I feel like crap. But at least I’m still alive, I’m able to walk and talk and move freely. I’m trying to be thankful on m harder days. What that being said, it’s apple pie night. Ohhh yeah💪 #fighter #nevergiveup #chronicillness #spoonielife #dysautonomia #pots #ehlersdanlossyndrome #chronicfatiguesyndrome #epilepsy #depersonalization #depression #anxiety #bipolar #fibromyalgia #lupus
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Don't know why but this made me laugh out loud so hard! Was sitting on the loo scrolling through google like I do and came across it, had to share it with you guys! It so so true though😂😂 #chronicillness #chronicpain #chronicfatigue #chronicillnessawareness #cfs #cps #ibs #ibsdiet #irritablebowelsyndrome #funny #meme #itgetsbetter #mentalhealth #mentalhealthawareness #chronicfatiguesyndrome #chronicliving #chroniclife
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I’m super sick right now and feel like absolute poop! BUT! Is there anything you guys would like me to add to my disability awareness table at my campus? If you leave a comment I’ll type them out and post them on the board (with your Instagram handles)! It can be anything. Something that annoys you that people do or something you wish people would understand. Things like that :)
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Love from me to you 💚 #innermothering #healingjourney
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I spent yesterday writing a new blog post ~ link in the profile ~ and lazing around in this chair - I want one! #asnoozielife #cfs #cfsrecovery #cfsrecoveryispossible #mecfs #chr#chronicfatiguerome #chronicfatigue #chronicillness #recovery #progress
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Current situation...anyone else ever notice how the elastomeric pump balls look like little grenades 💣 I always think about that and how it's fitting because they're waging a war against Lyme! #diespirochetesdie Haven't posted in awhile because I've been doing nothing but resting and recovering with my family after travel. It's crazy how much a single flight can wear me out even with wheelchair assistance. 🤷‍♀️guess that's #lifewithlyme & #lifewithmecfs
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It's been a couple of days sense my first therapeutic massage. Whit focus on connective tissue treatment. The pain has only increased. Anyone know if it is supposed to be soo painful?? #cfs #cfsme #mecfs #ME #chronicpain #chronicfatiguesyndrome #chronicleill #fib#fibrogia #fibro #fibromyalgiaawareness #chronicpainsucks
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The awareness month of May is really the month where we have a big push to publicise M.E. activists like myself push awareness wherever & whenever we can. I find healthcare professionals are still holding onto the ancient views of 20 years ago. So I always ensure I educate if I find that wall between me & them. The GP’s & consultants are fine it’s the physiotherapists that usually claim to be able to ‘cure’ CFS yet when they learn I’ve had it since 19 - ah I can’t cure you as you reached your deconditioning ceiling. 😕😳🤔• • #myalgicencephalomyelitis #meawareness #mewarrior #mecfs#mecfswarrior #mecfsawareness #cfs#cfsa> #cfsmeawareness #cfs #chronicfatigue #chronicillness #chronicfatiguesyndrome #raisingawareness #rareillness #millionsmissing
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Really upset today by this display at my campus. Ended up going to complain about it because it was just so gross. The disabilities coordinator Kim (some of you might remember her) was shitty and condescending. Only removed the “differently able” and “I’m only in it for the parking” signs on the poster after much argument. Told me that I don’t want to be seen as disabled when I was staring the opposite the entire time. Refused to let the girl who was actually in charge of the board change anything. Told me that people in wheelchairs prefer when you crowtch down to talk to them. And was just generally terrible. At the end she asked if I was okay with the changes and I said no and walked away. Me and raven (the girl who’s running the actual event) then went to the diversity head and then I went to the dean. I didn’t want to report Kim at first but now with her actively spreading misinformation that is extremely ableist I don’t really have a choice. Situations like this bother me extensively and I’m going to be starting a disability group on campus to try to prevent things like this from happening again.
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Who can relate!? ⚠️❣⚠️❣⚠️❣⚠️❣⚠️❣⚠️
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Dear My inner critic post 10: Celebrate what you did do today, not what you didn't - and if you feel like you didn't do anything celebrate that too, resting is healing 🌟💖✨#spoonievillage #dearmyinnercritic #ididthething --------------------------------- For more "dear My inner critic" checkout previous posts. -------------------------------- 🥄shop Spoonie village via link in bio 🥄 🥄 #chronicillness #inivisbleillness #chronicfatiguesyndrome #myalgicencephalomyelitis #chronicpain #chronicillnesswarrior #spoonielife #celebratethesmallwins #smallwinsdaily #lookforthecansinlife #cansnotcants #postivemindset #positiveattitude #innercritic #innercriticalvoice #innercriticbegone
28 1
Simple, powerful hot healing tonic when you're sick: Lemon, fresh ginger, turmeric root (add organic honey if desired) in hot water. Lemons are one of the most healing foods you can incorporate into your life. Alkalizing, full of vitamin C and healing flavonoids, B-complex vitamins, fiber, potassium and many more vitamins and minerals. Ginger is a no brainer for nausea and with anti-inflammatory properties, it has been known to help with muscle aches, too. Turmeric is a superfood with strong antioxidant and anti-inflammatory properties. Happy healing! I'm heading back to bed with my tonic. 😘😘😘 #innermothering
16 1
There he goes, off to Poland for a few days and a little excited!! 🤗 What will i do? 🤔 I'm gonna be in bed early every night! 🙌🙌 . . . . #singlemum #singleworkingmum #spoonie #spoonielife #chronicfatiguesyndrome #myalgicencephalomyelitis #chronicpain #chronicpainwarrior #hEDS #ehlersdanlossyndrome
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Check out this film about a girls personal experience with chronic fatigue syndrome in a cinema near you. Its also on iTunes pretty cheap. I'm so excited to see chronic illness be represented. The ad looks very good. -niamh #chronicfatiguesyndrome #myalgicencephalomyelitis #spoonie
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