I think about this a lot. We never know what struggles people suffer with quietly- especially those that live with chronic illness. Autoimmune disease is an #inv#invisibleillness and as we walk around the world, few people have any idea of the pain we carry. If only they knew, right? So I use my own pain as inspiration. If I don't feel well, Or if I am having a bad day, maybe others are as well? So be kind to everyone you meet, even if on the surface it may not seem like they deserve it. You never know the burden they might carry. And I hope the world treats you with kindness right back. #bekind #kindness #empathy #theworldisyours #loveoneanother #chronicillness #chronicpain #chronicfatigue #aut#autoimmunease #autoimmune #invisibleillness #invisibleillnessawareness #spoonie #spoonielife
0 0
Things change so rapidly; if I was able to do one ‘normal’ thing one day I probably couldn’t do it again in an hour, a day or a week . Please don’t assume I’m better, or fine, or not that sick even if Facebook shows you a highlight or two!! . This morning I jumped on the bed, for 3 seconds, now I’m too poorly to even lift my head let alone sit up. . 99.9% of my days are so poorly if we didn’t know I had an array of incurable, chronic illnesses we’d be calling an ambulance!
3 4
If humans thought before they judged; it would be so much easier on people with invisible disabilities. 💜 Not all disabilities, illnesses etc are visible. You never know what someone's going through. So don't pass judgement until you do. 💜 Lately I'm seeing lots of posts - someone stuck a sign to my car saying I was fat, lazy and shouldn't be using the disabled bay or have a disabled badge. How awful is that? The lady had fibromyalgia and other illnesses. 💜 More people are being open with their daily struggles with the invisible disability. That's means more awareness and hopefully more understanding and less judgement. 💜sending hugs to all you Spoonies 🤗
6 1
Crikey- did this strike a chord with me ❤️ I feel like I could say this for every year of living with this illness but this year has been a particularly tough one - ✨“I’ve learned that you can get through bad times & keep looking for better ones, as long as you have people who love you.” ✨#aintthatthetruth #survivingsevereME #familyandfriends #supportsystem ❤️
17 6
I might start living my online life through #snapchatfilters 😄 the 'before' shot is beyond dreadful 😮 #chronicfatigue #ehlersdanlossyndromes #cfs #fms #cps
4 0
I think study partner number one is bored of studying. 😂
6 1
It’s been two years since this photo. . This fight above was exactly two weeks after a loss. My head wasn’t in the previous fight, I was there in body but not in mind. I didn’t step back into the for the win, I pushed myself back into the ring because I wanted to learn from my mistakes in the previous fight and not allow the fear of a loss hold me back. Although I got the win. . On one hand I did feel sad that I haven’t been able to get back in the ring however when I reflect on all that I have done over the two years since this fight I realise, I am actually pretty proud of myself of all that I have achieved and conquer as it been a massive learning curve. Since this fight I have done; . 👊1 and a half fight camps. I wasn’t fit to fight in one fight due to a chronic illness and then the other fight camp my opponent pulled out twice. (fool me once shame on you, fool me twice shame on me 🤣) . . 👊I was bedridden and house bound for 9 months. Physically I was stagnant but mentally I grew so much stronger. . 👊Taught Muaythai at an epic womens club for 6 months while struggling to even get outta bed. . 👊I conquered the chronic illness CFS/ME and fibromyalgia which I had been cycling a in and out of for 21years. I can confidently say it won’t happen again. . 👊Had minor surgery . 👊Qualified as a counsellor. . 👊Travelled and lived in: Melbourne Adelaide Gold Coast Bali Thailand twice Scotland London Amsterdam Munich Vietnam Philippines . 👊Quit my job that wasn’t serving me and to pour my heart into co-running an ecommerce business that provides us with the life we want, following our “why” and smashing our goals. . 👊My relationship with David has grown to a deeper level of connection through all our challenges we’ve conquer together. . 👊Now I’m SIX months pregnant!! . 👊I’ve made a shit tone of mistakes and with these mistakes I’ve learnt a lot of lessons. . I’m really excited about the path I’m on and all the struggles that I’ve grown through are starting to lay the foundation to my exciting new chapter. . I really feel ready to be bring a child into this world with all that I have learnt and I’m ready for the lessons that life has to give me now. ☺️ .
102 9
Sporting that #mightywrap jacket Available for PRE-ORDER at: mighty-well.com
25 1
I love bringing people together!
18 1
Today I have two study partners. One of whom could be more impressed. 😂
12 2
This man injured his right shoulder bull riding 16 years ago and has suffered pain & restriction of movement since then, until Sunday when Jesus set him free. He also testified that his wife was instantly healed at our meetings a few years ago from Ross River Fever, Dengue Fever, chronic fatigue & fibromyalgia. A young friend of theirs had been bed ridden with fibromyalgia but also healed after prayer, though her healing took 3 weeks to complete; it's important to be aware that not all healing is instant. The clip of his testimony is on our YouTube channel. For our 2018 itinerary, please see our website https://www.johnmellor.org/johns-itinerary/ #bullrider #shoulderdamage #fibromyalgia #chronicfatigue #rossriverfever #denguefever #prayer #healing #miracles #johnmellor #johnmellorministries
16 0
So excited! Only 30 minutes until the movie starts. We chose to go to the morning session because a) it was the first 😋 b) it was a better option to cope with my chronic illness and my study schedule. Even with all the excitement it was had to get out of bed because of the chronic fatigue. It goes to show that a regular morning would have been spent in bed 🤒😓. Nice day everyone 🦄 and merry Star Wars. #starwars #thelastjedi #chronicillness #chronicpain #chronicfatigue #spoonie #spoonielife
6 0
Katia made me pasta for breakfast and a coffee - that's literally heaven in my opinion 😍 She also told me I looked cute sleeping and kissed me on the cheek 😊 I was going to go home this morning, but I'm exhausted, and Katia told me I can stay here all day, which I think is really nice 😁😍 I'm having so much fun, and I really like her, but my head won't stop saying she doesn't like me. I'm trying to ignore it and "live in the moment" but sometimes that's practically impossible ☹️😔 [Tags: #bipolar #anxiety #depression #lonely #sad #diazepam #drugs #musicsaveslives #alcohol #cigarettes #inpatient #ocd #grunge #alternative #alternativegirl #entershikari #sertraline #mirtazapine #endometriosis #chronicfatigue #weightloss #depressed #tattoo #bingeeatingdisorder #ednos #ed]
19 0
Been back in the studio again today with the awesome @cuurley 😍 you're gonna hear some serious TUNES coming from us soon 😍😍😍 give him a follow! 💙 Follow my journey! Follow me on Insta - dakharidrew Facebook - Dakhari Drew Twitter - @DakhariD Snapchat - dakhari.drew Sub to my YouTube Chanel coming soon!? - https://youtu.be/oEUnKtBcPSY #dakharidrew #fighter #survivor #chronicfatigue #hyp#hypermobility #endometriosis #diva #girlpower #bosslady #beabosslady #confidence #sassy #loveyourself #singer #songwriter #healthychoices #thepower #fitchick #beavisionary #hypermobility #lyricist #youtuber #vlogger #meditation #fitgirls #strongissexy #motivation #positivity #thesecret #manifestation
49 2
“Slept in” the last few days...not my thing. I function best off of super early mornings. Motivation + preparation + head start on the day 👌🏽. #Repost @etthehiphoppreacher (@get_repost) ・・・ They’re yours, not mine!!!
23 2
Me, yesterday at Queen Elizabeth Hospital Birmingham to see my Urologist, well my new Urologist. Loads of tests coming up, added on top of the GI tests I'm having done, life is pretty full on. But it's fine isn't it? Well I don't work so I have nothing else to do have I? I HATE that attitude. Don't come across many that have that attitude although thousands do, but it only takes one. I have a battle everyday, being ill and dragged down by fatigue is my job, my job title is being chronically ill, my job description is fighting pain and battling fatigue to name just a few. Life is harder than you think, just because I look fine to you from the outside, doesn't mean I am. Here I am trying to keep warm, 5 layers on at the top and my new ski hat (like i'm going to go skiing) from @aldiuk keeping my head and ears nice and warm. Took me a while to get to and from the car on my crutches but I made. Bring on the oramorph #queenelizabethhospital #queenelizabethhospitalbirmingham #qubirmingham #birmingham #hospital #hospitalappointment #urology #urologist #ehlersdanlos #ehlersdanlossyndrome #fibromyalgia #glandularfever #degenerativediscdisease #facetarthritis #plantarfasciitis #chronicpain #chronicfatigue #chronicfatiguesyndrome #chronciallyill #butyoudontlookill #invisibleillness #skihat #woollyhat #tryingtokeepwarm #disabled #disabeldphotographer #beingillismyjob #beingdisabledismyjob #wishicouldwork
16 1
V I B E S.
12 1
TW on second picture maybe ? So I've had these rash / things on my upper legs and stomach and back and I have 0 clue how they got there and why they are there. They don't hurt and I only noticed them when I was in the shower so they are just there no symptoms with them. Anyone know what it could be ? #chronicillness #hospital #diabetes #spoonie #chronicallyill #pcos #depression #multiplechronicillnesses #invisibleillness #awareness #POTS #chronicpain #chronicfatigue #heartdefect #emergencyroom #fatigue #spoonielife #medication #nausea #noperiod #butyoudontlooksick #spooniesunite #potsie #rash
22 2
En vecka har gått på den här avdelningen. En vecka och en dag sedan jag tog överdosen. Mesta tiden har jag legat i sängen, lyssnat på musik och kollat på serier. Mycke självmordstankar, mycke ångest, och en ångestattack som slutade med bältning. Igår hade jag permission för att åka till mitt veckliga psykologsamtal, och LPT skrevs av. Tanken var att jag skulle vara hemma en dag. Visa att maten funka bättre för mig hemma genom att ha ett bättre blodsocker när jag kom tillbaka hit idag för utskrivning (om nu blodsockret var okej). Ja det var ju tankarna från vårdens sida i alla fall. Mina planer var mer destruktiva, och det slutade istället med polishandräckning. Jag var ärlig med psykologen om hur jag kände och tänkte. Han tyckte jag borde bli inlagd igen, vilket jag satte mig emot, så medan vi väntade på att en läkare skulle komma och bedöma läget reste jag mig och gick. Ett par timmar senare kom polisen till min lägenhet. Jag blev först körd till StGöran psykakut för bedömning, ett nytt LPT sattes och sedan kördes jag tillbaka till denna avdelningen. Jag är trött, trött på att kämpa, trött på det ständiga kriget mellan min förnuftiga sida och den destruktiva. Trött. . . . . . . . . . . #mecfs #svmecfs #myalgicencephalomyelitis #chronicillnesses #chronicfatigue #mecfswarrior #fibromyalgi #spoonie #kronisksmärta #kronisksjukdom #depression #ångest #psykiskohälsa #psynligt #introvert #högkänslig
16 10
😛 I like to joke about these things, but it is difficult not having or knowing someone with a chronic illness and then being expected to understand. I don't blame people for trying to make sense of our situations, I'm still trying to do that myself and I live in it 😂 I'm sure many chronic illness warriors, diagnosed or not, can relate and laugh along. The upside to having bad things like this happen? Sharing experiences and forming a community where we can make light of our pain and bond because of it 🙄 #mys#mysteryess #mysterydiagnosis #chr#chronicess #chronicpain #chronic #fatigue #jokes #mystery #fibromyalgia #chronicfatigue #ehlersdanlossyndrome #pots #posturalorthostatictachycardiasyndrome #eds #chronicillnesswarrior #community
10 0
Walking boots at the ready, as well as stripy cosy socks from @aldiuk they are knitted on the outside then have this soft cosy lining inside. Wonderful for keeping feet warm and because of the texture inside it makes them so easy to slip onto my awkward feet. Unable to use my wheelchair again yesterday but at least we made it to my appointment. Good job as well, loads more tests to be done in the new year. But a big thank you has to go to my mum for always being there and helping me through. Mum's boots are the black ones. Warm feet, tired feet, aching legs, worn out body, just an everyday thing. #walkingboots #regatta #aldi #aldisocks #stripeysocks #socks #lovemymum #igetbywithalittlehelpfrommymum #mum #feet #shoes #boots #cosysocks #hospital #waitingroom #birminghamqueenelizabeth #birminghamqueenelizabethhospital #birminghamqe #snow #ice #warmfeet #tiredfeet #ehlersdanlossyndrome #fibromyalgia #urology #chronicallyill #chronicfatigue #chronicpain #disabled
12 0
This... 💕 . . From the lovely @countingblessings123 and so relevant in my life right now 💕 . . Repost: I relate to this so much... I've always been a people pleaser, and it has definitely had a huge impact on my health & happiness. I have always felt the need to make sure that everyone else is okay before concentrating on myself. It has taken me a long time to understand that the most helpful thing you can do for your loved ones, is to do what's right for you 💕 . . So here I am, trying to remember that in order to help the people I love I need to focus on myself too 💕 . . #selfcare #wellness #healing #health #happiness #recovery #family #live #love #lessonsoflyme #lyme #lymie #lymedisease #lymelife #lymemom #lymewarrior #lymerecovery #lymediseaseawareness #lymewontwin #lymedontkillmyvibe #cfs #me #cfsme #mecfs #chronicfatigue #adrenalfatigue #spoonie #spooniemom #chronicillness #invisibleillness
37 8
Hello there...Yesterday, after sitting on a bench with a heart rate of 206 and barely staying conscious, I made the very hard decision that has been a few months in the making despite my resistance to acknowledge it. I have decided to take a Medical Leave of Absence for the upcoming Spring Semester of my Freshman year of college at George Washington University. I am heartbroken. I love school, learning, and everything that comes with it. However, with the way my POTS symptoms continue to spiral out of control, it would just mean more emotional/physical turmoil should I attempt the spring semester. I just want to scream and cry. I'm so afraid of missing out on things and losing friendships. I know I’m making the right choice, but it’s a hard one. If anyone has advice after making a similar decision I’d love to hear it. I’m just ready to try and get my health under control. - - #spoonie #pots #eds #college #collegespoonie #health #chronicpain #chronicillness #chronicfatigue #raynauds
21 4
Есть ряд лекарств, и их мы будем разбирать чуть позже. Хирургия обычно используется только для людей с тяжелыми поражениями суставов. АС - это системное заболевание и чем больше органов или систем поражены, тем сложнее может быть вашему врачу контролировать состояние. ------------------------------------- Активность АС включает 3 ключевых момента: . ✅тестирование: функциональный индекс анкилозирующего спондилита (BASFI/BASMI) и индекс активности при заболевании (BASDAI/ASDAS) – два обследования, которые учитывают ваши симптомы, такие как общая усталость, боль, отек суставов и скованность, а также, как это влияет на вас и вашу повседневную деятельность. MASES - счёт энтезитов . 🤓Эти обследования могут помочь врачу определить, нужен ли вам другой или, возможно, более мощный препарат. ❗️Вы можете чувствовать боль и припухлость суставов в то время как анализы будут нормальными или наоборот: . ✅Скорость оседания эритроцитов (СОЭ) . ✅С-реактивный белок или СРБ . 📍Рентгеновские снимки позвоночника или крестцово-подвздошных суставов могут показать, как прогрессирует АС и есть ли у вас какие-либо повреждения суставов. . 📍Магнитно-резонансная томография (МРТ) позвоночника приобретает все более широкое признание среди врачей как важный инструмент, чтобы определить степень и зоны воспаления. 📍В диагностические критерии ASAS входит МРТ крестцово-подвздошных сочленений . 💫Ваш врач определит, какие препараты назначать по результатам этих тестов, наряду с другими факторами, включая: ✅повреждение сустава или органа ✅других заболеваний, например, болезни печени или легких ✅возможные причины, по которым препарат может причинить вам вред и означает, что вы должны избегать его ✅ваши личные предпочтения, такие как лекарства, которые принимаются в виде таблеток или инъекций ✅потенциальные побочные эффекты лекарства . 🚫вы не должны принимать базисную терапию при: . ❌беременности ⬇️⬇️⬇️
75 2
Chicken salad with roasted pumpkin and sweet potato, raw zucchini, 5 bean mix, avocado, feta and parsley. Dressed with EVO oil, lemon juice and pink salt . . #adrenalreset #resistantstarch #fib#fibrogia #chronicpain #spo#spoonie #chronicfatigue #chronicillness #invisibleillness #spoonie #fibro #cfs #paleoish #glutenfree #whole30 #primal #lowcarb #lchf #lowcarbhighfat #jerf #chicken #roastpumpkin #sweetpatato #zucchini #5beans #avocado #feta #parsley @cobramestate #oliveoil #lemonjuice @murrayriversalt #pinksalt
19 0
28 1
Has anyone taken clonidine before? My doctors have weened me off my valium and are starting me on clonidine instead. I'd love to know how you like it and how it's affected you. Especially if you've taken valium before. Any thoughts would be appreciated! **partner page** @mental.health.awareness_ #beatms #curems #cpap #sleepapnea #gastroperisis #disablednotunable #disabledbuttrying #degenerativediscdisease #fightingms #multiplesclerosis #mswarrior #staystrong #chronicallyill #chronicillness #chronicfatigue #spoonie #invisibledisease #invisibleillness #disabilityawareness #mentalhealthawareness
14 0
At first it was hard for me to take a couple of days off - having to cancel or reschedule client appointments, creating some extra work for my colleagues etc. But, you have to listen to your body. Anyone who has dealt with chronic health issues knows that sometimes you may require extra time to recharge and replenish. Take care of yourself, take the time you need. #selfcare #selflove 🙏🏽❤
28 5
"En un abrir y cerrar de ojos tu vida puede cambiar debido a una enfermedad. Tus metas, sueños y prioridades son forzadas a tomar un giro diferente. Eres agradecid@ por las pequeñas cosas y empiezas a preocuparte menos por las grandes cosas. Dejas atrás la historia de ayer y determinas como será usada tu energía de hoy. Ésta es tu vida y no hay tiempo para dramas" 💪💪💪💪 #staystrong #fibromyalgia #Lupus #lupusfighter #fibrowarrior #fibromialgia #spreadawareness #crearconciencia #crohns #lymedisease #síndromedefatigacrónica #concientizar #chr#chronicfatiguerome #Enfermedadinvisible #invisibleillness #dolorcrónico #chronicpain #chronicfatigue #fatigacrónica #esclerosismúltiple #multiplesclerosis #espondilitisanquilosante #ankylosingspondylitis #reuma #autoinmunedisease #enfermedadescrònicas #chronicillnesses
20 0
I pray that you all are able to stop overthinking, replaying old events/bad scenarios, and stop feeding your self doubt. I hope your brain and body give you a break. Hope you are able to see the good in YOU. You deserve it. 💗 #thisischronicillness
316 10
Gone four in the morning Bypassed yawning Chesty cough, sore head Sick of rolling ‘cross the bed Tried meditation, calming thoughts Busy mind all ones and noughts Bring me sleep now, let me rest Relax tired arms on heavy chest Restless aches, adrenaline rush Brain lays fried all gone to mush Switch me off and shut me down Could do with turning off this frown . . ‘Shut me down’ ~ by Victoria Payne . https://facebook.com/PoemsbyVictoriaPayne/ . . . #EDS #ehlersdanlos #chiari #chiarimalformation #chronicmigraines #POTS #chronicfatigue #insomnia #sle#sleepnights #sleep #chronicillnesshumor #poet #poem #poetry #poetrycommunity #poetsofinstagram #pitypartypoetry #instapoem #instapoet #painpoetry #poetrybypayne
14 1
Day 12: Hospital Selfie! Here's one of me freaking out after I found out I might have RA! WHOO! Also I just dislocated my knee and it's aching. Ack. . . . . . . . . #spoonie #spoonies #spooniestrong #dislocated #dislocatedknee #spoonieproblems #spooniechristmaschallenge #chronicillness #chronicpain #chronicfatigue #rheumatoidarthritis #art#arthritissucks #arthritis
14 0
🌲Day 12 of the December #SpreadLove17 contest! 🎉 Hosted by @TheUnchargeables and @SpoonieEssntls 🌟 Write a post about a medication or remedy that makes your life better. Remember to tag the hosts so we can find your post! Scroll pictures for instructions on how you could win. 🎉 Spread the love this December! ❤️Hugs! --------------------------------------------------- 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio. ---------------------------------------------------- #TheUnchargeables #Spoonie #unchargeables #chronicillness #Spoonies #SpoonieLife #ChronicPain #ChronicFatigue #disability #chronicpainwarrior #InvisibleIllness #autoimmune #supportgroup #lowonenergy #lowbattery #contest #spreadlove #win #StrongerThanYouThink #chronicillnesswarrior #autoimmunedisease #fibromyalgia #raredisease #pcos #endometriosis #migraine #butyoudontlooksick
35 0
It's the season to bring new challenges. Assembling the Christmas tree was not a pleasant experience for my back and pelvis but it's done 🌿
16 1
Chili for dinner? Yes please. ▪️▪️ Turkey Pumpkin Chili, to be exact. Because, I love chili and I love pumpkin, and quite frankly I need protein to get through finals week. 🎃🌶️
52 8
It’s currently 20 degrees and feels like 5 degrees....I’m already over winter 😏. #givemesunnyand75
8 1
We out here. 💧 . . Truth be told, IV therapy really works. We love it, our customers love it. We pride ourselves on the Liquivida experience, and if you’d rather, we are happy to send our licensed paramedics to provide it in your home or office. We are truly after your health and well-being, and we have the tools to help you improve it. Comment a hand raise below if you have had the Liquivida experience and felt the very real benefits👇🏼🙋🏼‍♂️ . . . #ivtherapy #chronicfatigue #alwaystired #needenergy #testosterone #lowtestosterone #focus #getenergy #functionalmedicine #physicianassistant #fortlauderdale #fortlauderdalebeach #corporatewellness #loseweight #weightloss #miami #miamibeach #florida #healthylifestyle #healthandwellness #healthandfitness #lookgoodfeelgood #tuesday #tuesdays #tuesdaymotivation #alternativemedicine #keepcalm
45 5
Day 12 of “Spoonie Christmas Challenge”: hospital selfie. 🏥 I haven’t taken a lot of hospital selfies over the years, it’s usually pictures of bloodwork or weird signs in the hospital that I’ve taken haha. 💉 My mom had a bunch of pics from me in the hospital the year I got sick but I think I got her to delete them cause they made me anxious to look at (ptsd). I upload any health-related pictures (that are no longer relevant to my daily life) on a folder on my computer and then delete them from my phone. I think because looking at these pictures makes my heart sink a bit. I’m a cheerful and extroverted person with a big smile on my face even when I’m not feeling well (it’s just my personality, it doesn’t mean I’m necessarily feeling happy) so when I see pictures with tears in my eyes (like this one from 2 weeks ago 👆🏼) it doesn’t seem like the person in the picture is me. I accepted my illnesses long ago but realized that I totally separate my life into “sick me” vs. “healthy me” and my counsellor has been working on this with me a lot lately. I used to think it was odd when people used the language that they were healing from chronic illness because it sounded like it was possible to cure all chronic illness based on lifestyle changes alone (it’s not). But lately I’ve been loving this language because even if I experience the same degree of symptoms for the rest of my life, this language gives me back authority. ❤️ I’m healing right now. What will the outcome look like? Perhaps radical instant healing from God, perhaps slow healing from Him that isn’t linear, perhaps I won’t see any change in symptoms as long as I live but I’ll be emotionally healthier, perhaps a cure for POTS will be found, who knows! Either way, I am sick and I’m not in denial about that, but I am healing and I prefer to put my focus on the healing part. Everyone’s journey, and way of coping, will look different. Some people make art out of their hospital bracelets (so cool!) or get awareness ribbon tattoos to commemorate their strength. That is equally as valid and healthy. Neither is better, neither is worse. ❤️
170 13
Acabo de darme cuenta que la mayoría de las personas saludables irían directo al hospital si estuvieran con dolores similares a los que tengo los días que puedo funcionar bastante bien🤔🤔🤔🤔 #fibromialgia #fibromyalgia #fibrofighter #lupuswarrior #lupusfighter #Lupus #enfermedadescrònicas #chronicillnesses #autoimmunediseases #enfermedadesautoinmunes #dolorcrónico #chronicpain #chronicfatigue #fatigacrónica #SFC #CFS #spoonielife #spreadawareness #crearconciencia #educar #knowlupus #thepainisreal #ElDolorEsReal
25 4