I know I've said this before, but sometimes when it's time to take my medicine (especially at night when I have so many pills to take) I literally get anxiety, both physical and mental. Good thing one of those pills is an anxiety pill. It's just exhausting! **partner page** @mental.health.awareness_ #beatms #curems #cpap #sleepapnea #gastroperisis #disablednotunable #disabledbuttrying #degenerativediscdisease #fightingms #multiplesclerosis #mswarrior #staystrong #chronicallyill #chronicillness #chronicfatigue #spoonie #invisibledisease #invisibleillness #disabilityawareness #mentalhealthawareness
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🎧I was listening to a great episode of the @mindbodygreen podcast today with functional medicine doctor Frank Lipman, in which he said something along the lines of, "if a plant is dying, we don't just paint the leaves green - we try to get to figure out why it isn't doing well" 🌱 • So often we just put a bandaid on illnesses with medications instead of digging deep down and getting to the root of the problem.💊One of the sucky parts about autoimmune diseases like Sjogren's is that there IS no known cause, so the best they can do is treat symptoms.🙄For me that means naps + rest for the fatigue, @theratears for the dry eyes, lip balm for the dry lips, and of course all my self-care/yoga/holistic health shiz for my general wellbeing. I may just be painting the leaves green🍃but you better believe I'm going to keep them as vibrant as I can.💚
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#upanddressed and headed to my local Access Rehabilitation Equipment store to try out the @sigvaris Doff n Donner which helps you both put on and take off your compression stockings (thigh or knee high). It's not like any other system I've tried and there's nothing comparable that I've found on the market. Full review to come. * * (I should add it's not sponsored. I just saw it and wanted to try it out as putting on stockings is so exhausting and I often need help to also take them off. Plus I am over sublaxing my fingers.) * * #dysautonomia #chronicillness #disability #fashion #frockingup #fashionblogger #compressionstockings #fashionablecompression #fashionablecompressionstockings #sigvaris
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So, this was the restroom at my doctors today. Anybody want to venture a guess as to why there's a chair 2 feet away from the toilet? I'm pretty sure I don't want a guest in there. However, if you wanted time prop up your feet, you definitely could. **partner page** @mental.health.awareness_ #beatms #curems #cpap #sleepapnea #gastroperisis #disablednotunable #disabledbuttrying #degenerativediscdisease #fightingms #multiplesclerosis #mswarrior #staystrong #chronicallyill #chronicillness #chronicfatigue #spoonie #invisibledisease #invisibleillness #disabilityawareness #mentalhealthawareness
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#PhysicalTherapy: gained 4° bending, slightly improved on walking without the cane, and felt slightly less worried about my progress. Very painful especially with a tweaked hip flexor 😢 but it will be so worth the struggle, sacrifice, and hard work in the end! 🙏🏼 I may be having to literally retrain my brain and my body to walk properly ... I might have to break through thick and stubborn scar tissue ... I definitely deal with a lot of extra inflammation and unique hurdles ... and I might have to take some time to adjust to this new knee ... AND possibly miss the @ladygaga concert 💔 (unless I can get ADA seating for me and two friends) ... BUT if I can finally walk without pain and without fear, after decades of limping around with both those thighs weighing heavily, then it will all be worth it. 😀 And the day I can pedal a bike 🚲 normally again, getting that pedal the whole way around ... I might just buy myself a tiara 👑 and throw confetti 🎉 at myself and pop some champagne 🥂 because patient advocate or not: I’m not gonna lie — THIS CRAP IS HARD!!! However ... gotta keep on keepin’ on, as always, though! 💪🏼 #arthritisashley #britkneespears #selfcare #surgeryrecovery #totalkneereplacement #TKR #kneereplacement #totalkneearthroplasty #totaljointreplacement #jointreplacement #JIA #juvenileidiopathicarthritis #rheum #RA #rheumatoidarthritis #OA #osteoarthritis #dystonia #autoimmune #chronicillness #chronicpain #recovery #inflammation #staystrong #determination 💪🏼
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I can't digest raw greens in their solid form. I get bloated & have frequent trips to the bathroom . Takes a long time to chew & I get hungry within 2 hours even after adding portions of lean protein & fat . Blending greens into smoothies help because it gets 100% pre-masticated & I still get the plant fiber with very little gut inflammation . Wish I could eat solid greens the way Mother Nature intended. Blending requires a lot of greens to stay full which is expensive * * * #aspergers #autism #autoimmune #brainfog #chronicfatigue #chronicillness #chronicpain #depression #fatigue #fibromyalgia #geek #guthealth #health #holistic #ibs #lyme #lymedisease #meditation #organic #sanfrancisco #sibo #shaman #subconscious #support
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@Regranned from @chronicallyjenni - This week is invisible Disabilities week. The fact my illnesses are so invisible is something that makes tackling them much more difficult. I managed to get by pretending I was 'normal' and okay for a long time and was made to believe, even by doctors, that nothing was wrong as I looked like a healthy 19 year old (at the time) who was 'just a bit anxious'. 4 surgeries and 10 daily tablets later we know this is not the case, but on then outside nothing is different. Yes I may use my stick, walker or wheelchair but if I decide not to use them it doesn't make my conditions any less disabling. I am very lucky to have family, friends, flatmates and coursemates who can spot the subtle, and often less subtle, things that make my disability a little more visible but the public can be cruel and know many people who aren't as lucky with their family and friends as I am. As a community we often feel we have to prove ourselves in order to be believed but this should not be the case. In every single one of these pictures I'm experiencing symptoms, just because I'm laughing or smiling doesn't mean they aren't there, it just means I have a tool kit to manage them to help me get on with my life. Please remember, just because you can't see a condition or disability, it doesn't make it any less real. Everyone is fighting a battle you know nothing about, be kind, always. #invisibledisabilitiesweek #inv#invisibleillness #invisibleillness #chronicillness #chronicfatigue #chronicpain #chronicmigraine #chronicheadache #eds #ehlersdanlossyndrome #pots #posturalorthostatictachycardiasyndrome #spoonie #zebra #butyoudontlooksick @ehlersdanlosuk @ehlers.danlos - #regrann
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Super. Duper. Over. This. Migraine. It mostly abates for a few hours and then comes roaring back. I cannot take any more triptans until tomorrow. So far I’ve tried as much Imitrex as I’m allowed to take, Zofran, Tylenol 3, regular Tylenol, cannibinoid topical cream, topical “migraine and headache soother,” a nap, an Epsom salt bath, turmeric tea, extra caffeine, mindfulness meditation, fresh air, lying down, sitting up, my Cefaly headband, and more. It’s worse now than it has been all day, so I’m just going to go to bed. Sometimes this disease really sucks. From what I’ve seen on social media this week, several of us have had a multi-day attack. How are you feeling? (Yeah, you!) #migraine #migraineawareness #chronicpain #chronicillness #chroniclife #themigrainegirl #cubbietheblackcat
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Tookie Tookie Having fun with my phone https://www.gofundme.com/i-need-a-new-furniture#SarcoidosisDisease#ChronicIllness#InvisibleIllness#WeAreFightingEverydayToStayAlive#BlessedEverydayWeAreHere#WeNeedACure#Hoping4ACure#Snowflakes#sarcoidosisawareness#aprilsarcoidosisawarnessmonth#caregiver#LoveonewithSarcoidosisDisease @charleyblank26
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#Halloween2017 Having fun with my phone https://www.gofundme.com/i-need-a-new-furniture#SarcoidosisDisease#ChronicIllness#InvisibleIllness#WeAreFightingEverydayToStayAlive#BlessedEverydayWeAreHere#WeNeedACure#Hoping4ACure#Snowflakes#sarcoidosisawareness#aprilsarcoidosisawarnessmonth#caregiver#LoveonewithSarcoidosisDisease @charleyblank26
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Having fun with my phone https://www.gofundme.com/i-need-a-new-furniture#SarcoidosisDisease#ChronicIllness#InvisibleIllness#WeAreFightingEverydayToStayAlive#BlessedEverydayWeAreHere#WeNeedACure#Hoping4ACure#Snowflakes#sarcoidosisawareness#aprilsarcoidosisawarnessmonth#caregiver#LoveonewithSarcoidosisDisease @charleyblank26
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Just got to love a wet beard smile ❤️️❤️️❤️️🐶 @cooperdoodleobrien taking good care of me. #caregiver #sweetpea #goldendoodle #doodle #dog#doglife #dog#dogsmile #dog #dogs #chronicillness #gastroparesis #myhappyplace #lovemydog #mustlovedogs #aplacetolovedogs
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One of my favorites! Our "logo" t-shirt. This print is available on other items too! . *Follow + tag 2 friends and you'll have the chance to win a gift card or discount when we open in under 10 days!* - Olivia, shop owner . . . . . . #awareness #apparel #spoonie #thespoonieshop #awarenessclothing #spoons #thespoontheory #chronicillness #disability #chronicallyill #clothing #SpoonieLiving #eds #lyme #pots #gp #raiseawarenesa #invisibleillness
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