3 0
Had some pulmonary function tests done today and the nurse goes "there are people much much older with the same problems.....thanks? So waiting on results. But for now, it might explain why I'm so out of breath just trying to vacuum.
4 1
Gotta wear this pesky heart event monitor to check for arrhythmias. PCP called to make sure I was okay since it recorded a heart rate of 178 just when I stood up! Got referred to an EP specialist to see if they can provoke an arrhythmia and see why my heart rate is so high. My guess is it’s just POTS, but we’ll see! #pots #posturalorthostatictachycardiasyndrome #chronicillness #chronicillnesswarrior
19 2
The choices you make will either empower you or disempower you. Choose wisely #choosehappy
14 1
I have a lot of new followers so I thought I would do a few 'get to know Zoë' posts. This one is a medical one, the next will be non medical and the third is undecided but I will do 3! . . 10 medical facts about me that you might not know from my posts: 1. I have hearing aids and can lip read. I also speak rudimentary BSL. 2. I have only been in an ambulance once despite my medical history, because my mum always drove me. 3. I have dislocated every joint from both hips to my pinky toe on both legs, at least once. Weirdly proud of that... 4. I have achieved my Bronze, Silver and Gold DofE expeditions. Although I have not yet completed all of my Gold Duke of Edinburgh award sections. I did bronze with sticks. Silver in a manual chair and gold in a manual mountain trike wheelchair. @mountaintrike 5. I was born 9-10 weeks premature. 6. I have heterochromia, meaning my right eye is half green and half blue. My left eye is blue/grey but a different blue to the other half. 7. I score a full 9 on the Beighton scale for Hypermobility. 8. I have deformity in my skeleton especially my legs so I walk like a penguin if I don't concentrate on holding them straight or wear braces. 9. I have 30+ splints and braces and will soon get more. Most are for my hands and legs. 10. I have a wheel chair called the 'blue chariot of doom' (thank you @j_mrtr for naming him in year 11) and it survived Silver DofE in the Lake District. Also it was very good as a battering ram when I was in it 24/7 to get through crowds when I was in high school. I had no shame I would just belt down the corridors and if they were in my way to class they got mowed down. Otherwise I never got through because I went to high school with some real *gems* some of who would block just to be a pain in the butt on purpose. (Image from @acutehearingsolutions.) #spoonie #bluechariot #wheelchair #10factsaboutme #highschool #hearingloss #BSL #lipreading #chronicillnesswarrior #chronicpain #genetics #HEDS #EDSIII #chronicregionalpaindisorder #ehlersdanlossyndrome #hypermobilitysyndrome #NEAD #nervedysfunction #disassociativenonepilepticattackdisorder #nonepilepticattackdisorder #seizures #positive #zoestribe
6 0
Noodle soup is the best with these black rice soba noodles from @kingsobanoodleculture. Why, you ask? Because they don’t stick and clump together like the 100% buckwheat kind which creates a legit ball-o-noodle. 🥣 With any of the GF noodles, make sure to only cook them for 5-8 minutes so they don’t get too sticky. [I didn’t have enough of the black rice kind so I mixed with buckwheat. Scroll for more.] #NoodleSoup
1 1
When I came out of the hospital, I thougt I would get some answers, or at least start looking for the problem. I came out crying my life. My doctor says its all in my head, that I need to see a psychiatrist for this. It broke my heart😭😭 #chronicallyfabulous #chronicallyill #chronicpain #invisibleillness #autoimmunedisease #butyoudontlooksick #spoonie #spoonies #spoonielife #chronicillness #chronicillnesswarrior #raredisease #zebrastrong #undiagnosed #pain #sick #tired #fatigue #spooniestrong #sad
6 0
THIS!!!🙌🏻🙌🏻🙌🏻😂 Hi friends! 👋🏻 Brain fog is such a real struggle. I literally had this instance happen with one of my friends not too long ago. And yesterday I was trying to describe the fuse box in the basement and I said, "the thing with the switches and the electricity that's in the cat litter box room. You know to make sure the switches all face the right way. *silence* the electric box in the cat litter room!" I thought that was pretty descriptive 😂😂😂 Spoonie memes and general medical jokes can really perk me up when my symptoms are being wonky. Like on days where the temperature is either super high and humid if super low and freezing, like today where it's like an ice box out. ⛄️ What are some funny brain fog stories you've got? 🌫🤦🏻‍♀️ . . . . . . . . . . . . . #multiplesclerosis #mswarrior #msawareness #spooniememes #spooniehumor #chronicillness #undifferentiatedconnectivetissuedisease #uctd #chronicillnesswarrior #invisibleillness #spoonielife #medicalhumor #brainfog #brainfogproblems #waitwhat #whatshappening #instagood #autoimmunedisease #spreadawarness #happythursdayeveryone
12 0
Today has been a horrible pots and lupus day. We’ve had a lot of fun playing and watching tv. But akela also has a job and even when we’re having fun she comes to the rescue. DPT is necessary when my pots acts up. It helps to get the blood circulating and moving again. #sdit #potsie #lupussucks #chronicillnesswarrior #posturalorthostatictachycardiasyndrome
8 2
So I drew the #patience card again ! That doesn't happen to me very often with getting the same card the next day I shuffled the Daylights out of the cards too! SO obviously there's a #lessontobelearned here. I always used to think that it meant that I wasn't a patient person or that I was impatient and I guess to a certain extent that's true but now it's funny cuz as soon as I drew the card again the thought that immediately popped into my head was - Well, Rome wasn't built in a day! When it got going between the Republic and the Empire it lasted for 2000 years SO... Rome isn't a bad thing to be.👍 #todaysangelcard #myangelcard #angelcards #lorioutloud  #dailyritual #mylife #chronicillness #chronicpain #fatigue #hemochromatosis #ms #myjourney  #sickandtiredofbeingsickandtired  #changingmylife #workingonwellness #walkingaroundtheworld #nothingwillstopme #mostprolificwalker #acheivingmygoalsonedayatatime #willpowerismyname #doingmybest #chronicillnesswarrior #spoonie
10 1
So honored to be able to share my journey on @companionibd. I highly, highly recommend everyone to go check out the amazing platform that they have built to raise awareness for Inflammatory Bowel Disease and share the incredible stories of those who live with it. I am so inspired just reading the amazing stories of strength and bravery 💜
112 3
I missed 13 so this is 13 and 14~ 13: a few of my friends and sometimes my mom 14: I fight for representation, against my health and body, and for other people with chronic illnesses, mental illness, and disabilities #chronicillness #chronicpain #fatigue #chronicillnesswarrior
7 0
Chicken and mayo on Keto toast. Includes finely sliced onion, lots of pink salt, olive oil and fresh parsley. Nom! --------------------------------------------------- 🍗 Have you visited Nemo's Kitchen on my blog? Chronicallyhopeful.com --------------------------------------------------- #NemosKitchen #KetoforMECFS #Ketogenic #EatToHeal #LCHF #fooddiary #GlutenFree #SugarFree #GrainFree #keto #antiinflammatory #FatForFuel #LowHistamine #antihistamine #mecfs #pwme #disability #RoadToRecovery #Spoonie #chronicillness #SpoonieLife #ChronicPain #ChronicFatigue #chronicillnesswarrior
25 0
My dad has been cool too. He's having trouble understanding and accepting it all, but with time I think he'll be a huge support too. Special shoutout to my boyfriend's family for their help, despite not knowing me personally they've been amazing in helping me find resources and giving me hope. Thank you 💙💙 . .  #mys#mysteryess #mysterydiagnosis #chr#chronicess #chronicpain #chronic #fatigue #mystery #staypositive #chronicillnesswarrior #warrior #community #disability #spoonie #spooniestrong #invisibleillness #spreadawareness #justaspoonful #spooniechristmaschallenge #christmas #grateful #family #friends #boyfriend #support
9 0
"Winners win not because they don't fail; they win because they don't quit when they do." ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ This morning's workout had me needing to catch a breath, take a break, and modify with my conditions. With my son watching, he so kindly pointed out (or yelled rather) that I was doing it wrong and needed to put my feet off the ground and jump. ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ I could've chose to feel defeated from my almost 6 year old. I could've snapped at him for correcting me and tell him mama knows what she's doing (I do this in other situations...), but today, I used it as a teaching moment. ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ I told him mommy has owies in her body and head so I can't do it the same...but that's not gonna stop me. I'm gonna keep going...and get better and better, and stronger and stronger...and faster and faster...and he said, "And maybe one day you'll be able to jump?" ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ To which I replied, "Yes baby....one day." ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ But that convo gave me all the feels, that you know what? I actually did do 2 little jumps at the end. 🙌🏻 ⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ #Progress #StrongerEveryday #TheyAreWatching #TeachingMoment #EmbraceStruggle
14 5
#christmasspooniechallenge Day 14... What makes you a warrior? I can't say that I'm too fond of being called a warrior, I can't put my finger on why, but something just doesn't sit well with me. I mean, every day I kick the arse of many chronic illnesses, but does that make me a warrior? I'm not sure...! #spoonie #chronicillness #warrior #chronicillnesswarrior
12 2
Last day of week 2! It's the December #SpreadLove17 contest! 🎉 Hosted by @TheUnchargeables and @spoonieessntls 🌟 Day 14: write a post to say "thank you" to three people. Spread that love to the special people in your life! Remember to tag the hosts so we can find your post. Scroll the pics for instructions on how you could win. Spread love this December! 💙 Hugs, Char --------------------------------------------------- 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio. ---------------------------------------------------- #TheUnchargeables #Spoonie #unchargeables #chronicillness #Spoonies #SpoonieLife #ChronicPain #ChronicFatigue #disability #chronicpainwarrior #InvisibleIllness #autoimmune #supportgroup #lowonenergy #lowbattery #contest #spreadlove #win #StrongerThanYouThink #chronicillnesswarrior #autoimmunedisease #fibromyalgia #raredisease #pcos #endometriosis #migraine #butyoudontlooksick
18 0
This photo is from about 3 years ago. I was just starting on my chronic illness journey, with started with fatigue, chronic pain and GI issues. . .  #mys#mysteryess #mysterydiagnosis #chr#chronicess #chronicpain #chronic #fatigue #mystery #staypositive #chronicillnesswarrior #warrior #community #disability #spoonie #spooniestrong #invisibleillness #spreadawareness #justaspoonful #spooniechristmaschallenge #christmas
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The Diamond Headache Clinic uses a multidisciplinary approach to treatment and intervention for headaches that includes psychological and psychiatric elements. The roles of psychology and psychiatry in a headache condition are as important as any pharmaceutical or lifestyle factors within the diagnosis. 🏥🥗 Quite often, headaches are triggered or exacerbated by psychological or psychiatric factors. These factors may include simple life stresses such as work or family issues, or may involve complex biochemical scenarios like depression, anxiety or bipolar disorder. For more info check out diamondheadache.com
5 1
if there is one thing the flu has taught me, it’s that’s i will NEVER miss getting the flu shot as long as i shall live 🙄. it has also shown me something important: i feel guilty ALL the time. . . the past few days all i’ve been doing is lying in bed and watching movie after show after movie (Wonder Woman and Hacksaw Ridge have been the best pick for anyone curious) and all the while i couldn’t not shake a feeling of complete guilt....guilt for doing absolutely NOTHING. “should i at least read?” yet all my sick body really wanted to do was lie there. well guilt built up quickly. and with all this free time i realized how many areas of my life i let Guilt take hold of.... . guilty im not trying hard enough to “heal” my body. guilty im trying too hard and that i should be more relaxed guilty to have to say “no” because i was in pain guilty for saying “yes” to things in my past guilty im not more of the student, daughter, sister, friend that i should be. guilty im not less stubborn, lazy or tired guilty im feeling sad guilty im happy and others in the world are sad. guilty for what I don’t do and guilty for all the blessings i have. . well guilt has no limits to what it will attack, but i’m finally figuring out that listening to a Guilt Podcast on repeat will only keep me stuck in a negative energy. Because while i’m busy feeling guilty, there is no room to be grateful. instead of feeling guilty for being sick, im grateful to have a bed and movies to watch. . . don’t get me wrong...guilt does have its time and place (such as lying, stealing, etc.) but do NOT let it unrightfully judge you in areas of your life that you’re trying your best. . if chronic guilt weighs heavily on you, i hope you find encouragement in knowing that you deserve to accept yourself right now, exactly where you are at today. sure there is a “better” version of yourself out there that you hope to become, but that doesn’t mean you have to feel so gosh darn guilty about where you are at today. so as i lie here in bed, about to watch yet another movie, instead of choosing to feel guilty (because it is a CHOICE), im feeling excited instead. excited to watch Star Wars and for the flu 2 go away
56 4
I guess my little squirrel got too close for comfort I turned around and man there he was on the Forest floor and when I put my foot down he scurried off into the undergrowth and since I'm trying to build a relationship I didn't think I would be doing myself any favors if I tried it off into the bush to try and spot him again there's always tomorrow. #lorioutloud #redheadedwoodpecker #morningkms #dailyritual #mylife #chronicillness #chronicpain #fatigue #hemochromatosis #ms #myjourney  #sickandtiredofbeingsickandtired  #changingmylife #workingonwellness #walkingaroundtheworld #nothingwillstopme #mostprolificwalker #acheivingmygoalsonedayatatime #willpowerismyname #doingmybest #chronicillnesswarrior #spoonie
8 0
I have a LOT of pets between my three homes (complex family situation, but not in a bad way ☺) but these four are actually mine. JoeJoe was the first. He's been in my family since I was very tiny and when I was around 10 he was given to me. I rode him in show when I was young but due to his age and back problems we no longer ride him. He's very smart and knows how to smile on command. Next came Summer, who I raised and trained before giving her to my grandma (who takes excellent care of her and loves her to death). I currently live with my grandma so Summerbutt and I have been reunited. She's an extremely intelligent dog and learned to do things like sitting up for attention all on her own. Then Luka came along. He was a tiny feral-born kitten I named Mew until I learned he was actually kind of an ass. He's not nice enough to have that cute of a name 😂😂 He was my ESA in college before the medical leave. He's excellently behaved in temperament and rarely gets into trouble, just full of himself. It's my fault for spoiling him 😂💙 Lastly came Noodle. I got Noodle February of this year (2017) and I love him lots. His setup is in my room, and has one clear side which I can watch him through if he decides to come out of the hides. It's soothing when I'm laying in bed feeling unwell to look over and see him exploring. Whew, sorry that was so long! I love my pets 💙💙 #mys#mysteryess #mysterydiagnosis #chr#chronicess #chronicpain #chronic #fatigue #mystery #staypositive #chronicillnesswarrior #warrior #community #disability #spoonie #spooniestrong #invisibleillness #spreadawareness #justaspoonful #spooniechristmaschallenge #christmas #pets #petsofinstagram #cat #dog #horse #snake #esa
14 0
It is hard to resist the juicy goodness of a ripe mango. It just takes you back to the ocean 🌴 and you can almost feel the sea breeze and hear the waves 🌊 as you indulge in it. When you see the list of their superpowers you won’t be surprised that they are not only great at helping you relive that beach vacation with every bite, but they have been used for centuries as ancient medicine. These delicious fruits help lower blood glucose levels, support a healthy heart,help prevent obesity by supporting a healthy metabolism, help your digestive system, and they are great for your eyes 😍 Now that you are convinced they are great for you, let’s talk about some more of the nitty-gritty ways they can help your body. Mangoes are a rich source of mangiferin. This means that they contain a high dose of antioxidants which can reduce inflammation and fight back against symptoms related to a variety of autoimmune and inflammatory conditions. Speaking of fighting symptoms (joint pain, digestive issues, weight imbalance, headaches and then some), mangoes can help boost your immune system because they are chock-full of vitamins B6 and C. Just one cup of mango supplies you with 100% of your daily needs of both of these symptom-fighting vitamins! I LOVE to eat them frozen for a refreshing cool treat, and it doesn’t just taste great, it can help with digestion too! In fact, mangoes are more helpful than most commercially available fiber treatments when it comes to chronic constipation. So not only do your taste buds 😋 get a treat, but your gut does too! Win-Win! I know you have been dying to get your hands on one of these since the moment you read that first line and thought back to your favorite beach vacation! Lucky for you they come in some many forms. Eat the whole fruit, add it to salsa, blend it into a smoothie, add it to your stir-fry,or snack on the dried fruit. However you choose to enjoy it, your taste buds and your gut will both thank you! Mango smoothies sound GREAT, right?
112 3
This year saw a frustrating battle with anemia. Low iron impacted my ability to run, take care of the kids, and work. Fighting with insurance took weeks (and halted treatments mid-way due to a loss of coverage) and would set us back over $4,000. But I’m excited by recent blood work which shows happy, stable iron levels. Yay! This must be a good sign going into the new year. #throwbackthursday
22 1
Every time I get a cardiologist/EPS I like...They move. I'm going to start to get a complex soon. Here's hoping this one sticks around a while.
16 1
Day 14: How has chronic illness made you a warrior? 💪 • In the chronic illness community, the terms warrior and spoonie are often used. I typically tend towards spoonie as it allows me to express the energy problems chronic illness presents for me. But I am also a warrior. I have learned to fight against my mind. I must not keep feeding the thought that I did this to myself. I have learned to fight against societal expextations. People can't see my illness and I must forgive them for that. Finally, I have learned to fight against the medical system. In each case, I have learned to fight, for the most part 😉, with calmness and patience. • Just this morning at a doctor visit, the nurse told me my blood pressure of 112/64 was beautiful. I took a deep breath and reminded myself she is trained for the average person and was trying to be nice. Secretly, I was feeling really shaky and really wanted to go lay down. • Photo caption: At the start of the year, I snow shoed around this lake. Yesterday I returned with my wheelchair. The trail was iced over. So, instead of rolling, I used a walking stick and frequent bench breaks to get around it. Obviously I'm paying for it, but month 3 of the Levine protocol says to start walking for cardio. I am slowly turning my body into a warrior against whatever shit is infecting it. • P.S. Need a joke? You know you have POTS when you progress from biking for an hour straight to walking for 20 minutes.
26 2
The past few months have not been easy and at times hard to stay positive. My POTS Syndrome has caused complications during my pregnancy by having reduced blood flow to my brain, increased passing out episodes, sever shortness in breath, esophageal dysmotility, and more symptoms to list. My heart has not been pumping enough blood to me but it has been pumping enough to baby. To hear that the baby is healthy and getting enough blood from my heart, was the best reassurance! With having multiple chronic illnesses during pregnancy, can definitely cause increased anxiety with multiple fears. Every time I hear that baby is healthy is the best reassurance I could ask for. I continue to pray for a healthy delivery and healthy baby boy. I’m leaning on god to give me the strength I need! #godsstrength #paralyzedstomach #pacemaker #powerofprayer #paralyzedintestines #gastricpacemaker #gastroparesis #gastroparesisfighter #severceliacdisease #pots #potssyndrome #dysautonomia #invisibleillness #chronicillness #chronicillnesswarrior #blogger #strength #endocrine #endocrinewarrior #autoimmunedisease #vitamindeficiency #multiplevitamindeficiencies #autoimmunediseases #spoonie #pregnancy #miracle #babyboy #24weekspregnant #hea#heartstrong #heart
23 0
It’s IVIG day! Once a month, I get an infusion of immunoglobulins to help combat my Common Variable Immune Deficiency (CVID). I’ve only been doing it 7 months, but I’m already noticing a decrease in the amount of infections I get! So far I’ve only had 3 upper respiratory infections since I started, which is less than half of what I would normally get. So grateful for this life saving medicine! #ivig #cvid #chronicillness #chronicillnesswarrior #invisibleillness
35 6
Feeling like a warrior today 💪🏼💕. • Yesterday I had my first saline infusion to treat my POTS symptoms. The infusion facility is at my hospital’s cancer center, so most of the people I interacted with looked at me with so much pity and sadness in their eyes. They thought I was there because I had cancer! And you know what? It was almost kind of nice to have someone feel compassion and sympathy for my situation rather than the typical disbelief and invalidation I am used to. When I got to the infusion room, the nurses were excited —EXCITED— to take care of me. They don’t see many POTS patients, so I was like a rare magical POTS unicorn 🦄💕 They treated me like a queen. They treated me like a REAL PERSON. It’s a shame that so many of us have to experience treatment that makes us feel otherwise. It’s a shame that so many of us are told our symptoms are all in our head. We deserve better. • But all that was just icing on the vegan, gluten free cake 🍰 The best part is that the saline infusion has actually helped improve my POTS symptoms! Yay! 🎉 This means I will be going 2-3 times per week to get IV saline. I’m excited to be able to get back to my life and start exercising again 💪🏼💕
101 12
What #spooniesticker would you give yourself today? Managed to get up before noon, but it was hard as all the meds I've had lately have knocked me off balance.
27 1
The reality is, it’s a full time job just trying to survive through this mess. One of the many reasons why I am so committed to giving back to this community is so I can help relieve some of the financial stress way too many Lyme patients are unfortunately experiencing. As we come to the end of 2017, I am getting ready to donate to a few Lyme patients but before I pick.. I want to know how this donation would help you! So please, leave a comment below letting us know how you would use the money and what it would mean for you. I’ll be picking 5 people randomly to receive donations this month! . ***and if you don’t have Lyme personally but have a friend or family member who does and could use some help, feel free to tag them below so they are entered! #morethanlyme #inadayle #seemywish
48 6
#jaclynhillchristmas Day 5 I may not be a single parent , but I am a parent who is disabled. I love my family with all my heart ♡ #MomLife #Mommywearsmakeup #chronicillnesswarrior #HashiWarrior #makeup #loveyourlife
8 0
She is one of my favourite ever presents I have bought myself. Christmas is the season of giving but remember you need to look after yourself too, self care is everything! Don’t forget about you ✨
32 2
🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio. Every month we give away a $100 gift voucher to the shop. ---------------------------------------------------- #TheUnchargeables #Spoonie #unchargeables #chronicillness #Spoonies #SpoonieLife #ChronicPain #ChronicFatigue #disability #chronicpainwarrior #InvisibleIllness #autoimmune #supportgroup #lowonenergy #lowbattery #StrongerThanYouThink #chronicillnesswarrior #autoimmunedisease #fibromyalgia #raredisease #pcos #endometriosis #migraine #butyoudontlooksick
21 0
Home after a long day walking about with my walkie walker (still havnt settled on a name for it yet🙂) I'm exhausted and my legs are agony but I was independent and walking about like a normal I had to use the seat more than a few times for my dizzy spells and woozy moments so I'm super thankful for it, it's already doing such a smashing job at helping me!! Im also thankful for the doc who gave me lots of painkillers today so now I'm back at mum's with a large cup of tea while she makes me cottage pie.....actual bliss.....im struggling though cos I really want a donut with my tea but don't want to spoil my dinner lol #walkies #independentwoman #spo#spoonievlogger #spoonie #chronicillnesswarrior #chronicovercomer #icandothis #proud #tea #donuts #cottagepie #pain #zimmer #dis#disability #disability
34 0
One of yesterday's happy spots. I learned how to talk to the Eagles years ago when I lived in Deroche. I saw the Eagles in the sky yesterday morning and I started to call and they came! There ended up being a total of 21 Eagles circling overhead. I had two people thank me for calling the Eagles all together, they remarked that they've never seen anything like that before. 😁The eagle is my #totem and anytime I'm down and out, questioning things, worried or afraid and I see an #eagle I know everything is going to be okay! I've really been struggling. I've really been down. And yesterday when I saw 21 Eagles I knew it's all going to work out fine I just need to have like the Angel Card said... patience. ❤👍 #lorioutloud  #morningkms #dailyritual #mylife #chronicillness #chronicpain #fatigue #hemochromatosis #ms #myjourney  #sickandtiredofbeingsickandtired  #changingmylife #workingonwellness #walkingaroundtheworld #nothingwillstopme #mostprolificwalker #acheivingmygoalsonedayatatime #willpowerismyname #doingmybest #chronicillnesswarrior #spoonie
11 0
IMPORTANT! WE ARE CLOSING ALL PAPRIKA JEWELLERY STORES TODAY! If you are awaiting an order then please don't worry-This will be sent out to you in time for Christmas! I really appreciate all the support you have given me again this year and thank you for making it another great success! See you in 2018!!! 🌶🌶#spiceupyalife 🌶🌶 🌶#paprikajewellery 🌶 *************************** #christmasclosing #closedfortheseason #closedfortheholidays #closedforchristmas #chronicillnesswarrior #bekindtoyou #puttingmyhealthfirst #merrychristmas #happychristmas #happyholidays #las#lastchancetobuy #lastchance #closingday #closingdate #consciouscrafties #craftiesrock #etsyseller #etsyshop #etsyshopuk #etsysellersofinstagram
18 3
Jasper looking all fluffy and cute. . . Taking a break from revision as despite sleeping for 14+ hours fatigue and nausea are kicking off again. 🤢🙄 I am so glad I am home with my parents at the moment as honestly I am just so tired. Looking forward to treating myself to a bath in safety although yeah technically with my seizures I should be a no bath zone. They help the rest of my symptoms that so long as air know that either I can reach the emergency pull cord in my flat or shout when at my parents I am good as I can now identify far better when a seizure is on it's way. 🙃 My parents house is harder to navigate as it has 12 very steep stairs and a general lack of grab handles but it also has dogs 🐕🐕 in it, and a proper bath 😍 If I have to cook I can't have pyjama days in my flat because I don't like being in pyjamas in the kitchen as it feels a bit awkward. But at my parent I can have pyjama days and dog snuggles which is good! #spoonie #dogsofinstagram #jackshitz #Jasper #rescuedog #cute #chronicillnesswarrior #parents #bath #sleep #pyjamaday #zoestribe
22 0
I've learned so much this year. Mostly about myself. I have struggled a lot with my health, which made me question my choices and my lifestyle. When I look back now I think the purpose of it was to show me that healing is not linear. What works for me now won't necessarily be the best option later. And my healing journey can be completely different from yours. We are all on our own paths. I love being on instagram, connecting with all of you wonderful people. I've learned that I'm not alone with my illnesses, my problems or my thoughts. You guys get what I'm talking about. But when my body's aching or I'm severly fatigued I tend to search for a cure or something someone says works for them. It's so easy to compare and believe there's only one right way. And so we try. And it fails. And we get upset. Is it me? What am I doing wrong? You did nothing wrong. It's simply not your path you walked. Be inspired by others and find your own. It will all be worth it. 💕 #revmaliv #thesunandherflowers #healingjourney #selflove #findyourpath
118 16
Day 1 of 12 Days of Spoons - Craziest Cure. Definitely when multiple people told me I just need to be in nature and outside more. Granted, I LOVE the outdoors and like to spend time outdoors but this was some of the craziest weirdest advice to “help” me ever. What’s the craziest cure someone suggested to you?! 💜
40 8
Check out my new shop with illness warriors in mind @thesleepinglotus collection is clothing, home decor and accessories based on my journey with illness and my writing about my experiences. I’d love you to hop over to my other insta and give it a follow like the lovely person that you are! 💕
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The Sleeping Lotus print pillow black on hot pink available in a range of sizes both throw and floor pillows. Starting from £14.99. This also comes in green, hot pink and golden brown on black, and also comes in slogans too 💕 The Sleeping Lotus Collection by Jennifer Ishbel is inspired by my own journey with chronic illness. The slogans are taken directly from my writing and the sleeping lotus design is a symbol of chronic illness and the importance to retreat and nourish ourselves ready to emerge and blossom so beautifully 🌺
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I definitely caught up on some sleep last night/half of today! 😴 Feel a lot better for it. Only got up to take my meds and back to sleep. 😁 Sometimes I just have too let my body sleep till it feels like waking up. Not quite my record of 18 hours solid sleep after my silver DofE expedition but not far of and that was just from normal life. I needed that. 👍🏻 Next up is more revision and then I get to use a proper bath 🙌🏻🛀 as I am at my parents till Sunday as I have a few appointments here in Norfolk. #justkeepswimming #Sleep #sleeptracker #sleeping #spoonie #chronicfatigue #chronicpain #chronicillnesswarrior #zoestribe
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👏🏽👏🏽RESOLUTION SOLUTION Group - starts MONDAY!!!!👏🏽👏🏽 Who is in???
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