesli was A - may the way. It basically had everything good in it. Syns don't count today. I just need goodness to prevent going backwards into that flare. So its got granola, mixed nuts and seeds, rolled oats with acacia honey, a few bran flakes, chia seeds, goji berries, then on top blueberries, banana pomegranate and some full fat Greek yoghurt. It's got coconut rice milk too. Probably my days calories but it's goodness so I don't mind for today. #notsoslimmingworld #healthy #eatforenergy #eatbetter #eatforhealth #brunch #lazysunday #stupidlupus #autoimmunewarrior #autoimmunedisease #chronicpain #chronicillnesswarrior #chronicpainfriends #lupusawarenessmonth #thespoontheory #butyoudontlooksick #flareday #fibromyalgia #hughessyndrome
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What does my feeding tube button look like? I've gotten this question a bunch so I thought I would share! Don't mind all the laparoscopy scars, tape residue, left over iodine from surgery and skin irritation lol the first picture is when I'm hooked up to feeds and the second is unhooked. I'm currently on 24hr feeds but my weight is continuing to improve so hopefully soon I can go on 12hr!
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It's been +4 days since IVIG. The side effects haven't been pleasant by any means but they seem to slowly be improving. Though some of the side effects are on the sever side according to the pharmacist I do think I got lucky because honestly, they could've been much much worse. I seem to be recovering a bit slower than expected but as long as we're making progress and improvements that's all the matters. The most bothersome issues have definitely been the muscle pain and fatigue (feels like I had a workout from hell), the pain and stiffness in my neck, shoulders and he dreaded headache plus eye pain/light sensitivity. Glad to say my nausea and abdominal cramping is improving but at times is still a pain and finally the numbness in my arms and hands has improved! . . Thank you to everyone for the well wishes and tips on how to combat and lessen the effects of the IVIG. . . I'm ready to take on IVIG 💉💪🏻 I am #zeb#zebrastrong __________________________________________________ #IVIG #thankyoudonors #plasmasaveslives #PI #advocate #awareness #immunodeficiency #primaryimmunedeficiency #cvid #panglobulinemia #mastcell #mastcelldisease #anaphylaxis #asthma #POTS #dysautonomia #allergictolife #migraine #zebra #spoonie #chronicillness #chronicillnesswarrior #EDS #hypermobile #invisibleillness #disability
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@gracewithendo requested to see my scars from last year's #ExcisionSurgery I don't have any pics of how they currently look, but now they basically look the same as the other scars from the #Laparoscopy the year before, and the one before that! I didn't take any pictures of them without the bandages, I'm not sure why. I was super out of it for awhile after this surgery. Thanks #PainPills I sure wish I could've had a #BowelResection to remove the #Endometriosis from that area then too😩😩😩 2 weeks and 1 day until my next surgery!! 🤞🤞the 4th ones a charm and helps ease the pain. It won't be my final surgery though. This is just to hold me over until I'm able to see an #ExcisionSpecialist The bloating and discomfort after surgery is probably my least favorite part about it all 😣😣😣 Every.Single.Time. #ChronicIllness #StageFourEndo #EndoWarrior #EndoSister #PMDD #Adenomyosis #ChronicPain #Fibromyalgia #CFSME #SecondaryInfertility #TTC #TTCjourney #TTCcommunity #InvisibleIllness #ChronicIllnessWarrior #PainStricken #Painsomnia
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They Said What You Wanted Was Foolish, Impossible, or Selfish // So you believed you were not to be trusted. And because you believed, you found yourself in someone else’s hell. // But what if you knew The Law? For it is written in the unwritten Bible: What you crave exists. Longing is how you know what the world has to offer. // What you truly want is not your shame but your prayer. // What you truly want shows you the way out. // God is of the body, so trust your holy flesh. // [An except from my upcoming book (expected mid-2018), which I'm writing to help women trust their bodies in a culture that puts us at war with our bodies.]
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I love when I look up! The light filtering through the layers of tall trees. Wonder if I’ll get a shot of full fall color before the leaves drop. 🍁🍂 #fall #autumn #trees #freshair #gooutside #lookup #chr#chronicillnessior #chronicpain #chronicillness #acromegaly #acromegalylife #filteringlight #sunshine
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Somer is coming in Australia and we are loving spending time at the beach! Been having a continued rough time since my procedure and will have to make another call to the hospital to see how we can manage things better. #chronicillness #pots #fibro #fibromyalgia #lyme #lymedisease #summertime #beachday #doggiedayout #southbeach #fremantle #chronicillnesswarrior #beagle #assistancedog #servicedog #medicalalertdog #servicedogshavefuntoo #specialgirl #puppymoo
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Triceratops
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