I spent today in an all day whole department meeting. We’re 3 different teams who have been moved into one department as part of various recent organisational restructures. There seems to be a restructure of some description every year at the moment, often driven by budget cuts. I’m sure we’d get more useful work done if we got to spend more time doing it and less time working out the next new structure chart! ⠀ .⠀ The discussion I found most interesting today was about inclusion. Someone talked to us about ways to build personal resilience, and we then went on to discuss ways in which we could make the department a better place to work. I was astounded at some of the ideas and attitudes, given all the work that’s been happening around improving diversity and empowering staff. ⠀ .⠀ There were some people who couldn’t go to the meeting at all because of how and where it was held, and there were some of us who had to sit out of some of the activities because they hadn’t considered any of the people in the team with disabilities at all. ⠀ .⠀ It was meant to be a day about bringing people together and building relationships. But it didn’t really work for me.⠀ .⠀ I have a lot of work to do to make sure that doesn’t happen again, either for me or anyone else. Good job I’ve got my fatigue network and the disability federation to support me! I’m not one for giving up on a challenge when it comes to things like this!⠀ .⠀ .⠀ .⠀ .⠀ #inclusion #inclusivemeetings #disabilityawareness #includeeveryone #community #teamwork
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What a fu*** sunflower 🌻oil is a DON´T, when you have MS! 😝 Why it is bad? It contains linoleic acid and Omega-6 fatty acid. Both produce various messenger substances which promote inflammation. Proinflammatory!? 😱Not good when you have an inflammatory disease 😕 My loved sunflower seeds😭 So ein schei*** Sonnenblumenöl 🌻 ist ein DON´T bei MS ist! 😝 Warum es schlecht ist? Es enthalt Linolsäure und Omega-6-Fettsäuren. Aus ihnen entstehen verschiedene entzündungsfördernde Botenstoffe. Entzündungsfördernd!? 😱 Nicht gut wenn man eine entzündliche Erkrankung hat.😕 Meine geliebten Sonnenblumenkerne 😭 • • • #multiplesclerosis #unsplashed #sunflower #sunfloweroil #vegetableoil #son#sonnenblume #öl #sonnenblume #multiplesclerosisfighter #multiplesclerosisawareness #hea#healthyfood #health #healthfood #healthfoodie #liveyourlife #enjoyinglifeanyway #livewithms #proinflammatory #proinflammatoryfoods #entzündungshemmend #chronicallyill #chronicallyfabulous #tattoo
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What have you done to take care of you today? Today, I am having a rough day. So, I will try and do a facial or take a bath later. Taking care of myself is so much harder since having kids. • • • #autoimmune #autoimmumedisease #cel#celiacase #glutenfree #spoonie #chronicpain #celiac #chronicillness #invisibleillness #invisibledisease #staypositive #spoonielife #warrior #nocurenochoice #chronicillnessawareness #chronicallyill #chronicmigraine #spooniememe #spooniehumor #chronicallysick #chronicmigraines #chronicallychill #fibromyalgia #rawarrior #rheumatoidarthritis #depression #anxiety
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Mew coming to sleep with the hoomin.
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I just really feel like this photo shows off how much power Hero has for me. He is able to save me in so many ways and soething about this picture captures it perfectly. #servicedog #assistancedog #disabled #spoonie #spooniestrong #chronicillnesswarrior #chronicallyill #sickgirl #photography #hero #pawsandlove #pawsquad
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🌟EXCLUSIVE BONUS FOOTAGE JUST FOR YOU🌟 . Click the link in the profile to instantly receive access to a rare private video of @medicalmedium Anthony William being interviewed for the @healdocumentary In this video of exclusive footage with Anthony William, you will discover the truth about the theory of autoimmune disease and why receiving an autoimmune diagnosis is a great mistake. You'll also find out why knowing the truth about autoimmune diseases and conditions can ignite your healing, and more. . This footage isn’t available anywhere else and is a special bonus put together just for you!! . Click the link in the profile to watch now👆🏻 . Or copy & paste this link http://bit.ly/2kZVh5a
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~ Robyn • Personal: @fibrosisorcystic Spam: @roeoke Snapchat: robynoakli0112 • DO NOT ENGAGE BIGOTS HATE WILL BE BLOCKED • Hotlines : Childline: 0800 1111 Samaritans: 08457 909090 Abuse Not: 0808 8005015 Brook Young People's Information Service: 0800 0185023 Eating Disorder Support: 01494 793223 Anxiety UK: 0844 477 5774 Depression Alliance: 0845 123 23 20 Rape Crisis Centre: 01708 765200 Rape/sexual assault: 0808 8000 123 (female) or 0808 8000122 (male) • • #asexual #aromantic #agender #disabled #bisexual #demisexual #equality #chronicallyill #genderqueer #gay #homosexual #intersex #lesbian #pansexual #transgender #lgbt #blacklivesmatter #panromantic #queer #demigirl #saga #activist (ノ◕ヮ◕)ノ*:・✧
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I think my dog is slightly broken. Tbh, it's most likely caused by the terrible Great British Bake Off results.
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I think this post may be a lil blurry.. not even gonna try to fix it 😂. So I’ve lost more weight which isn’t good because if I drop about 5 to 6 more pounds the doctors are probably gonna make me get a trial feeding tube to try and keep me stable due to the fact that I also have a heart defect on top of everything. Anyway, I hope everyone has enough energy to do something fun today ☺️💕 // #dysautonomia #pots #ehlersdanlossyndrome #eds #chronicallyill #portacath #pcos #spoonie #painsomnia #ibs #asthma #pmld #avsd #agid #chronicpain #chronicillness #cfs
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#spoonie #chronicallyill #mak#makeupr #makeup #makeupjunkie #facialpiercings #tattoos #scruncednose #hairchange #lessmaintenance #lowermaintenance #newhair #hairappointment #headinjections #losinghair #hairloss #photosofpossiblehairdescions #maybenewcolortoo Being a spoonie is hard. I cried when I got my first wheelchair. But I don't know if I've talked about hair. I keep it short because the injections make it fall out and all patchy. But lately I've been sick and even short it's been too much to maintain. So today at 3pm I'm hoping to find something easier. I love being platinum blonde but the roots sneak up on me and I'm either too broke to tip or too sick to go in. I may have to change to something darker. I'm not getting a makeover for fun. I'm getting on because I'm sick. Please comment if you have any input. Change is hard.
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I made peppermint cookies! 🤗And . . . they actually taste good!! It’s hard with my TBI for me to find food that tastes decent. My brain injury has completely distorted my sense of smell/taste. I was hoping I’d see improvement in that area by now, but there really hasn’t been a change. More often than not it’s a matter of holding my breath to force the food down anyways. But these cookies actually taste delicious!❤️🙂 Just ask @warchiefcry . He ate more than he’s willing to admit 😂 #foo#foodporn #foodie #chronicallyill #chronicillness #invisibleillness #spoonie #spoonielife #dysautonomia #dysautonomiaawareness #potsie #posturalorthostatictachycardiasyndrome #tbi #braininjury #concussion #sick #cookies #delicious #pepermint #pepermintcookies #yummy #food #desserts #dessertporn #disabled #thelittlethings #blessed #grateful
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Today has been a very poo day. Today I woke up unable to move my hands. It's been coming but today it was excruciating. . I couldn't turn the kettle on. I couldn't squeeze the toothpaste out the tube. I couldn't open Mollys breakfast pouch. . So off to the Doctors I went. I finally accepted the prescription of tramadol. I declined the offer of a sick note. I went to work,lasted 1 hour and I'm now taking the rest of the week off. . Lesson is? Always take the sick note. . . . . #tramadol #painrelief #arthritis #arthritissucks #arthritiswarrior #psoriaticarthritis #rheumatoidarthritis #chronicillness #chronicpain #chronicallyill #chronicfatigue #spoonie #spoonielife #spoonieproblems #aberdeenblogger #scottishblogger #sickgirl #butyoudontlooksick
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Well, this was in no way a run 😂 but it was the furthest I've walked in months,and doing it with my favorite lady made it even better ❤ joys of chronic illness and weak underworked muscles means that I couldn't finish the last 350m and josh had to come fetch me cuz my heart rate suddenly spiked and I nearly passed out 🙈 but still, over 4,5km, at least as far as distance goes that's almost where I was originally! #chronicpain #chronicallyill #chronicillness #invisibleillness #cro#crohnsdisease #crohns #autoimmunedisease #hypermobilitysyndrome #hypermobile #jointpain #spoonie #spooniestrong #spoonielife #exercise #running #walking #fitness #strong
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at mass general getting my tube replaced which I have to do every 3-6 months and drive to Boston for because no one will do it in Syracuse ahhhh the wonderful things that happen when you're #chronicallyill but at least I can bring my #emotionalsupportdog 🤗🐶
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My opportunity of a life time... It’s official, I have #businesscards ! What are we doing at #BlasianLuxuryTransportation; We are looking to provide “Angel Moments” to other chronically or palliatively sick individuals who want to have a fabulous night that’s completely catered to each persons interests, dreams and give individuals who crave a night of normalcy who can do it in comfort and luxury. Is there anyone you know who could be in need of an angel moment or do you yourself feel like would be a perfect candidate to get out of the house and break away for one night on the town to lift your spirits? Please Direct Message me if you’d like to nominate yourself or nominate someone you know in the state of #Arizona. We are just launching the program which is run by Blasian Transportation services and will hopefully have a non-profit rolling out soon. Our entire goal is for you to have the best night possible! We also have a Van that is wheelchair accessible. #AngelMoments #localstartup #nonprofit #givingback #chronicallyill #pallativecare #spoonie #blessed #ada #medicalzebra
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The disappointment is real. No mesh and the crap they did have was really expensive, damnit. We got some chicken wire in, which is gonna be such a ball ache to work with because we'll have to fold it double across the current cage so the mice can't just fit through the gaps! #spoonie #disabled #butyoudontlooksick #disabledandproud #disability #chronicallyill #nonbinary #transgender #ftmtransgender
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Look who's out!
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