Laid on the sofa waiting for a call back from 111 as we think I have yet another infection somewhere else in my body. Ughhhhh.... birthday ruined... #spoonie #spoonielife #invisibleillness Also just had my blood sugars drop again so feel extra ill 😷
1 0
🚂 ➡️🗽I’ve been so scared to travel for the last year and a half: What if I don’t feel well? What if I need help? What if it’s too hard on my body? These “what ifs” strangled me, rendered me too afraid to even try. Today, I said no more 🙅🏼‍♀️ Sheila and I hopped on a train to visit @alyssarogowski in NYC for the weekend and things went...wait for it... fine 😱 Yes, there were hiccups, but I was completely able to handle them. Yes, I needed help, but asking for it doesn’t make me weak. Yes, I’m tired and a sore, but it was so worth it. Now, I get to have a wonderful weekend with my best friend without the immense weight of fear on my shoulders. Have a wonderful weekend, y’all 💕 #disabilitytravel #nyc #amtrak
5 1
I’m just gonna leave this here. Final words before I can finally announce my little canna love child❤️
17 1
Back home ...in bed with a cup of hot milk and honey, electric blanket and my cherrypitcushions, the Flow magazine.. physically really tired, but I had a very, very lovely day and wintermarket at my school for special needs children. Sore throat from all the nice intense talking with kids, parents, collegues, visitors... feeling “old” after seeing how much kids have grown since I’m not there anymore ( time flies 😳😬), lots of encouraging people for my creative work and enough sales to give a nice amount to the social cause... will do it again! But not in the coming days😜😍 #bed#bed #cupofmilk #honey #keepingwarm #bed #spoonielife #wintermarket #school #specialneeds #specialneedskids
1 0
I swear, this guy thinks he’s a husky 😆. He loves the snow!! He’d be out in it running around all day if I let him. Check out our pawesome pawtners🐾 🐾 @startillycollie 🐾 @trazadoned 🐾 @bennyandthebrunette 🐾 @vestonterrieroff 🐾 @golden.girl.jersey 🐾 @kaitlynjmills 🐾 @flour.pyr.prospect 🐾 @simon_the_servicedog 🐾 @dorkie_digest 🐾 @service_unicorn_nakita 🐾 want to be a pawtner? DM me! _____________________________ #ser#servicedogsofig #servicedogsofinstagram #sd #servicedog #medicalalerdog #chronicpain #chronicillness #narcolepsy #chronicmigrains #migrainalerdog #mig#migrainalerticedog #migrainalert #migrains #fibromyalgia #cockerspaniel #POTS #posturalorthostatictachycardiasyndrome#cocker #spaniel #cataplexy #spoonie #spoonielife #car#cardiacalertdog #cardiacalert #cardiacalertservicedog
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3 0
ME!! I hate the summer because some combination of the meds I’m on and my diseases make me over heat at even a hit of warm weather (its 23 out or heat is set to 60 and I’m comfortably wearing a tank top). But the second winter comes and the sun disappears I am a hot mess. I don’t even know when the last time I washed my hair was. Winter is just such a struggle for me. Especially living in a state that is like the 5th most cloudy state in the country or some crap like that. There’s barely any sun in the summer. Gah. I need all the sunshine all the time! Except for that small detail that I have allergic reactions to it now. But still, I need it. Lol. We’re going out with friends tonight and I’m pretty sure I need to shower and get dressed and leave my blanket cave for that....but, ugh I can’t make myself move. Sorry, I just needed to complain before I went out and played nice. Lol 😂 - [ ] #chronicillness #chronicpain #chroniclife #invisibleillness #invisiblefight #ra #rheum #rheumatoidarthritis #rheumatoiddisease #autoimmunedisease #degenerativediscdisease #facetjointsyndrome #sacroilitis #sciatica #nervepain #painmeds #painmanagement #spoonie #spooniestrong #spoonielife #spooniesupport #spooniewarrior #butyoudontlooksick #SAD #depression #anxiety #seasonaldepression #seasonalaffectivedisorder #sunshineplease
11 1
Another day, another #spoonie adventure... today is #radioactive eggs. Yum. I'm at the #nuclearmedicine department today, getting a #gas#gastricemptyingstudy. Two days with no #painmeds was rough, but doable. But all morning with no #coffee?? I'm barely clinging to life here, people. Also, the toast sucked. But, almost done. One more imaging set, and I'm off to freedom, a bucket of latte, and a quick bit of Christmas shopping. Falalalafreakingla. 💛🎄🎄🎄😘 #spoonielife #spoonieproblems #chr#chronicillnessa> #chronicillness #chronicpain #chronicbullshit #scrambledlikemybrain #drytoast #gastric #gi #sickandtired #sickandtiredofbeingsickandtired #tummytroubles #overitalready
6 0
🌲 It's week 3 of the December #SpreadLove17 contest hosted by @spoonieessntls & @theunchargeables 🌟 Day 15: write a post telling us about the 3 items you'd keep and why. Remember to tag the hosts so we can find your post! Scroll for instructions on how you could win. Spread the love this December! 💙 Hugs, Char --------------------------------------------------- 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio. ---------------------------------------------------- #TheUnchargeables #Spoonie #unchargeables #chronicillness #Spoonies #SpoonieLife #ChronicPain #ChronicFatigue #disability #chronicpainwarrior #InvisibleIllness #autoimmune #supportgroup #lowonenergy #lowbattery #contest #spreadlove #win #StrongerThanYouThink #chronicillnesswarrior #autoimmunedisease #fibromyalgia #raredisease #pcos #endometriosis #migraine #butyoudontlooksick
5 0
🌿 @cannabam86 : "My journey with cannabis is something I'm proud of! In 2014, cannabis was a literal life saver. It helped in my getting clean from a 10 year battle with meth and heroin addiction. I've been clean ever since. It also treats my chronic, lifelong illnesses. I may not look sick, but since 2008 I've had hundreds of seizures. I was diagnosed with epilepsy and had horrific side effects from anti seizure medication including schizophrenia. The ONLY thing that has helped, has been cannabis. 💚 I was also diagnosed with a form of arthritis, and fibromyalgia; narcotic pain medications are NOT an option for me. Cannabis eases the symptoms I suffer from daily, and I'm grateful for it every day. Because of cannabis, I'm down to 1 pharmaceutical prescription. I advocate for my right to medicate in the safest, healthiest way possible; and for me, that's cannabis. 🙏 I advocate loudly, because I'm not the only addict in recovery who uses cannabis as a medication- and in doing so, many others." ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🌿 #legalizehealing #righttothrive 🙋 #natureheals #chr#chronicpain #blazedsociety #mothernature #healing #fitness #stonersunite #kusharmy #cannabiscommunity #plantmedicine #herbalmedicine #spoonie #spoonielife #chronicpain #medicalmarijuana #cannabispatient #hightimes #productivestoner #medicalcannabis #420 #keepitchronic #cannabissaves #selfcare #cannabisadvocate #spooniestoner #highsociety #ganjagirls #cannabiseducation #healthy
16 1
Do something new day 2352. stop by and see acWonderful new artist in Residence project at DMA's Center for Creative Connections. The Laboring Self, created by xstein burroughs and and Sabrina Starnamn colleagues at UTD that explores and gives voice to laborers. Left thinking about many things and what the meaning of words and images are in different contexts. #artisinresidence #contemporaryart #contemporaryartist #dallasmuseumofart #dma #happy #mindful #mindfulness #wor#work #work #perspective #invisibleillnesses #images #sel#self #self #ideas #share #voices #dosomething #dosomethingnew #dosomethingtoday #bonniepitmandosomethingnew #chronicillness #spoonie #spoonielife #chronicpain
13 1
Oh snow day, how I love thee!!! Cold days belong to us. I am the storm Yalp ⛈ #truelove #bridges #nyc #brooklyn #asthma #spoonie #spoonielife #human #whitman
2 0
Recently have been spraining my ankle often so have resorted to buying a new support so that I can get out of this cycle of it getting hurt, getting some what better and then hurting it again 😐😔 . . . #chronicpain #chronicasthma #chronicwarrior #chronicillness #spoonie #spoonielife #spooniewarrior #asthma #inhaler #tablets #sciatica #ibs #fastheartbeat #posturalorthostatictachycardiasyndrome #pots #nausea #depression #depressed #anxiety #anxietyquotes #ptsd #autism #Asperger #asd #quotes #ednoswarrior #bulima #nurishnotpunish #fightlikeawarrior
27 0
Loving my new little prayer box! We managed to fill up the other one with prayer stars, so now we have Mr. Narwhal here. He reminds me of the narwhal from Elf! 🐋 Gotta love Christmas movies! Do you guys have a favorite Christmas movie? The cartoon Grinch was always the fan favorite in our household! And as always, if you have a special prayer request, let me know and I will add your name in ⭐️ . . . . . . . . . . #spoonie #butyoudontlooksick #prayers #zebrastrong #faith #spoonielife #ehlersdanlossyndrome #chronicillness #invisibleillness #chronicpain #hypermobility #eds #tubie #gastroparesis #secretsanta #raredisease #dysautonomia #posturalorthostatictachycardiasyndrome #chiarimalformation #spooniestrong #narwhal #christian #dystonia #prayerbox #healing #recovery
101 2
For you God can do more than I can ever ask or imagine. With you, all things are possible. #dontstopbelieving #believeinmiracles
7 2
16 2
My lymph nodes are swollen painful grape 🍇 tomatoes 🍅 🤒🤕and my work has devolved from productivity to doodling little 🦊🦊 on my calendar📆 so I am just going to take an hour nap before I get back at it? It sucks when my days feel less productive due to brain fog 🧠🌫and like it takes me twice the time ⏱to do half the work 🗂📚📉😣😰🤯😴 so my half day is going to be a half day plus 😢. The worst part of having lupus is the constant worry that (a) I will be perceived as less productive than my peers and (b) my productivity loss will be attributed to my lupus. This is a form of internalized ableism. But it’s played out constantly with my disability coordinator, who often communicates that he needs proof I can succeed before granting me an accommodation which just seems ...backwards. Anyway, it’s a hard narrative to break out of and now you too have the rambling thoughts about my self-worth. In better news the cat loves it when i wear a robe because I think he thinks “oh thank goodness my parent is finally not naked.” #spoonielife #cozy #robes #naps #sigh #catsofinstagram
4 0
Been a tough day. I'm really trying to kick my skin picking and so my anxiety and my distorted views on food, hunger and my weight are pretty bad, then add in endo flare on top of major bloating and it's almost too much to cope. But the thing with bad days is they end, and we have all survived 100% of the bad days, whether it's physical pain or psychological struggles it is equally valid. And it's hard but it can get better. I hope everyone's day is okay and if not hey it's almost the weekend! #Endo #endometriosis #endowarrior #endosisters #chr#chronicwarriow #chronic #chronicillness #chronicpain #spooniesister #spooniewarrior #spoonielife #mentalhealth #mentalillness #eatingdisorder #skinpicking #anxiety #panicdisorder #altgirl #alternative #purplehair #tattooed #selfie
27 1
Olive looks really sad, but it is only because I was eating some chocolate and she wanted some (but obviously can't have any).. Her lies should not be given in to.
67 8
Sometimes the best thing for me isn’t necessarily the best for my body. Last night I made it to an aerial class for the second week in a row, then managed to go out and see Star Wars, and only got 4.5 hours of sleep (compared to the usual 8-9 I need to remotely function). I was dreading today, though Fridays are my shortest work day. But somehow I’m a lot more alert than I expected. Things hurt, but not at flare up level. And I feel happy and fulfilled with how I spent my busy evening. Find a way to do the things you love! You are a person first, and dealing with challenges second. . . . #aerial #aerialsilks #ehl#ehlersdanlosrome #ehlersdanlos #eds #hypermobileeds #hypermobility #hsd #zebranation #zebrawarrior #selfcare #healthybody #healthymind #spoonie #spoonielife
20 0
Omg what the actual is wrong with amazon?! What a shitty unreliable service!! Bought an item on #amazonprime yesterday, which actually said it was going to arrive today (this is rare, normally prime in our area takes a few days). All day the item's due to arrive before 8pm, then at 8pm on the dot the screen changes to this...wtf is this?! Why do you not know where it is or when it's going to arrive? Also great job with that guaranteed next day delivery 🙄😂 ETA Customer service are actually dealing with it really well though, first time ever...bless this person we're chatting to 🙂 #Amazon #Amazonsucks #wtf #sortitout #disability #disabled #spoonie #spoonielife #doggear
10 0
@Regranned from @return_of_reb - This goes along with my previous ig post.... Something I feel very passionate about is the fact our illnesses are invisible. . In both of these pictures I’m both chronically and mentally ill, yet in only one of these do I ‘look chronically and mentally ill’ by society’s standards. . I don’t think there can ever be enough of these posts because the misconception of our illnesses is something that drives me insane. . My appearance has been questioned many times by doctors in particular when I make an appointment about my mental health deterioration or pain increase, they comment that I look well though, as if the two correspond. . These are two separate issues as mental health apparently requires us to let our appearances and personal hygiene deteriorate. . However if anyone googles mental health they’ll realise very quickly it’s a versatile illness, one that varies from person to person and therefore symptoms vary. I personally at this time in my life go through period of numbness for example, showing no physical sign of my illness, how therefore can I look sick or depressed. . My chronic illness on the other hand is different in the sense I have good days and bad days, if I have a good day and am able to put on makeup, one of my favourite things to do, I’m considered not as ill as I claim to be. . This is not only false it’s ignorant and something doctors have regularly done to me. If our health professionals are doing this and they’re supposed to be educated on our illnesses, what chance do we have? . This is why we have the responsibility to educate the public on the reality of our illnesses. On the fact these illnesses are different for everyone and therefore have to be treated with the uniqueness they deserve just like the people who suffer from them🧡🌷 . . . #spo#spoonie #spoonie #spoonieproblems #spoonies #spooniesupport #chronicillness #chronicpain #depression #depressionquotes #pain #makeup #makeuplook #mentalhealth #mentalillness #mentalhealthawareness #positive #painflare #Fibromyalgia #fib#fibromyalgia #fibro #fibroflare #edrecovery #bodypositive #bodyimage #bodypositivity #crohns #cfs #lupus #endo
14 0
Ahhhh....home from volunteering at school, comfy clothes on, dinner ordered, and getting back to friends who messaged me about the test group! If you missed that announcement...check out my #wcw post this week and join us! . . Happy Friday! ✌🏻💜 . . . . . . . . . #autoimmunedisease #asthmasucks #boymom #believeinyou #beyoubravely #momoftwo #spooniemom #spoonielife #coach #cureforMS #chaseyourdreams #yogiwannabe #overcomingdepression #namaste #fitnessjourney #overcominganxiety #pow#powerofthemind #invisibleillness #chronicillness #multiplesclerosis #girlmom #power #pos#positivethinking #positive #positivevibes #MSwarrior #MSstrong #MSlife #MSmom
6 0
When you put together Christmas break and a worsening UC flare, that means sleep, naps, and some more sleep. #nausea #chronicpain #tiredfornoreason #ulcerativecolitis #spoonielife
12 0
Inkvember Day 28: Spirit (Tiny watercolor) + Timelapse . Spirit of the ocean. . . . . . . . . . . . . #Raindoodlie #Raindoodliedoodles #Inkvember #spirit #ocean #green #spo#spoonie #art#artlenge #art #artwork #watercolor #watercoloring #painting #watercolorpainting #alwayskeepfighting #spoonieartist #tinypainting #spo#spooniecommunity #spoonie #timelapse #arttimelapse #spoonies #spooniecommunity
16 1
Inkvember Day 27: Destruction (Tiny watercolor) + Timelapse I hate this one. I was very uninspired. 😤🙈 . . . . . . . . . . . . #Raindoodlie #Raindoodliedoodles #Inkvember #destruction #spo#spoonie #art#artlenge #art #artwork #watercolor #watercoloring #painting #watercolorpainting #alwayskeepfighting #spoonieartist #tinypainting #spo#spooniecommunity #spoonie #timelapse #arttimelapse #spoonies #spooniecommunity
21 2
i went to the christmas party with the people i work with, managed to be social and polite for like and hour, and then had to lie down on the floor in the next room. i lie down on floors a lot. anyway i got a ride home from a friend (💕💕) so i’m in bed now. #spoonie #spoonielife #chronicpain #chronicillness #invisibleillness #spooniecommunity
9 0
Playing around with my new Tarot cards. This is my first deck. I've only owned Oracle cards before ✨❤🕯✨❤🕯✨❤🕯✨❤ #fairytarotcards #dor#doreenvirtuetcards #doreenvirtue #doreenvirtueradleighvalentine #tar#tarotcards #tarot #newdeck #divination #spi#spiritual/a> #spiritual #beautifulcards #spoonie #spoonielife #chronicillness #invisibleillness
36 1
Don’t I know it. It’s all about perspective. #thisischronicillness • • (Www.onsizzle.com)
184 6
As a society I feel we are #addicted to busy-ness. We define ourselves by it like martyrs. I too am guilty of this. Taking time to slow down is SO IMPORTANT! Don’t get caught up in the captivity of activity. Holistic health isn’t just about food... . . . #busybee #busymom #busyness #slowdown #downtime #time #timeout #selfcare #breathe #ntplife #wisetraditions #holistichealth #holisticliving #healthcoach #homeschoolmama #spoonielife #destress #stressless
21 2
It's EEG time again! They did a really good job this time, in terms of wire placement and trying to keep them hidden. Also they had this awesome headband! It's the little things that make you feel better in times like these. Now I just have to keep Everly away from the wires for 48hrs!😅🧠 #eeg #eegtesting #48hrs #neurology #brain #spoonie #spoonielife #chronicillness
20 0
Day 15: throwback to healthier days So I wasn't exactly healthy in these pictures, my ED was still quite strong, but physically I was absolutely fine. I was healthier ☃️ They all date back to three years ago. That was when I was at my healthiest, totally weight restored. #christmasspooniechallenge #spoonielife #mentalillness #mentalhealth #edrecovery
27 2
To say over the last two and a half years hasn’t been a journey is definitely an understatement ✨ #potsturalorthostatictachycardiasyndrome #pot#potsygirl #potsyndrome #chronicallyill #invisibleillness #highheartrate #potsygirl #spoonie #spoonielife
6 0
It's my last day of infusions for the week and they will deaccess me until I come back on Monday to start all over again. This is another much needed treatment after having another flare yesterday then throwing up this morning, but luckily the flare was not as bad as my other ones. _________ Tomorrow is my family holiday party and I don't want to miss it. I missed Thanksgiving because of a flare and ending up in the ER the same day. I am just sticking to soft food and soup today because I really want to see my relatives tomorrow. _________ I am fighting to stay positive but some days it is hard. I am so grateful for so much, but the isolation of being sick and run down is getting to me today. Just reflecting to where I was a year ago and where I am now just can be discouraging. I just need to keep fighting to get better and know this too shall pass. _________ This cold weather is really hard on me as well. I can't seem to stay warm. With all the weight loss, I have no body mass to keep me warm. I layer up, but I am still freezing unless I am having a hot flash. I am also so fatigued all the damn time. ________ I started my Estradiol sample gel from my gynoclogist today to help with the menapausaul symptoms I am going through since before and especially since my surgery in September, so hopefully it helps. I see him in 2 weeks to discuss if we should continue or try something different. ________ I just have had a lot on my mind. I just need to give it to God and continue to stand on his word for healing and deliverance from this hard patch. I hope everyone has a blessed day. Be safe in the snow. To my fellow Warriors and Spoonies, keep fighting and hang in there! ________ #lup#lupuswarior #lupusfighter #SLE #lupus #lupusflare #lupussucks #lupusstrong #spoonielife #spoonies #fibromyalgia #fighter #mediport #gastroparesis #bladderpacemaker #autoimmunedisease #neurocardiogenicsyncope #neurocardiogenicsycopesucks #dysautonomia #dysautonomiaawareness #anemic #anemia #osteoporosis #onedayatatime #positivepeople #godisgoodallthetime #godislove #nevergiveup #strongertogether #gratitude #grateful
17 3
A huge thank you for being on this journey with me! I'm super excited to share a brand new piece with you in a matter of days 💘 . I always knew I wanted to be an artist, since around the age of 4 when I learned that some of my favorite images in books were made by hand by someone who simply signed their name in the corner 😍 . I still remember the moment that my soul knew I was meant to do that as well 🕊 . Overall, I only got to take two years of Art in high school and listened to others instead of my intuition, so I didn't take any art and college either. 🤷 . Yet, I was thrilled to be voted Most Artistic for my senior class in 2007 🦋 . I didn't start painting until 2010, and have been experimenting with all kinds of techniques and styles and subjects and mediums ever since! 💃 . My arthritis and own fears have held me back many times, but no more. I'm looking forward to creating a very large body of work in 2018. I have my schedule down and my goals for the year. Here we go! 💕 ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀✧♡✧ #womenempowerwomen #gettinghealthy #health #arthritis #thekushqueens #gold #art#artistte #colorful #selfcare #bodyposi #naturelover #makeup #love #inspiration #feminine #fashion #californiamodel #chronicpain #spoonie #spoonielife #cannabispatient #productivestoner #420 #keepitchronic #cannabissaves #cannabisadvocate #spooniestoner #fashionblogger #artist
18 0
“When I fear my faith may fail, Christ will hold me fast When the tempter would prevail, He will hold me fast I could never keep my hold Through life’s fearful path For my love is often cold He must hold me fast He will hold me fast He will hold me fast For my Savior loves me so He will hold me fast” -He Will Hold Me Fast by Keith and Kristyn Getty 💛 “And I am sure of this, that he who began a good work in you will bring it to completion at the day of Jesus Christ.” -Philippians‬ ‭1:6‬ ‭ So thankful for the life and ministry of R.C. Sproul, and for these encouragements.
8 1
I don’t post a lot of pics of us together - but here we are! Waiting at the hospital. It’s an appointment for my mom, trying to get her approved for an electric wheel chair! And since I’m super sick I’m wearing a mask. #spoonie #sick #standardpoodle #standardpoodlesofinstagram #teamphoto #servicedog #servicedogintraining #sdi#sda> #sd #hospital #waitingroom #alwayswaiting #spoonielife
10 1
Something I feel very passionate about is the fact our illnesses are invisible. . In both of these pictures I’m both chronically and mentally ill, yet in only one of these do I ‘look chronically and mentally ill’ by society’s standards. . I don’t think there can ever be enough of these posts because the misconception of our illnesses is something that drives me insane. . My appearance has been questioned many times by doctors in particular when I make an appointment about my mental health deterioration or pain increase, they comment that I look well though, as if the two correspond. . These are two separate issues as mental health apparently requires us to let our appearances and personal hygiene deteriorate. . However if anyone googles mental health they’ll realise very quickly it’s a versatile illness, one that varies from person to person and therefore symptoms vary. I personally at this time in my life go through period of numbness for example, showing no physical sign of my illness, how therefore can I look sick or depressed. . My chronic illness on the other hand is different in the sense I have good days and bad days, if I have a good day and am able to put on makeup, one of my favourite things to do, I’m considered not as ill as I claim to be. . This is not only false it’s ignorant and something doctors have regularly done to me. If our health professionals are doing this and they’re supposed to be educated on our illnesses, what chance do we have? . This is why we have the responsibility to educate the public on the reality of our illnesses. On the fact these illnesses are different for everyone and therefore have to be treated with the uniqueness they deserve just like the people who suffer from them🧡🌷 . . . #spo#spoonie #spoonie #spoonieproblems #spoonies #spooniesupport #chronicillness #chronicpain #depression #depressionquotes #pain #makeup #makeuplook #mentalhealth #mentalillness #mentalhealthawareness #positive #painflare #Fibromyalgia #fib#fibrogia #fibro #fibroflare #edrecovery #bodypositive #bodyimage #bodypositivity #crohns #cfs #lupus #endo
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I've been agonizing over this moment all night. I woke up dreading the decision. I do not take medication lightly because it doesn't usually mesh well with me. Reading reviews left me feeling like I was being pulled by two groups of completely different experiences and I can't know which one I might fall into. But it's done. First dose down. Praying hard. ⭐ #cymbalta #fibromyalgia #hopeful #chronicillness #chronicpain #autoimmunedisease #support #spoonielife
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Let’s talk #adversity. For me personally when you can bench 75lbs over body weight and are only getting Stronger by the week. For those who are active and aren’t active may or may not know the amount of work it requires to hit goals not just running on a treadmill not just hitting arms it’s time money sacrifice patience pain above all at gym work school hell even in the bedroom when you are soar you feel it lol point is you reach these personal PRs (personal records) and you are proud. And for those who know the feeling of a plateau frustrating. I’ve been there taking Double pre work out trying to catch up no luck just a shit feeling of anxiety lol so imagine all this work and everything you’ve endure just to lose it In a matter of a weeks. I got out the hospital at 130 lbs could not even hit 45s with out fighting for my life I was in disbelief I didn’t even want to go back to gym just to hear and see the look on Friends faces feeling sorry for you. To this day I’ve not been able to hit any of my PRs So would you continue or just give it up? One things is for sure staying home feeling sorry for self and complaining will never ever get you a single ounce of strength and if you need a year to catch up you best start today. It was hard at till this day I still get angry thinking at where I could have been or how much I lost but this is a lifestyle not a race not a seasonal change. I genuinely enjoy my time here and look forward to every workout it’s the one time I can’t feel the disease it really does fuck off for the time being. Progress does come and does show it will Take off just have to put in the time and understand it will take months to see real results I hope to soon post about breaking my PRs to show that a disease is nothing but a small setback and not an excuse.
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Love showing people how easy it is to use oils 💜 Who thinks they aren’t the “oil type“?
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Photo from last night cuz I look like hell 😂 went Christmas shopping round 2 today 😪 finally done, but omg... mall rental wheelchairs are the most uncomfortable things! My back and hips are still so sore! I also just hurt my shoulder carrying buckets of water (I know I know, I was trying to be helpful) but seriously they weren't heavy buckets but I felt my shoulder buckle and nearly pop out, since I've stopped strength training this is happening more and more often, I really need to get back to the physio, that will be a problem for the new year. For now I'm trying to survive the busy hustle of the festive season 🙈 thank you for the lovely comments on my last post, once again my reply function isn't working, neither is my DM's right now, so I see you, I just can't talk❤ #chronicpain #chronicillness #chronicallyill #invisibleillness #cro#crohnsdisease #crohns #ibd #autoimmunedisease #hypermobilitysyndrome #hypermobilityspectrumdisorder #hypermobile #spoonie #spooniestrong #spoonielife
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