Rough days are no match for coloring! Lol It always helps me pass the time and distracts me from my symptoms a little! My skills have definitely improved over time 👍🏼#chronicallyill #gastroparesis #spoonie #ehlersdanlossyndrome #invisibleillness #posturalorthostatictachycardiasyndrome #coloring #coloringbook
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I have a hard time taking compliments; acknowledging that other people see the value of my skills or my life. I guess it’s just easier to be self-deprecating. But, every year on my birthday (12/17), I choose to look at all I’ve accomplished in my difficult life with pride. I also give praise and gratitude to my co-workers, friend, family and God for carrying when I felt like I couldn’t go any further. Each day I live is blessing and I cherish it. I saw this image online and wondered why it’s always been hard for me to ask others to support the book I’m most proud of, my memoir, Misdiagnosed: The Search For Dr. House. It’s my tool to advocate for people struggling with misdiagnosis, chronic illness, chronic pain and a crisis of faith. I guess I felt like it would be begging to ask everyone who claims to be my friend or my family to buy my books, to share my posts or videos or do something to show that my life’s mission matters to them. I guess I didn’t want to be disappointed. But, by not saying anything, I let myself down. My grandma Nettie used to say “a closed mouth doesn’t get fed.” And mother said,”by asking you have a 50-50 chance at yes. By saying nothing you have a 100% chance of a no.” I’ve decided not to let another year of my life go without saying something about this and anything else I want. I will release my next memoir, Chronic, my journey to find peace despite emotional and physical pain. I don’t know if I will make another request. But, I know I will face this new year of life with less fear, less hesitation and less concern about whether or not anyone else will let me down. I’m focused of my actions. And, I vow to have no regrets. #birthdaywish #noregrets #eachdayisablessing #memoir #autoimmunedisease #invisibleillness #chronicillness #chronicpain #igg4 #disability #spoonie #africanamerican #women
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New #harness alert, #JuliusK9 £9.99 in Dash's size 😉 Enjoyed another big hike with Dash today! We walked up through town, which was packed with kids everywhere cos it's the weekend, and my bf bought a few bits from the supermarket. Dash did some fantastic #engagedisengage outside, I have a great video to post! Afterwards we joined the canal to the lake, then followed the farm & fields home 🙂 I started getting seizey in the last 15 minutes, and apparently Dash was so adorable during his seizure response...I do wish it was easier to get on film, but my bf's always busy rewarding Dash and making sure I don't fall!! We saw a ton of kids on this walk (age 2-teens!), lots of sheep, horse riders, and a few other dogs. Dash was really, really good 🙂 #dogtraining #positivereinforcement #forcefreetraining #happydog #SDiT #assistancedog #servicedogintraining #dogwalk #photography #dogphotography #amateurphotography #amateurphotographer #spoonie #instadog #dogsofinstaworld #ukdogsofinsta
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Only Gingerrunner @ethannewberry can get me out of bed before 7am! 😂🤣 Let the scavenger run/walk begin 🎄🎅🏻🎁
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A tastier way to get all those supplements in ☺️ I love me some smoothies 💙
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Repost from @patrickbiller | Fresh celery juice is one of the most powerful and healing juices you can drink. Just 16 oz of fresh celery juice every morning on an empty stomach can transform your health and digestion in as little as one week. . Celery juice has significant anti-inflammatory properties making it highly beneficial for those who suffer from chronic fatigue, migraines, IBS, and arthritis to name just a few. . Celery juice is also strongly alkaline and helps to prevent and counteract acid reflux, relax the nerves, reduce blood pressure, and clear up skin problems. . #medicalmedium
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Well this is just splendid. Bladder & kidneys have been murder the last few days. My pee is now a lovely festive red & my tube keeps blocking with thick sediment. I'm also alone until tomorrow evening & terrified my SPC will block completely with me having no one here to help change it. FML #suprapubiccatheter #spc #catheter #blood #interstitialcystitis #IC #fowlerssyndrome #spoonie #spoonielife #spoonies #spoonieproblems #chronicillness #chronicpain #chronicallyill #alone #lonely
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Waiting for my bday massage.
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Today's Puppin sketch. Puppins first Christmas. #dailypuppin #dailysketch #ske#sketch/a> #spoonie #spoonielife #sketch #puppy #fun #happy #cute #puppin #goldenretreiversofinstagram #goldensofinstagram #wellbeing #anxiety #wellness #mentalhealthawareness #christmas #christmastree I'll put a pic up of our actual tree when we've decorated it!😊
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A lovely customer, after buying gifts, just returned to the shop with these mini hand warmers, the shape of little hot water bottles, because I mentioned #raynauds during a regular pain-rant. Thank you kind lady. #randomactsofkindness #ChronicPain #FibroWarrior #thestruggleisreal #CFS/ME #Pain #CBD#CBDcated #CBD #SheffieldTeachingHospitals #NHS #fibromyalgia #spoonie #chroniclife #pacing #painmanagement #RoyalHallamshireHospital
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Surgery Update Yesterday was the most emotional stressful day, but we kept HOPE. Between 9am and 4pm I would receive good news about my surgery and then be hit with a huge setback. The status of my surgery changed almost every minute. At 2pm insurance had approved my surgery, but not the hospital stay. HOW is that possible?!? Even with this bad news, I decided to go through with the hospital preop. When this was over it was 4pm and there was still no change. With it being Friday afternoon I thought I would be heading home without surgery. At 4:03pm my doctor office called while I was leaving the hospital. The office manager worked all afternoon (even though her workday ended at noon) to fight for me to have surgery on Monday! She never gave up hope. My state representative Chris Malone and his Chief of Staff Dennis Berwyn emailed me all day trying to work with my insurance. They did not give up hope. Insurance is still causing some issues, but because of hope and the help of these people I will be HAVING my brain surgery on MONDAY! Thank you for all the prayers and positive thoughts, they were very appreciated and helped me keep hope💜 I will keep you updated😊
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Video from the Zumba Holiday event. 😀 Thank you to @suze977 for asking me and @robinamelia to join her on stage. It was so much fun. I think I didn’t go half bad for having received an injection in my hip bursa earlier in the day. I took it easy throughout the rest of the two hour event. Today is definitely a rest day!!! I don’t want to miss out on life due to my pain...that’s why I pushed myself to go and I really had fun!! #ZumbaFitness #nostagefright #fitnessjourney #bodyconfidence #spoonie #cardio #exercise #fitfam #fitgirls #gymtime #losingweight #fatloss #gastricbypass #strongertogether #strongwomen #transformation #wei#weightlosstransformation #weightloss #weightlossjourney #workout #zumba #zumbalove #zumbainstructor #enjoythemoment #obesitysurvivor
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Cat in the window... I do so love the winter light; it's low approach, the sharp nip in the air which seem almost visible, the blues and the pinks...so beautiful!! 🐾🐱 Today it's the shadows, silhouettes, subtle soft hues of sepia floating through my bedroom window...which Ismy was also exploring! 💋😴⛅️❄️ • #scottishwinter #winter #winterlight #hygge #duvetday #fibrowarrior #spoonie #spoonieadventures #scottishgirl #swedishgirl #30something #furbaby #cat#catsofinstagram #cat #artistic #photography #fotografi #nerd #nerdygirl #geek
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Getting some rest in before making more holiday mail, only 20 left to make! 😱 I love my new die cutting machine, it’s amazing! 😍 Feeling exhausted from all this pain & lack of sleep 😴 Think a nap is needed! Keep smiling 💖 #rest #spoonie #holidaymail #diecutting #sizzixbigshot #love #amazing #earlypresent #exhausted #pain #lackofsleep #chronicillness #chronicpain #napisneeded #keepsmiling #snapchatfilter #smiles #headache
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Mission accomplished last night, let’s see what Saturday brings! #crohnsiscray
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After waiting for my avocados to ripen alllllll week I finally got a good one! 🙌 What is it about cutting into a perfectly ripe avocado? 😍 so satisfying! @daveskillerbread avocado🥑 toast with a sunny side up egg 🍳 for #breakfast today! 😊 #saturdaymorning #thrivingonwellness
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LN 😘
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Having severe food allergies, and lots of them, is not the same as "dieting". We may have the figure that many people starve themselves for, but did you catch a key word there? STARVE. I have heard "I would kill myself if I were you," from COUSINS, CLOSE FRIENDS, STRANGERS, RECEPTIONISTS AT DOCTORS OFFICES and every fucking person in between. Is that supposed to give me STRENGTH? Make me feel STRONG for pushing on? You're WRONG. It confirms the thoughts I fucking fight day in & day out. Shut your god damn mouth about MY fucking weight and MY fucking body. We are doing the best we fucking can, and that is MORE than enough for me. 🖕🏻 **edit: and this isn't even touching on the subject of nausea from my chronic conditions, and the troubles just ATTEMPTING to eat when I AM hungry can cause me. Invisible illnesses come in every shape, size, nationality... They don't discriminate. Count your blessings.
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Fun day in the city hanging with my second family 🎊 @heavcnlyfire @lkerr322
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Weekends are so hard. I feel like I’m living a double life again; working in the week and appearing ‘normal’ by supporting myself with painkillers, and then getting to the weekend and having my body shut down on me. The worst thing is, I’ve actually got a much better quality of living than so many other sufferers out there. It feels like I can only concentrate on one thing at a time, one step in front of the other, so I’m prone to forgetting the little things that keep you sane, like family interaction and friendships - it all ends up slipping. The people who have stuck with me regardless are my angels - I hope they feel the good thoughts I send out to them because sometimes that’s all I can give. I don’t want to be defined by my disability, but sometimes I just want to shout it from the rooftops so that everybody knows that I’m not like everyone else and I have a hard time keeping up. I HAVE A DISABILITY. I AM CHRONICALLY ILL. I HAVE A LIFE LIMITING CONDITION. I AM NOT NORMAL. Am I just making excuses for myself? I’m not asking for people’s help. This is how I cope. I just need a nod of acknowledgment. A “we see you, girl”. Then it’ll be Monday again and I’ll be back to putting one foot in front of the other until the next weekend. #cfs#cfsa> #cfs #myalgicencephalomyelitis #millionsmissing #chronicillness #spoonie #spoonielife #spoonieprobs #doublelife
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Old Man Winter: happy 41rst. Me: F U!! #spoonie #snow
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I discovered yesterday that I can totally get away with wearing full on pyjamas under my dungarees 😉 Which is so great! • I haven’t been able to shake the majorly rubbish feeling I’ve had the last few weeks 😫 I know it’s the medication change & I’ve got to go with it for now. I am seeing my consultant this coming week, so I’m hoping he’s in agreement with me & I can change back to what I was previously on...I really can’t stand the side effects I’m experiencing much longer 😖 • #invisibleillness #chronicillness #chronicpain #chronicfatigue #mecfs #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlostype3 #hypermobileehlersdanlossyndrome #hyp#hypermobilityrome #hypermobility #hypermobilityspectrumdisorders #posturalorthostatictachycardiasyndrome #spo#spoonielife #spoonie #selfcare #emotions #emotional #anxiety #emotionalhealth #mentalhealth #dontjudge #bekind #littlethings #smallachievements #smallaccomplishments
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It’s true.. if I had enough coffee I could rule the world 🌎! Plus we all know I’ll always be a princess 👸🏽 haha
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The Dr's have asked for another sample, their not completely convinced I'm recovered. If I fail the tests I will be referred to the hospital for scans. My fibro symptom today is fatigue. It's 2pm and I've only just woken up from twelve hours of sleep. Morning! #fibromyalgia #fibro#spoonie#invisibleillness #cfs #chronicillness #chronicpain #sleepingbeauty
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When the kids make you breakfast. Holy fruits!!!! Makes my heart swell that they know what a great breakfast looks like. Notice how they tried to make the mango look pretty. Oh and @absofruitlymel and @fullyrawkristina they were trying to make their platter look like yours!!! How do you think they did? #medicalmedium #medicalmediumkids #lifechangingfoods⠀⠀ #muneeza_medical_intuitive ⠀⠀ #modernmedicinewoman #vegan #veganfood #vegansofig #plantpower #plantbased #healing #healingfoods #chronicallyill #chronicillness #rawfood #yogafood #fitfood #paleo #wellnesswarrior #fruit #fruitlove #natureheals #foodasmedicine #thyroidhealing #foodismedicine #spoonie #juicing #juicefasting #livingplantnectars #livingnectars
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(This is a tbt pic) I just wanted to make a post about how grateful I am for everything God has blessed me with🙏🏻 I was on the verge of taking my own life to escape the horrendous, indescribable pain that Endometriosis caused me every single moment of my life😷 I was slowly withering away and my body was giving up. Luckily, God blessed me with an incredible Excision Surgeon (since my last one moved states) and now I’ve been given some relief to my agony😭🙏🏻😭🙌🏻 . . . . #spoonie #chronicillness #chronicpain #chronicallyawesome #ehlersdanlossyndrome #gastroparesis #fibrowarrior #fibromyalgia #mentalhealth #anxiety #depression #ptsdrecovery #endthestigma #zebraspoonie #gastroparesisawareness #endometriosis #endowarrior #dysautonomia #fightlikeagirl #chronicfatigue #chronicallyfabulous #endometriosisawareness #edswarrior #spoonielife
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Definitely feeling like Psyduck today- woke up with a migraine... the joys of my period. 😩 Took a zomig and gonna try to rest until it hopefully goes away. #psyduck #migrane #migraineday #migranessuck #chronicmigraine #spoonie #sickchicklife
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Today May and July wanted to workout with me!! Got it done but had to be a little more bendy at times to get around them!! #saturdaymornings
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Though my tree has been up since Nov 15th last night was the first night all the decorations were on it 🎄 MS Will never ruin my Christmas spirit! my new additions this year Jack and Sally, can you find them? #mainfloortree #christmas #mswarrior #red #glitter #thewilsons #gold #thenightmarebeforechristmas #tetris #lights #tree #msfamily #cheer #everythingthatsparkles #skirt #msdontmesswithchristmas #cbd #todayisagoodday #myfavoritetimeofyear #spoonie #mssucks #curems #chronicallyill
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Mittagessen. 😁 Super schnell und einfach: Kürbis mit Paprika, Quorn und Käse. Und während alles im Ofen ist, kann man schnell mal durchsaugen. Das habe ich heute gemacht. 😀 Lag heute relativ lange im Bett, weil ich gestern nicht schlafen konnte und dann nochmal aufgestanden bin und lange Riverboat geguckt habe. War interessant und lustig. Aber was ich mich ernsthaft frage: Was wollen Männer immer mit diesen Dummchen? 🤦‍♀️ Egal, das Rätsel werde ich (heute) nicht mehr lösen. 😂 . Wesentlich relevanter: Hier ist jetzt zumindest mal gesaugt und sonst passiert heute nicht mehr viel. Papierkram wartet übrigens auch immer noch... 🤷‍♀️🙈 . . . . #healthy #gesund #bio #organic #healthyliving #healthyeating #cleaneating #veggie #vegetarisch #vegetarian #gemüse #laktosefrei #histaminarm #fruktosearm #glutenfrei #cfsme #chronischeserschöpfungssyndrom #chronicfatiguesyndrome #mitochondrialdisease #millionsmissing #butyoudontlooksick #cfshealth #spoonie #spoonielife #käferleben #meperspective
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I thought I would do a small update, I finished a month of the G.I. meds and it is in a life-changing difference but it does help a little bit which is awesome 😄 And due head 🧠 and neck pain my neurologist started me on a new medication with the hopes that it would help but so far it hasn’t 😅 we are gearing up for Christmas in my household and yesterday we did a bunch of Christmas shopping! - - - - - - {#anxiety #boxer #chronicpain #chronicillness #chronicallyill #dysautonomia #eds #edsawareness #ehlersdanlossyndrome #gastroparesis #ivtherapy #posturalorthostatictachycardiasyndrome #potsie #spoonie #♿️
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Bag changes are more fun... when your 8-year-old niece helps you get it done! 👍🏼 Thursday night I slept at my parents’ place to celebrate my Dad’s birthday and to give Morgan her presents since I didn’t feel well enough to attend her 3rd birthday party the day before. I was also due for a bag change, but even though I can now do it completely on my own, it’s always nice to have help, especially if Stella starts acting up! So, Lydia wanted to be my little assistant. She warned me whenever Stella started getting active so I could wipe the area clean, and she showed just how detail-oriented she is by helping me measure my stoma (“No, Auntie, you need to cut the wafer more!”). So far I haven’t had any leakages, and for that I’d like to thank my helpful and loving niece! I think we may have a future stoma nurse in the family! 😉 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #ostomate #ileostomy #ostomy #stoma #girlswithguts #ostomyawareness #chronicillness #invisibleillness #spoonie #chronicallymotivated #eds #ehlersdanlossyndrome #zebrastrong #dysautonomia #orthostatichypotension #pots #mastcellactivationsyndrome #endometriosis #endowarrior #klippelfeilsyndrome
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Our Advanced Formula Fat Fighter supplements are great for those days or nights when you know you’ll be indulging in more calories than you should. 😁 Simply take two supplements during or up to one hour after your heaviest meal of the day and they will block approximately 30% of the fat and 70% of the carbs in your meal. Then your body doesn't have to absorb them! #workfromhome #chocolate #wra#wraps #natural #lupus #chronicillness #weightloss #gym #spoonie #goals #heal #vitamins #Cushing's #coffee #keto #ene#energy #winter #exercise #greens #protein #wrap #fat #skin #wrinkle #energy #mom #workout #stretchmark #cleanse
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We eventually got to fly out to Germany on Monday for my daughter’s photoshoot & landed about 30 hrs later than planned. We were taken to the studio & she got straight to work, we checked into our hotel that evening, found a restaurant down the road, before getting to bed a lot later than usual. We checked out at 10am and then spent the next 3 hours looking around a wonderful Christmas market before being picked up & taken to the next photoshoot, finishing there at 6pm to be taken to the airport for our flight back to the UK just before 10pm. Once we landed we had to wait 45 mins before we could get off the plane. When we finally got off I knew I was starting to crash, my legs and arms got heavier and heavier, I was struggling to talk let alone put one foot in front of another and one by one the rest of the passengers walked past us & out of sight as my walking got slower & slower. After passport control I then had to find my husband & son who were waiting to pick us up. We finally got home at 1am, my husband carried our sleeping children to bed, guided me to ours & unloaded the car. The only reason I made it to the sofa on Wednesday & Thursday is because my husband all but carried me, there wasn’t a muscle or joint that didn’t hurt, my head was spinning & I couldn’t bring myself to talk. It was like the reverse of the saying ‘the lights are on but nobody’s home’ I was in there, there was someone home but I couldn’t make myself switch on a single light to show anyone I was there. I took any painkiller I could, even the prescription only ones that I’ve been avoiding because of how they make me feel. I slept more than I was awake, didn’t eat a great deal, I didn’t have the strength to lift my arms and I felt so sick & my throat hurt so much it put me off eating anyway. The only think I managed to do was try to meditate as I lay on the sofa & I willed myself to practice my yoga before bed as I knew I would benefit from it the following morning. Yesterday I managed to take the children to & from school, very slowly & the rest of my time was spent lying on the sofa. Today I’m going to add going to the shops, if only I could go in my PJs it would be so much easier.
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Day 3 of 12 Days of Spoons: Medication This is what a week’s work of medication and supplements looks like for me. Medications include Imuran and Celexa. Supplements include Turmeric, Vitamin C, Multi-Vitamins, Calcium, & Probiotics. Not pictured is my Stelara injections every 8 weeks. Whew. We are hoping to knock off some meds once a scope shows that I’m officially in remission, hopefully in early 2018! 😊 . . . . . . . @unumdesign #unumfam #spoonie #invisibleillness #cro#crohns #crohns #crohnie #cro#crohnswarrior #cro#crohnsdisease #ibd #chronicillness #chronicillnesswarrior #crohnsdisease #crohnswarrior #crohnicallyfabulous #spoonielife #chronicallyfabulous #autoimmune #autoimmunedisease #ibdwarrior
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So annoyed these eyes are starting to flare again. I've had about 5 months of no swelling and little irritation. Now the dryness and swelling has begun. It's one of the most uncomfortable symptoms of dermatomyositis. My gums also flare during this time. Salt is an irritant, I've been craving foods with calcium and yet dairy has never been comfortable for me to digest so I've committed to my calcium and vit d regimen as well as castor oil. However, I can't help think I am missing something and perhaps it's just the realization that no matter how much we try to control our environment there is always some control we must give up and allow to take place. I pray this is a minor set bet and will relieve itself in a few days or a week. It's extremely frustrating when I have filming next week and a major opportunity to work in the industry waiting to play out after the new year. It is not a good time for a flare of this magnitude. This is the reality of chronic illness. #detmatomyositis #chronicillness #chronicbeaute #calcium #eyes #swelling #heliotrope #autoimmunedisease #rawarrior #flare #spoonie #spoonieproblems #chroniclife
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La mia Rebecca! La prima volta che l’ho portata.. era l’8 dicembre e c’erano 3^. Sono moooolto furba! Pg: Rebecca (One Piece) Ph: @liv_rota #me #meow #love #cute #kawaii #happy #smile #girl #girly #fibromyalgia #fibromyalgiawarrior #life #cosplay #cosplayer #cosplaygirl #instagood #selfie #fun #funny #spoonie #pink #pinkhair #gladiator #onepiece #rebecca #onepiececosplay #anime #sword
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Just got this book on Apple. Very pleased thus far.. will be reading while on break. Impressed✨ #hownottodie #boo#booksalth #books #reading #readingabook #onlinereadingbook... #healinglyme #healingebv #chronicillness #chronicpain #invisibleillness #spoonie #staywoke
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